Just came back from a doctor appointment. Finally, after one year with no doctor. Young and new in town,. A very nice doctor that seemed interested in helping me. He asked me to tell him everything that I had tried since my dizziness started (3 years). He asked me to give him a chance to read more on the subject. Said he was open for any suggestions. Now, I'm wondering what I should do. Should I try MAV medication, even though I never had any headaches? For those who tried them, what are the side effect?

MP,

I've never taken the MAV drugs, though I know there at least used to be a couple people on this board who tried sandomigraine (I think that's the name). There used to be a person, Jen30, who had MAV, and I know she was on amitriptylene for a long while and it seemed to have helped her. She was eventually better and able to get off it, if I recall correctly. You might want to look up some of her old posts. Also, search for an old post titled "Vestibular Migraine Treatment" started by shen. Looks like you might find some info there.

I recently also got a new GP, and she's great, and I can totally relate to how good it feels to have found someone good. My previous one knew nothing about inner ear, and basically refused to learn anything more and also didn't refer me on to a specialist, she thought so much she knew what she was doing. Ha! I went around her to an ENT and finally could begin getting better from there. Good riddance to bad rubbish!

Did you see our little thank yous to Subs in other languages got deleted? Better stick to English!

T

Hi there MPaiement,

Just to second what Treefarmer has said, I would ask your doctor if you can try pizotifen - also known as sanomigran. Of all the people I know with MAV, which is quite a few now, this is the drug that seems to have the best results. By the way - don't be put off by reports that MAV is episodic, doesn't cause continual symptoms etc.... The last time I saw my neurotologist - the one I see now is fantastic, he said that there simply aren't any definite answers with this dizzy crap. Basically, he said that if people hadn't recovered, responded to VRT sufficiently, they often tried a migraine drug on them, regardless of whether their test results for inner ear dysfunction were positive or negative.

Sorry to hear you're still feeling dizzy, you were there at the beginning of all this rubbish for me - and like you I was such a long term sufferer. Don't give up hope, I nearly did and I was wrong to. Try the drugs - you have nothing at all to lose. Fantastic you've got a good GP on board, you deserve a break,

best,

hbep

Thank you. I will mention the name to my doctor.

Treefarmer - Yes I noticed. Probably because they need to understand what is written - editing purposes.

Hi MP,

Yes, I say try it with our doctor's approval; it can't hurt, and you may benefit! You can always go back off it if you don't get the results that you are looking for.

I tried Amitriptyline with wonderful results. NO symptoms within three days. However, I didn't like dealing with the side-effects, so I stopped after a few months.

Unfortunately, pizotifen - also known as sanomigran - is not available in the United States. My pharmacistprovided me with medications that are similiar and available within the US, as well as how the pizotifen works, versus how the Amitriptyline works. If you are interested, and with the Moderator's permission, I will provide those medications, etc. on here for you.

I say, TRY IT MP, you have nothing to lose!

How wonderful that your new GP is so interested. We need more medical professionals like that. Big hug!

Thanks Wowwwweeee.

What were your side effects? Are these drugs available in Canada?

Changing subject, I remember that you had changed your nickname. How did you do it?

Good Morning MP,

The side effects of the Ami for me were a racing heart beat and a feeling that I wasn't able to swallow properly.

The racing heart beat is a very common side effect, and once it was explained to me that my heart would be okay, I was pretty okay with that.

The problem swallowing is NOT a common side effect, and it was thought that maybe I just had a good case of "dry mouth" from this medication, which is normal. I have recently gotten a new prescription for this, and am thinking of trying it again on a low every-other-day dosage.

I am not sure if this medication is available in Canada, but if you call your local pharmacy, they can tell you. I am in the process of getting the other medication list together and will first e-mail the Moderator with this information to see if it's okay to post. You might find something helpful there.

As for changing my user name on here, you shouldn't re-register with a new name without asking permission of the Moderators first (review the Posting Rules). My user name was changed back to this one by the Moderators. Just a thought, but maybe you could e-mail the Moderators about requesting a user name change?

Big Hug!