Hi ,
I have been sick awhile and fed up.
I am a bit confused i have been getting headaches and migraines daily for a while now. I also get like head rushes of lighheadness, heavy feeling get visual disturbance hard to explain went to a nero and I had a eeg slightly abnormal then went for a mri they say they are ruling it as atypical migraines with some white matter found and rule out lyme,lupus which was done.i have come up with positive anticardiolipin syndrome without ever having clotswent to a rheumataologist she sent me to hematologist which will do nothing cause i never had a clot before then neuro sent me to local hospital to see another neurologist who kinda specializes in seizures took another eeg she stated it shows seizures but i never had 1 cause of this they will not rule it as epilisy but wants me to take topamax which i am skeptical on also just been diagnosed with sinusitis but waiting to get the proper antibiotics from doc on monday. Could this be a form of seizure? I am not a pill person.I am scared cause coming back positive on everything but not getting what i am positive on like clots, & seizures
I dont want to just sit back I think there is more to do but dont know what and is this all related?
i am actually also going for to a sleep apnea center tomorrow and then second half of test in feb dont know where to go or what to do
amy help or advice would be great
thanks donna

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Just wanted to let you know, I have what are called occular migrains. I litterally go blind from a flashing bright type of aura prior to my actual migrain, it can last 1/2 hr to 3-4 hours and is very annoying because I am blind during the episode, it is not painful at this point but becomes so when the actuall migraine starts. When the migrain is occuring I feel waves pass over me, my vision becomes distorted, my hearing becomes extremely sensitive and a dark quiet room is the only place to be.
The Topomax will cause Glaucoma, so be very careful.
The symptoms you described sound like migrains, there are so many types and everyone has different symptoms.
Try to figure out if you can find the "trigger" for them. It could be cheese, chocolate, BC pills, hormones, nicotine, alcohol, etc. etc. or just good old fashion stress. But when its stress, they usually will not occur till you finally relax, and the stress is gone.
They have so many migrain meds now. I have to wonder why topomax??? That is an anti seizure med, they are also using it for psychological disorders now.
One thing I always do now, is whenever they prescribe me a new med, I look it up and see the side effects, then decide which is worse, the problem or the side effects!!!
Hope this has helped a little bit. Watch what you take though, because part of the time they are just guessing and trying stuff to see if it will work.