ladydi1953
02-06-2005, 04:22 PM
is anyone currently using or have recently tried Tysabri?? i am going to have my first IV this month and am a little anxious about it. hopefully it will be all its cracked up to be. if anyone has experience with this new drug please let me know.
thanks,
di
thanks,
di
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baddoey
02-07-2005, 12:46 PM
I am on tysabri - just had one infusion. . no problems or reaction. . small IV, just out in the hand. .
Arraicha
02-07-2005, 06:35 PM
I asked my neurologist about it today, and sadly, it's not available in my country yet. It sounds really good. Same efficiency as Betaseron and Rebif, but with only one IV injection a month.
I really hope it becomes legal here soon.
I really hope it becomes legal here soon.
AllyG
02-08-2005, 09:44 AM
Hi all.
Just wondering is Tysabri available in Ireland. Only on Rebif a year or so but no one has mentioned Tysabri to me or anyone I know with MS. Any info on the drug much appreciated.
Just wondering is Tysabri available in Ireland. Only on Rebif a year or so but no one has mentioned Tysabri to me or anyone I know with MS. Any info on the drug much appreciated.
baddoey
02-08-2005, 01:57 PM
it should be available in ireland - it was a joint venture between Elan (irish company) and biogen
Barbbelle
02-08-2005, 02:07 PM
Hi!! This is my first response. I have had MS for 7 yrs. Been on Avonex, Copaxone, double avonex, and Novantrone. Now only on Tysabri. I really liked it. Have had 2 infusions and ready for my third. Just a once a month injection which takes an hour and then they watch you for another hour with a saline drip. I drink gingerale when I get it because after the first inj., I was a little nauseated on the way home. If you would have an allergic reaction (hives, etc.) they will stop the program for you. It seems very safe, but not all insurance cos will pay for it. It is the only drug that I know of that helps protect us some. I love it and feel very blessed to get to take it. :bouncing:Good luck!!!!!!!
gaulty
02-08-2005, 08:12 PM
what ie this ???im in ireland and have relapse remit for 2 years ,cheers for any info,oh im on inerferion
ladydi1953
02-12-2005, 10:58 AM
what ie this ???im in ireland and have relapse remit for 2 years ,cheers for any info,oh im on inerferion
This is a brand new medication made by the folks who make avonex Boigen Labs. Its so new that my pharmacist had to do some research to find it. I has gotten great reviews.
This is a brand new medication made by the folks who make avonex Boigen Labs. Its so new that my pharmacist had to do some research to find it. I has gotten great reviews.
Jewel2
02-12-2005, 11:48 AM
My daughter has had one infusion. She was a little nauseous on the way home, but otherwise it went well.
The studies have shown that it is nearly twice as effective as the CRABs in controlling lesion activity. It works differently than the CRABs, so your doc might keep you on both. My daughter is on Copaxone and Tysabri. It is a miracle her insurance is paying for both - at least for now they are!
There is currently a study going on for oral Tysabri. Wouldn't that be great?!!!!!
Take care,
Julie
The studies have shown that it is nearly twice as effective as the CRABs in controlling lesion activity. It works differently than the CRABs, so your doc might keep you on both. My daughter is on Copaxone and Tysabri. It is a miracle her insurance is paying for both - at least for now they are!
There is currently a study going on for oral Tysabri. Wouldn't that be great?!!!!!
Take care,
Julie
gaulty
02-13-2005, 04:19 PM
i have to se emy nero in 2 weesk so ill ask about it then problem is that in Northern Ireland funding is minimal for ms drugs pitty but true
purple2067
02-20-2005, 06:53 PM
Tysabri is actually a joint venture between Biogen and an Irish pharmaceutical company, Elan. Maybe if you contact the company they can help you figure out how to get it.