amgoingtoheal
11-18-2004, 11:28 PM
I am in so much pain all the time, and the fatigue is so hard sometimes that I have to call in sick to work. I find myself going into a haze at work sometimes and feel like I'm crying all the time. Of course sometimes I'm better, but other times, (like tonight) I just feel like checking out. Not suicide or anything, but hopeless and alone. Does anyone ever feel like that? It would really help to hear how some of you get through your hard days.
Also, are there any vitamins or natural supplements that help you? I take magnesium, multi-vitamin, malic acid, paxil, claritin, glucosamine/chondroitin/MSM and ambien, but I know my body, and it's telling me it's deficient in something, but I can't tell what. Please help, I need a friend! :confused:
Also, are there any vitamins or natural supplements that help you? I take magnesium, multi-vitamin, malic acid, paxil, claritin, glucosamine/chondroitin/MSM and ambien, but I know my body, and it's telling me it's deficient in something, but I can't tell what. Please help, I need a friend! :confused:
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tutti-fruti
11-19-2004, 03:14 AM
Hey, hope you are feeling better today. I live in Greece so it's morning time here, you are probably sleeping. Well I know how hard this illness can be and I really don't get exactly what it is that triggers these flares. I also call in sick work sometimes and feel awful and very insecure about it. Yesterday I went to the hairdresser after work to colour and cut my hair and that took about 2 hours. When I got back home I was sooooo tired and after a while I started becoming sooooo sore everywhere ! Woke up slightly better from the pain today, but I feel exhausted totally exhausted. I'm still all sore and feel that if I tire myself more, I'll just go down the drain. I wish I didn't have to work everyday, I think that if I had stayed home today, I would have rested and felt a bit better. Anyway take care my friend, you are not alone, and hope you will feel much better. As for supplements, I take magnesium (2 per day), cod fish oil (also 2 per day). Nothing more. Do supplements really help? every time I ask a doctor the answer is : it doesn't hurt. So ...
Izzybella
11-19-2004, 06:29 PM
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amgoingtoheal
12-10-2004, 12:20 AM
Thanks guys, I really appreciate your feedback and your support. I know we all go through those days, and it probably goes hand in hand with the pain level. I appreciate your help!
apriltones
12-10-2004, 04:24 PM
hi there, sorry your feeling down. just think we have bad days and good. ive ben feeling happy lately but little sad too, probably because its xmas, time of being with family and my parents live in france, i in uk, take care, your not alone ,xxx aprilx
Toodle
12-10-2004, 04:53 PM
I know where you are coming from. I hurt all the time and am always so tired. I do take Lortab 10, don't know what I'd do without it. However, as mentioned in another post, I just started taking Reliv. It's nutrition in powder form. Only been on it for a little while (today is my 4th day). I've heard many fibro sufferers get relief with this product. My supplier had bad fibro up until 1 year ago. She said it took her 3 months on Reliv to really feel great again. I'll keep everyone posted, but for now I'm taking this opportunity & hope it proves to be successful for me. Reliv is based on the fact that people these days just don't get proper nutrition. It is supposed to work at the cellular level to make your body repair itself. Therefore, they claim it helps with many diseases, ailments and syndromes. I'm going to give it 4 months before giving up cuz at this point I feel I have nowhere else to turn.
I get through days I guess because of my family. Husband & 9 1/2 month old daughter. I want to be here because of them and I want to feel better. However, the bad thing is that I get so upset, frustrated & tired of this condition sometimes that I emotionally draw away from them. That's what breaks my heart the most. I don't think anyone can truly understand unless you have fibro. It causes way too many symptoms for someone who doesn't have it to possibly imagine. You have to admit that it is a crazy condition. I often wonder would I believe what people say if I didn't have the condition myself. That's why I appreciate the support of this board so much. Everyone is all going through the same thing, sometimes not all the same symptoms or not everyone feels as bad, but they know how life is with fibro.
Good luck to you!
I get through days I guess because of my family. Husband & 9 1/2 month old daughter. I want to be here because of them and I want to feel better. However, the bad thing is that I get so upset, frustrated & tired of this condition sometimes that I emotionally draw away from them. That's what breaks my heart the most. I don't think anyone can truly understand unless you have fibro. It causes way too many symptoms for someone who doesn't have it to possibly imagine. You have to admit that it is a crazy condition. I often wonder would I believe what people say if I didn't have the condition myself. That's why I appreciate the support of this board so much. Everyone is all going through the same thing, sometimes not all the same symptoms or not everyone feels as bad, but they know how life is with fibro.
Good luck to you!
apriltones
12-10-2004, 06:34 PM
hi charl, i have replied to few of your posts but you havent replied? we have same symptoms which started after childbirth?? love april x
Tootsie Roll
12-10-2004, 08:45 PM
Hi there,
Just wanted to say that i hope you are feeling better, and like previous posters have said...you're NOT alone with this. I have days sometimes where can't even get up i'm in so much pain...especially if it's raining,damp and chilly outside. I just usually take it easy and "rest".
As far as supplements...i only take multi-vitamins, and when i can't sleep i take ambien 10mg.
Hang in there...
Nancy~
Just wanted to say that i hope you are feeling better, and like previous posters have said...you're NOT alone with this. I have days sometimes where can't even get up i'm in so much pain...especially if it's raining,damp and chilly outside. I just usually take it easy and "rest".
As far as supplements...i only take multi-vitamins, and when i can't sleep i take ambien 10mg.
Hang in there...
Nancy~
amgoingtoheal
12-11-2004, 12:04 AM
Thank you for your posts, it helps so much when there's someone out there who won't judge you and will take the time to help. Well, it's 2 days later and I'm feeling somewhat better. Isn't that strange that one day you can feel so upset and alone, and other days you feel fine? That just amazes me that it can be so hormonal sometimes. I guess I feel sad sometimes because my life is so different now. Also, I've been single for 4 years now and most people at least have a husband to vent too, I don't have a "someone". I'm sorry you're also feeling down Char, not too many people can understand such a complicated disease. Why don't pharmaceutical companies pick up on the 3 MILLION people who have this disease in the US alone? I'm not sure what the rates are in UK or Greece, but thats too many people to not have a common reason or protocol for FM & CFS!!! We should all definitely write to our local gov office (OK no comments on my Gov here in Calif :). Since there's not that many people on here that post for FM, we definitely need to take care of each other! Thanks for all your posts!!
amgoingtoheal
12-11-2004, 12:09 AM
CHAR, I'm curious, how did you get through your pregnancy WITH FM? I bet that was really hard! Was it difficult? How did you get through? I know you would say it is worth whatever you had to go through...IYou are blessed! I wish I could find my soulmate and have kids! I know, someday I will. I hope the Reliv helps, I felt so much better when I did a detox of all sugar. I just couldn't keep on it, but for the 4 months I felt 85% better...hhmmm, something to think about!
amgoingtoheal
12-11-2004, 12:12 AM
Izzybella, thank you for your kind words and help! Sleeping does help and so does getting enough supplements. Sometimes the most obvious things are the most unobvious on high pain level days. Thanks for the reminder! What part of the country are you from?
amgoingtoheal
12-11-2004, 12:16 AM
Tutti Fruitty- Wow, the internet is so amazing! You're writing all the way from Greece? Thank you for your sympathy, I know we all have hard days and can feel alone. I think there should be more FM & CFS groups to be able to share our pain with others. Too bad the catch-22 is that none of us has the energy to form one! Ha Ha, thats actually pretty funny if you think about it! Anyways, I'd love to hear more about Greece and what it's like. I hope you're having a good night :)
tutti-fruti
12-11-2004, 03:09 AM
amgoingtoheat HI there ! yes I'm writing all the way from Greece. Actually I was born in Brazil of greek parents and I've been living here in Athens from the age of 16. Now I'm 47 !! oops. Greece is beautiful cause it has so many islands and summer is heaven here. You must have heard a lot of Greece in the States this summer because of the Olympic games !!! I even got the chance to go to the opening (and it was a free pain day IMAGINE !!!!!!!!!) and really really enjoyed it. Then I went to some of the games but was too sore to enjoy. So many greetings from here and many kisses to you.
Toodle
12-11-2004, 03:11 PM
amigongtoheal - I did have a rough pregnancy. I didn't feel well most of it & had to go on bedrest 2 1/2 months before my due date cuz of high blood pressure & ended up getting these severe headaches. Ended up having baby 1 month early. Wasn't diagnosed with fibro until after baby - July this year. I think I had it before but more CFS like, every since having mono 3 times at age 15. But everything got worse after baby as I've explained in other posts. I wanted 2 children, but now I think I'm just going to stay at one & I do feel so blessed that I have her. Otherwise I'm going downhill at what should be the happiest time in my life.
But I am so glad I have my husband and daughter and my parents have been great. I'm also so lucky to have all of you!
But I am so glad I have my husband and daughter and my parents have been great. I'm also so lucky to have all of you!
Toodle
12-11-2004, 03:15 PM
In reply also to Apriltones. I think we are very similar. I wish you good luck with your MRI and further testing. Let me know how it comes out. But then too there's Tutti-fruti who has the same SI joint inflammation as me. I guess we are all finding lots of things in common with each other. Guess it's actually fibro or our doctors are missing something on some of us. I hope the Reliv helps me.
amgoingtoheal
12-12-2004, 02:51 AM
Tutti- First of all, I love that you had a "Freudian slip" on writing my name (common for us with CFS)..."amgoingtoheaT" instead of "amgoingtoheal" Funny how words sometimes have double meanings even if you didn't try to write it! I love that I can communicate with a strong woman all the way in Greece. I live in Santa Monica, CA (Los Angeles) and grew up here (one of the few locals still here!), and since you gave me your age, I will tell you I am 31. Of course I have heard of Athens, it looked so beautiful on TV during the Olympics! What was up with everyone gone on vacation though??? (I'm just teasing). Thanks for replying, I hope you have a great day tomorrow!
amgoingtoheal
12-12-2004, 02:57 AM
Char- don't give up sweetie! You have so much going for you, a loving husband and beautiful little girl. Since you have recently become diagnosed, I'm sure you are still getting used to the disease. I wish you luck finding the energy to take care of a 9 1/2 month old...God does everything for a reason, and He wouldn't of given you this baby if He didn't KNOW you could handle it. I can only imagine what your pregnancy was like, but never say never about another one. Like my mom tells me, "take baby steps". (no pun intended :) I hope to get to know all of you a lot better and feel more apart of a community that understands.
tutti-fruti
12-13-2004, 05:45 AM
amgoingtoheal !!! waw I guess I got it right this time ! thanks for your kind post. I've been to LA and I absolutely loved it. I love the States in general but I mostly ADORE New York. I bought all the 'sex and the city' DVD's and I had an absolute blast watching them and seeing the New York life, mentality, restaurants, fashion, etc. You are so young and you have this silly disease already !! are you married? working? children? yes the internet is a total miracle, really. I have it on all day long here at the office so I always check the board here to see what's up. It's amazing how much info one gets from the internet. Sometimes I am not sure if it's good or not, because we get to be soooo informed that it's scaring (I mean, reading all these articles about symptoms in general and what if fibromyalgia is not what we have, but we have something else etc). Let me not start freaking out again. Take care my dear and have endlessly painless days.
ps: I just read another thread initiated by you about Fibro and dating ! and ok i know you're looking for a soulmate. That will eliminate my two questions above about married? children? but will still leave the working? one to answer. hahahaha ! soulmate? hm i really hope you'll find him. I have been diagnosed with fibro from May 04 and have had problems for a little over a year now. I live with my boyfriend of approx 10 years, we will get married beg. next year (when his divorce will be issued). Well, he travels a lot because of his business and I stay back and relax/rest and always feel better (physically) because I do less work when he's not around. I hate this feeling of being in pain and having someone (actually I mean HIM specifically) witness it all the time because eventhough I don't tell him (not ALL the time), I'm sure he can feel it because I look sad and tired when I'm all achy (and that makes me feel MORE achy, anxiety!). I was ok before, very active and jolly and now I'm no longer like that (even when I have good days - I'm not THAT strong you see?) When I'm in pain and he is travelling, then I just come back from work (and swimming) and hang out on the couch with my doggy and I watch tv and sleep early and feel better the next day. I wear my depressed look on my face and only have the walls to witness it. However, since this disease does not "show" anywhere because it doesn't destroy anything (God help us), then all you need is someone understanding and human, together with courage from your side and extremely little nagging (to the guy I mean of course, not to us here !!!), lots of private time to yourself so you can rest, and positive attitude. Good luck to you my friend.
ps: I just read another thread initiated by you about Fibro and dating ! and ok i know you're looking for a soulmate. That will eliminate my two questions above about married? children? but will still leave the working? one to answer. hahahaha ! soulmate? hm i really hope you'll find him. I have been diagnosed with fibro from May 04 and have had problems for a little over a year now. I live with my boyfriend of approx 10 years, we will get married beg. next year (when his divorce will be issued). Well, he travels a lot because of his business and I stay back and relax/rest and always feel better (physically) because I do less work when he's not around. I hate this feeling of being in pain and having someone (actually I mean HIM specifically) witness it all the time because eventhough I don't tell him (not ALL the time), I'm sure he can feel it because I look sad and tired when I'm all achy (and that makes me feel MORE achy, anxiety!). I was ok before, very active and jolly and now I'm no longer like that (even when I have good days - I'm not THAT strong you see?) When I'm in pain and he is travelling, then I just come back from work (and swimming) and hang out on the couch with my doggy and I watch tv and sleep early and feel better the next day. I wear my depressed look on my face and only have the walls to witness it. However, since this disease does not "show" anywhere because it doesn't destroy anything (God help us), then all you need is someone understanding and human, together with courage from your side and extremely little nagging (to the guy I mean of course, not to us here !!!), lots of private time to yourself so you can rest, and positive attitude. Good luck to you my friend.
amgoingtoheal
12-13-2004, 02:44 PM
amgoingtoheal !!! waw I guess I got it right this time ! thanks for your kind post. I've been to LA and I absolutely loved it. I love the States in general but I mostly ADORE New York. I bought all the 'sex and the city' DVD's and I had an absolute blast watching them and seeing the New York life, mentality, restaurants, fashion, etc. You are so young and you have this silly disease already !! are you married? working? children? yes the internet is a total miracle, really. I have it on all day long here at the office so I always check the board here to see what's up. It's amazing how much info one gets from the internet. Sometimes I am not sure if it's good or not, because we get to be soooo informed that it's scaring (I mean, reading all these articles about symptoms in general and what if fibromyalgia is not what we have, but we have something else etc). Let me not start freaking out again. Take care my dear and have endlessly painless days.
ps: I just read another thread initiated by you about Fibro and dating ! and ok i know you're looking for a soulmate. That will eliminate my two questions above about married? children? but will still leave the working? one to answer. hahahaha ! soulmate? hm i really hope you'll find him. I have been diagnosed with fibro from May 04 and have had problems for a little over a year now. I live with my boyfriend of approx 10 years, we will get married beg. next year (when his divorce will be issued). Well, he travels a lot because of his business and I stay back and relax/rest and always feel better (physically) because I do less work when he's not around. I hate this feeling of being in pain and having someone (actually I mean HIM specifically) witness it all the time because eventhough I don't tell him (not ALL the time), I'm sure he can feel it because I look sad and tired when I'm all achy (and that makes me feel MORE achy, anxiety!). I was ok before, very active and jolly and now I'm no longer like that (even when I have good days - I'm not THAT strong you see?) When I'm in pain and he is travelling, then I just come back from work (and swimming) and hang out on the couch with my doggy and I watch tv and sleep early and feel better the next day. I wear my depressed look on my face and only have the walls to witness it. However, since this disease does not "show" anywhere because it doesn't destroy anything (God help us), then all you need is someone understanding and human, together with courage from your side and extremely little nagging (to the guy I mean of course, not to us here !!!), lots of private time to yourself so you can rest, and positive attitude. Good luck to you my friend.
Hey Tutti, thanks for your reply! To answer your questions, yes I am single, and no I do not have children. I work every day as a Director of Sales (total high stress job, which is one of the reasons I think Im sick!) No one at work knows, so I too have to hide it all the time (and I work in the middle of a group of people, so I can't actually go hide somewhere!). The problem I know you have too, is that our bodies look normal on the outside, but if anyone took the time to look at our eyes, they would see how much pain we really were in! In that sense it could be even more lonely if you have someone and they don't notice when you want them to sympathize...for them it "gets old". If you're single, no one wants to date someone that has this heavy disease. It's such a catch 22!!! So, you've been with your boyfriend for 10 years and he isn't divorced yet? Whats going on there? You're getting married in 2005? Congratulations! Here's to knew beginnings in 2005! I'm also glad to hear you swim every day, does that help you a lot? I've been trying to work out myself, but I get flare ups of CFS & FM if I go over my limit just a little bit. Right now Im in a small flare up and am exhausted and in pain. I also have a cold. Can I tell you what does help sometimes? I volunteer with kids and other community needs. Its been such a great experience. This weekend I helped by painting kids faces at a Christmas party my church had for a homeless family place. Oh My God was it amazing! These kids were so underprivilidged and it made me feel so good about myself just helping them a tiny bit. The down side is I did too much (cleaning, setting up, working the whole time, and being around all those kids with snotty noses wanting to hug me) but it is worth it. I just wanted to share, because I feel good about myself for doing things like that. Tutti- Im glad we are becoming friends, its nice to talk to someone that understands. Have a great day sweetie!
ps: I just read another thread initiated by you about Fibro and dating ! and ok i know you're looking for a soulmate. That will eliminate my two questions above about married? children? but will still leave the working? one to answer. hahahaha ! soulmate? hm i really hope you'll find him. I have been diagnosed with fibro from May 04 and have had problems for a little over a year now. I live with my boyfriend of approx 10 years, we will get married beg. next year (when his divorce will be issued). Well, he travels a lot because of his business and I stay back and relax/rest and always feel better (physically) because I do less work when he's not around. I hate this feeling of being in pain and having someone (actually I mean HIM specifically) witness it all the time because eventhough I don't tell him (not ALL the time), I'm sure he can feel it because I look sad and tired when I'm all achy (and that makes me feel MORE achy, anxiety!). I was ok before, very active and jolly and now I'm no longer like that (even when I have good days - I'm not THAT strong you see?) When I'm in pain and he is travelling, then I just come back from work (and swimming) and hang out on the couch with my doggy and I watch tv and sleep early and feel better the next day. I wear my depressed look on my face and only have the walls to witness it. However, since this disease does not "show" anywhere because it doesn't destroy anything (God help us), then all you need is someone understanding and human, together with courage from your side and extremely little nagging (to the guy I mean of course, not to us here !!!), lots of private time to yourself so you can rest, and positive attitude. Good luck to you my friend.
Hey Tutti, thanks for your reply! To answer your questions, yes I am single, and no I do not have children. I work every day as a Director of Sales (total high stress job, which is one of the reasons I think Im sick!) No one at work knows, so I too have to hide it all the time (and I work in the middle of a group of people, so I can't actually go hide somewhere!). The problem I know you have too, is that our bodies look normal on the outside, but if anyone took the time to look at our eyes, they would see how much pain we really were in! In that sense it could be even more lonely if you have someone and they don't notice when you want them to sympathize...for them it "gets old". If you're single, no one wants to date someone that has this heavy disease. It's such a catch 22!!! So, you've been with your boyfriend for 10 years and he isn't divorced yet? Whats going on there? You're getting married in 2005? Congratulations! Here's to knew beginnings in 2005! I'm also glad to hear you swim every day, does that help you a lot? I've been trying to work out myself, but I get flare ups of CFS & FM if I go over my limit just a little bit. Right now Im in a small flare up and am exhausted and in pain. I also have a cold. Can I tell you what does help sometimes? I volunteer with kids and other community needs. Its been such a great experience. This weekend I helped by painting kids faces at a Christmas party my church had for a homeless family place. Oh My God was it amazing! These kids were so underprivilidged and it made me feel so good about myself just helping them a tiny bit. The down side is I did too much (cleaning, setting up, working the whole time, and being around all those kids with snotty noses wanting to hug me) but it is worth it. I just wanted to share, because I feel good about myself for doing things like that. Tutti- Im glad we are becoming friends, its nice to talk to someone that understands. Have a great day sweetie!
amgoingtoheal
12-13-2004, 05:04 PM
P.S. Tutti-
Sex in the City is one of my all time favorite sitcoms too! You said you worked, what do you do? I juat realized you might be sleeping right now...sweet dreams :)
Sex in the City is one of my all time favorite sitcoms too! You said you worked, what do you do? I juat realized you might be sleeping right now...sweet dreams :)
tutti-fruti
12-14-2004, 02:55 AM
hi dear amgoingtoheal ! it's early here and I'm at work now and you're probably sleeping ! I was looking forward to receiving a little message from you. I studied in an american school here in Athens when I came from Brazil (i was born in Brazil of greek parents and came to greece when i was 16). Then I went to an american college (Deree College) and did my BA in business administration. I work for a lebanese construction company (very large) in the Insurance Department for the past 25 years. Actually it's not a department, it's an in-house brokerage company. My boyfriend and I ? oh big and long story. We have not been living for 10 years, we've known each other for that long, we've been living together for the past 4 years. The divorce is a tough story in our case but we'll get there. I was previously married and divorced in 91, no children. You know, I'm sorry that you have to go through this hardship at such an early age. This is not easy at all. At 31 I had no health problems whatsoever, but I did get tired easily, easier and faster than other people I knew, and well before the age of 31. But a good night sleep would definitely put me back in track the next day. I've always exercised a lot since young age because I love the challenge of going further and further and this has given me a nice and slim and neat look today, I look quite younger than my age. Swimming is something that I've been doing intensively (whether in pain or not) for the past 3 months. I have enrolled myself in a gym which luckily enough is right next to my office. They have an olympic swimming pool (heated) and I go and do laps and laps and laps, it helps me both psychologically and physically. I also walk a lot (well I have a dog so I really have to), on a hill/mountain next to my house. I do some sit-ups at home for the abdominal area. Nothing is easy to be done when I'm in pain, nothing, but during those hard days I keep on dreaming for better ones. Sometimes I get so nostalgic of the way I used to be, really. It's good that you have a responsible job and I hope interesting one too. It's really tough when we are in pain all over and we have to go to work and pretend everything is fine. Fortunately I've been working here for a long time so my boss knows of my situation and when things get REALLY bad, I tell him and I leave work like half an hour before or something, it's tough though. Many women in this board don't work. I don't know if this is good or bad, sometimes when I'm in a lot of pain I become desperate and I wish I could just stay home and relax in bed, anyway. Your volunteering work with kids sounds great, I can imagine how satisfying it must be for you. I think you should add some exercising (light) in your daily routine, it's supposed to be good to people like us. Sleep tight and sweet dreams.
amgoingtoheal
12-15-2004, 11:48 AM
Hey Tutti Fruitty Patutti-
I too was hoping you'de write back. It's nice to have someone to talk to that knows what I am going through. As for exercise, I do exercise, I go to the gym about 4 times a week. If I do any more than that, I go into flare up mode. Like right now...I have a really bad cold and sore throat etc that has manifested in my chest and head. You know as well as I do that when FM people get sick (because of our lowered immune system) that we get it really bad! And to top it off, since we don't have the pain receptors working right, you feel just aweful, when its just a silly cold! Unfortunately I don't have someone else that can take care of me (financially or emotionally) to fall back on. I have a huge responsibility at work, but let me tell you, I AM SO JEALOUS of the women who don't have to work, but can "rest" all day. Man, there are so many days that I barely get through. Although, I definitely think that anyone who doesn't work should at least volunteer....more so for themselves really. It helps to get out and socialize and it makes you feel good about yourself. Anyways, I think thats awesome you've found swimming and do it so consistantly! Good for you! I love to swim, but the pool at my gym is overlooked by all the machines, so everyone watches the swimmers. Now, in my days of soccer, I would've done that, but now that Ive gained 80 lbs from this (mostly 2 years ago in a deep depression) I don't want everyone looking at me in a bathingsuit. You don't have to worry about that, but its a very self loathing experience. Either way, I do like doing some kind of activity, even if I can't do it very strenuously anymore, at least it helps with my brain fog. I'm glad you have such an understanding boss, that makes all the difference. My boss doesn't really beleive in "being sick". They want you to be at work even if you have the flu...today for instance. I have to go into work today even though Ill probably not get much done and infect the rest of the people. It doesn't make any sense! Why is America like this? Why can't they be more sympathetic and understanding? I bet other countries are so much more open to people in general. Tell me about your experience Tutti...I am sending big hugs for you from California! Have a great day!
I too was hoping you'de write back. It's nice to have someone to talk to that knows what I am going through. As for exercise, I do exercise, I go to the gym about 4 times a week. If I do any more than that, I go into flare up mode. Like right now...I have a really bad cold and sore throat etc that has manifested in my chest and head. You know as well as I do that when FM people get sick (because of our lowered immune system) that we get it really bad! And to top it off, since we don't have the pain receptors working right, you feel just aweful, when its just a silly cold! Unfortunately I don't have someone else that can take care of me (financially or emotionally) to fall back on. I have a huge responsibility at work, but let me tell you, I AM SO JEALOUS of the women who don't have to work, but can "rest" all day. Man, there are so many days that I barely get through. Although, I definitely think that anyone who doesn't work should at least volunteer....more so for themselves really. It helps to get out and socialize and it makes you feel good about yourself. Anyways, I think thats awesome you've found swimming and do it so consistantly! Good for you! I love to swim, but the pool at my gym is overlooked by all the machines, so everyone watches the swimmers. Now, in my days of soccer, I would've done that, but now that Ive gained 80 lbs from this (mostly 2 years ago in a deep depression) I don't want everyone looking at me in a bathingsuit. You don't have to worry about that, but its a very self loathing experience. Either way, I do like doing some kind of activity, even if I can't do it very strenuously anymore, at least it helps with my brain fog. I'm glad you have such an understanding boss, that makes all the difference. My boss doesn't really beleive in "being sick". They want you to be at work even if you have the flu...today for instance. I have to go into work today even though Ill probably not get much done and infect the rest of the people. It doesn't make any sense! Why is America like this? Why can't they be more sympathetic and understanding? I bet other countries are so much more open to people in general. Tell me about your experience Tutti...I am sending big hugs for you from California! Have a great day!
tutti-fruti
12-16-2004, 03:02 AM
Hi there and good morning. I took the day off work yesterday and here I am in front of my computer. I am always so glad to hear from you. I understand about this pool thing being in the middle of the machines? of my God ! well, I wouldn't like that very much eventhough to tell you the truth I don't give a s..t about what people think at all anymore, as long as I am fine and am doing what I want to do. But I understand, it ain't easy !!! I don't know about pounds I can only know kilos, I weigh 53 kilos and I'm 1.62 cm. And just to inform you about Greece for example, there is much less compassion in the work field that in the States. I've learnt from various forums that people can file for disabilities in the States which is not the case here AT ALL unless you have a debilitating disease like God forbid many other diseases. Fibromyalgia here in greece is not known or talked about so much. I went and saw this very big shot rheumatologist yesterday who confirmed that I have fibromyalgia and he mentioned to me that in the States there is even a community called Fibromyagia community or something like that. As for my boss, I've known him for many years here at work so I know how to handle him but I know that he could also treat me otherwise, I mean there is this potential, but I just don't let him. It's good that you exercise and it would be still better if you could lose some weight, i think it would improve your fibro symptoms also. And I don't know if we should be jealous of women who don't work. I've always worked all my life and I don't think i could see myself staying home all the time and complaining about my fibromyalgia my dear. The only thing I would have really appreciated was if I could just reduce my working hours because when this thing catches me by the throat it hangs me up in the air like a devil and I really really really suffer. I once read in a site about fibromyalgia that people suffering from it should not change their lifestyle (i.e. from working not working) because usually in circumstances like that the situation becomes worse. I really don't know. Many kisses to you
amgoingtoheal
12-16-2004, 02:33 PM
Hi there and good morning. I took the day off work yesterday and here I am in front of my computer. I am always so glad to hear from you. I understand about this pool thing being in the middle of the machines? of my God ! well, I wouldn't like that very much eventhough to tell you the truth I don't give a s..t about what people think at all anymore, as long as I am fine and am doing what I want to do. But I understand, it ain't easy !!! I don't know about pounds I can only know kilos, I weigh 53 kilos and I'm 1.62 cm. And just to inform you about Greece for example, there is much less compassion in the work field that in the States. I've learnt from various forums that people can file for disabilities in the States which is not the case here AT ALL unless you have a debilitating disease like God forbid many other diseases. Fibromyalgia here in greece is not known or talked about so much. I went and saw this very big shot rheumatologist yesterday who confirmed that I have fibromyalgia and he mentioned to me that in the States there is even a community called Fibromyagia community or something like that. As for my boss, I've known him for many years here at work so I know how to handle him but I know that he could also treat me otherwise, I mean there is this potential, but I just don't let him. It's good that you exercise and it would be still better if you could lose some weight, i think it would improve your fibro symptoms also. And I don't know if we should be jealous of women who don't work. I've always worked all my life and I don't think i could see myself staying home all the time and complaining about my fibromyalgia my dear. The only thing I would have really appreciated was if I could just reduce my working hours because when this thing catches me by the throat it hangs me up in the air like a devil and I really really really suffer. I once read in a site about fibromyalgia that people suffering from it should not change their lifestyle (i.e. from working not working) because usually in circumstances like that the situation becomes worse. I really don't know. Many kisses to you
Hey Tutti- I hope youre having a good day! I'm actually sick still with a really bad cold, fever of over 100 degrees, cough, sore throat, achy and spasming muscles...I hate being sick! So, I called in sick yesterday and today because I just couldn't do it. As far as disibility is concerned, from what Ive heard, its really difficult here in California, but easier in other states (as far as the US is concerned). Some people say they got it right away, some, like a cousin of mine, who has migrains and bipolar disease, has never been "normal" enough to do any kind of work, has been denied disability several times...and I think, if HE can't get it, I won't be able to. I guess it doesn't hurt to try if thats the route I really want to go. I'm sorry your country is also behind on standing behind Fibrmyalgia & CFIDS. I truly beleive that somewhere in the next 5 years, they will have figured all of this out, and we will be able to live much better lives from the research and protocols they developed....lets keep praying about it!!!
I know that some of the food I eat isn't helpful for losing weight and getting better. I heard this great nutritionist on TV say that when you are about to eat something like fast food or a donut or whatever is bad, ask yourself, "can I really get any nutrients out of this (donut) to help my body function?" I thought that was great, because when you're so hungry, and especially FM sufferers, when we are tired and achy, we don't think about our bodies needing fuel, we reach for the easiest thing possible...or don't eat. I'm suggesting we all be more mindful of what we eat today.
So what did your doctor tell you to do since he diagnosed FM? What is his treatment protocoll? Did you learn anything?
I have to go rest now, my cold is getting the best of me today..
Have a good day sweetie!
Kellie :wave:
Hey Tutti- I hope youre having a good day! I'm actually sick still with a really bad cold, fever of over 100 degrees, cough, sore throat, achy and spasming muscles...I hate being sick! So, I called in sick yesterday and today because I just couldn't do it. As far as disibility is concerned, from what Ive heard, its really difficult here in California, but easier in other states (as far as the US is concerned). Some people say they got it right away, some, like a cousin of mine, who has migrains and bipolar disease, has never been "normal" enough to do any kind of work, has been denied disability several times...and I think, if HE can't get it, I won't be able to. I guess it doesn't hurt to try if thats the route I really want to go. I'm sorry your country is also behind on standing behind Fibrmyalgia & CFIDS. I truly beleive that somewhere in the next 5 years, they will have figured all of this out, and we will be able to live much better lives from the research and protocols they developed....lets keep praying about it!!!
I know that some of the food I eat isn't helpful for losing weight and getting better. I heard this great nutritionist on TV say that when you are about to eat something like fast food or a donut or whatever is bad, ask yourself, "can I really get any nutrients out of this (donut) to help my body function?" I thought that was great, because when you're so hungry, and especially FM sufferers, when we are tired and achy, we don't think about our bodies needing fuel, we reach for the easiest thing possible...or don't eat. I'm suggesting we all be more mindful of what we eat today.
So what did your doctor tell you to do since he diagnosed FM? What is his treatment protocoll? Did you learn anything?
I have to go rest now, my cold is getting the best of me today..
Have a good day sweetie!
Kellie :wave:
tutti-fruti
12-18-2004, 03:10 AM
I hope you are feeling much much better by now with your cold. It's Saturday morning here and I'm at work (yes we work on Saturdays also). My boyfriend came back from his trip yesterday and in the afternoon we took our doggy and went for a 1 1/2 hour walk on the mountain which is right behind my house. OH OH OH I was soooooo tired and achy in the evening. I took a hot hot hot shower, watched some tv and hit the bed like a log (after taking 1/2 a xanax). Wish you a great weekend and hope the cold is over
amgoingtoheal
12-21-2004, 02:12 AM
I hope you are feeling better Tutti! Over doing it on our good days makes our bad days if you know what I mean! I had a really hard day today, not pain wise, but stress. Got into a big fight with my roommate and she was real immature saying real mean things. Even though I know people don't always mean the stuff they say, it still hurts, and unfortunately causes me stress. I have to start the search for a new roommate again, oh boy! Actually, if I take the positive side of things, at least I get another chance to get it right this time, right? This one is not understanding of my illness, and she doesn't want to be around it....go figure! Well, sorry for venting, but it's just been a bad day. I hope to hear how you're feeling. Take care
tutti-fruti
12-21-2004, 03:20 AM
Hi, sorry to hear about your fight. These things happen though and I personally hate them, but they've happened a million times to me because people are very unreliable. I have no longer the patience I used to have, I mean, being sore and achy and tired like this makes me very intolerant, I really have no energy to waste anymore on mediocrity. I thought you lived with your parents. As for me, I haven't been doing so well for the last couple of days. I got very tired here at work and at home and obviously there is so much running around because of x-mas etc., and I cannot take much. Well patience what can I say. Yesterday I woke up at 4 am and just couldn't get myself to go back to sleep again. The last time I saw the time was 5:45 and then I slept for a while and woke up at 7.25. I have to be at work at 8 am so yu can imagine how I left home ! good luck to you with a new room mate and let us know how you are doing.
amgoingtoheal
12-22-2004, 02:03 AM
I'm sorry to hear about your achiness and not so good of sleep. When you are already in pain and then you don't get the sleep you need, it can be very hard to function the next day. Have you tried melatonin or ambien for sleep? I suggest the melatonin first.
It was a disaster last night. I live with a very immature 30 year old who thinks its better to scream than talk things out. Complete Drama Queen, and she is now moving out. I can't understand why people can be so ridiculous sometimes. You are right, I have no more patience for intolerant people either and she definitely doesn't add anything good to my life.
I finished my Christmas shopping, thank God, and now I have the task of wrapping all of them. At least I can do that sitting down, and not battling the mall.
Happy Holidays!
It was a disaster last night. I live with a very immature 30 year old who thinks its better to scream than talk things out. Complete Drama Queen, and she is now moving out. I can't understand why people can be so ridiculous sometimes. You are right, I have no more patience for intolerant people either and she definitely doesn't add anything good to my life.
I finished my Christmas shopping, thank God, and now I have the task of wrapping all of them. At least I can do that sitting down, and not battling the mall.
Happy Holidays!