ladytafs
11-23-2004, 07:00 PM
Hello,
This is my first post and I would first like to wish you all the very best of luck.
I am in a bit of a difficult situation and really have no idea where I could go but here. I am 32 and still single. I had infrequent menstration followed by weight gain in my 20s. My RE decided is was PCOS. I was getting prepared to have a baby with doner sperm because I realized time for me may be on the short side and it felt like the right thing to do for me. However, I had had quite some time with no bleed at all (90) days so he drew blood. He then did it again a day later. Today he phoned me into his office to tell me he believes my ovaries are failing. I am devistated just a year ago my FSH was 7 on day 3. Now is is 41 (on about day 90) Does anyone have any suggests or any ideas? I am so crushed and can tell no one.
Mockanaitis
11-23-2004, 08:02 PM
I'm very sorry to hear of your predicament. I remember how it felt when my RE told me that I had to get pregnant within a year or I would probably not be able to (when I was 30). Unfortunately, I was in the middle of a divorce and it wasn't an option. That was a sad and scary thing.
Now I'm 34, remarried and can't conceive. We've been trying for over a year. I still have hope though. The RE I go to now is positive that it should be able to happen.
Also, we are looking into the possibility of adopting if this won't work out.
I wish that I could give an answer that would clear things up for your condition, but I don't have PCOS, just bad endometriosis.
Best wishes on your future! And much babydust to you!! ;)
ladytafs
11-23-2004, 08:17 PM
Thank you so much for your good wishes. These past 48hrs have been absolute hell. I haven't been so sad since my mother died. So sorry to be depressing. I do hope your RE can help you. Bunches and Bushells of baby dust back to you too. And thank you for being so kind. The funny thing is I can not seem to give up. Whatever drug is out there ... whatever procedure can be done. I am going for it. Again thank you so much... I hope you and your husband get a sweet cuddly healthy baby
serendipity1984
11-23-2004, 08:46 PM
Ladytafs - I'm 38 and have high fsh also so i can relate. I recommend getting various RE opinions - different RE's have different protocols (i.e., combinations of meds) aimed at high fsh numbers and PCOS.
I'm also pursuing traditional chinese medicine (herbs, acupuncture and supplements) that have been shown to reduce fsh. I recommend Randine Lewis's book "the infertility cure". There's a whole section on "advanced maternal age" that basically applies for anyone with high fsh. There's also a section on PCOS, i believe.
Depending on how this route goes, you might consider donor embryos. There are a few places in the u.s. that offer this service. And there's also adoption which is an excellent option - you can give a good home to a child in need.
Hang in there & make sure you explore all your options! Good luck & baby dust!
p.s. Just a though on your FSH ... i'd suggest working with your RE to get your cycles back to normal first - maybe your high FSH is a result of not cycling. FSH is the hormone that tries to jumpstart your ovaries. When it's easy to jumpstart them, FSH is low (<10) and fertility is high. When ovaries don't respond as well, FSH increases in the attempt to influence the ovaries. It seems to me that this process could go awry without regular cycles.
ladytafs
11-23-2004, 09:17 PM
Thank you so much sernidipity.... My RE has advised me that doner eggs are an opption .. along with doner sperm....I am concidering that... Adoption is a wonderful thing... but it's not really an opition for me.... I have concidered the thought about my cycles too. I actually just spoke with an accupuncterist who is willing to work with me... she adivised me to wait till I get propper cycle day 3 FSH bloodwork and rule out an chomosomal abnormality which the doc is doing (more bloodwork I AM a little human pincushon). I had one treatment before my diagnosis today .. and it was reeaallllly relaxing... it did aleviate stress... which always helps your body ..... I hope that it works for you...... Tons of baby dust in your direction.... and thank you so much for your help...... It's so nice to speak with people who understand .... It's helping me cope ... Thank you
healthseeker
11-23-2004, 11:18 PM
The funny thing is I can not seem to give up.
I am so sorry that you are feeling so low - but I have got to commend you on your commitment and willpower. I cannot help but believe that is half the darn battle! I too have been pushed by my dr to hurry, hurry, hurry!
I think your going to an accupuncturist is a great idea. I went duirng an IUI treatment and it was very relaxing for me as well. Stick with it and see what happens - you have only been tested once. See what your numbers do after working with her a bit. But, don't forget to keep us posted!!!!!!!! :wave:
ladytafs
11-24-2004, 04:17 PM
Thank you so much... for you kindness and support. I am not giving up... I am getting a second opinion though. Tody my RE nurse phoned and said wanted to reschedule some more bloodwork and I asked if I could just hold off as I am in a bit of a bad way emmotionally right now.. and would prefer to be tested on day three. as I really don't think an fsh of 41 is going to be my pernament nuber no matter what my doc says. She said....... "i think you should look at things differently... you weren't diagnosed with cancer like *I* was..... " I apologized .. scheduled bloodwork for parathyroid and a BUNCH of other things and hung up....
Mockanaitis
11-30-2004, 03:49 PM
I really enjoy the accupuncture as well! I think it's a great idea.
I can't believe the nurse had the guts to say that to you. But on one hand she's kind of right. I thought about that and it's true. It's not like we were told we're going to die (although I've a few times been so depressed I wished I was).
Hope your thyroid work goes well!!
BD,
April
ladytafs
11-30-2004, 08:08 PM
thanks so much....
It's been a very weird week for me... and I have to say ... the longest I ever went without any diet drinks.... I sort of explained to the nurst that ... I was just in shock .... you know...just digesting the new and very life chainging information... I told her of course I will have a different perspective with time. I will find out more on cycle day three.... am hoping things will go ok...
How are you feeling ????? Any luck with the accupuncter....????
Beaucoup de la baby dust !!!!!!!!!