Lithiate
03-17-2003, 08:33 PM
Please contact me at lithiate@juno.com if you would like to discuss this message.
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positive
03-17-2003, 10:36 PM
I am 27 and jsut diagnosed with severe dysplsia. I too think it is unfair that we (the women) have to suffer while the men have no effects at all. My only sexual partner is my husband (he has had many in the past). You spend your life being careful and this is what happens.
I wonder if anyone out there knows if it is possible to contract this via heredity or something...is HPV the only way?
Don't get down. It is jsut somethig you have to deal with and should not effect you life to any degree.
Just hang in there and find out all you can about it. That is what I did.
I wonder if anyone out there knows if it is possible to contract this via heredity or something...is HPV the only way?
Don't get down. It is jsut somethig you have to deal with and should not effect you life to any degree.
Just hang in there and find out all you can about it. That is what I did.
Lithiate
03-18-2003, 01:32 AM
Please contact me at lithiate@juno.com if you would like to discuss this message.
Lithiate
03-18-2003, 06:05 PM
Please contact me at lithiate@juno.com if you would like to discuss this message.
Lithiate
03-20-2003, 12:41 AM
Please contact me at lithiate@juno.com if you would like to discuss this message.
Elysian
03-24-2003, 02:36 PM
I know i replied to Lithiate earlier on a similar topic ...but, ladies, we all need to tell our friends about HPV...it is absolutley ridiculous that our doctors don't tell us about it the first time we go the the gyno. Over 50% of all women have it and some may never have symptoms and some of us might. they cannot with 100% certainty say that ALL Cervical cancers are caused by HPV but they are pretty sure about 98% of them are...it has very little to do with heredity...and unfortunatley men cannot do much to prevent it either. they cannot easily or routinely be checked for it nor will protected sex keep them from getting it...it can be passed by simply touch. using a condom every single time will help but cannot guarantee you won't get hpv. and lets be realistic...a lot of us have a long term boyfriend, fiance, husband...etc. the doctor who performed my Leep was a cervical cancer surgeon and is working with a team to develop a vaccine for Hpv..the problem is there are soo many different strains of this virus. it is an STD ( as hard as that is to swallow and as violated as that term can make us feel )...luckily there is an effective treatment. we really need to spread the knowledge of this to every female we know whether they are are friends or our daughters. The pap smear was developed to deal with this condition and to monitor it and we should all know that. since my own experience with this virus....I have helped many friends deal with the same thing. good luck to everyone dealing with this but know that you aren't alone by any means and there is a treatment.
Cera
03-30-2003, 06:43 PM
This is my first time looking at this site and it is both relieving and scary to see how popular having CIN is. I just learned I have high grade squamous intraepithelial lesion about a month ago. To be honest, I am not clear on what all of the terminology
means. I am just learning about this slowly, my boyfriend is doing more of the research for me and he is the one that recommend this website to me.
So far I have had 2 Pap tests and a biopsy. I am due to go in for a another Pap in April to make sure everything healed up, just so he can give me a cone biopsy in May. Does anyone have any insight on this procedure? I am afraid that I will be in pain for a long time, that it won’t “fix” me and this smell won’t go away.
I just read from the message from Elysian that HPV is a STD?? In all of the websites that I have read, this is the first time I have seen that. Where did you see/hear of that? I have been so careful and it is just overwhelming to think that this is how I got it.
I have not really confided in my friends about my problem, I am actually surprised that I am doing it now. I am thankful for this website. I look forward to reading about everyone’s stories.
means. I am just learning about this slowly, my boyfriend is doing more of the research for me and he is the one that recommend this website to me.
So far I have had 2 Pap tests and a biopsy. I am due to go in for a another Pap in April to make sure everything healed up, just so he can give me a cone biopsy in May. Does anyone have any insight on this procedure? I am afraid that I will be in pain for a long time, that it won’t “fix” me and this smell won’t go away.
I just read from the message from Elysian that HPV is a STD?? In all of the websites that I have read, this is the first time I have seen that. Where did you see/hear of that? I have been so careful and it is just overwhelming to think that this is how I got it.
I have not really confided in my friends about my problem, I am actually surprised that I am doing it now. I am thankful for this website. I look forward to reading about everyone’s stories.
Elysian
04-01-2003, 01:46 PM
Hi Cera --
All of my doctors were very clear that HPV is an STD...but all this means is that it is sexually transmitted not that it means the end of the world or anything. Unfortunately, many doctors (including some my friends have) will not come out and say this to us. All women should know about HPV the moment they begin going to the gyno, having sex...etc...it is afterall the main reason for even having a pap smear! Men are carriers of the HPV virus but usually with absolutely NO symptoms. And like i said before, a condom certainly helps but is not a guarantee with this disease. No matter how careful you are...you may still have it. there are other cervical problems that are unrelated to HPV but if you have been told you have it...and that is what causes CIN I, CIN II, and most if not all precancer to cancer cell production on the cervix then you have HPV. trust me...i am the poster child for safe sex...and I have it. I had a section of CIN I and one of CIN II on my cervix before my LEEP...I have had two normal paps since and the doctor says that everything appears to have healed fine. Don't worry so much about the procedure....for me the biopsy was much more painful...and I had three of those...all by different doctors because I refused to believe there was anything wrong with me or that i could possibly have an STD. I finally accepted the fate of my cervix and decided on a really great cervical cancer surgeon who once again told me that I had an STD. Fortuately, he was willing to talk to me about it and answer all of my questions. there are some really great books on women's health that should surely cover this topic. on the internet...type in cone biopsy, LEEP or HPV and you should get hundreds of hits for related sites. I am not a doctor...i only know what I went through and what I learned from it. Once I started talking about it with trusted friends...i found out many of them also had abnormal paps related to HPV but were afraid to say anything. Good luck and know that you are not alone at your alarm that you may have an STD or at your fear of the procedure. You do need to realize that everything you are going through right now is so that you won't have to endure anything that really could be much worse...ie...cervical cancer. stay on top of your health, take a good woman's multi-vitamin with folic acid, don't smoke, and continue practicing safe sex...and your cervix should be just fine. also, it helped me to demand all of my medical records just so I knew exactly what was going on too.
All of my doctors were very clear that HPV is an STD...but all this means is that it is sexually transmitted not that it means the end of the world or anything. Unfortunately, many doctors (including some my friends have) will not come out and say this to us. All women should know about HPV the moment they begin going to the gyno, having sex...etc...it is afterall the main reason for even having a pap smear! Men are carriers of the HPV virus but usually with absolutely NO symptoms. And like i said before, a condom certainly helps but is not a guarantee with this disease. No matter how careful you are...you may still have it. there are other cervical problems that are unrelated to HPV but if you have been told you have it...and that is what causes CIN I, CIN II, and most if not all precancer to cancer cell production on the cervix then you have HPV. trust me...i am the poster child for safe sex...and I have it. I had a section of CIN I and one of CIN II on my cervix before my LEEP...I have had two normal paps since and the doctor says that everything appears to have healed fine. Don't worry so much about the procedure....for me the biopsy was much more painful...and I had three of those...all by different doctors because I refused to believe there was anything wrong with me or that i could possibly have an STD. I finally accepted the fate of my cervix and decided on a really great cervical cancer surgeon who once again told me that I had an STD. Fortuately, he was willing to talk to me about it and answer all of my questions. there are some really great books on women's health that should surely cover this topic. on the internet...type in cone biopsy, LEEP or HPV and you should get hundreds of hits for related sites. I am not a doctor...i only know what I went through and what I learned from it. Once I started talking about it with trusted friends...i found out many of them also had abnormal paps related to HPV but were afraid to say anything. Good luck and know that you are not alone at your alarm that you may have an STD or at your fear of the procedure. You do need to realize that everything you are going through right now is so that you won't have to endure anything that really could be much worse...ie...cervical cancer. stay on top of your health, take a good woman's multi-vitamin with folic acid, don't smoke, and continue practicing safe sex...and your cervix should be just fine. also, it helped me to demand all of my medical records just so I knew exactly what was going on too.
Cera
04-06-2003, 10:01 PM
thank you so very much. you have definately put more time in explaining this to me than my doctor has. i have started taking the vitamins, stopped smoking (which wasn't much to begin with) and called to get my records the other day from my doctor. i am just afraid about the sex part. after my biopsy and i am still with the same person, wouldn't we be passing the HPV to each other again?? how do you get rid of the virus? does it go away?
Thanks again
Thanks again
Elysian
04-15-2003, 12:21 PM
Hi Cera-- sorry I have been remiss in replying..work has been CRAZY!!! the way my doctor described HPV to me was like chicken pox...once you have the virus, it is with you for life. This sounds really scary but he told me that the first step in dealing with this is to stay active in your health...take those vitamins, don't smoke(smoking makes it worse), never never miss a pap smear and always demand your medical records. a lot of doctors like to sugar coat things so you don't get stressed...if you are at all like me...i was more stressed not understanding it all. Your partner probably already has HPV but you should definitely be upfront with future partners...guys rarely show any symptoms of HPV or have any complications from the virus...but they could definitely pass it on to other women in the future...so we should always be upfront about it..besides that it helps to educate guys on the STD since they usually have no idea it exists. Unfortunately women bear the burden of keeping this particular STD in check because we get regular tests for abnomalities; however, men are carriers and, in my opinion, should be held responsible for their contributions in spreading it. Good luck with everything..hope this helps a bit. I know its a stressful and scary thing to be dealing with. I still get a little worried everytime my doc calls me to give me the results of my pap just because i don't want to deal with it anymore..but i realize that ignoring the fact that I will always have HPV, an STD that is linked to cervical cancer, would be infinitely worse. Good luck with everything...keep us posted..and always remember that there are people willing to help and to listen and, better yet, we can do something about it if we continue to educate people about this and demand more comprehensive STD testing for both men and women. My doctor is one of many people working on a vaccine for HPV...so keep your fingers crossed that one day our daughters won't have to go through this at all.
MsPLuMs
04-25-2003, 11:35 PM
GIRLS i understand you ALL!!!!! i was diagnosed w/ HPV when i was 18, and geez, i thought my life was over. i just turned 19 not that long ago and just had my LEEP done, it turned out better than i thought, excpe for the times when i was nauseuous and was on the verge of passing out, but it was all good. anyways, my boi thinks that its nothing big, little does he know or want to accept, he has the damn virus too. For guys, they dont have to worry as much, not until they get like a damn wart of sumdin on their penis. FOr US GIRLS, we have to do this and that. I want to have children, thats for sure, Right now im still waiting for my results from my LEEp to come back. im expected to go back in a month to talk to the doc. i dont know what to expect from there on, but i sure hope its going to be alright, cuz this is definitely something no one has to go through.
Cera
06-01-2003, 03:50 PM
last week i had the cone biopsy (which is with the knife). overall i wasn't so bad, but that was due to the anesthetic. it was the first (and hopefully the last surgery) i have gone through. waking up and have a feeling that i was ‘tampered’ with, were the worst things about it. i certainly have not been as uncomfortable as i was for the colposcopy.
my boyfriend and i sat and talked with my doctor about CIN, HPV, causes, prevention etc, you name it we talked about it. it was great and i felt like i was in great hands. he was upfront and said he didn’t know everything and his specialty is to get rid of the
abnormal cells, but shared everything he knew or heard of. he explained that HPV can be passed through intercourse, but he also said that mothers can possibly pass it to their children. that puts a new spin on things.
the nurse called this week and said i had severe dysplasia at the 2 o’clock site of my cervix, but the edges seemed to be clear of abnormalities. i am to go in for another pap in aug. the fun never stops, but it is better than the alternative. good luck to all of you and be sure to spread the word of the importance of paps.
my boyfriend and i sat and talked with my doctor about CIN, HPV, causes, prevention etc, you name it we talked about it. it was great and i felt like i was in great hands. he was upfront and said he didn’t know everything and his specialty is to get rid of the
abnormal cells, but shared everything he knew or heard of. he explained that HPV can be passed through intercourse, but he also said that mothers can possibly pass it to their children. that puts a new spin on things.
the nurse called this week and said i had severe dysplasia at the 2 o’clock site of my cervix, but the edges seemed to be clear of abnormalities. i am to go in for another pap in aug. the fun never stops, but it is better than the alternative. good luck to all of you and be sure to spread the word of the importance of paps.