2cutekids
02-04-2005, 09:17 AM
{removed}
Anyway, I watched it. I was wondering if anyones child is like that boy on there? He was dx High Functioning.
My son, even at his worst time, was not half as bad as that.
I understand that this is a sprectum disorder, but wow, what a span they let things fall in. Are you "High Functioning" because you are smart? Or because you can function more and somewhat alone?
My son will be able to attend school with out an aid, he will be able to have a family and get married.
Is my son an exception to the role of Autism? I have joined a few boards recentally and do not feel too accepted because of my son. NO one responds to my post. I don't know if it is that I'm new or because it hurts to hear.
Is is ok if I still post here? :confused:
Anyway, I watched it. I was wondering if anyones child is like that boy on there? He was dx High Functioning.
My son, even at his worst time, was not half as bad as that.
I understand that this is a sprectum disorder, but wow, what a span they let things fall in. Are you "High Functioning" because you are smart? Or because you can function more and somewhat alone?
My son will be able to attend school with out an aid, he will be able to have a family and get married.
Is my son an exception to the role of Autism? I have joined a few boards recentally and do not feel too accepted because of my son. NO one responds to my post. I don't know if it is that I'm new or because it hurts to hear.
Is is ok if I still post here? :confused:
Sponsor
sarahrose
02-04-2005, 10:04 AM
I watched it, and he did not seem high function at all, he looked and acted more like some of the other kids in my son's school. He seemed to have limited vocabulary as well............this was also a child actor, so who knows.
My husband now wants a GPS locator for our son............uugh!! :rolleyes:
My husband now wants a GPS locator for our son............uugh!! :rolleyes:
2cutekids
02-04-2005, 10:26 AM
Is he a wonder? I saw those on Extreame Makeover Home Edition before. The are great if you have a child that walks away. I think all kids she get one, then if they want, have it removed at 18. Could you imagine how less kidnapping you would have? Maybe have one inplanted in different parts of the child, like your choice, so they aren't all in the same place and easy to take out...
Sorry thinking out loud again :blush:
Sorry thinking out loud again :blush:
Annee
02-04-2005, 11:13 AM
Hi 2cute :)
I don't think it's rare for an Autistic child to be as high-functioning as yours. But I think it's rare for them to be diagnosed. If a child does not need an aide, will get married and have a family, then it's unlikely that anyone would bother to have him assessed. Looks like you were just more on the ball than others in your situation would be.
I don't think it's rare for an Autistic child to be as high-functioning as yours. But I think it's rare for them to be diagnosed. If a child does not need an aide, will get married and have a family, then it's unlikely that anyone would bother to have him assessed. Looks like you were just more on the ball than others in your situation would be.
2cutekids
02-04-2005, 11:24 AM
well, he got alot better over the last year. He did have alot of scripting speech that wasn't "normal" and a few other autsitic things. Tippie toe walking, flapping, screaching ect... but that is all gone now.
THAT is how he was dx. I wonder if I should have him reassesed to see where he is at on the spectrum if he is still even on it.
THAT is how he was dx. I wonder if I should have him reassesed to see where he is at on the spectrum if he is still even on it.
sarahrose
02-04-2005, 12:09 PM
There are such varing(sp?) degrees of the spectrum I can see where some children are maybe dianosed too quickly, and maybe just have some delays, it's worth looking into seeing if he can get checked out again. The way I see it, your lucky your son can talk and do other things more typical, it'll make his life a bit easier. :)
KathleenW
02-04-2005, 12:45 PM
I think it would be extremely important to get him reassesed. It is very important that even though he no longer has the traits he still may be lacking in some areas. You have already mentioned that he is lacking in pragmatic speech. Once he gets to kindergarten it will be a different world. Does he have trouble following directions and staying on task? I am so happy that my son is in a very structured pre kindergarten this year. He will turn 5 at the end of the summer and go to school.
I am amazed that it is only the beginning of February and he can already read, write all his letters and numbers, write his first and last name, count to 100, count by fives and tens, understands graphing, adding, subtracting and knows all of the months, days of the week and other calendar things. His teacher says he is so smart, catches on very quickly and his social skills are the best in the class. I think it is important that all parents post on this board no matter how well or poorly your child is doing. I feel so blessed that my son is doing so well and I post on these boards because I like to tell other parents what helped my child. I feel if I could help one child do better than it is worth it!!!!!!!! Continued luck to you and your son. I feel next year will be the BIG TEST for both of our boys.
I am amazed that it is only the beginning of February and he can already read, write all his letters and numbers, write his first and last name, count to 100, count by fives and tens, understands graphing, adding, subtracting and knows all of the months, days of the week and other calendar things. His teacher says he is so smart, catches on very quickly and his social skills are the best in the class. I think it is important that all parents post on this board no matter how well or poorly your child is doing. I feel so blessed that my son is doing so well and I post on these boards because I like to tell other parents what helped my child. I feel if I could help one child do better than it is worth it!!!!!!!! Continued luck to you and your son. I feel next year will be the BIG TEST for both of our boys.
mango2
02-04-2005, 02:58 PM
It seems to me that this board has more parents of high functioning Autistic people than the more involved, non-verbal type.
sarahrose
02-04-2005, 03:26 PM
I have kind of noticed that too, I'm begining to wonder if this board is really going to help me at all since alot of peoples children seem to be more in the Aspergers/ high function area. My son is nothing like that at all, he is very autistic, and very low functioning., more like the boy on the TV show last night, only with even LESS vocabulary. :confused:
Asperger family
02-04-2005, 03:46 PM
Sarahrose, my son was diagnosed as severe autistic at age 3...autism can evolve into aspergers..its the amount of therapy, education and treatment they can get, to where their behaviors and understanding, even speech can get better. My son could only speak 1 worded sentences at 3 and now at age 7, has a diagnosis of ADHD/aspergers. You cant rely on a diagnosis or label to identify your child...that is only there for understanding of the characteristics and educational purposes..They say to get them diagnosed every 3-4 years because diagnosis are alwasy changing. Even if his diagnosis doesnt change...its hard whle they are small to see their full potential. Education is the best cure...whatever you can learn to help your child and his education can further his progress. God bless
Al & Matt's Mom
02-04-2005, 04:52 PM
There doesn't seem to be any clear cut rules as far as what is "high functioning". I was told by one dr that my son could not be aspergers because of his speech delay because true aspergers do not have speech delays. Then I was told by another dr that it might be aspergers because he is so hf. At a presentation to parents of children with autism, a child who is unable to drive a car and unable to live on his own was presented as "high functioning". I'd really like to know what that means...
mango2
02-04-2005, 05:11 PM
Therapy and education is very important. It's amazing what your child can learn. I am still surprised by how much my child is capable of learning. But when I go to the local ASA or support group meeting, and the new parents show up with their hopes and dreams that I know are most likely unrealistic, it's just sad. If your child is on the severe end, he or she will never do the things you hope they will do, but you still have to strive to uncover their full potential. There is no cure.
IBGECKO
02-04-2005, 09:12 PM
I once read a description of HFA that said anyone on the autism spectrum with an IQ over 75 is considered HFA. Hmmmm...This would explain why I have seen many HFA children who do not function anywhere near the level of my son (who not to brag, has an IQ of 136). Like 2cutes son, mine has struggled with speech pragmatics, and language processing disabilities over the years. Organization also is a big challenge. He has an aide (he's in the 5th grade) to help with organization, and to make sure he is processing his lessons. If he is having difficulty processing, the aide breaks it down for him. He is mainstreamed in all subjects except language arts, where he works with a 1:1. He is socially outgoing, talkative, is in bowling league, a golf team and cub scouts. He will in all likelyhood go to college (though we will have to choose carefully) get married and have children. I have found this board to be very supportive.
I'm not sure I want to have him reassessed, though, for fear of a full-blown Asperger's dx. In Los Angeles it is very difficult to get Regional Center services for an Asperger's child. Everyone, (including his RC coordinator) feels he is AS, and treats him as such, but I don't want to mess with the HFA label, for fear of losing services. Like Asperger family said, it just a label.
I'm not sure I want to have him reassessed, though, for fear of a full-blown Asperger's dx. In Los Angeles it is very difficult to get Regional Center services for an Asperger's child. Everyone, (including his RC coordinator) feels he is AS, and treats him as such, but I don't want to mess with the HFA label, for fear of losing services. Like Asperger family said, it just a label.
IBGECKO
02-04-2005, 09:17 PM
There doesn't seem to be any clear cut rules as far as what is "high functioning". I was told by one dr that my son could not be aspergers because of his speech delay because true aspergers do not have speech delays. Then I was told by another dr that it might be aspergers because he is so hf. At a presentation to parents of children with autism, a child who is unable to drive a car and unable to live on his own was presented as "high functioning". I'd really like to know what that means...
I was told the same thing about my son and speech delays. The dr. said "He lives in an Asperger's world", but dx him as HFA. At this point (he's 10), everyone pretty much agrees he is Asperger's, but I'm holding on to the HFA dx because I get more services with it.
I was told the same thing about my son and speech delays. The dr. said "He lives in an Asperger's world", but dx him as HFA. At this point (he's 10), everyone pretty much agrees he is Asperger's, but I'm holding on to the HFA dx because I get more services with it.
mango2
02-05-2005, 12:28 AM
The spectrum is so wide. People like me have actual dreams where their child can speak, and tell you what they feel. To me, having an Aspie would be no big deal. But we all have to stick together to get Autism and it's possible causes the attention they deserve.
It's funny though, anyone here who has belonged to an ASA chapter or other advocate group for Autistic people, will agree that we're known for fighting amongst ourselves. After years in two different groups, I finally gave it up. The fighting, bickering, hurt feelings and politics were amazing. To hell with that. It always came down to the fact people are trying so hard to help their own child, they can't work together. I know there are many succesful organizations out there, but the deperation caused by this affliction has resulted in some major fights within.
It's funny though, anyone here who has belonged to an ASA chapter or other advocate group for Autistic people, will agree that we're known for fighting amongst ourselves. After years in two different groups, I finally gave it up. The fighting, bickering, hurt feelings and politics were amazing. To hell with that. It always came down to the fact people are trying so hard to help their own child, they can't work together. I know there are many succesful organizations out there, but the deperation caused by this affliction has resulted in some major fights within.
BetsyAnn
02-05-2005, 02:49 AM
What show are you all refering to?
jollydolly
02-05-2005, 07:19 AM
well, he got alot better over the last year. He did have alot of scripting speech that wasn't "normal" and a few other autsitic things. Tippie toe walking, flapping, screaching ect... but that is all gone now.
THAT is how he was dx. I wonder if I should have him reassesed to see where he is at on the spectrum if he is still even on it.
hi 2cutekids
had trouble trying to reply to your other post so thought i'd use this post to reply instead, hope thats ok.
i didnt see the mentioned programme, but i am diagnosed as high functioning. i only got formally diagnosed last week and i'm in my late thirties.
i am also diagnosed as highly intelligent, - i had to pay them for that bit!!
no, high functioning doesnt mean being smart,
some lo/non functioning autistic spectrum people are very smart, it just doesnt show or isnt readily accesable. there are also some high functioning autistic spectrum people that are not that brainy or smart.
h/f usually refers to the fact that a person can function to some degree in the NT world, that they can speak and do some of the things required to be communative or perhaps not need a 24 hour carer.
the term high functioning it is a bit general and nondescript, it doesnt really help clarify things as many people have the idea that h/f means brainy and lo/f means not very brainy, but thats just not the case.
lo functioning auties, usually have serious overload issues or such difficulties as 'hearing/meaning deaf' issues where maybe they cannot understand everyday speech, but that doesnt make them not brainy, same way that sensory and social issues that h/f do not grasp doesnt make them less brainy, just means that they havnt grasped the nt rules of what is 'acceptable'.
i dont do any of your sons behavoiral things either, although i still walk on the outside of my feet if they are bare. only a couple of my friends know i'm autie and i'm married with a teenage child.
your sons improvement doesnt mean to say he is not still autistic, it just means his 'symptoms' have improved, which is great but he still needs your understanding and support for the difficulties he may still have albeit they look different now.
hah clear as mud yeah!
jollydolly
THAT is how he was dx. I wonder if I should have him reassesed to see where he is at on the spectrum if he is still even on it.
hi 2cutekids
had trouble trying to reply to your other post so thought i'd use this post to reply instead, hope thats ok.
i didnt see the mentioned programme, but i am diagnosed as high functioning. i only got formally diagnosed last week and i'm in my late thirties.
i am also diagnosed as highly intelligent, - i had to pay them for that bit!!
no, high functioning doesnt mean being smart,
some lo/non functioning autistic spectrum people are very smart, it just doesnt show or isnt readily accesable. there are also some high functioning autistic spectrum people that are not that brainy or smart.
h/f usually refers to the fact that a person can function to some degree in the NT world, that they can speak and do some of the things required to be communative or perhaps not need a 24 hour carer.
the term high functioning it is a bit general and nondescript, it doesnt really help clarify things as many people have the idea that h/f means brainy and lo/f means not very brainy, but thats just not the case.
lo functioning auties, usually have serious overload issues or such difficulties as 'hearing/meaning deaf' issues where maybe they cannot understand everyday speech, but that doesnt make them not brainy, same way that sensory and social issues that h/f do not grasp doesnt make them less brainy, just means that they havnt grasped the nt rules of what is 'acceptable'.
i dont do any of your sons behavoiral things either, although i still walk on the outside of my feet if they are bare. only a couple of my friends know i'm autie and i'm married with a teenage child.
your sons improvement doesnt mean to say he is not still autistic, it just means his 'symptoms' have improved, which is great but he still needs your understanding and support for the difficulties he may still have albeit they look different now.
hah clear as mud yeah!
jollydolly
KathleenW
02-05-2005, 09:16 AM
Sarahrose, my son was diagnosed as severe autistic at age 3...autism can evolve into aspergers..its the amount of therapy, education and treatment they can get, to where their behaviors and understanding, even speech can get better. My son could only speak 1 worded sentences at 3 and now at age 7, has a diagnosis of ADHD/aspergers. You cant rely on a diagnosis or label to identify your child...that is only there for understanding of the characteristics and educational purposes..They say to get them diagnosed every 3-4 years because diagnosis are alwasy changing. Even if his diagnosis doesnt change...its hard whle they are small to see their full potential. Education is the best cure...whatever you can learn to help your child and his education can further his progress. God bless
EXACTLY!!!!!!!!!! I LOVE the first sentence of the post. I like to say how well my son is doing because when we first got the diagnosis he was so far behind. At 29 months his speech was at a 16 month level and one of the skills he was tested on called eye and hand coordination was at an 8 month level. Overall they thought he was functioning at a 18 month level. The day I first had him evaluated they looked me in the eye and said. Your son is going to need years and years of therapy. He qualified for a "special" pre school 5 days 40 hours a week. When people say that they feel this board can not help them because most of the children seem like they are Aspergers, I think they are missing the point.
I think about 50 percent of children with early INTENSIVE EDUCATION will be able to overcome some or if they are lucky ALL of their disabilties. Time will tell.
EXACTLY!!!!!!!!!! I LOVE the first sentence of the post. I like to say how well my son is doing because when we first got the diagnosis he was so far behind. At 29 months his speech was at a 16 month level and one of the skills he was tested on called eye and hand coordination was at an 8 month level. Overall they thought he was functioning at a 18 month level. The day I first had him evaluated they looked me in the eye and said. Your son is going to need years and years of therapy. He qualified for a "special" pre school 5 days 40 hours a week. When people say that they feel this board can not help them because most of the children seem like they are Aspergers, I think they are missing the point.
I think about 50 percent of children with early INTENSIVE EDUCATION will be able to overcome some or if they are lucky ALL of their disabilties. Time will tell.
2cutekids
02-05-2005, 09:21 AM
Yeah, the pratmatic problems my son has is mainly just missused words, pronoun reversal. He didn't even quilify for a delay in this area. This is also the reason he got the HFA lable over AS. Like the other posters said, I have heard both ways, AS have NO speech issues and AS has very Minor speech issues. Alot of children at the age of 5 have speech issues anyway JMO
My son is smart, has a photographic memory just about. I think that this will help him in the future. As for his IQ, I'm not sure how much faith I put into those, expecially with a child that may have comperhentions problems.
My dh's IQ is somewhere about 140 (he has alot of AS symptoms) where I did an online test and mine was about 132, my dh laughed at me and didn't believe it. (I didn't too much either) I'm smarter than PPL give me credit for, but that ... I'm not sure.
I have major spelling issues which has limited my education. I didn't learn an extensive vocabulary because I can't "read" phonic's and I have a hard time with letter sounds so sounding words out is usless to me. I spell so bad that spell checker doesn't recognize the words LOL.
Anyway, I think we all have some problem here and there. It is what we do with ALL our lives. My dh is so smart, he should be a dr or an enginer but he isn't. He can't find something to hold his intest and can't stand to sit still. He is a truck driver. He makes good money at it, but probably could make double as a dr ... oh well... he is still young, who knows what he will do in 5 yrs :)
My son is smart, has a photographic memory just about. I think that this will help him in the future. As for his IQ, I'm not sure how much faith I put into those, expecially with a child that may have comperhentions problems.
My dh's IQ is somewhere about 140 (he has alot of AS symptoms) where I did an online test and mine was about 132, my dh laughed at me and didn't believe it. (I didn't too much either) I'm smarter than PPL give me credit for, but that ... I'm not sure.
I have major spelling issues which has limited my education. I didn't learn an extensive vocabulary because I can't "read" phonic's and I have a hard time with letter sounds so sounding words out is usless to me. I spell so bad that spell checker doesn't recognize the words LOL.
Anyway, I think we all have some problem here and there. It is what we do with ALL our lives. My dh is so smart, he should be a dr or an enginer but he isn't. He can't find something to hold his intest and can't stand to sit still. He is a truck driver. He makes good money at it, but probably could make double as a dr ... oh well... he is still young, who knows what he will do in 5 yrs :)
2cutekids
02-05-2005, 09:28 AM
My son is on the diet, and I know if I took him off it, all, most or ifnot more symptoms will come back.
Thanks for all the replies everyone. It is just weird out here in this water. I feel somewhat alone, NO ONE would EVER guess that my son has ANY issues let alone one that sounds as harsh as "AUTISM". Only everyonce and a while you will find someone that doesn't see it as he child rocking in the corner.
This is sad, I wish it would change and I can't wait till the new movie comes out. Get the AS out there and let others know that there is another form of Autism and not to be scared or mean to children/adults that are a little "different"
Thanks for all the replies everyone. It is just weird out here in this water. I feel somewhat alone, NO ONE would EVER guess that my son has ANY issues let alone one that sounds as harsh as "AUTISM". Only everyonce and a while you will find someone that doesn't see it as he child rocking in the corner.
This is sad, I wish it would change and I can't wait till the new movie comes out. Get the AS out there and let others know that there is another form of Autism and not to be scared or mean to children/adults that are a little "different"
autmom
02-05-2005, 01:22 PM
This is sad, I wish it would change and I can't wait till the new movie comes out.
Which movie are you referring to?
Which movie are you referring to?
Asperger family
02-05-2005, 06:17 PM
Hi cute kids, I missed it! I hardly ever watch tv, more of a computer nerd I guess. If anyone knows of something related to autism in the future, I would be interested to hear about it or if you know what station it will be on ahead of time, and if it wont bother to post it, I would be interested. Thanks
mango2
02-06-2005, 03:11 AM
Offensive post deleted, but can still be seen in quotes. Among other things, it was in very poor taste.
KathleenW
02-06-2005, 09:43 AM
Some of you folks have kids that are just unique in some way. No way they're all Autistic. There must be a Munchausen Syndrome by Proxy board for you somewhere.
You are right. When my son was diagnosed, they looked at me and said he is not autistic, but he has mild PDD which is a autism spectrum disorder. There are a lot of people on this board who have an Aspbergers and high functioning autism diagnosis for their children. How old was your child when you got them help?
I think every parent has different experiences. Some people can tell their child is different from birth and others say that all of a sudden their child regressed. At the age of 2 autism started to take over my son's brain. His speech, cognitive, and fine motor skills were a year behind. He had severe tantrums and began staring into space and fixating on objects. He would answer to his name 50% of the time. He also did not point to things using his index finger. I began an ABA program, had him in speech therapy three times a week, eliminated milk from his diet and started B6, magnesium, and DMG daily. I also worked 1 on 1 with my son every waking moment generalizing his ABA programs, using the techniques his speech therapist used to gain his attention and stimulate his language and played with toys THE CORRECT WAY (my son used to pick everything up shake it and then throw it on the floor). I fully believe if my son had not had these interventions that he would have gone from a diagnosis of PDD to Autistic. I am guessing you were kidding about the Munchausen comment.
At the age of 2 your brain is not fully developed. I think if you start early enough you will be able to change the outcome of a lot of children.
You are right. When my son was diagnosed, they looked at me and said he is not autistic, but he has mild PDD which is a autism spectrum disorder. There are a lot of people on this board who have an Aspbergers and high functioning autism diagnosis for their children. How old was your child when you got them help?
I think every parent has different experiences. Some people can tell their child is different from birth and others say that all of a sudden their child regressed. At the age of 2 autism started to take over my son's brain. His speech, cognitive, and fine motor skills were a year behind. He had severe tantrums and began staring into space and fixating on objects. He would answer to his name 50% of the time. He also did not point to things using his index finger. I began an ABA program, had him in speech therapy three times a week, eliminated milk from his diet and started B6, magnesium, and DMG daily. I also worked 1 on 1 with my son every waking moment generalizing his ABA programs, using the techniques his speech therapist used to gain his attention and stimulate his language and played with toys THE CORRECT WAY (my son used to pick everything up shake it and then throw it on the floor). I fully believe if my son had not had these interventions that he would have gone from a diagnosis of PDD to Autistic. I am guessing you were kidding about the Munchausen comment.
At the age of 2 your brain is not fully developed. I think if you start early enough you will be able to change the outcome of a lot of children.
mango2
02-07-2005, 01:31 AM
You are right. When my son was diagnosed, they looked at me and said he is not autistic, but he has mild PDD which is a autism spectrum disorder. There are a lot of people on this board who have an Aspbergers and high functioning autism diagnosis for their children. How old was your child when you got them help?
I think every parent has different experiences. Some people can tell their child is different from birth and others say that all of a sudden their child regressed. At the age of 2 autism started to take over my son's brain. His speech, cognitive, and fine motor skills were a year behind. He had severe tantrums and began staring into space and fixating on objects. He would answer to his name 50% of the time. He also did not point to things using his index finger. I began an ABA program, had him in speech therapy three times a week, eliminated milk from his diet and started B6, magnesium, and DMG daily. I also worked 1 on 1 with my son every waking moment generalizing his ABA programs, using the techniques his speech therapist used to gain his attention and stimulate his language and played with toys THE CORRECT WAY (my son used to pick everything up shake it and then throw it on the floor). I fully believe if my son had not had these interventions that he would have gone from a diagnosis of PDD to Autistic. I am guessing you were kidding about the Munchausen comment.
The answer to your first question is 18 months.
Your post is very interesting, actually, because it's a twist on Dr. Kanner and Massie's decades-old theory on the frigid, or negligent mother effect. Instead of the parent causing the Autism, you are almost suggesting it's the parent's fault if the child doesn't recover from the un-explained onset of Autism.
No I am not kidding about the Munchausen comment. I posed it that way to temper a provocative assertion.
At the age of 2 your brain is not fully developed. I think if you start early enough you will be able to change the outcome of a lot of children.
Actually, no matter when you start, you will affect the outcome of every child, but the sad fact is that there is no cure, so what you think is mainly sunshine and daydreams.
I think every parent has different experiences. Some people can tell their child is different from birth and others say that all of a sudden their child regressed. At the age of 2 autism started to take over my son's brain. His speech, cognitive, and fine motor skills were a year behind. He had severe tantrums and began staring into space and fixating on objects. He would answer to his name 50% of the time. He also did not point to things using his index finger. I began an ABA program, had him in speech therapy three times a week, eliminated milk from his diet and started B6, magnesium, and DMG daily. I also worked 1 on 1 with my son every waking moment generalizing his ABA programs, using the techniques his speech therapist used to gain his attention and stimulate his language and played with toys THE CORRECT WAY (my son used to pick everything up shake it and then throw it on the floor). I fully believe if my son had not had these interventions that he would have gone from a diagnosis of PDD to Autistic. I am guessing you were kidding about the Munchausen comment.
The answer to your first question is 18 months.
Your post is very interesting, actually, because it's a twist on Dr. Kanner and Massie's decades-old theory on the frigid, or negligent mother effect. Instead of the parent causing the Autism, you are almost suggesting it's the parent's fault if the child doesn't recover from the un-explained onset of Autism.
No I am not kidding about the Munchausen comment. I posed it that way to temper a provocative assertion.
At the age of 2 your brain is not fully developed. I think if you start early enough you will be able to change the outcome of a lot of children.
Actually, no matter when you start, you will affect the outcome of every child, but the sad fact is that there is no cure, so what you think is mainly sunshine and daydreams.
IBGECKO
02-07-2005, 02:20 AM
Some of you folks have kids that are just unique in some way. No way they're all Autistic. There must be a Munchausen Syndrome by Proxy board for you somewhere.
Harsh. I must have missed the sign that says this board only supports those with severely autistic children. I guess a lack of understanding of ASD is not reserved for those who do not have autistic children. Your response is the exact reason why I seek support from boards like this. It helps to know there are other people who have, as you put it, "unique" children like mine, since most people don't understand why Connor behaves strangely sometimes, or his school is at a loss as to how to handle his learning disabilities. So I come to this board and read a comment like yours. Thanks, that's just swell.
Harsh. I must have missed the sign that says this board only supports those with severely autistic children. I guess a lack of understanding of ASD is not reserved for those who do not have autistic children. Your response is the exact reason why I seek support from boards like this. It helps to know there are other people who have, as you put it, "unique" children like mine, since most people don't understand why Connor behaves strangely sometimes, or his school is at a loss as to how to handle his learning disabilities. So I come to this board and read a comment like yours. Thanks, that's just swell.
sarahrose
02-07-2005, 02:30 AM
I read that same post as well, I was surprised it wasn't removed. :nono:
mango2
02-07-2005, 07:51 AM
I editted my last post, but I think the other one is ok. It may be wrong, but I don't think it should be removed.
2cutekids
02-07-2005, 09:14 AM
I can tell you I did NOT want my child to be dx HFA. I was actually hoping for a better dx. I do not have some morbid thinking and TRY to make my son APPEAR Autistic. I could show you the eval if you would like.
My son has gotten better threw diet and therapy. I have done TONS of research in the last year. I have read countless books, emails and web sites. I KNOW what I'm talking about. I also believe that it is possiable to have my son taken off the spectrum some time. I'm not CONVINCED it is actually AUTISM, but something ACTING as Autism like the DAN! dr suggest.
Diet and anti yeast treatments had done WONDERS for my son. Yesterday was a bad day. He did alot of flapping and some mild meltdowns. He hasn't had a day like that in some time. I didn't give him is ZINC for breakfast and he is also getting sick. I may not have it as hard as others. I know that probably every single one of you (or most of you) would give ANYTHING to have a child that functions like mine. I know I'm lucky!
I have never been rude or ? others motives. I could sit here and tell you that I don't think it is right NOT to try the diet. That you are only hurting you child, but for some it just doesn't work, or the don't want to believe it. I have seen first hand the change in my son. I have video tapes. I have the dr's in awe at the change in my son. He still isn't "normal", he may be unique or quorky, but that doesn't mean he is NOT Autistic.
Did you read the reply from the man that has HFA? The one that has a wife and a teenager dd? Why dont you tell him that he is making it up. I bet he would have a few choice words for you.
IE: My mom has MS is in a wheel chair, can't really do anything for herself any more. Montel Williams has MS, look he has a talk show, lifts weights and is very active. Does that make him NOT have MS? NO it just effected him differently.
My son has gotten better threw diet and therapy. I have done TONS of research in the last year. I have read countless books, emails and web sites. I KNOW what I'm talking about. I also believe that it is possiable to have my son taken off the spectrum some time. I'm not CONVINCED it is actually AUTISM, but something ACTING as Autism like the DAN! dr suggest.
Diet and anti yeast treatments had done WONDERS for my son. Yesterday was a bad day. He did alot of flapping and some mild meltdowns. He hasn't had a day like that in some time. I didn't give him is ZINC for breakfast and he is also getting sick. I may not have it as hard as others. I know that probably every single one of you (or most of you) would give ANYTHING to have a child that functions like mine. I know I'm lucky!
I have never been rude or ? others motives. I could sit here and tell you that I don't think it is right NOT to try the diet. That you are only hurting you child, but for some it just doesn't work, or the don't want to believe it. I have seen first hand the change in my son. I have video tapes. I have the dr's in awe at the change in my son. He still isn't "normal", he may be unique or quorky, but that doesn't mean he is NOT Autistic.
Did you read the reply from the man that has HFA? The one that has a wife and a teenager dd? Why dont you tell him that he is making it up. I bet he would have a few choice words for you.
IE: My mom has MS is in a wheel chair, can't really do anything for herself any more. Montel Williams has MS, look he has a talk show, lifts weights and is very active. Does that make him NOT have MS? NO it just effected him differently.
mango2
02-07-2005, 11:19 AM
ok ok, that was in very poor taste. I confused the true definition of Munchausen's.
An apology is in order. I'm sorry.
I'm at work and can't read the most recent responses to my offensive post, but I will when I have time.
An apology is in order. I'm sorry.
I'm at work and can't read the most recent responses to my offensive post, but I will when I have time.
2cutekids
02-07-2005, 11:43 AM
PDD-NOS Mom, my last post was NOT directed to you, and I hope you didn't take it as such. It was directed to the post about the Munchausen Syndrome by Proxy. That is all. :)
All of our children are special each way. Us parents do NOT need to gang up on each other over trival things. Life is hard enough. We were all chosen to have these special kids for a reason. We are great, loving, caring, patiant people. :)
All of our children are special each way. Us parents do NOT need to gang up on each other over trival things. Life is hard enough. We were all chosen to have these special kids for a reason. We are great, loving, caring, patiant people. :)
BetsyAnn
02-07-2005, 12:15 PM
ok ok, that was in very poor taste. I confused the true definition of Munchausen's.
An apology is in order. I'm sorry.
I'm at work and can't read the most recent responses to my offensive post, but I will when I have time.
Mango, that is very cool. It takes a mature person to rethink their position and be able to admit when they are wrong.
Having a disabled child can really cause stress to build and sometimes it just comes out.
An apology is in order. I'm sorry.
I'm at work and can't read the most recent responses to my offensive post, but I will when I have time.
Mango, that is very cool. It takes a mature person to rethink their position and be able to admit when they are wrong.
Having a disabled child can really cause stress to build and sometimes it just comes out.
KathleenW
02-07-2005, 12:26 PM
The answer to your first question is 18 months.
Your post is very interesting, actually, because it's a twist on Dr. Kanner and Massie's decades-old theory on the frigid, or negligent mother effect. Instead of the parent causing the Autism, you are almost suggesting it's the parent's fault if the child doesn't recover from the un-explained onset of Autism.
No I am not kidding about the Munchausen comment. I posed it that way to temper a provocative assertion.
Actually, no matter when you start, you will affect the outcome of every child, but the sad fact is that there is no cure, so what you think is mainly sunshine and daydreams.
I find your post very confusing. If every child's outcome will be affected how can my posts be sunshine and daydreams?
You say "SADLY THERE IS NO CURE" Guess what? I agree 100% with you. If you do a search on my posts I have never once said. This is what I did to cure my son's autism. Or thank God my son has fully recovered from autism. What I do say in my posts is what I did to help my son learn to talk and catch up developmentally.
The thing that summed up recovery best to me was an essay written by someone with autism. He said recovery from autism is a myth. He said suppose you take a neurotypical child and spend every waking moment with them and try to teach them to be autistic. Will the child be autistic? The answer is no because they will still have a neurotypical brain. I feel that it is impossible to recover from autism, because no matter how normal you seem your brain will still be different.
It surprises me that you would assume that another mother with a child with autism such as myself would accuse the parent of being the cause of autism. The reason I asked is because I was very interested in your child's story and when they started therapy. I feel you are doing a huge disservice to other parents by trying to discredit other people's posts. It was so confusing to me when I got the diagnosis. They looked at me and said your son is not autistic and then handed me all these pamphlets on how to help autistic children. Why did they do that? The answer is because no matter where your child is on the spectrum they can all benefit from the different types of early intervention.
You have made a lot of broad statements on these boards. Such as I don't think my child will be able to benefit from this because the children are so high functioning and by saying that parents are making things up. Why would you try to tell other people that what we say is untrue? Everything I have said has been scientifically proven. ABA, speech therapy and B6, magnesium, DMG and the removal of milk (which a pediatrician told me to do since my son was getting double ear infections in July and August (he has never been in daycare so they said it did not make sense for him to keep getting ear infection in the summer unless he was having a reaction to the milk) has helped children who suffer with autism.
Your post is very interesting, actually, because it's a twist on Dr. Kanner and Massie's decades-old theory on the frigid, or negligent mother effect. Instead of the parent causing the Autism, you are almost suggesting it's the parent's fault if the child doesn't recover from the un-explained onset of Autism.
No I am not kidding about the Munchausen comment. I posed it that way to temper a provocative assertion.
Actually, no matter when you start, you will affect the outcome of every child, but the sad fact is that there is no cure, so what you think is mainly sunshine and daydreams.
I find your post very confusing. If every child's outcome will be affected how can my posts be sunshine and daydreams?
You say "SADLY THERE IS NO CURE" Guess what? I agree 100% with you. If you do a search on my posts I have never once said. This is what I did to cure my son's autism. Or thank God my son has fully recovered from autism. What I do say in my posts is what I did to help my son learn to talk and catch up developmentally.
The thing that summed up recovery best to me was an essay written by someone with autism. He said recovery from autism is a myth. He said suppose you take a neurotypical child and spend every waking moment with them and try to teach them to be autistic. Will the child be autistic? The answer is no because they will still have a neurotypical brain. I feel that it is impossible to recover from autism, because no matter how normal you seem your brain will still be different.
It surprises me that you would assume that another mother with a child with autism such as myself would accuse the parent of being the cause of autism. The reason I asked is because I was very interested in your child's story and when they started therapy. I feel you are doing a huge disservice to other parents by trying to discredit other people's posts. It was so confusing to me when I got the diagnosis. They looked at me and said your son is not autistic and then handed me all these pamphlets on how to help autistic children. Why did they do that? The answer is because no matter where your child is on the spectrum they can all benefit from the different types of early intervention.
You have made a lot of broad statements on these boards. Such as I don't think my child will be able to benefit from this because the children are so high functioning and by saying that parents are making things up. Why would you try to tell other people that what we say is untrue? Everything I have said has been scientifically proven. ABA, speech therapy and B6, magnesium, DMG and the removal of milk (which a pediatrician told me to do since my son was getting double ear infections in July and August (he has never been in daycare so they said it did not make sense for him to keep getting ear infection in the summer unless he was having a reaction to the milk) has helped children who suffer with autism.
mango2
02-07-2005, 02:10 PM
I've now read all the posts.
Kathleen and others:
I'm not sure exactly why I said all those things, but obviously I felt the need to say them and knew what I was doing. I admit it makes me look pretty bad. Without thinking about it too deeply, let me try to explain in some way.
I've been dealing with Autism for fourteen years, and amongst all the kids in my boy's classes, and all the kids in the groups I've belonged to, I really haven't seen much noticeable success. Maybe I just felt like all the progress reported here with the high-functioning kids gave people false hope, and perhaps I felt a tinge of jealousy.
Help for kids with Autism came slow here in SW Florida. We had to fight for every little educational tool. I remember when a group of us went before the School District to try to work out a deal for a Public-Private parternship so parents who opted for a different type of education could send their kids to a private school that used different teaching methods(ABA). It turned out that the parents of older kids, who years before had to fight for their children's right to even attend a Public school, were some of our biggest opponents. I think they felt some bit of jealousy, or thought that what they had fought for was good enough. It looks like I'm now in the older gereration of parents, and I guess it's only logical that the parents of younger children today would be better prepared than we were, and would have higher expectations of success due to scietific advancements and public opportunities and awareness.
I said I was sorry, and I hope I've answered the questions to some extent. I will think about this a little more.
Kathleen and others:
I'm not sure exactly why I said all those things, but obviously I felt the need to say them and knew what I was doing. I admit it makes me look pretty bad. Without thinking about it too deeply, let me try to explain in some way.
I've been dealing with Autism for fourteen years, and amongst all the kids in my boy's classes, and all the kids in the groups I've belonged to, I really haven't seen much noticeable success. Maybe I just felt like all the progress reported here with the high-functioning kids gave people false hope, and perhaps I felt a tinge of jealousy.
Help for kids with Autism came slow here in SW Florida. We had to fight for every little educational tool. I remember when a group of us went before the School District to try to work out a deal for a Public-Private parternship so parents who opted for a different type of education could send their kids to a private school that used different teaching methods(ABA). It turned out that the parents of older kids, who years before had to fight for their children's right to even attend a Public school, were some of our biggest opponents. I think they felt some bit of jealousy, or thought that what they had fought for was good enough. It looks like I'm now in the older gereration of parents, and I guess it's only logical that the parents of younger children today would be better prepared than we were, and would have higher expectations of success due to scietific advancements and public opportunities and awareness.
I said I was sorry, and I hope I've answered the questions to some extent. I will think about this a little more.
2cutekids
02-07-2005, 03:44 PM
Mango2...
I just wanted you to know that I have no hard feelings for you. We all have our bad days and need to lash out from time to time. I usually don't have many ppl to do this to also, my sister and my mom, but I think they must be sick of hearing me by now.
I respect all you have done for Autism in your area and over the time. You are a strong woman, much stronger than me. I didn't really have to fight for much here, I am bless that where I live, we have one of the best systems in place in the country.
All of my son's services are paid by threw the state, and our school district already has Autistic children in it. In fact one of the ladies for NARR child goes to my school (I belive) so most of this has been paved for me. I'm sure that your life it much harder than mine. I comended you for your stength and courage as I do all the familes that are faced with this disorder.
Back when you started to fight this, they may not have even recognize my son as having Autism, just given me that "he is a naughty boy and I needed to disipline him more" I still got that from my family. Or perhaps "he will grow out of it". We all know that is not true.
Again, at times we say things that we shouldn't, but when it is written down, more ppl see it than "hear" it.
I just wanted you to know that I have no hard feelings for you. We all have our bad days and need to lash out from time to time. I usually don't have many ppl to do this to also, my sister and my mom, but I think they must be sick of hearing me by now.
I respect all you have done for Autism in your area and over the time. You are a strong woman, much stronger than me. I didn't really have to fight for much here, I am bless that where I live, we have one of the best systems in place in the country.
All of my son's services are paid by threw the state, and our school district already has Autistic children in it. In fact one of the ladies for NARR child goes to my school (I belive) so most of this has been paved for me. I'm sure that your life it much harder than mine. I comended you for your stength and courage as I do all the familes that are faced with this disorder.
Back when you started to fight this, they may not have even recognize my son as having Autism, just given me that "he is a naughty boy and I needed to disipline him more" I still got that from my family. Or perhaps "he will grow out of it". We all know that is not true.
Again, at times we say things that we shouldn't, but when it is written down, more ppl see it than "hear" it.
BetsyAnn
02-07-2005, 05:27 PM
I think it is important that all parents post on this board no matter how well or poorly your child is doing. I feel so blessed that my son is doing so well and I post on these boards because I like to tell other parents what helped my child. I feel if I could help one child do better than it is worth it!!!!!!!! Continued luck to you and your son. I feel next year will be the BIG TEST for both of our boys.
I just want to thank you and other parents that post here. This is the place that I have been introduced to all of the different "therapies" that have worked for my child. The unpaid parent testimonials are what convinced me to at least try some of the treatments that the mainstream medical community has not yet bought into. Not everything I read applies to my son but I find it all interesting.
This has also been a great place for support. I don't feel so alone in this fight since finding the board.
I just want to thank you and other parents that post here. This is the place that I have been introduced to all of the different "therapies" that have worked for my child. The unpaid parent testimonials are what convinced me to at least try some of the treatments that the mainstream medical community has not yet bought into. Not everything I read applies to my son but I find it all interesting.
This has also been a great place for support. I don't feel so alone in this fight since finding the board.
2cutekids
02-07-2005, 05:56 PM
:) :) :) :) :)
mango2
02-07-2005, 07:34 PM
Thanks, 2cute.
FTR, I'm a Dad.
FTR, I'm a Dad.
2cutekids
02-08-2005, 09:00 AM
Mango...
Sorry, It is almost always a woman... :)
Sorry, It is almost always a woman... :)