Hi everyone, I am new to this board. I have a five year old son with high functioning autism - aspergers. We found out after I was pregnant with our second child. She is now two months old and already I am fearing she may be autistic. Does anyone remember things about their babies...I have been reading things online and she has many symptoms. She does not respond to her name when called, does not focus on faces of anyone, just lights or objects. She scratches and doesn't seem to like to be held, only walked and bounced around. She rarely sleeps during the day for more than 15-20 minutes at a time, and then only in a swing. She has many digestive problems...we have tried her on all kinds of formulas and now goats milk and she is still very gassy and fussy. I have been crying all day because I am not sure I can take having another child with this disorder. I have not felt a closeness to either of my babies - they just don't seem to respond or care who is with them...and it breaks my heart. anyone out there who can relate???
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I Love LJC
10-04-2004, 06:50 PM
Try carnation good starts .Alot of babies are colicky 4 to 6 months.Maybe have her Ped check her iron.
lisra
10-04-2004, 07:17 PM
Does your daughter cry a lot? Does she spit up a lot? The things you described sound similar to my (now 11 yr old) son. He is not austistic but at 6 months of age when he was not getting better, he was finnaly hospitalized and tests were done. They discovered that he had a very bad case of REFLUX. After this was treated he began to be less fussy, wanted to be held, and even began smiling: )
As far as what I remember from my 7 year old son who IS autistic......When he was a baby he appeared perfectly normal and developing rather well. It was not until he was about 18 months of age that we noticed things. The thing that we noticed the most was his language. He talked and babbled normally but after one years of age, he said nothing, only grunts and moans. He began ralking again at age 3.
Good Luck ;)
Al & Matt's Mom
10-04-2004, 08:31 PM
This sounds like colic to me. Both of my kids had colic. It went away when I found the right formula. Nutrasoy for my daughter and Nutramigen for my son. They both eventually switched to Good Start. My daughter is not on the spectrum and has no issues. My son is PDDNOS.
ang64063
10-04-2004, 11:41 PM
What about Prosoybee? It has been so long since either one of my kids have been on formula that I would not know what one brand to recommend. I would say any formula that is soy based would be better than regular formula. You can also try looking at you local healthfood store and see what they have to offer for baby formula.
Good Luck
Al & Matt's Mom
10-05-2004, 10:06 AM
With my daughter, I had to try many different types of formulas. Nursoy was the 4th soy formula I tried. I found with the right one you could tell within a couple of days. With my son, I tried about 30 formulas before Nutramigen. The dr said don't keep switching, but I'm very glad I did.
I Love LJC
10-05-2004, 05:08 PM
ResearchSoy and see if you think it is right for your child with my ASD daughter if i would of known then what i do now no way would she of used it. Some are real allergic to soy also.
NaomiR
10-05-2004, 09:55 PM
My oldest son (not autistic) was a great nurser and bottle feeder. He never needed any special formula or milk. He did not exhibit any signs of colic and was a very happy calm baby. However, he does have food allergies.
My middle son (not autistic) cried non-stop from the minute he was born. He NEVER stopped crying. I recall answering the phone one day, son was then 3 months old, and my friend asked why he was screaming...what was wrong?? I simply replied, "Nothing, he is always this way", and had to talk over the loud screaming. I would, at times when my stress level was elevated, wake my husband up at night (even though he had to work the next day), tell him that I love my son but I can NOT handle another minute of him crying. My loving, kind, and thankfully understanding husband would take the baby outside and walk up and down the street at 2 am, trying to calm my son. My oldest never really bonded with my middle. Not because he didn't want to, he truly wanted a baby brother to play with, but because I always said, "Leave A alone, he isn't happy...or leave A alone, he is finally happy." Well, at one year of age we discovered he was SEVERLY lactose intolerant! Of course, the entire first year of life, while nursing, I consumed milk and dairy products. The first thing I had when he was born was a milk shake.
My youngest son (not diagnosed autism but I suspect) was a very happy baby. He was strictly nursed for a year also. He was sooo calm and quiet. We had to force him awake to nurse for months! He was so peaceful that when he did cry it startled us. We did not notice a change in his behavior or developement until he was 6 months old. At this time we started oatmeal cereal (infant) and EVERYTHING changed. His temperament stayed the same. He is still a typically pleasant child (as long as we are not around strange children or I am cleaning the house or cooking food) but his development changed and so did his growth.
I agree with the others. I am not sure that goats milk is the best for children that young. However, I would continue to change formulas until you find one that works best for your daughter.
I also wanted to add that my middle son did not like to look us in the eye as an infant. He would deliberately turn away from us. My oldest was also fascinated with ceiling fans...he would look back and forth at restaurants from a ceiling fan turned on to one not turned on..over and over. Neither of them are autistic. It may just be part of her personality.
I can understand your concern though and how overwhelmed you are feeling. I'm sorry I can't help you more.
nyxin
10-06-2004, 01:36 AM
first of all i want to let you know that you are being a wonderful mother. you sound to care very deeply for your children. the only thing i can tell you may help, so here goes. i think that because you are hyper vigilant (sp?) to autism, you are seeing everything through autism colored glasses if you will. i don't know any 2 month old baby that will look when their name is called and i know a ton that are fussy ALL THE TIME. i too was concerned that my baby (now 15 months) was autistic because it just stuck in my head. he was amazed by the ceiling fan, would shake this octopus toy for hours and never really wanted to be held for too long. he did not babble much and was having major digestive problems. turns out it was from what i was eating (milk and what-not) and that he is a very independant child. he started walking at 9 months, has great problem solving skills, knows how to properly work most electronic equipment and has a great vocab. there is no autism anywhere near him, but i am still scared to get certain shots. it is normal for you to feel this anxiety, so don't feel weakened by it. just realize that your stress may show through to your baby and that may make her fussy as well. it takes time to get into a groove, so don't get a head of yourself. i personally used pro-sobe with lipil and my son did great. try to relax and take a step back before it gets the best of you. :angel:
littlewing1114
10-06-2004, 05:21 PM
gals, you are awesome...I feel so much better now...she does have reflux and we have been experimenting with formulas. she was on the soy formulas, then nutrimagen, and now goat's milk with vitamins added...she seems to be doing a little better with that...she actually smiled yesterday!! there is hope!! thanks for all your replies.
Dee
I Love LJC
10-08-2004, 06:48 PM
Glad your daughter is doing good .I see she has vitamins too. Ask her Ped about the important EFAs she needs as well in her formula. :Take care :)
littlewing1114
10-08-2004, 06:57 PM
yes, we are adding DHA to the goats milk as well:) thanks!
I Love LJC
10-08-2004, 08:12 PM
Awesome the DHA is good for your little boy as well.Im going to put my daughter on EFA as well.She was on Soy as an infant so she lacked the DHA to say the least all she got was to much Omega 6.Hopefully it will help her vision improve .Took her for a vision test she cant see things up close. Things up close look far away to her. I read its real good for behaviour too. Its amazing they now have baby food with DHA too Beech Nut First Advantage. Sounds like you got a great Ped wish i would of .Takercare :)
fouroutafive
10-08-2004, 11:54 PM
I would go with the suggestion that you try the carnation. But as far as your fears, do your best to connect with her. I can remember looking at my daughter and wondering what she was looking at. She is still very young though,so worry won't do much good.A doctor would probably just tell you to wait and see. I would say if you are still concerned at about 18 months you should start taking action. good luck!
2cutekids
10-09-2004, 07:15 PM
yes, I would put her on a soy based formula or something like that. I would stop all shots, if you even have gotten her any. That is what I plan on doing if I were to have another one....
They say that the higher functioning the child with Autism, the less likely that there bros or sisters will have it, and if they do, it is also usually high functioning.
My son also has HFA/Aspergers... my dd seems to have a bit of a speech delay, but nothing that I'm too worried about.... she just is a little more quite that he was or is... besides she can't get in a word edge wise...all he does is talk...lol...
viveca
10-12-2004, 01:21 AM
hi I can totally relate,
My son is almost 5 and we had him diagnosed when I was 2 months preg.
I am worried about our daughter and will always be...She too cried alot spit up and was always gassy. we switched formulas about 20 times before we put her on carnation good start...she is still on it good start 2 now (she is 1yearand 2 mos) and I think because of all the statisics It makes me even more paranoid about every thing she does (or doesn't do)...
My daughter has started to mimic her brother and is guesturing and not using words when her brother is around.. For me it is still in my head and for any one with a special child it will be a concern just know you are not alone..