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Ryan's mum
01-28-2005, 07:08 AM
Hi everyone, I was just wondering if any of your autistic children have problems with their teeth. Ryan had 2 teeth missing as a baby the ones between the two front teeth and the eye teeth. When he had an X-ray the dentist discovered he didn't have the adult teeth either but he had an extra tooth at the front which when it moved down had to be removed to allow the proper tooth to come down. Can you believe it he missed out on two teeth but got an extra one in the wrong place. Anyway it had to be removed and because it wasn't considered urgent or the fact that he wasn't under 4 I had to drive to Sydney (2 hrs away) so he could have it removed under aneathesic (sorry about spelling), because we couldn't afford the $1500 to pay for it. I still have to brush his teeth while he tenses up and holds his breath I couldn't imagine him opening his mouth while they ripped a tooth out. Anyway any feedback. :eek:

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findingdx
01-28-2005, 11:57 AM
In our cases we are looking at syndromes with all her characteristics. My child has 1 syndrome now but are seeing if wrong dx or 2 syndromes. She also has missing teeth and other dental enomilies with many more things as well. Has anyone thought of sending you to a genetic dr., there are syndrome for teeth and behavior issues as well. Just a thought not saying your child has a syndrome but i wish someone had pushed me to go to genetic dr. before she was 5 years old. Just a thought tell me what you think and good luck.

I Love LJC
01-29-2005, 12:42 AM
Ive always brushed my little gals teeth when younger.And now she does it every night and sometimes during the day she loves it.She did fine at the dentist she liked the x rays she did real great .Her teeth look real nice the only thing when i took her to the dentist she has a little sign of dental caries on two back molars across from each other they look like little brown spots any way i told her dentist that she brushes to much if anything she said it is probably genetic thing my teeth were not real strong as child. My 18 yr old sons brushing habits were the same as hers when he was younger and i might add he has not one cavity in his mouth.The dentist told me to have her rinse with some ACT rinse to strenghten enamel after brushing.

Ryan's mum
01-30-2005, 05:33 AM
Hi findingdx, Yes Ryan has been to a genetics doctor and she couldn't see anything genetically wrong with him. Before we saw her I thought something might have been wrong like that as well . Apparently missing teeth is hereditary but I couldn't find anyone in either of our families with them.
Just unlucky I guess

findingdx
02-01-2005, 05:26 PM
WHEN YOU WENT TO THE GENETIC DR. did they know of all the teeth missing and behavoir issues, autism?

Ryan's mum
02-02-2005, 04:56 AM
Hi findingdx,
Yes they did know of his issues, I'm not sure if she knew about his missing teeth I never thought to mention it, but she did check inside his mouth. Things she checked were his mouth, his height, weight, his feet, hands, measured his head, stripped him down to his undies and checked his chest, back, arms, legs, heart rate and I'm sure there were other things this was done 3 years ago and he was referred by our peadiatrian. I am thinking maybe he needs to go back, now that I am more educated in autism and could ask more questions. We were there about an hour.
Thanks for your input. :)

findingdx
02-02-2005, 08:07 AM
We have been to genetic dr. 4 times and will be the fifth time soon. At each time they discovered something new that was missed or did not present features until she was older. I was the one who brought information to them about the missing teeth and poor enemal on her teeth. I made a list of things from birth from medical to behavior no matter how big or small and give it to each dr. we go to that i find different about her. We had the same first visit it sounds like you did all the measuring and facial features and all but they they stoped looking once they had a syndrome. Well our problem is she had more features not noticed like underdeveloped bones which affect her muscles and much more. Now we are looking at another syndrome which does effect the mouth, teeth,small jaw, and many more things(bones,muscles,blood). My point was that even if your child has ezama you should tell them. Now i hope they find nothing but i wish i was imformed as to what question and information to bring to the genetic dr. I insist on every new dr (and we have about 8) that the listen to me about all her conditions and not just treat her as if she had one thing wrong. If you would keep me informed if you go to the genetic dr and good luck to you. Oh by the way i had her orthodontist write a list also and dentist of all the things they found different about her mouth, that information was so informative for the genetic dr.





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