Hey

I'm a 16 y/o male. I've been on Healthboards for a few months during which time I frequented the MS forum and thyroid forum looking for possible answers to my problem.

Back 3 years ago, I developed tinnitus. Doc ordered an MRI and hearing test, both normal, no further investigation.

2 years ago, got muscle twitching (fasciulations), doc said it was "stress." Again, no further investigation.

Then, back in Feb. of 04, I got muscle tremors or "rippling" (not sure which) in my leg muscles when lifting my legs. Eventually it developed in abs and arms too, so now when I flex, my arms jerk and quiver slightly, and same effect w/ my abs when I do a sit-up, for example. I went to the neurologist and got an EMG/NCV done, both of which are normal. The doc put me on 20 mg. propanolol to see if that helps the tremor.

Also, I have pins/needles sensations in my hands, and my muscles, especially my legs, feel achy, but this is transient, and has been happening since Feb. 04 as well. These next two symptoms are really the ones that worry me right now:

1. Nausea/dizziness: I have had this since maybe Feb. or March when the tremors started. Everytime I go in a dimly lit place like a movie theater or a restaurant, I get dizzy. For example, every time I go out to eat, I can barely eat my food because I get nauseous. Over the past couple of days, its gotten to the point where I feel dizzy most of the time, even in lighted places, and I feel disoriented like I'm floating or I'm not sure which direction is which.

2. Sleep "tremor": This next one is extremely weird and hard to explain. This only happens when I sleep on my back. As I start to drift to sleep, my arms, legs, and head start trembling and jerking, and it snaps me wide awake. The feeling is pretty intense and frightening. I've been doing some reading and think this might be some kind of sleep myoclonus? But I'm not sure. I forgot to mention this to the neuro so he doesn't know about it.

My biggest fear right now is that it is a brain tumor. The fear and constant worrying may be aggravating some of the symptoms, but I really need some answers. My neuro did not even mention the possibility of something like that. Can this be a brain tumor? especially with the nausea/dizziness?

I just saw my neurologist last thurs, which is also when I got put on the propanolol. Should I tell him my concern the next time I see him or wait it out?

Thank you

Vince

Have you had an EEG? I was just diagnosed with epilepsy, visit epilepsy.com and read on the different types of seizures, they aren't what you think they are. They are things you never would call a seizure.

I am surprised that they haven't done another MRI. I would definitely talk to the doc about your concern and ask them him to repeat the MRI with contrast. So sorry to hear you are having such difficulties. Could the dizziness be a side effect of the medication? Print out your post, or make a list of your symptoms and take it with you. Good luck to you.

Hey

I'm a 16 y/o male. I've been on Healthboards for a few months during which time I frequented the MS forum and thyroid forum looking for possible answers to my problem.

Back 3 years ago, I developed tinnitus. Doc ordered an MRI and hearing test, both normal, no further investigation.

2 years ago, got muscle twitching (fasciulations), doc said it was "stress." Again, no further investigation.

Then, back in Feb. of 04, I got muscle tremors or "rippling" (not sure which) in my leg muscles when lifting my legs. Eventually it developed in abs and arms too, so now when I flex, my arms jerk and quiver slightly, and same effect w/ my abs when I do a sit-up, for example. I went to the neurologist and got an EMG/NCV done, both of which are normal. The doc put me on 20 mg. propanolol to see if that helps the tremor.

Also, I have pins/needles sensations in my hands, and my muscles, especially my legs, feel achy, but this is transient, and has been happening since Feb. 04 as well. These next two symptoms are really the ones that worry me right now:

1. Nausea/dizziness: I have had this since maybe Feb. or March when the tremors started. Everytime I go in a dimly lit place like a movie theater or a restaurant, I get dizzy. For example, every time I go out to eat, I can barely eat my food because I get nauseous. Over the past couple of days, its gotten to the point where I feel dizzy most of the time, even in lighted places, and I feel disoriented like I'm floating or I'm not sure which direction is which.

2. Sleep "tremor": This next one is extremely weird and hard to explain. This only happens when I sleep on my back. As I start to drift to sleep, my arms, legs, and head start trembling and jerking, and it snaps me wide awake. The feeling is pretty intense and frightening. I've been doing some reading and think this might be some kind of sleep myoclonus? But I'm not sure. I forgot to mention this to the neuro so he doesn't know about it.

My biggest fear right now is that it is a brain tumor. The fear and constant worrying may be aggravating some of the symptoms, but I really need some answers. My neuro did not even mention the possibility of something like that. Can this be a brain tumor? especially with the nausea/dizziness?

I just saw my neurologist last thurs, which is also when I got put on the propanolol. Should I tell him my concern the next time I see him or wait it out?

Thank you

Vince


Hi Vince,

Did your doctor ever send you to an infectious disease specialist to
get tested for Lyme Disease? If not, I would seriously consider seeing a lawyer if you test positive... Were you out camping or living in deer country
before you had any of these symptoms? Did you ever have a bull's eye rash
that looked like a spider bite?

In the meantime, you need to see another primary doc to get referred, since the other one might be diffiicult to deal with if he senses he made a mistake.
If I were you, I would be welcoming being put on long term antibiotics to see if any of the symptoms get better.

Don't worry, they put teenagers with acne on the same antibiotic for as long as five years without worrying about it. You have a serious condition which
warrants as much or more effort

just type "lyme" in your search engine and do some reading
I am sure you will see some amazing things

Hey

Lilipad: Yeah, my mom suspected the symptoms could be a side effect of the meds, so I stopped taking them as of this morning, but it feels like its getting worse.

encarassco: Nope, never had an EEG.

Ron: Yes, I've been tested for Lyme Disease before, and it was negative.

Vince

Hey

Lilipad: Yeah, my mom suspected the symptoms could be a side effect of the meds, so I stopped taking them as of this morning, but it feels like its getting worse.

encarassco: Nope, never had an EEG.

Ron: Yes, I've been tested for Lyme Disease before, and it was negative.

Vince


Hi Vince,

Was that an infectious disease specialist who ordered the test from a reputable lab? Has he treated many Lyme cases successfully?
Did you lokat the Lyme sites to see the symptom simiarities?

Were antibiotics suggested ? How were other bloodwork tests like
Sed Rate, C reactve protein, Antinuclear Antibody, White Blood Cell Count?
If any of these are elevated, that is sufficient reason to take the antibiotics
even if the Lyme test was negative.

Ron

Hi Vince,

Was that an infectious disease specialist who ordered the test from a reputable lab? Has he treated many Lyme cases successfully?
Did you lokat the Lyme sites to see the symptom simiarities?

Were antibiotics suggested ? How were other bloodwork tests like
Sed Rate, C reactve protein, Antinuclear Antibody, White Blood Cell Count?
If any of these are elevated, that is sufficient reason to take the antibiotics
even if the Lyme test was negative.

Ron

Hey Ron

No, it was a GP that ordered the lyme tests. I've checked out the Lyme sites and note that I do have a similarity in symptoms.

I had the Lyme ELISA done back in Feb. when it all first started, and that came out slightly high, so it was followed by a Western Blot which came back normal. I also had a sed rate and CBC, both which were normal. I did not have an ANA or C Reactive Protein done. No antibiotics were given.

Vince

Hey Ron

No, it was a GP that ordered the lyme tests. I've checked out the Lyme sites and note that I do have a similarity in symptoms.

I had the Lyme ELISA done back in Feb. when it all first started, and that came out slightly high, so it was followed by a Western Blot which came back normal. I also had a sed rate and CBC, both which were normal. I did not have an ANA or C Reactive Protein done. No antibiotics were given.

Vince


Hi Vince,

You already know what I would do, don't you? (My first post)
What choice do you have if you keep getting worse?

Ron

Sounds like some of the many symptoms of MS, I would suggest instead of an MRI, ask about a CT scans, in MRI`s with or without contrast lesions & plaques sometimes will not show up

Hi Vince - Please, Please, Please go to the lyme thread here on Healthboards. I was very sick with all of your symptoms and more. I don't remember a tick bite nor did I ever have a rash. I was told twice that I didn't have lyme - 2 Elisa tests were done through two different labs - one of these was conducted by the best Infectious Disease Doctor at John's Hopkins - my elisa came back negative and all the coinfections were negative but he told me I needed to pursue tick borne illness as a diagnosis because no lyme test is 100% accurate. Well I did - I found an LLMD (lyme literate M.D.) in N.C. where I live - went through IgeneX labs in Palo Alto, CA - and guess what?!? Not only did I have chronic lyme disease - positive for IgG antibodies and equivocal for IgM antibodies but I also have two tick borne coinfections - one called babesiosis which is like malaria in nature and must be treated first with an antimalarial and then ehrlichiosis (both varieties hge and hme). I was and am really sick but our wonderful medical system here kept patting me on the back labeling as Chronic Fatigue, Fibromyalgia, IBS, GERD - they were more than happy to prescribe antidepressents and the purple pill for reflux which I didn't even complain of - I didn't take any of it.

Anyway - please learn from my experience and go to an LLMD and go through IgeneX. The people here on the lyme board can help you find one in your area or you can try to find a local lyme support group and call them for a referral to a respected LLMD.

I think it is much more probable that a once healthy and active teenager has lyme and tick borne illness than MS. As the ID doctor at Johns Hopkins told me ticks can be as small as a period at the end of a sentence . and that they like warm, dark, moist places...then he looked at me and said "need I say more" - I said absolutely not ;)

Take care and hope you find answers and get your health back soon! You are sick not stressed... :wave:

were your thyroid results plenty with a Low TSH and enough T3/T4? The jerks at night seem to be due to the nervous system (neuronal firing I think). Some people get Klonopin to reduce that I think. But you should tell your neuro about that symptom
martin