caden/logan_mom
11-12-2004, 06:24 AM
Hi everyone,
I was just wondering if anyone sounded like me. I read about the pain so many of you are in and my heart really goes out to you. I know we all suffer to different degrees. My biggest problem however even though I have pain every day is the fatigue. Is this the number one symptom for anyone else? I also have much more pain in my joints than in my muscles? Is there anyone else out there who experiences their FMS in this way? I know we're all different but sometimes I feel like this doesn't "fit" me and so its always reassuring to hear someone say, "yeah, me too". I guess that's the whole point of these boards right?
Thanks so much!!
Shawnee
I was just wondering if anyone sounded like me. I read about the pain so many of you are in and my heart really goes out to you. I know we all suffer to different degrees. My biggest problem however even though I have pain every day is the fatigue. Is this the number one symptom for anyone else? I also have much more pain in my joints than in my muscles? Is there anyone else out there who experiences their FMS in this way? I know we're all different but sometimes I feel like this doesn't "fit" me and so its always reassuring to hear someone say, "yeah, me too". I guess that's the whole point of these boards right?
Thanks so much!!
Shawnee
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Lady_wreckage
11-12-2004, 07:21 AM
I actually feel so comforted and relieved to know that there are other people who have problems much worse than mine. By the way, I'm new here... and this seems like a good place for some comfort. :)
PKPopcorn
11-12-2004, 10:24 AM
I also have more pain in my joints than my muscles and my biggest complaint is fatigue. I have the desire and the drive to do things, but my body refuses to cooperate with me! It gets so frustrating! Lately my biggest complaint is TMJ - sore jaw, neck knots, and headaches!
On another note, I find it very reassuring that I am not alone with FMS. There are others who understand what I go through. I am very fortunate to have a very understanding and compassionate husband. My boss is also very understanding - which is a huge blessing. Of all the people I know, no one has FM, but about a third of them personally know someone else who has FM. It is wierd that I have never personally met another FM sufferer.
Sarah
On another note, I find it very reassuring that I am not alone with FMS. There are others who understand what I go through. I am very fortunate to have a very understanding and compassionate husband. My boss is also very understanding - which is a huge blessing. Of all the people I know, no one has FM, but about a third of them personally know someone else who has FM. It is wierd that I have never personally met another FM sufferer.
Sarah
apriltones
11-12-2004, 06:06 PM
hi there, i have fatigue,tingling private regions, (hope thats not too personal, )its very distressing,migraines,shooting pains,aching neck,shoulders, there my worst symptoms!! april xx
twanger
11-12-2004, 06:21 PM
I have pains almost constantly. They do not occur in the same spot all the time. These pains just move around my body. In addition, some days I have tons of energy and try to do too much in order to make up for the days that I could not do anything.
Then, I have to face days of fatigue where I want to do something but I can't because of the fatigue. On those days, my muscles or joints ( I have both) don't hurt as much. I guesss that we have a mixture of Fibro and CFS. At one time, these two diseases were considered one and the same.
Then, I have to face days of fatigue where I want to do something but I can't because of the fatigue. On those days, my muscles or joints ( I have both) don't hurt as much. I guesss that we have a mixture of Fibro and CFS. At one time, these two diseases were considered one and the same.
shauna1118
11-13-2004, 01:11 AM
Hi ALL-------
Yes it helps to talk and listen to others witht he same. and yet different syptoms. One thing we all have in common we are sick or being sick! I too have the CFS and Fibro and have had since '89...They can be controlled and gotten over in time but what flared mine back up BIG TIME was the two fusions back to back. One in the neck and four months later the spinal fusion. too much for my body which sent me in the biggest tail spin. i am now on long-term disability...some days the pains travel around, some days, both hands, or both ankles hurt so now have been tested for RA as well. I want a dx that has a cure and can be treated better than CFS and Fibro ya know...I know you know what I am talking about......when I am not sick with infections which hasn't been since the start of oct., I was hitting the water for walking 3/4 a week since end of July. But once the infection got into my lungs I have been out.......Missed the water walking as that does really help with the muscle/joint pain believe me....My pool is 4ft 89degrees and just wonderful to walk and talk to others there with the same pain.....Have missed it this month to be sure...peace, blessings and prayers to us all. Shauna :angel:
Yes it helps to talk and listen to others witht he same. and yet different syptoms. One thing we all have in common we are sick or being sick! I too have the CFS and Fibro and have had since '89...They can be controlled and gotten over in time but what flared mine back up BIG TIME was the two fusions back to back. One in the neck and four months later the spinal fusion. too much for my body which sent me in the biggest tail spin. i am now on long-term disability...some days the pains travel around, some days, both hands, or both ankles hurt so now have been tested for RA as well. I want a dx that has a cure and can be treated better than CFS and Fibro ya know...I know you know what I am talking about......when I am not sick with infections which hasn't been since the start of oct., I was hitting the water for walking 3/4 a week since end of July. But once the infection got into my lungs I have been out.......Missed the water walking as that does really help with the muscle/joint pain believe me....My pool is 4ft 89degrees and just wonderful to walk and talk to others there with the same pain.....Have missed it this month to be sure...peace, blessings and prayers to us all. Shauna :angel:
shauna1118
11-13-2004, 11:43 PM
Andy,
Glad April can relate in that area. I used to have those wayyyyyyyyyy back in 89 and before. in '89 at age 34 i had a hyster, so now that pain is gone:) gotta love that. Have two girls so am blessed there.They are 24 and 20 so they are youngens. The youngest stays with me and helps out allot. she cleaned house today. she doesn't understand it's hard for me to do, with the fusions, no less and then the other pains on top of it. Well, it's been a lesson in life as i was a NEAT FREAk and now I see dust everywhere. thankfully she cleans as I said when it's just where she needs some extra cash...lol! Blessings to all and prayers as well. Shauna
Glad April can relate in that area. I used to have those wayyyyyyyyyy back in 89 and before. in '89 at age 34 i had a hyster, so now that pain is gone:) gotta love that. Have two girls so am blessed there.They are 24 and 20 so they are youngens. The youngest stays with me and helps out allot. she cleaned house today. she doesn't understand it's hard for me to do, with the fusions, no less and then the other pains on top of it. Well, it's been a lesson in life as i was a NEAT FREAk and now I see dust everywhere. thankfully she cleans as I said when it's just where she needs some extra cash...lol! Blessings to all and prayers as well. Shauna
Deda
11-17-2004, 01:32 AM
hi there, i have fatigue,tingling private regions, (hope thats not too personal, )its very distressing,april xx
Hi Apriltones,
Hey there, I just wanted to let you know that I had the very same thing, with the tingling in the private regions. I had it severly. It's called vulvodynia, and they think it's an autoimmune thing. I do have Hashimoto's/hypothyroid, and that seemed to be the cause of it. Haven't I seen you on the thyroid board too? Anyway, that pain was horrible, not only tingling, but severe burning at times, and at times felt like a bad electrical feeling, also numbness. It is under control now with me being on Armour. When I was on Levothroid, (T4), I had no relief. :( Then when I started Armour, it took care of it in 3-4 weeks. :) If you have hypothyroid, try to get your levels in a good place. I still occasionally have sensations there, if my thyroid levels go too high or too low. I just wanted to let you know this, in case your pain is making you suffer as much as I did with the same pain.
Hi Shaunna, I know you girl from the smoking boards! ;) Sorry to see you're on this board too. I'll answer your new post soon.
Deda
Hi Apriltones,
Hey there, I just wanted to let you know that I had the very same thing, with the tingling in the private regions. I had it severly. It's called vulvodynia, and they think it's an autoimmune thing. I do have Hashimoto's/hypothyroid, and that seemed to be the cause of it. Haven't I seen you on the thyroid board too? Anyway, that pain was horrible, not only tingling, but severe burning at times, and at times felt like a bad electrical feeling, also numbness. It is under control now with me being on Armour. When I was on Levothroid, (T4), I had no relief. :( Then when I started Armour, it took care of it in 3-4 weeks. :) If you have hypothyroid, try to get your levels in a good place. I still occasionally have sensations there, if my thyroid levels go too high or too low. I just wanted to let you know this, in case your pain is making you suffer as much as I did with the same pain.
Hi Shaunna, I know you girl from the smoking boards! ;) Sorry to see you're on this board too. I'll answer your new post soon.
Deda
caden/logan_mom
11-17-2004, 02:51 AM
Thanks to all!
It's nice to hear from everyone! Does anybody have small children? I have two boys ages 2 and 3. I do the best I can every day but sometimes it's really hard and I do worry about the future and what will happen when they get involved in things like sports and clubs and well, just busy things kids do and need their parents to come root for them and be there for them. Sometimes, it's hard to get out of the house you know? What frustration this crap causes! I really believe that one day down the road, they will probably have blood tests and better treatments and also better understand the causes of fibromyalgia, but unfortunately that's not today. Well, thanks again, it's so nice to hear from so many of you!
Hang in there okay!
Love,
Shawnee
It's nice to hear from everyone! Does anybody have small children? I have two boys ages 2 and 3. I do the best I can every day but sometimes it's really hard and I do worry about the future and what will happen when they get involved in things like sports and clubs and well, just busy things kids do and need their parents to come root for them and be there for them. Sometimes, it's hard to get out of the house you know? What frustration this crap causes! I really believe that one day down the road, they will probably have blood tests and better treatments and also better understand the causes of fibromyalgia, but unfortunately that's not today. Well, thanks again, it's so nice to hear from so many of you!
Hang in there okay!
Love,
Shawnee