pennygelinas
03-05-2001, 07:47 PM
I am very angree,I went to the doctors today and they did find two spots on my brain and one on my scalp,the bone.I guess they are not going to do surgery but this radiation to the brain,I find out more at the end of the week.They dont know if this will work and shrink or even get rid of,I can only hope has anyone else out there gone through this,having kidney cancer and then it go to your brain.Please I need to understand from someone elses point of view what they are going through.Penny
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rosilita1
03-06-2001, 11:59 AM
i guess what you need to ask them is exactly how responsive is kidney cancer (i am sure you know the specific type) to radiation. they should be able to give you a percent. are they going to do whole brain radiation or pinpoint it exactly to the tumors? also have they done a whole body scan to check it hasn't spread anywhere else? What about the possibility of some type of chemo also that crosses the brain barrier (many chemo's don't work in the brain) Don't give up, the brain sounds so scary, but it could be cured if the whole picture is looked at accuratley.
pennygelinas
04-13-2001, 12:04 AM
I have papillary renal cell carcinoma stage 4 I had the x-knife high dose radiation done on march 15th,they can not give me a percent ,they will only do whole brain radiation if these tumors grow anymore.I just had a bone scan done and yes they found 2 spots on my left arm they are going to do radiation to that in a week or so.I had a ct scan of my abd and pelvic follow up I had my kidney out in december,adrenal gland and 8 lymph nodes were affected,they took those out to.They found 1 lymph node that is enlarged they say chemo should take care of that.They want to start chemo in a week or so except they are doing another brain scan april 16th to see if those tumors havent grown anymore.If those tumors have grown then they want ot do whole brain radiation.They cant do chemo and whole brain radiation at the same time.Well I kept you up to date,thank you for responding to my message.Penny
bsp00071
04-16-2001, 01:48 AM
I'm going through my 3rd boubt with renal cell. I had a kidney removed in 1994 at age 22. Then in 1999, I had 2 ribs removed because a 15 cm tumor. Now, I have a 6cm tumor on the tissue where my kidney used to be, and also there are several nodules on my lungs. Sure, it's a little scary, but I keep a positive attitude about the whole situation. I'm about to find out what my next treatment will be (Bone Marrow Transplant or Immunotherapy)
Sorry to here about your situation, but keep you're head up and you'll be OK. Let me know how it's going!
Sorry to here about your situation, but keep you're head up and you'll be OK. Let me know how it's going!
pennygelinas
04-17-2001, 10:34 PM
Brad,I hope everything goes okay for you I will be praying for you.They wantme to do that immune tharapy do you have siblings and did they get tested? I have two sisters and they got checked and I find out the results on the 27th if they are a match.I keep my head up and hope for the best.I didnt have my brain scan done I had an appointment but the wrong time so they need to reschedule.well keep in touch and i will do the same. penny
bsp00071
04-17-2001, 11:39 PM
Hey Penny,
I do have one brother, and he has already been tested. We haven't got the results back yet though. I hope he's a match. My Doc wants to use the bone marrow transplant as a back-up in case I don't respond to the Immunotherapy. I go in Monday for that, and my hopes are high that I'll respond to it. I guess we'll see.
Let me know when you get your results back!
Brad
I do have one brother, and he has already been tested. We haven't got the results back yet though. I hope he's a match. My Doc wants to use the bone marrow transplant as a back-up in case I don't respond to the Immunotherapy. I go in Monday for that, and my hopes are high that I'll respond to it. I guess we'll see.
Let me know when you get your results back!
Brad
bsp00071
04-17-2001, 11:42 PM
Penny,
I have one more question for you. How old are you? I'm just curious. I'm 29.
I have one more question for you. How old are you? I'm just curious. I'm 29.
pennygelinas
04-18-2001, 10:22 PM
brad,
hi there well I hope your brother is a match keep those spirits up,I am 30 years old we both are way too young,what is your type of cancer I know it is kidney cancer but did the doctors give it a name and how did you find yours.Well good luck Monday what exactly are they going to do let me know.Penny
hi there well I hope your brother is a match keep those spirits up,I am 30 years old we both are way too young,what is your type of cancer I know it is kidney cancer but did the doctors give it a name and how did you find yours.Well good luck Monday what exactly are they going to do let me know.Penny
bsp00071
04-20-2001, 01:24 AM
Penny,
I have Renal Cell cancer. It starts in the kidney, and as the years go by it tends to return again. Like I said before this is the 3rd time for me.
I'll go into the hospital for Immunotherapy on Monday. I'll get injections (I forgot the name of the stuff) at high doses, a form of chemotherapy. I'll be in the ICU center all week for close monitoring for side effects.
It outta be fun, huh?
I'll let you know more when I get some more info on it.
I have Renal Cell cancer. It starts in the kidney, and as the years go by it tends to return again. Like I said before this is the 3rd time for me.
I'll go into the hospital for Immunotherapy on Monday. I'll get injections (I forgot the name of the stuff) at high doses, a form of chemotherapy. I'll be in the ICU center all week for close monitoring for side effects.
It outta be fun, huh?
I'll let you know more when I get some more info on it.
bsp00071
04-20-2001, 01:32 AM
Hey Kathy,
Take a look at my message to Penny. If you have any other questions, I'll try to answer them if I can.
Hope you're doing well.
Brad
Take a look at my message to Penny. If you have any other questions, I'll try to answer them if I can.
Hope you're doing well.
Brad
pennygelinas
04-20-2001, 02:32 PM
Brad,I will be praying for you,I hope your body excepts this immunetherapy.This is the same thing that they want me to do after I do the chemo if the chemo dont work.I still havent had my brain scan done yet the doctors havent called me back yet.I hope you have family with you next week so you dont have to go through this alone.Well just remember I am praying for you.Penny
bsp00071
04-30-2001, 01:15 AM
Hey Penny and Kathy,
I'm soory for not getting back to you sooner. As you know, I was admitted last week for the Interleukin-2. I received 11 doses last week and it was quite the experience. I have to go back on the 14th of may for another week of treatment. I'm not really looking forward to it, but I do have 2 weeks, right? Oh well, I wan't know if I've responded to any of it until after another week of treatment, so keep the prayers coming and I'd appreciate it.
I go see the doctor tomorrow check my platlets. They were pretty low when I was released on Saturday. Keep your heads high, and update me on both of your situations often.
Later,
Brad
I'm soory for not getting back to you sooner. As you know, I was admitted last week for the Interleukin-2. I received 11 doses last week and it was quite the experience. I have to go back on the 14th of may for another week of treatment. I'm not really looking forward to it, but I do have 2 weeks, right? Oh well, I wan't know if I've responded to any of it until after another week of treatment, so keep the prayers coming and I'd appreciate it.
I go see the doctor tomorrow check my platlets. They were pretty low when I was released on Saturday. Keep your heads high, and update me on both of your situations often.
Later,
Brad
pennygelinas
05-04-2001, 12:48 PM
Brad,
Im glad your feeling better,I was told I can not do the interluken-2 it would not respond to me.I start my chemo on the 16th the same week you go back for treatment. I get to do this chemo at home.They will place a tube under my clavical and I will be sent home with a pump I need the chemo 24 hours a day for 4 days, 2 different types of chemo.The tube will stay in for 4 months because I do the chemo for 4 days then 3 weeks off then 4 days and it keeps going for 4 months.The tumors in my brain have not shrunk but they have not grown either.I am so glad that you are doing okay.I have been praying for you.Keep in touch with me on how you are okay.Penny
Im glad your feeling better,I was told I can not do the interluken-2 it would not respond to me.I start my chemo on the 16th the same week you go back for treatment. I get to do this chemo at home.They will place a tube under my clavical and I will be sent home with a pump I need the chemo 24 hours a day for 4 days, 2 different types of chemo.The tube will stay in for 4 months because I do the chemo for 4 days then 3 weeks off then 4 days and it keeps going for 4 months.The tumors in my brain have not shrunk but they have not grown either.I am so glad that you are doing okay.I have been praying for you.Keep in touch with me on how you are okay.Penny
bsp00071
05-16-2001, 10:38 PM
Hey Kathy,
Sorry I haven't gotten back to you sooner, but it's been hectic to say the least. After the first week of treatment I was feelinn pretty bad. I had a week off , and went back in last Monday, the 7th. I had 14 more doses then. So after 25 doses I'm feelin pretty good today, but believe me the bad days were bad! The first go round I was sick and feverish the whole week. I gained weight, and just overall felt bad. The second go round was alittle different. I was treated with hydrocortisone before every treatment, to keep my blood pressure up all week.
I have a CT scan scheduled for this Friday, to see if anything has changed. Keep your fingers crossed!!!
Glad to hear youre doing well. I'll say a prayer for you.
Brad
Sorry I haven't gotten back to you sooner, but it's been hectic to say the least. After the first week of treatment I was feelinn pretty bad. I had a week off , and went back in last Monday, the 7th. I had 14 more doses then. So after 25 doses I'm feelin pretty good today, but believe me the bad days were bad! The first go round I was sick and feverish the whole week. I gained weight, and just overall felt bad. The second go round was alittle different. I was treated with hydrocortisone before every treatment, to keep my blood pressure up all week.
I have a CT scan scheduled for this Friday, to see if anything has changed. Keep your fingers crossed!!!
Glad to hear youre doing well. I'll say a prayer for you.
Brad
bsp00071
05-16-2001, 10:43 PM
Penny,
I'm still praying for you. I'm doing well considering I've had 25 high doses of the IL-2 now. They won't give me anymore . I've taken the max. I have a CT scan on friday to see whats changed. Say a prayer for me, and I'll do the same for you. We're strong and we'll make it through this, you'll see.
Keep smiling!!
Brad
I'm still praying for you. I'm doing well considering I've had 25 high doses of the IL-2 now. They won't give me anymore . I've taken the max. I have a CT scan on friday to see whats changed. Say a prayer for me, and I'll do the same for you. We're strong and we'll make it through this, you'll see.
Keep smiling!!
Brad