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Diva10
11-28-2004, 01:36 AM
Not sure if I am in the right forum, i will give it a try anyway.

My dad had to have his gall bladder removed due to gall stones. The surgery was cancelled by the anesthesia doctor because no stress test was given for his heart, well they found that he had 80 to 90% blockage in the main artery but could not due surgery because of the fluid that had suddenly built up in his belly, so they drained it and had to find out what caused it so they eventually did a biopsy on his liver.

They diagnosed him with hepatocellular cancer ( primary liver cancer ) and after doing a ct scan, said there was nothing that could be done for this type of cancer, said he had a 7 cm tumor on the inside of his liver and gave him six months to live and told him chemo could maybe prolong his life a few months, but that would be it.

He has decided not to take chemo for his grand kids sake, what is another 2 months. I have been looking up a lot of things on the internet and have maybe gotten my hopes up for not. I do not want to go with my dad about the info for incase I just read what I wanted to read.

Please help, any info or advise would be much appreciated.
Thanks in advance

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crisma
11-28-2004, 02:24 AM
I am sorry for what you are going through! You should check out the death and dying board. Remember that even though these doctors give time lines they are not God. I don't know much about the cancer, but have you checked into any clinical trials? It might be worth looking into. My thoughts will be with you!

vamp36
11-28-2004, 01:47 PM
My thoughts and prayers are with your family. TIna

Diva10
11-28-2004, 09:39 PM
Thank yall so much, I am still trying to figure out what to do, I just cant belive what is really going on with my dad, after reading some of the post, it's hard, reality is a very strong reality.
not sure about clinical trials, where would i find info about that
thanks

crisma
11-28-2004, 10:22 PM
I recently had an aunt die of gall bladder cancer and when I was trying to find some treatment ideas for her I just typed in Oklahoma cancer trials (where I am from) and it brought several up. Some were near-by, some were not. Cancer is such a bad thing. It has taken so many of my loved ones. Thoughts and prayers!

Zambucca
11-29-2004, 04:55 PM
What part of the country do you live in? Do you have a local teaching hospital close? A major university hospital? I would contact the closest one. I have heard that liver cancer is a bear but, if the tumor is confined to one area....it could be removed. I would definately do as much research and don't give up! My sister just fought a two year battle with cancer and won. It happens every day!

Diva10
11-29-2004, 10:16 PM
Zambucca, thank you so much, we have Tulane not to far, but my dad, I think, does not to take treatments of any kind. Does not want to put his grand-kids through that, although not giving up, everyones prayers will help, if it is god will.
40% of his liver is nolonger working, so we have to pray for him and strength.
wonderful for your sister hope everything stays well
prayers,prayers Veronica

Diva10
11-29-2004, 10:19 PM
Zambucca, thank you so much, we have Tulane not to far, but my dad, I think, does not want to take treatments of any kind. Does not want to put his grand-kids through that, although not giving up, everyones prayers will help, if it is gods will.
40% of his liver is nolonger working, so we have to pray for him and strength.
wonderful for your sister hope everything stays well
prayers,prayers Veronica

cleopatra`
01-22-2005, 03:32 PM
dear Diva
I lost my dad to liver cancer....He was my best friend and my mentor. He believed I was the greatest thing that ever happened haha. I felt the same way about him!!!! There are many days I have something exciting to tell and go to call him and many other times I think wait till dad hears this and then remember.........I'm praying for you and for your dad.
cleo

Diva10
01-23-2005, 11:38 AM
Cleo, I have to admit, you just made me cry, my dad is still with us and has his good, bad and worse days, in time i am sure the thought of losing him will get eaiser but reality still has not hit me,and if he does pass then to me that will be devestating.

When does the thoughts and pain ease?

How long has it been since your dad has passed?

Thanks for your reply
I will be praying for you

cleopatra`
01-23-2005, 01:44 PM
Cleo, I have to admit, you just made me cry, my dad is still with us and has his good, bad and worse days, in time i am sure the thought of losing him will get eaiser but reality still has not hit me,and if he does pass then to me that will be devestating.

When does the thoughts and pain ease?

How long has it been since your dad has passed?

Thanks for your reply
I will be praying for you
dearest Diva I'm sorry for making you cry, when I just thought about how my post must have made you feel, I could have kicked myself!!!! Dad's cancer was a metastase, they first discovered his cancer in his bowel did surgery for the bowel but said they couldn't do anything but offer chemo for the liver. He took the chemo and although it didn't help, it didn't make him sick either. He was my hero, and I have to say the pain hasn't gotten easier yet. He passed two years ago, with all his children around him. His cancer had spread to his lungs and bone etc. He was his charming self right to the end. I have a co-worker who had liver cancer and had a piece of her liver removed and is doing really well, but unfortunately it wasn't an option for dad. I have to be honest and tell you right up till the moment it was happening I didn't want to admit it could. All I can say is try anything that might help, don't give up hope and spend every second with him you can. I'll be praying for you and for him as i'm sure many others will too. I hope you find a research program that he can try, its worth it. I've heard of another lady who had similar diagnosis as dad but has tried some research drugs and is doing pretty good
i'm not sure what drugs or how she was able to try it as dad wasn't offered any such drug, but then again he was 80 and she is in her 50's. but he was a young 80 parasailing at 78. hahahah1 think positive thoughts and know my thoughts are with you and i'm here if you need a shoulder.
cleo

Diva10
01-26-2005, 10:46 AM
Cleo, Please dont be sorry, I guess that is the kinds of things I need to here.

My dad is also a very important person and part of my life and I know that if he dies it will be very hard.

Unfortunaly, he has chosen to opt out of any kind of treatment, he refuses to even get a second guess, so we just have to be there and stand by him for now. The only thing he has done because i practly begged him is he is noe taking herbal med, Green Tea and Milk Thrisltle.

It tears me apart to think of life without him, so I dont, all I do or can do is pray for that life saving miracle that comes into the lives of of the desperate when god is willing.

Thank you so much for your prayers and the shoulder, (lol) cant say I wont take you up on that.

Veronica

cleopatra`
01-27-2005, 09:10 AM
well anytime, the shoulder is here. I'm praying also for you and your dad.
cleo

Diva10
02-02-2005, 12:22 AM
Cleo, Thank you so much,
My dad passed away this morning from either heart faliure or liver failure,
Either way he is no longer here with us. It was such a shock, way to early, cant think right now will write a gain later
Diva10

crisma
02-02-2005, 09:49 AM
Diva, I am so sorry that you have lost your dad. My thoughts and prayers are with you!

cleopatra`
02-03-2005, 03:42 PM
Cleo, Thank you so much,
My dad passed away this morning from either heart faliure or liver failure,
Either way he is no longer here with us. It was such a shock, way to early, cant think right now will write a gain later
Diva10


Oh Diva I'm so so sorry to hear that, I'm praying for you and for him. Please know my heart is with you. I'm here if you need to talk.
Hugs
cleo

kimzi81
02-25-2005, 03:40 AM
Cleo, Thank you so much,
My dad passed away this morning from either heart faliure or liver failure,
Either way he is no longer here with us. It was such a shock, way to early, cant think right now will write a gain later
Diva10


hi diva,
i just read through your posts now and i want to give my condolences to you and your family. I know what you're going through as I lost my mom to liver cancer when i was just 18. (im 23 now) Like your dad, she passed away very quickly after being diagnosed. The only thing I can say to you is that things do get better. You may not believe that now, but they really do - it just takes time. I'm a nurse now, and I can tell you that after working I realize that maybe her passing away so quickly was a blessing because cancer is tough - and its really hard on the body when it lingers for months and even years. I've seen these first hand.
im glad ur father didnt try the chemo - my mom took one round and it made her so weak that she was bedridden within a week, and she never got better from it. i think he made the right choice in not taking any treatment and just living out the rest of his life - after seeing my mom and others, its what i would do!
i dont know if you are religious. I was never really until my mom died and i had to believe that I would see her again someday. I feel blessed to have had her as my mother and I am lucky to have had 18 years with her. It never stops hurting, but eventually you will be stronger and able to look at things in a different way. Remember that dying is the easy part - he's still watching over you and he's still with you every step of the way. It's us left on earth that take it hard because we cant see them or have them in our physical lives. I dont know if that makes sense.. but what im trying to say is that your dad is in a good place now, and im sure he would want you to be happy.

my prayers are with you - if you need anything, let me know.

kim

feelbad
02-25-2005, 09:35 AM
so sorry to hear of your dads passing,but am relieved that he is not in any more pain.You do have my deepest sympathies Diva.Marcia

Diva10
07-13-2005, 09:31 PM
Hi everyone, so sorry that it has taken so long for me to post but it has just been to hard and I have been just so busy.
I am doing good, I have good and bad days since my dad has passed, it has been 5 months and did not think that it would ever get eaiser but it has.
I really miss chatting with you all others that were there for me when I needed you all the most with that said I will sya thank you all for your post and thoughts and I am here if any one needs.

Kimzi81, a special thanks to you for your post, your are right with everything you said, I did not get your post till today as I have not been to check this site in months, although I may not have agreed with you a few months ago, I do now.
But to be honest with you and myself, I honestly felt closer to god before my Dad died then I do now, I had to place my anger somewhere, and it has not gone away yet, but that is another story of something I need to work through.

Love and thoughts
Diva10

OhioMOM
07-14-2005, 12:38 AM
your family is going through a difficult time and my thoughts are with you. xxoo

purrrrdygirl
07-15-2005, 07:22 AM
Cleo, Thank you so much,
My dad passed away this morning from either heart faliure or liver failure,
Either way he is no longer here with us. It was such a shock, way to early, cant think right now will write a gain later
Diva10
I am truly sorry,for u losing your dad to such a horrible disease.... i hate the liver at time's, my mom has cirrhosis only about 30% of her's is working she has really bad spells at times where she gets all confused and hollucinates . dont know how to spell it , but im sure u understand what i mean.. i make her take milk thistle. that is what i was going to mention to u if ,u didnt know about it, but u did , i do have a question for u , how long before ,the lord took your dad back home did he take the herbs u mentiond? thank -u and agian i am sorry......

Diva10
07-15-2005, 02:00 PM
sjkiley, thanks for your thoughts and caring.

purrrrdygirl, so sorry to here about your mom, when did yall find out about her illness, how long has it been,

My father passed 3 months after finding out about his cancer, and at that time he only had 20 to 30% of his liver,
I bought him the herbs about a month and a half after. I found out after he passed that he never took them, witch was very upsetting to me, because I now will never know if they would have helped him even a little.

His hollucinations started about a week or two before he passed, from my understanding they were caused fron the toxins in his body because of the liver not working.

There are meds to help that though it was just to late for him, he also had blockage in his heart, so ultimatley he may have died from heart faileur.

Good luck with you and your mom, please take advantage of the time you have left with her.

One more thing, if you have any questions please feel free to ask.

thought and hugs
Diva10

purrrrdygirl
07-16-2005, 02:47 AM
sjkiley, thanks for your thoughts and caring.

purrrrdygirl, so sorry to here about your mom, when did yall find out about her illness, how long has it been,

My father passed 3 months after finding out about his cancer, and at that time he only had 20 to 30% of his liver,
I bought him the herbs about a month and a half after. I found out after he passed that he never took them, witch was very upsetting to me, because I now will never know if they would have helped him even a little.

His hollucinations started about a week or two before he passed, from my understanding they were caused fron the toxins in his body because of the liver not working.

There are meds to help that though it was just to late for him, he also had blockage in his heart, so ultimatley he may have died from heart faileur.

Good luck with you and your mom, please take advantage of the time you have left with her.

One more thing, if you have any questions please feel free to ask.

thought and hugs
Diva10
well actually its been 7 long year's, alot of up's and down's she is in one of her down states right now:( i hate this!!!they told her she has end stage liver diesease,and she had 2 days top's to live then i panicd and searchd for day's on end to find something to, atleast help her a little,thats when i found milk thistle and sam-e and some other thing's ... i belive that is a big factor in her still being here... your dad seemd determend and had his mind set to do it his way!!!! i put them in her mouth and make her take them.... i swear she gives up alot and just wants to die... it sure hurts to see the people that once was so strong in our eye's so helpless ....:( thank you for replying im glad i found this forum...my mom is 45 how old was your dad..if u don't mind me asking... thanks for your time...... tina :confused:

feelbad
07-16-2005, 10:47 AM
Tina, is transplant not an option for her?marcia

Diva10
07-16-2005, 12:32 PM
Transplat may have been an option a few years ago but probable to late now if it were ever an option, I know for my Dad it was never an option even if they would have cought it sooner they said transplants seldon work if ever really work unless you have just a bad liver not for a diseased liver.

Tina, My dad was 59 years old and was well enough to take all his own meds pretty much till the end there was another herb that I gave him to take though other then milk thistle, it was green tea. One was to help build up his immune system and the other was to help clean up his liver.

I have heard great things about both but as I said my dad never took them so i have no opion about either.

How long has your mom been taking the herbs?, you said she has had her liver disease for seven years, when she was diagnosed, how long did they tell her she had left? if you dont mind me asking.

I know what your going through now is hard but just try and be strong and take advantage of today not tomorrow.

Thoughts and hugs
Veronica (diva10)

purrrrdygirl
07-16-2005, 04:01 PM
well she has been taking the herbs for 7 year's... and she did not know she was ill at all ..untill she went to the hosptial for her stomach hurting .at first they said it was a std? that made her and her boyfriend fight becasuse that made her think he was cheating.so then she went back they said it wasn't and that, her liver was bad,that she has hip b and c and cirrhosis, she was real bad off.she would vomit blood and it would come out the other end also...so very scary.at that point they told her she had 2 days to live:( that was 7 year's ago.... so i really don't know what's keeping her going...?i am happy don't get me rong , i just hate the thought of maybe one day her not waking up....and among other thing's!!!!! ive been going through so much stress with this since i was 19 years old , i had her move in with me and my daughter so that i could care for her.i just had another little girl in march she was 10lbs ....lol not to little....the transplant is not a option at the time ,they tell her she is not a canidate because of some year's she tryd to commit suicide by taking to many of her pills , because she was dealing her dad dieing ( i don't think that is o.k at all) :mad: :mad: .... so they tell her to get off all her meds.which she has been on for 25yrs and she is really scared,she is down quite a bit now tough...so we will see if she can be a cannidate in the future...that may be to late ..but a thought........

Diva10
07-20-2005, 10:20 PM
wow, that is horriable, please let me know, keep in touch.
remember we are hear when you need someone to talk with
Veronica (Diva)

angelpixie38
07-21-2005, 02:50 AM
ill keep u and your family in my prayers!


A little hope a little prayer
can go a very long way
dont give up, look up
god can give you another day

In times of stress and pain
a hug can do so much
a smile can lift you up
so ill give you a touch

A touch of kindness
to ease your soul
the touch of love
as gentle as a doe

we will be there
if you need a friend
to lift you up
when you feel theres no end

may gods mercy help you and your family threw this i was there once to.

candiekisses68
08-04-2005, 02:25 AM
:angel: Diva Hi My Prayers Are With You,on June 6 My Dad Was Diagnosed With Liver Cancer Went Through A Bunch Of Teating And He Decided Not To Go With The Chemo Either It Would Have Made Him Very Sick And He Just Did Not Want It,how Ever His Was Real Quick (thank God) Cause I Would Never Want Him To Suffer And It Was To Prgressed To Be Treated.so He Did What He Wanted To Up Till 2 Days Before He Passed Which Was June 25 And Was Very Comfertble I Know How Your Feeling Be Strong And Vent When You Need Too,michelle :angel:

Diva10
08-04-2005, 12:03 PM
Michelle, Thank you so much for your thoughts, it means so much,
Like your Dad, my Dads suffering was minimal, although dosen,t make the missing him minimal, but it does get easier,
My thoughts are with you also
Veronica

jcraz
08-20-2005, 03:13 PM
Where do you live? My husband was dx'd with liver cancer. His Dr. probably can help. He's the #1 specialist in Ca. 310-556-7747, Dr. Ian Renner Los Angeles, Ca. Good luck :angel:

feelbad
08-21-2005, 10:48 AM
I did not know that by having a past suicide attempt history would disqualify a candidate for a lifesaving transplant.did this information come from UNOS or was she told this by a doc.That just doesn't sound ethical at all to me.i would double check that info through UNOS they are the ones that set up the Tx guidelines.This is type of information that you want to make darn sure is actually true.Like i said, this does not sound ethical espescially when past drug addicts and alcoholics are allowed to have a transplant.something just sound right to me at all.please double check on that.marcia





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