:wave: Hi there, I'm new to this site or at least I think I am, I sign up for many and can't always remember or don't have the energy to sit on line...Anywhooooo, I was dx'd with SLE in April of 2004. A severe facial skin rash and swollen glands led me into the ER, where the doc said I had been biten by a spider and to go home. Nice, huh? I knew that wasn't it. I looked into docs myself and luckily I have a great PPO so off I went to see a dermy and a rhuemy. The dermy took a nice chunk sample outta my face by my ear area....and of course all the tests from both docs came back with the lovely dx of SLE. So, as time has passed. the rash has cleared leaving scars and red marks all over my face. I have been on Plaquniel, prednisone and now I just started Methotrexate 3 weeks ago. I am still sooooooooooooo tired ALL THE TIME. :yawn: I hate it. I am normally very hyper :bouncing: and get alot done during the days. I can't seem to do anything lately. My doc pulled me off work until I'm done with the Metho...or at least until I can go back and feel ok doing a "whole 8 hours". Anyways...just wanted to say HI and hope you all are feeling well and to keep your chins up. Lord knows I try to keep all mine up that I've gained through the meds. Thanks for listening to my story :)
Leesa

Dear Leesa,

Welcome to this very select ( :D ) group. I hope you sign in, chip in & weigh in often.

About your dr. suggesting you not work until you get through the course of methotrexate---maybe not the worst thing in the world. And I know "hyper", as I was that way before I became so tired and rashy (etc.) and understood I REALLY had a problem. People are so sick this year---everyone I know has had something by now. It's GERMY out there!

Anyway, I'm glad your drs. had answers and treatment for you. Hang in there & take good care. Vee (just north of NYC, meaning ICE STORM, ANYONE?)

Welcome Leesa!!
So sorry to hear of your plight but very glad to have you here!! I'm still in mystery land as far as diagnosis goes but that doesn't mean I've stopped looking and learning. Fatigue is by far my worst complaint, I feel like the daily pain and the other "stuff" that comes and goes I can deal with but you feel like your life just gets ripped out from underneath you when you're just too tired to do the smallest thing. Hang in there and as Vee phrased it, please do "chip in" often and let us know how you're doing! My best to you!
Shawnee
(I live in Cedar CIty, Utah and 50 miles South of me 9 brand new homes have been swallowed up by flooding rivers and other waters, it is just amazing footage if I've ever seen any and I just can't yet grasp that it is so close to home)

hi there again, can someone help me figure out how to reply to each post..do i click on "quote" or the "quick reply" and if i do "quick reply" which post does it answer? HELP..im mental!!!

I dont know if im responding properly to these posts..i guess we'll see..
Thanks for your welcome and reading my post...
I've been off work for quite some time now due to a knee surgery I had in October...it's been nice being off..and learning how to just relax, you know?
It is germy out there..make sure to stay away from those people.. :eek: Take care
Leesa (San Diego, CA)

Dear Leesa,

Welcome to this very select ( :D ) group. I hope you sign in, chip in & weigh in often.

About your dr. suggesting you not work until you get through the course of methotrexate---maybe not the worst thing in the world. And I know "hyper", as I was that way before I became so tired and rashy (etc.) and understood I REALLY had a problem. People are so sick this year---everyone I know has had something by now. It's GERMY out there!

Anyway, I'm glad your drs. had answers and treatment for you. Hang in there & take good care. Vee (just north of NYC, meaning ICE STORM, ANYONE?)

Hello Jersey Girl,
Welcome to the group. If you have any questions concerns or just want to vent please feel free to do so. We have all been there. I hope that you will find our little group full of knowledge and support.....ELegantGI

Dear jerseygirl65 (Leesa),

To respond to a post, you may just "mouse" the "Post Reply" blue button found either by scrolling up to the top of a page or scrolling down to the bottom. The advantage is that the post to which you are replying doesn't get copied in its entirety, which saves space.

To direct a response to particular person(s), you may bein your post with name(s). That's how I do it, anyway...

To start a new thread, if you have a brand new subject, or if an existing topic has become too long or diffuse, on the main lupus page "mouse" the "New Thread" blue button, then before you start your post, type in a title for the new thread.

Some people use the "quote" button to copy down a response, then they delete out all but the key phrases they want to comment on.

Catch you later! Vee

hey there leesa!

wow you're pretty new to this disease as am i. i was just diagnosed in october of 04' after getting really sick and having to stay in the hospital for couple weeks. so was the rash you got the butterfly rash?! where it's raised and stuff? what other symptoms do you get with your SLE?! i have organ involvement with mine.. my kidneys are affected. i'm also on plaquinel and prednisone, have been since my diagnosis but i'm also on altace cause the prednisone caused me to have high blood pressure!
i'm experiencing all the lovely side effects of prednisone.. such as weight gain, moon face (my neck is puffy and i got a huge double chin) hair growth where i dont want it, distended abdomen, fat distribution to my upper and lower back so my upper back kind of looks like a big hump right now, fat pads on the side of my neck..etc.etc.. and i'm currently on 20mg... how much are you taking right now? and what side effects did you get? the one that bothers me most right now is the moon face and i'm not sure if that'll ever go away because i have to be on prednisone for long term but just at a lower maintenance dose which i haven't reached yet. what symptom of your SLE are you using prednisone to treat? as far as i know prednisone is used to treat inflammation of a certain organ? i'm not sure.

well i hope to hear from you soon! take care!

liz

Thanks VEEJ, i think i've done it correctly....:)
HAve a great day!!!

LIZ: are you around? havent heard from ya since we got booted off..are you ok?

hi my name is Dawn and i have had SLE with nephritis since 1995. I recently have been having alot of pain. I had my gallbladder out in sept of last year and that helped some of the pain when i went in she found cysts but i dont know if the cystic disease or not I also have dysmetabolic syndrome x what ever this is does anyone have this or now what this is pease i didnt know that this was a diagnosis i have till last night while looking at insurance stuff my old pCP never told me . Well i have been on prednisone since iwas diagnose. i have been really sore lately i wonder if it more then lupus but i have lab workl that is due i have been on plaqniel in the past and imuran and cystoxan the lovely stuff i had 3 complete cycles of the stuff .i am just having a hard right now because my dr also said that i could have IBS too so i dont know i wonder if i might have Fibro too but i hope tat these boards will help me thanks Dawn