Hi All,

Today I tempted fate and decided to see if anything had changed when I move my eyes to the far right or left. I flicked them back and forth about 5 times. Well within about 10 minutes it started. Objects moving subtly again when trying to hold my vision on something and feeling really quite off and floaty again - even detached :eek:. When I stand still right now with eyes closed the diseqilibrium is there. I know this will probably vanish in another day or two but there is still this lingering problem there. Just wondering if some of you who are in the high 90% area of recovery or 100% (Ilia, hbep, Subs??) get this effect from eye movement?

Can anyone make a guess at what causes this? Strange that my vision and symptoms are near nil until I do this. It must produce some crappy signals where the eye input and inner ear input don't match up...or I suppose my brain hasn't made adjustments for this considering I never normally move my eyes like that and it hasn't had to compensate. Now I wonder if I should be working on this (ie. VRT) to clean it up??

Sure don't like this feeling.....been a looong time since I've felt this...like the old enemy has come around for a short visit.

Thanks...Scott

Hi Scott.
You poor thing but just remember how good you have been feeling and that you are still recovering. Did you see those exercises I posted on here from the leaflet they gave me at the hospital? Maybe doing those every day/a few times a week will build up your resistance to those kinds of movements? Might be worth a look?
I have been really naughty at doing them but I will make myself because I know it's important!
Hope you feel a lot better soon!
Katkin x x x

Hi All,

Today I tempted fate and decided to see if anything had changed when I move my eyes to the far right or left. I flicked them back and forth about 5 times. Well within about 10 minutes it started. Objects moving subtly again when trying to hold my vision on something and feeling really quite off and floaty again - even detached :eek:. When I stand still right now with eyes closed the diseqilibrium is there. I know this will probably vanish in another day or two but there is still this lingering problem there. Just wondering if some of you who are in the high 90% area of recovery or 100% (Ilia, hbep, Subs??) get this effect from eye movement?

Can anyone make a guess at what causes this? Strange that my vision and symptoms are near nil until I do this. It must produce some crappy signals where the eye input and inner ear input don't match up...or I suppose my brain hasn't made adjustments for this considering I never normally move my eyes like that and it hasn't had to compensate. Now I wonder if I should be working on this (ie. VRT) to clean it up??

Sure don't like this feeling.....been a looong time since I've felt this...like the old enemy has come around for a short visit.

Thanks...Scott

Hey Scott

Don't worry about that one---it's tied to the VOR pathway reestablishment---if you don't do the VRT's for it---it takes a little while---to dump it---cause it is an extreme maneuver---even with the VRT's it will be the last to go---but it goes----think---if you think about it----even before this junk---came about---that kind of "intentional" eye movements---to the extreme---while not making you dizzy---got your attention---unless you---did it routinely---through some type of activity/sport----but that will go---actually not a bad sign---since it seems to be the only one left-----and---"it will leave the building also"---shortly.

Isn't this junk priceless!

:cool:

Hi Scott, just noticed your post and actually yes I do still (even now lol) get something similiar! You are going to laugh (but I am sure that the girls out there will understand this one!). My eyes feel exactly as you describe whenever I look at something very close up for an extended period of time. For instance holding a mirror close to my face whilst plucking my eye brows (know you are unlikely to do this!). When I go to look away from the mirror, my eyes feel all weird and like cross eyed almost and I feel weird. It happens every time so much so that I don't really register it. The feeling goes away pretty quickly, few minutes even quicker sometimes. As Subs says it is the VOR aspect thats effecting you. The key is if flicking your eyes in this manner provokes a symptoms then keep doing that very thing every day, 3 times a day. That way you will eventually compensate for that movement! As subs also mentioned there are lots of VOR exercises you can do, if you want some exercises let me know. But I figure that you know them any ways as you are very up on this! Ilia

Hi Scott,

I, too still get wierd feelings from eye movements and can defintely relate to the eyebrow plucking problems Ilia describes!! I have found the best thing to do is, as Ilia says, keep doing it. Any movement that causes me a problem I simply do it again and again and again and I must admit, it usually gets easier. I'm sure, like Subs says these movements would get better on their own eventually, maybe you could do some of the eye exercises to speed it up a little?

Lizzy x

Hi Scotsman,

Yup, me too. I went for 2 VRT sessions with a physio - the first was all the usual cawthorne cooksey movements. The second, much later on, was to give me specific eye exercises - I am over reliant on my eyes for balance. Ok, I have to admit I haven't done them - shortly after I had my excellent three months and was so busy celebrating how cured I was I couldn't be bothered. This post reminds me I should get back on to them. Doing them makes me feel sick, lol. so can't say I'm keen,


best,

hbep

Hi Scotsman,

Yup, me too. I went for 2 VRT sessions with a physio - the first was all the usual cawthorne cooksey movements. The second, much later on, was to give me specific eye exercises - I am over reliant on my eyes for balance. Ok, I have to admit I haven't done them - shortly after I had my excellent three months and was so busy celebrating how cured I was I couldn't be bothered. This post reminds me I should get back on to them. Doing them makes me feel sick, lol. so can't say I'm keen,


best,

hbep

Ok---Hbep---C/L's headed for L/L land, Scott's winding it up down under, Ilia's doing "pluk vrt's" for her eyes(did I get that right Ilia-lol), Terry's 100% & molding young minds and growing xmass trees, Lizzy's wrapping it up--also, Scant's eyeballing her motorcycle--- ready for the "wild thing" trip---again, I'm still at 100%---Know I missed some

---and---where are you---with this junk---is the jury still out---Hbep?

:cool:

Really laughing :)

Also have the pluck problem - feels v weird!

xxx

Im feeling ya scott..I know exactly what you're talking about...it makes me feel better that you posted a thread that I should've written myself...I guess there must be exercises just for the eyes in this instance....anyway long time no talk...god bless everyone on this board...it just aint fun!!!!!!!!!!!!!! Utah

Try those exercises I posted - they have eye ones - they may help! :)
Katkin x x x

Hi Guys and Gals,

Thanks a million for all of the input. Subs, glad to hear it's the last thing to go...looks like I may have to push it out though with some light VRT. Doubt I can handle those eye movements daily Ilia. The effect is still surprisingly strong...I'm still feeling it today...was off balance walking for the bus this morning for the first time in weeks. I'll wait til it calms down again then maybe do just a few eye flicks every other day and see if I can build it up.

Ilia and CL - laughing about the eye brow plucking...just hope the resultant dizziness doesn't cause you to pull out the wrong brow hair... could make a right mess of it - LOL.

Utah....how are things with you these days. Are you improving at all?

Katkin - will check out the exercise again but think I know which ones I have to do...kind of dreading it really as hbep pointed out. Really don't want to make myself feel crummy but probably have to push through this regardless.

Best all...Scott

hi scott

yep i deff still get symptoms from moving my eyes quick left to right or moving your head side to side whilst trying to keep eyes focused on object, my last set of vrt included putting text on the wall at eye level, standing at arms length from the wall and read whilst turning your head side to side, sorry if thats a repeat, but i have found this symptom to be lingering too......take care...lorr

Thanks Lorr...well at least I know I'm not the exception with this one. It's common right across the board in most of us. Looks like it's going to be the last alien to leave the party. Are you doing any VRT or just plodding along (like myself) hoping it will all fade away forever?

Cheers.....Scott

Hi Subs,

Thanks for asking. I'm 2 weeks in to taking my migraine drugs. I started off on a v. v. low dose - upped it yesterday. It certainly hasn't been a magic bullet yet. I am doing ok - although there are currently a lot of ups and downs that I wasn't experiencing prior to the big blip. If they are going to work, the drugs, I'm informed, can take a while, so it's wait and see on that one. If I had to guess what's going on - the digestive problems have upset the applecart. A lot of the drugs I have to take for that (3 in total) can cause headaches as a side effect. My guess is they have destablised me, although I have no choice but to stick with them for the moment. It could be that the migraine drugs are actually controlling things to a degree, it's possible without them I could be a lot worse.

The short answer to how I am is a damn sight better than I was a year ago, so that's something to be grateful for. On a day to day I am mostly dizzy free (ish) - I experience a lot of it at night - spinning with eyes closed, which, although it's a pain, is tolerable. Fraid Terri is also experiencing a minor blip.

Glad you're still doing so well, Subs, and glad to see so many others reaching the finishing line with this junk.

best,

hbep

Hi Subs,

Thanks for asking. I'm 2 weeks in to taking my migraine drugs. I started off on a v. v. low dose - upped it yesterday. It certainly hasn't been a magic bullet yet. I am doing ok - although there are currently a lot of ups and downs that I wasn't experiencing prior to the big blip. If they are going to work, the drugs, I'm informed, can take a while, so it's wait and see on that one. If I had to guess what's going on - the digestive problems have upset the applecart. A lot of the drugs I have to take for that (3 in total) can cause headaches as a side effect. My guess is they have destablised me, although I have no choice but to stick with them for the moment. It could be that the migraine drugs are actually controlling things to a degree, it's possible without them I could be a lot worse.

The short answer to how I am is a damn sight better than I was a year ago, so that's something to be grateful for. On a day to day I am mostly dizzy free (ish) - I experience a lot of it at night - spinning with eyes closed, which, although it's a pain, is tolerable. Fraid Terri is also experiencing a minor blip.

Glad you're still doing so well, Subs, and glad to see so many others reaching the finishing line with this junk.

best,

hbep

Hi Hbep

....."My guess is they have destablised me".....

That makes sense----how long must you take them---temp---I hope.

...."I experience a lot of it at night - spinning with eyes closed, which, although it's a pain, is tolerable"......


..."spinning with eyes closed".....

Hbep---you have said that quite often---each time I read it---I try and figure out why/how that could be going on----don't think I understand the physics of it----ur good at connecting the dots with this stuff----have you??

Hope---it is just a "blip" with Terry.

:cool:

I get the eye movement dizziness scott but to be honest I get it with any movement of my eyes not just sharp ones to left and right! xx:(

When I first started experiencing my symptoms, I wasn't able to look at anything close up. It would cause a feeling of my eyes wanting to roll back into my head or feel like the eye muscles would "cramp" up.

I am able to look at objects closely now, and even pluck my eye brows, more comfortably. But I still get "stuck" in my vision on occasion with the eye rolling or cramping feeling. I am able to "shake this off" even though at times it does leave me with a headache - sometimes it feels like I am trying to adjust to a new eye glass prescription.

For the longest time also, if I looked down and tried to read, my eyes would "flit" back and forth. This is finally abating. Anyone else ever experience that?

I also have a small focusing problem: when I look at something close or down, and then I look up at something else, it takes a moment for the something else to focus. Anyone else?

xo

Very interesting thread, since my dizziness seems to be perceptual in a way. As I've said, it feels like I have new prescription glasses perpetually, with the dizziness intensifying in certain lighting, when I look down, and yes, to the sides!

I got my eyes checked over the weekend, and my sight has remained pretty much the same since my last exam years and years ago: -2.75. However, I had been wearing my old glasses exclusively for the past 2 months or so (usually I wear contact lenses, but ran out and got too lazy to get more), but for some reason my glasses were only -2.5, as I just found out at the appointment. So, when my optometrist gave me a new pair of contacts to try out at the correct prescription - which is actually the same prescription as the contacts I usually wear - my dizziness got WAY worse, because I guess I got too accustomed to my weaker glasses in the last 2 months. I kept the contacts in regardless, and wore them pretty much the whole weekend, but could not adjust to it at all. So today, I am back to my old glasses, which I'm supposed to take in this week to change out the lens with the correct dosage... yikes.

My question is, should I keep at it with the correct prescription? The intensified dizziness is quite bothersome; everything feels/looks far away and "wavy". I'm afraid with the inability I experienced with adapting to the lens over the ENTIRE weekend, that it just might not be a possibility at all for me with this dizzy condition I have, and that it could actually be detrimental to recovering from it. Any input would be much appreciated!

hi scott

yep fitting in vrt when i remember and plodding along like u say waiting for it to be gone forever, i am doing lots more things now and count these as vrt as well. like wowwweee, at the start of this nightmare i couldnt look at anything close, and as im short sighted and usually can see very well close up that was so strange, i felt like i had magnets behind my eyes repelling my eyes away, this is more or less back to normal and i can continue with my paintings again, and glasses oh nightmare just like moon, that feeling of the wrong precscription i went on about that a bit mid last year, im sticking with my oldies and dread getting new ones.....actullay have a new prescription...but i wont be changing over just yet....take care all.....lorr..xx

Hi Lorr,

It's the same effect for me on various LCD screens and CRT monitors. I bought and then sold a new 19" Sony and then a 900 buck Samsung LCD. Both made me sick as a dog within minutes of looking at them and the effect would last for days. I was gutted. Finally (3 times lucky) I found an LCD that works for me but what a pain in the *** getting there...not unlike a glasses prescription I imagine. I totally understand your dreading a new set of eye glasses. I just thank my lucky stars that I don't need glasses. At least I got lucky with something in this drama.

I feel pretty settled again so might do a few eye flick exercises tonight just to ruin my evening again - LOL. :jester:

Best....Scott x

Hi all, this thread brought a smile to my face, hope that you are all well. Hi to every one.

Hbep, you know you describe the spinning with your eyes closed. Is it all like this? A while ago (year or so) at night when I lay down and closed my eyes I also felt a spinning sensation, horrible, I would flick open my eyes and viola the room was still. Close them again and it woudl start up. It eventually paled down into the feeling of being a puck playing ice hockey, if you get me, rather than spinning it was more a I am moving all over feeing, side to side. Then.........lol...........this is taking some time!....it stopped. I am now perfect. So dont give up hope, mine wnet and so should yours! Ilia

Hey subs - liked your amusing little quote, likewise the reat of ya'll xxxx

SUBS

I too get hbeps "spinning with eyes closed" - boy it's gross. Not sure how it's any more odd than the rest of our symptoms though subs? To me its like vertigo, going one particular direction, like yur body falling through space and spinning also.

Grim.

xxx

SUBS

I too get hbeps "spinning with eyes closed" - boy it's gross. Not sure how it's any more odd than the rest of our symptoms though subs? To me its like vertigo, going one particular direction, like yur body falling through space and spinning also.

Grim.

xxx

Hi C/L

Just trying to understand it----I had the (spinning) vertigo---as you know--but only with my eyes open----if I closed them---it stopped---If I understood Hbep(and some others) correctly---she got it with her eyes closed---and if she opened them---it stopped---like somehow---when she activated her vision---it put a brake on the vertigo(imbalance)

---I was just trying to understand the physics of that---the vertigo(in my case)was from an imbalance between the right/left vestibular system---because of ear rocks in the right canal----when it happened---if I did not shut my eyes---the whirling of the room---amplified----the vertigo---and---I seemed to spin faster(and got sicker)---that I think I understand.

:cool:

Yep, get you. Well to me the y are 2 different sensations - I can have true visual vertigo and I can also have vertigo with my eyes shut - v odd - they can occur together or alone. In fact thinking about it when I have had true visual vertigo with a cold - room spinning - when I shut eyes it carries on and is like Hbep notes. Guess we are all different hey? :)

xxx