LisaMarieAndolina1
10-11-2003, 03:38 PM
Hello-
I am an 18 yr. old female - I recently signed up for this message board. I have yet to see anyone talk about Hashimoto's Encephalopathy . . . it is an autoimmune disease and it is very misdiagnosed.(Hashimoto's Encephalopathy (H.E.) - A relapsing encephalopathy occurring in association with Hashimoto's Disease, with high titers of antithyroid antibodies. Clinically, the condition presents with altered consciousness, confusion, focal or generalized seizures, myoclonus, and episodes of stroke-like deterioration.)
Some symptoms are :
Confusion
Disorientation
Psychosis
Hallucinations
Coma
Tremors
Convulsions
Cognitive Difficulties
Concentration Problems
Attention Span Problems
Difficulty Retaining Information
Short Term Memory Problems
Seizure Activity
Myoclonus - Rapid, Involuntary, Uncontrollable Muscle Jerks or Spasms
Dementia
Fatigue
Coordination Difficulties
Headaches
Episodes of Stroke
Episodes of Stroke-Like Deterioration
Right Sided Hemiparesis - Right Sided Partial Paralysis
Left Sided Hemiparesis - Left Sided Partial Paralysis
Aphasia - Speech Difficulties
Articulation Difficulties
Word Finding Difficulties
Fine Motor Movement Problems - Coordination of Arms, Hands, Fingers."
I was diagnosed with this disease about a month ago after undergoing a loooong list of testing to rule out other types of diseases such as M.S.
This disease is so misdiagnosed because the symptoms can easily be blamed on other things. When i first started going to the doctors - i went for bad headaches. . .my doctor couldn't explain it so he blamed it on stress . . . ( i'm 18 - my stress is what out-fit i'm going to wear hahah ) anyways- a few monthes later the headaches were accompanied by tunneled vision and loss of all vision from anywhere form a 1/2 hour to 3 hrs. - then tremors. The doctors told me that the tremors were probably shakes from not eating . . .and the vision was because of the headaches. I then went to a nurologist after having an MRI done- his sec. was my cuzin and she got the report to us before he actually explained it. It came up abnormal with spoting. He never told me anything about it. He was in the room with me for about 2 min. told me i was pretty- kissed my hand and said i was fine.Now knowing that the MRI was infact abnormal my mother and i went to another doctor. He was amazing- he told me as much as he knew about what was going on- he would spen hours explaining - then the last blood test showed that i had antibodies in my blood streem. More that can be recorded on the chart. I went to double check if it wasn't a lab mistake- it wasn't.
The problem with this is that so few doctors know what this disease is that they don't screen for it. and the symptoms are so common that you could spend a long time being treated for all the wrong things. This disease does not have a cure from what i am told - and if not treated early the side effects are irrevisible. I have many questions about this if anyone knows anything about it .
Lisa
I am an 18 yr. old female - I recently signed up for this message board. I have yet to see anyone talk about Hashimoto's Encephalopathy . . . it is an autoimmune disease and it is very misdiagnosed.(Hashimoto's Encephalopathy (H.E.) - A relapsing encephalopathy occurring in association with Hashimoto's Disease, with high titers of antithyroid antibodies. Clinically, the condition presents with altered consciousness, confusion, focal or generalized seizures, myoclonus, and episodes of stroke-like deterioration.)
Some symptoms are :
Confusion
Disorientation
Psychosis
Hallucinations
Coma
Tremors
Convulsions
Cognitive Difficulties
Concentration Problems
Attention Span Problems
Difficulty Retaining Information
Short Term Memory Problems
Seizure Activity
Myoclonus - Rapid, Involuntary, Uncontrollable Muscle Jerks or Spasms
Dementia
Fatigue
Coordination Difficulties
Headaches
Episodes of Stroke
Episodes of Stroke-Like Deterioration
Right Sided Hemiparesis - Right Sided Partial Paralysis
Left Sided Hemiparesis - Left Sided Partial Paralysis
Aphasia - Speech Difficulties
Articulation Difficulties
Word Finding Difficulties
Fine Motor Movement Problems - Coordination of Arms, Hands, Fingers."
I was diagnosed with this disease about a month ago after undergoing a loooong list of testing to rule out other types of diseases such as M.S.
This disease is so misdiagnosed because the symptoms can easily be blamed on other things. When i first started going to the doctors - i went for bad headaches. . .my doctor couldn't explain it so he blamed it on stress . . . ( i'm 18 - my stress is what out-fit i'm going to wear hahah ) anyways- a few monthes later the headaches were accompanied by tunneled vision and loss of all vision from anywhere form a 1/2 hour to 3 hrs. - then tremors. The doctors told me that the tremors were probably shakes from not eating . . .and the vision was because of the headaches. I then went to a nurologist after having an MRI done- his sec. was my cuzin and she got the report to us before he actually explained it. It came up abnormal with spoting. He never told me anything about it. He was in the room with me for about 2 min. told me i was pretty- kissed my hand and said i was fine.Now knowing that the MRI was infact abnormal my mother and i went to another doctor. He was amazing- he told me as much as he knew about what was going on- he would spen hours explaining - then the last blood test showed that i had antibodies in my blood streem. More that can be recorded on the chart. I went to double check if it wasn't a lab mistake- it wasn't.
The problem with this is that so few doctors know what this disease is that they don't screen for it. and the symptoms are so common that you could spend a long time being treated for all the wrong things. This disease does not have a cure from what i am told - and if not treated early the side effects are irrevisible. I have many questions about this if anyone knows anything about it .
Lisa