grandmother
10-31-2004, 10:37 PM
Hello, I am new here - Does anyone know the web site for Pain Specialist ?
I live in east TX and would like to find one in eitherTX AR LA Dallas to Little Rock, or Sheveport , I have tried one in Tyler TX , With very unsatisfactory
results. I have 4 broken vertrabe in my back from a fall and am in constant pain. Have been on 15 mg of metadone 3X day with 5 mg between for BT and
10 mg Flexrill 3X day. Dr in tyler made Pain pump trial for 3 days, then removed it, and sent me home. Said he would study case some more and call me. That was 6 months ago, has not called yet. I am 74 year old and on medicare, I think they do not pay enough for most doctors to take much
interest. Do I sound disgusted ? I guess I am, this pain has been with me for over 2 years.
I live in east TX and would like to find one in eitherTX AR LA Dallas to Little Rock, or Sheveport , I have tried one in Tyler TX , With very unsatisfactory
results. I have 4 broken vertrabe in my back from a fall and am in constant pain. Have been on 15 mg of metadone 3X day with 5 mg between for BT and
10 mg Flexrill 3X day. Dr in tyler made Pain pump trial for 3 days, then removed it, and sent me home. Said he would study case some more and call me. That was 6 months ago, has not called yet. I am 74 year old and on medicare, I think they do not pay enough for most doctors to take much
interest. Do I sound disgusted ? I guess I am, this pain has been with me for over 2 years.
Sponsor
jbot
11-02-2004, 01:14 AM
Hi Grandmother,
I live in Southern Louisiana but I haven`t found a pain dr here. I was sent to one and went to her and liked her but in the 6 mos I was her patiet I was pushed off to her assistant and only saw her 2 times. I got tired of it and quit.I know the assistant can write same script as she can but I didn`t care for her.I`m just going to my GP and take Loritab for pain.It is no where near enough for my back and feet pain but I have been living with it most of my life. Well I just wanted to wish you luck on finding someone. If you have a GP maybe he can give you something to control the pain until you find someone. Good Luck..Take care
I live in Southern Louisiana but I haven`t found a pain dr here. I was sent to one and went to her and liked her but in the 6 mos I was her patiet I was pushed off to her assistant and only saw her 2 times. I got tired of it and quit.I know the assistant can write same script as she can but I didn`t care for her.I`m just going to my GP and take Loritab for pain.It is no where near enough for my back and feet pain but I have been living with it most of my life. Well I just wanted to wish you luck on finding someone. If you have a GP maybe he can give you something to control the pain until you find someone. Good Luck..Take care
kisa
11-04-2004, 11:50 PM
Hello Grandma, the best thing that you can do is call the local hospitals & see what is required to get in, some take up tp 3 months to get in the door, so call around & ifey cant help tyou, the board of health may also direct you, good luck, & prayers to you for pain free days :)
Streetcar
11-05-2004, 02:31 PM
Hi Grandmother !
Welcome to this board and I'm sorry to hear about all the pain and trouble that you're going thru. Since you obviously have internet access you can use the Search function of whatever web browser you use and do a "search" using pain+management+TX as your search criteria. I just tried that and came up with plenty of PM dr/clinics all accross Texas. LOL!
Be comfortable!
Welcome to this board and I'm sorry to hear about all the pain and trouble that you're going thru. Since you obviously have internet access you can use the Search function of whatever web browser you use and do a "search" using pain+management+TX as your search criteria. I just tried that and came up with plenty of PM dr/clinics all accross Texas. LOL!
Be comfortable!
grandmother
11-24-2004, 11:19 PM
Shoreline, Thanks for info 11-05-2004, am doing more study of the info
you gave me. At the present time my pain is very much out of control.
My pri. doc. has increased my pain med to 20 mg. Methadone every 8 hrs.
and 10 mg. for breakthru four hours after the 20 mg.
I have had Vertebroplasty done about a yr ago, was able to stablize 2 of the 4 broken vertebra, 2 were to close together to inject cement. grandmother
you gave me. At the present time my pain is very much out of control.
My pri. doc. has increased my pain med to 20 mg. Methadone every 8 hrs.
and 10 mg. for breakthru four hours after the 20 mg.
I have had Vertebroplasty done about a yr ago, was able to stablize 2 of the 4 broken vertebra, 2 were to close together to inject cement. grandmother
grandmother
12-12-2004, 10:42 PM
:wave: Hello, Just wanted to let everyone know that 90mg of methadone every 24 hrs
is keeping pain about 75% under control. However has some effect on short term
memory. Grandmother
is keeping pain about 75% under control. However has some effect on short term
memory. Grandmother
mshatch
12-30-2004, 01:44 PM
Hi I am from south Louisiana also but I travel to go to a Pain Management dr in south east Tx and its worth it. Since im new to this I dont know how I could give you a name but hint look in Houston.... I hope that you would take the others advice and look around because its worth the look there are to many drs out there that are afraid of helping pain patients. I can tell you though that its a big relief when you find a dr who actually knows what your talking about. You shouldnt have to live in pain but as you can tell we are all here wondering what its gonna take for someone to open their eyes to us and understand we are not pill heads we have historys sometimes long ones of stuff I know no dr would ever want to feel. So good luck and hopefully you find your answers....
Tee :wave:
Tee :wave:
MikeLee
01-01-2005, 10:42 AM
Hi I too live in Tyler. I been looking for a geed doctor for over 2 years hear and I have not much luck. If you find one, please let me know. I will do the same.
MikeLee
MikeLee
romc50
01-04-2005, 06:29 PM
Hello, Grandmother, I saw your post and really feel so badly for you! I hope things get better for you soon. I had a great Neurologist in Jacksonville, Ar.(suburb of Little Rock--not far from N. Little Rock) named Charles E. Schulz. If you are willing to go that far give him a call--he sort of looks like a mad scientist but he has no prob at all with sufficient pain releif and is very knowledgeable about back problems. wish I could find a dr. like him here in the atlanta area...take care/romc50
grandmother
03-27-2005, 11:40 PM
Just to let everyone know, Pain is 80 o/o under control with 100 mg. of methadone
every 24 hours. Short term memory is getting much worse. afraid to go any where
by my self any more. I get lost in stores that I have been shopping in for years.
There has to be something out there some where that can control my pain with out all these side effects.
every 24 hours. Short term memory is getting much worse. afraid to go any where
by my self any more. I get lost in stores that I have been shopping in for years.
There has to be something out there some where that can control my pain with out all these side effects.
myspine
03-27-2005, 11:56 PM
:wave: Have you tried anyone in the Dallas area?
;) shelley
;) shelley
Stumper
03-28-2005, 12:21 AM
Hello Grandma,
Hang in there and I will tell you how to get rid of that pain without meds. I had the whole post done up and I lost it. I will do another in a few minutes! :)
Hang in there and I will tell you how to get rid of that pain without meds. I had the whole post done up and I lost it. I will do another in a few minutes! :)
Stumper
03-28-2005, 12:31 AM
Grandma,
Not long ago I saw Jerry Lewis the actor who had very severe back problems. So severe in fact that he had to take heavy amounts of pain killers and actually became addicted. Yes, he was a drug addict because of back pain.
There is now a device (implant) that he had put in and he is now 100% pain free using no meds whatsoever.
It is a small Medtronic device that was implanted near the spine with small elctrical wires that go to different areas on the spine. He carries a small control much like a TV remote with him. When he feels pain he presses the button and "beep" the pain is gone for hours 100%. He said he sleeps absolutely beautifully and can walk and pick up his grandkids with NO PROBLEM. It sends electrical impulses to the spine that block the pain messages to the brain and you are pain free :)
This device is unseen as it is implanted and they can PRETEST you before they do it to see how affective it will be. AND it is supposed to be covered by insurance!!
Take care Grandma! :)
Not long ago I saw Jerry Lewis the actor who had very severe back problems. So severe in fact that he had to take heavy amounts of pain killers and actually became addicted. Yes, he was a drug addict because of back pain.
There is now a device (implant) that he had put in and he is now 100% pain free using no meds whatsoever.
It is a small Medtronic device that was implanted near the spine with small elctrical wires that go to different areas on the spine. He carries a small control much like a TV remote with him. When he feels pain he presses the button and "beep" the pain is gone for hours 100%. He said he sleeps absolutely beautifully and can walk and pick up his grandkids with NO PROBLEM. It sends electrical impulses to the spine that block the pain messages to the brain and you are pain free :)
This device is unseen as it is implanted and they can PRETEST you before they do it to see how affective it will be. AND it is supposed to be covered by insurance!!
Take care Grandma! :)
myspine
03-28-2005, 06:58 PM
Hi Pumper :wave:
What you are talking about is the SCS I am having a trial for that on Friday :bouncing: Unfort. it is mostly for nerve pain and not "structural" pain from the back. I will post on Friday after my trial starts to see how well it works. I have had 4 lumbar surgeries including a fusion with hardware this past year.
I have been told to expect an average of 50% pain relief, and a reduction in meds but at this point my meds do not do the greatest for me anyway :(
I have waited since January for insurance approval for the trial and have finally gotten the go ahead and now I just have to wait 4 more days. :)
;) shelley
What you are talking about is the SCS I am having a trial for that on Friday :bouncing: Unfort. it is mostly for nerve pain and not "structural" pain from the back. I will post on Friday after my trial starts to see how well it works. I have had 4 lumbar surgeries including a fusion with hardware this past year.
I have been told to expect an average of 50% pain relief, and a reduction in meds but at this point my meds do not do the greatest for me anyway :(
I have waited since January for insurance approval for the trial and have finally gotten the go ahead and now I just have to wait 4 more days. :)
;) shelley
Stumper
03-29-2005, 02:09 PM
Shelly,
Very good ! Let us know how all goes. I am indeed curious :)
Very good ! Let us know how all goes. I am indeed curious :)
SheSparkles
03-29-2005, 04:00 PM
[QUOTE=myspine]but at this point my meds do not do the greatest for me anyway :(
This makes me nuts, Shelley. You have mentioned a couple of times the lack of proper pain control in your life; every time I post of something good happening in my pain life I always think of you and HOPE that you can somehow continue the good fight to demand pain relief. I truly hope for good things with the Spinal Stim. but by gosh girl, if not then get proactive...You don't deserve to live in pain..no one does. I too will be waiting to hear good things from your Stimulator.
SS
PS just because a person is fortunate enough to have youth on their side does NOT mean he or she should live in pain so don't let your Dr. get around proper meds that way.
Dang I just noticed I sound like I am giving a sermon...sorry
This makes me nuts, Shelley. You have mentioned a couple of times the lack of proper pain control in your life; every time I post of something good happening in my pain life I always think of you and HOPE that you can somehow continue the good fight to demand pain relief. I truly hope for good things with the Spinal Stim. but by gosh girl, if not then get proactive...You don't deserve to live in pain..no one does. I too will be waiting to hear good things from your Stimulator.
SS
PS just because a person is fortunate enough to have youth on their side does NOT mean he or she should live in pain so don't let your Dr. get around proper meds that way.
Dang I just noticed I sound like I am giving a sermon...sorry
myspine
03-29-2005, 06:35 PM
Hi SS
Well when I saw my surgeon last time actually the PA I said I take the Norco and go up and down and I know you(meaning them)can not keep RXing my meds so should I just have the PM docs (who are doing my SCS trial) start doing it. And she said it was no problem for them (her the surgeons office) to write them. So she gave me a script for Hydrocodone 10/325 . I am grateful for atleast some relief but how do I say hum this is not quite the right thing for me. I think my History is more than bad enough. I just do not want to look Bad.... :( and yet i want to be thankful for atleast some relief when I see others are getting nada. So how do I gently say this? The Norco just seems like I am up and down all day long. Relief than back down to none than relief than none then so on. Tell me what you think. I will see the PM doc for the SCS trial on Friday and will not see my surgeon until June for my next fusion.
Thanks ;)
shelley
Well when I saw my surgeon last time actually the PA I said I take the Norco and go up and down and I know you(meaning them)can not keep RXing my meds so should I just have the PM docs (who are doing my SCS trial) start doing it. And she said it was no problem for them (her the surgeons office) to write them. So she gave me a script for Hydrocodone 10/325 . I am grateful for atleast some relief but how do I say hum this is not quite the right thing for me. I think my History is more than bad enough. I just do not want to look Bad.... :( and yet i want to be thankful for atleast some relief when I see others are getting nada. So how do I gently say this? The Norco just seems like I am up and down all day long. Relief than back down to none than relief than none then so on. Tell me what you think. I will see the PM doc for the SCS trial on Friday and will not see my surgeon until June for my next fusion.
Thanks ;)
shelley
SheSparkles
03-29-2005, 07:07 PM
[QUOTE=myspine] I think my History is more than bad enough.<
I second the emotion. For the 90th time...lol
>Tell me what you think. <
Ok everyone...I got a invitation this time lol....
ok I would go over just what you have said to me, Shelley. With your PM Dr. See, the OS is apt to lean on the (mistaken) belief that because you are post-operative you have no right to pain. Good grief...I have never had spinal surgery and I have pain and damm it no one is going to downplay it. So I would (not like me) gently but firmly report that your pain control is lousy and I would not leave until I had a change of narcotic meds on board. Use us as an example...use me! Tell the Dr. you are being encouraged to seek adequate pain control and you won't stop until someone listens to you and you are on your way to comfort. Find 1 (ONE) Dr. who is in your corner and not afraid to script narcotics and start trying all the meds out there...there are so many. The Stim. may work; however you may still have pain and you are entitled to have meds! Life is way too short...I so wish I could go with you. I wouldn't be nasty...or rude...but I cannot see the problem in making a pt. comfortable. You seem so genuinely gentle and sweet and submissive.........
NO MORE NO WAY!!!!!!!!!!! lol You must lead the charge for YOU. We can only help and cheer.
Let us know (of course!) what happens on Fri.
SS
I second the emotion. For the 90th time...lol
>Tell me what you think. <
Ok everyone...I got a invitation this time lol....
ok I would go over just what you have said to me, Shelley. With your PM Dr. See, the OS is apt to lean on the (mistaken) belief that because you are post-operative you have no right to pain. Good grief...I have never had spinal surgery and I have pain and damm it no one is going to downplay it. So I would (not like me) gently but firmly report that your pain control is lousy and I would not leave until I had a change of narcotic meds on board. Use us as an example...use me! Tell the Dr. you are being encouraged to seek adequate pain control and you won't stop until someone listens to you and you are on your way to comfort. Find 1 (ONE) Dr. who is in your corner and not afraid to script narcotics and start trying all the meds out there...there are so many. The Stim. may work; however you may still have pain and you are entitled to have meds! Life is way too short...I so wish I could go with you. I wouldn't be nasty...or rude...but I cannot see the problem in making a pt. comfortable. You seem so genuinely gentle and sweet and submissive.........
NO MORE NO WAY!!!!!!!!!!! lol You must lead the charge for YOU. We can only help and cheer.
Let us know (of course!) what happens on Fri.
SS