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View Full Version : unexplained symptoms, pseudotumor??


tenortime
08-30-2003, 05:21 PM
I have had a month of wild symptoms. An odd unexplained pressure in the left side of my head. This is accompanied by extreme fatigue, i feel as if am always about to get a headache. I also have floaters, muscle twitching, balance issues, anything physical i do makes my head feel like the pressure is increasing. Have pain and stiffness in the left side/back of neck that extends into the shoulder. I never feel rested. I have spacial issues and sometimes a little off balance. My first Neuro said she thought it could be pseudotumor. I am a 32 year old male who got sick quite suddenly. I am overweight but in the process of downsizing when this all started. Any suggestions?? I am getting puncture on next friday, had an mri and cat scan but they did not seem to notice anything there except for a fatty place in the cerebellum? Did or do any of you experience these symptoms. This is definitely worse if i bend over or try to do any of my normal activities. I have been a worried zombie for the last month. Please offer any comments. ALl blood work seems to be normal

Kamden
09-02-2003, 06:18 AM
Have you changed your routine in the past month or so, such as working out, or exercising to lose weight? Your symptoms are pointing to a deep muscle related problem, which can come on with exercising. When muscles are used in a way they are not used to, they can go into spasm, pressing on blood vessels affecting the blood supply to the brain, causing a whole host of vague symptoms and doctors normally have a very hard time finding the problem. I spent 6 months this way before finding the problem and proper treatment, the doctors couldn't find anything wrong with me either. If these symptoms came on not long after you started an exercise regiment, this is where it is coming from, and the only way to take care of it is through physical therapy. Hope this helps a bit. Good luck

susieq03
09-02-2003, 03:20 PM
Dear Tenor, I read your post with interest, as I do have ptc. I was diagnosed about a year and half ago, and to me, your symptoms are very similiar to mine. Pseudotumor is a rare, orphan disease, and usually it happens to overweight women, in their late twenties, early 30's, but there are men and children that do have ptc. I was treated for migraines for 10 years, never finding anything that helped. After a sinus surgury, my eyesight was blurry, so went to an optomotrist, that refered me to an neurologist, that sent me to an opti-neurologist, that did a spinal, and found that I had high pressure. I was treated for a year with Diamox, but my headaches got worse, so finally got an lp shunt put in on Dec. of 2002. Helped for the first 4 months, but headaches are back. The symptoms of ptc are severe headaches, especially bending over, ear ringing and whoosing,blurry and double vision,short term memory loss,neck and shoulder pain, fatique, nausea, dizziness, etc. When you have your spinal,if your pressure is anything higher than 20, it is a high reading, and that you most definatly have ptc.I sure wish you luck because there is no real cure and only speculations on how one gets ptc. Will be anxious to hear what the result of the spinal is. Take care. SusieQ

 
 
 




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