What is ingestive colitis? My bf was finally diagnosed with this after being in the hospital for 6 days. They released him and told him this is what he has. But he is still feeling awful- even after the medication they have given him. He is probably going back into the hosptial today. what is this and how is it treated or cured? We are supposed to go on vacation in a month and he wants to cancel it now since he has been feeling so bad for the past month. Will he be ok by then? I keep trying to look it up online but i havent found any real useful information. :confused: :(
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quincy
01-22-2005, 11:37 PM
Hi,
There doesn't seem to be anything on it...all I found was ingestive diarrhea and I don't have enough medical vocabulary to understand it all.
Ingestion is what a person takes in by mouth, and it's possible that what he eats causes excessive diarrhea and inflammation of the colon.
What medication was your bf given?
What were his symptoms before he was hospitalised?
Was he told to avoid certain foods such as artificial sweeteners or oils?
I hope you find out more about it, but your boyfriend can ask the doctor possibly for other terms that could be used for what he has.
Best to you both,
quincy
ImASadGirl22
01-22-2005, 11:57 PM
Thanks for the reply! :)
I kept searching online and could not find anything on it really. He was put in the hosptial after having weeks (about a month)of extremely bad stomach pain and extreme diarrhea.About a week before he went in, it started that everytime he would go to the bathroom, there was blood. At first the drs gave him kaopectate (sp?) every time he went to the bathroom but that didnt work. After 6 days of being in the hospital the only thing they told him was that they see his stomach is enlarged and they didnt know why, but released him. They then called him and told him it was digestive colitis and gave him some antibotics that he should take for a week. I am not sure exactly what they are. I cant remember. They said if it keeps up to come back. They did a cat scan but did not do a colonoscopy. They said they would do that if this kept up. They didnt say much about his diet, except he should try to eat healthy. We are in different states so I havent been able to see him in weeks. He told me that he was going to be going back to the hospital probably today or tomorrow because the pain has come back. But the drs told him that this is not something that just goes away on its own. Im trying to figure out how long this will last and what causes it and if it is serious. As i said, we aer supposed to be going on vacation and hes thinking we are going to need to cancel it, which of course is disappointing to both of us. Has anyone else had this or know anyone that has? Will it take more than a month for this to go away or is it a chronic or lifetime problem? I am so worried. Especially since I can't be there since we are in different states. Any imput that anyone has would be so greatly appreciated!!
Thank you :)
kiki lou
01-23-2005, 07:33 AM
Are you sure you don't mean "ulcerative colitis" as his symptoms match that?
FireWoman
01-23-2005, 12:16 PM
I am SHOCKED that they did not perform a colonocsopy to rule out ulcerative colitis or Chron's as the symptoms sound like that could be a possibility. What is wrong with these Doctor's. Since he was already in the hospital and they were running all of those tests anyway, I would have thought colonoscopy would have been one of the first tests they would have run. I mean, I just had some bad cramping and diarrhea and my doctor insisted on a colonoscopy - and I wasn't even bleeding. Your BF sounds a LOT wrose off than I was. Anyway, after all that ranting, my point is, try to push for a colonoscopy. If he has Chron's or Ulcerative Colitis he needs to quickly get it diagnosed and start on medication to control the flare-ups.
Good luck and please keep us posted on his progress.
ImASadGirl22
01-23-2005, 01:39 PM
He told me the drs said it was ingestive colitis.
I am pretty shocked the drs didnt do a colonoscopy also. I thought that would have been the first thing they would do since he kept saying he thought he had an ulcer.But instead they did a cat scan and blood work. He called me this am to tell me that he hasnt gone back to the hospital yet but probably very shortly. The medication that they gave him does not seem to be working and everything he eats goes right through him. Its getting rough. He is not himself bc he feels awful and is just snapping at everyone. Im so frusterated. :confused:
What is the treatment for ulcerative colitis? Will we be able to go away in a month? Or is it something that cannot be treated?
Thanks for the reply!!
FireWoman
01-23-2005, 05:20 PM
I only have limited knowledge of Ulcerative Colitis but I know that you are able to control it with medications. To my knowledge, there is no cure for it, but when a flare-up happens (pain in the abdominal/gastointestinal area, blood in the stool, diarrhea, general feeling of exhaustion) it can usually be controlled with different medications. After this, there is usually a period of remission until another flare-up happenns again. I know that the diet has to change as well. I know there are a lot of people on these boards who have Chron's or Ulcerative Colitis. You may want to post a new topic with the subject specific to Ulcerative Colitis. Also, if you put in Ulcerative Colitis in your search engine, you will find out a lot of info as well.
Just keep in mind that your boyfriend probably won't be himself for awhile. I know when I was going through my own gastrointestinal issues (severe cramping, diarrhea, constant thrombosed hemorrhoids and MUCH more) I went from doctor to doctor not knowing what was wrong with me. It was horrible. It is soo scarey not knowing what is going on with your body. It's like the body you once knew died and was replaced by one that is basically making you miserable. It takes over your life, the pain, the confusion, not knowing what's wrong, feeling like you are in someone else's skin etc... and yes, it can make you pretty snappy to say the LEAST. I remember telling all of my friends to not take their health for granted because once it's gone and you feel like you will never be the same, that's it. You just have to try and find a way to live with what you now have. It took me a year of being severely depressed until I finally accepted the fact that I will never be like I was. I still get depressed about it. My point is, just be there for him. That is what he really needs right now. You won't be able to cure him, but you will be able to give him lots of love, support and encouragement. If I didn't have my loving husband and mom by my side, I could not have gotten through the past year. It's all about the support when you are going through a terrible, painful illness. Especially one that there is no name for. I know they said it was digestive colitis. I have never even heard of that. I think that once he has the colonoscopy, they may have a better diagnosis for him.
Hey, it could also be a passing ailment. With any luck, they will be able to find some course of treatment that will work and he will be back to his old self. That is still a possibility as well.
Please keep us posted on his progress. Also, he needs to be a pitbull about his health. Don't let him take the first opinioin as the final opinion. Tell him to go to as many doctor's as possible to find out the right diagnosis and treatment. I went to about 5 different doctor's, all with different diagnosis that I knew were wrong as the treatment was doing nothing for me, until I found the right doctor who correctly diagnosed me and put me on the meds and foods that have helped me tremendously! (my condition is to long and complicated to even go into and this post is already fast becoming a novel)
Good luck and again, please keep us posted.
ImASadGirl22
01-23-2005, 05:32 PM
FireWoman, thank you so much for that information. I hope he goes back into the hospital sometime tonight. I hate that hes in pain and that the medication they gave him is not working. I really just went them to do the colonoscopy. I dont know how they could have really given him a diagnosis if they didnt do that, since to diagnose an ulcer or chron's, they need to do one from what I have read. He at some retreat like place for the next month doing some charity work. So when the drs said they saw his stomach was inflamed they implied that it could be an infection- possibly from the food hes been eating. But he doenst have a choice but to eat the food they give him. So I am scared that this is not going to go away until he is away from there. I don't even know if that would make any sense. No one else there is sick like he is.
His emotional state is not good at all. I feel awful. We have gotten into more fights the past few weeks then I can even remember. He hung up on me today over something dumb. And when he said he was going back into the hospital, he said he wanted me to make the trip to come see him. I told him I would try but work is an issue. That just caused a huge argument. I am trying so hard to be supportive. I know he is in pain and it hurts me that I cant do anything for him. He doenst sleep, he's scared to eat, he is tired all the time and has no energy and is just emotionally drained.
I think I am going to post another thread directly related to ulcerative colitis and see what other information I can find out from people that actually have it. Hopefully I can get some positive information from other people and pass it along to him.
But again, thank you so very much for the info. I will keep you posted.
Thanks :wave: