Prayingmom
02-15-2005, 05:32 AM
Someone from the cancer board said that I should come here. My 19 year old son is dying of cancer. It has been a year since we learned that he has cancer. The cancer has relapsed now for the 3rd time. We have prayed so hard. We have asked everyone we know to pray for him. I feel so numb. He is really going to die and there is nothing that anyone can do to stop this. Even my husband who has tried to keep up his hope for a cure is sad now.
I have chronicled Jason's journey these 18 months--it begins with post #124 on page 25 here.
My precious son passed away on 8/25/05 at 1:00 after going into a coma and was received into the arms of his Lord and Saviour, Jesus Christ. Our hearts are broken. We hurt. We wouldn't ever want him to endure the intense pain he felt during the last days again. We loved him so much and now we miss him so much. The last months of his life, the last hours of his life--all are recorded here. God bless you all for caring and praying for him and for us. It was a journey we never wanted to take.
I have chronicled Jason's journey these 18 months--it begins with post #124 on page 25 here.
My precious son passed away on 8/25/05 at 1:00 after going into a coma and was received into the arms of his Lord and Saviour, Jesus Christ. Our hearts are broken. We hurt. We wouldn't ever want him to endure the intense pain he felt during the last days again. We loved him so much and now we miss him so much. The last months of his life, the last hours of his life--all are recorded here. God bless you all for caring and praying for him and for us. It was a journey we never wanted to take.
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Debbie04
02-15-2005, 11:07 AM
I'm so sorry to hear about your son. Don't give up hope though, hope is all we really have at a time like this. Pray relentlessly. God does hear our prayers, I know this for a fact. I will pray for you and your son and hope for the best. God Bless You All.
sugaredwillow
02-15-2005, 11:24 AM
My son is very ill also he has agressive jra that is also affecting his vision I know how scary this can be. Pray for Jesus to heal your son. Jesus is what has gotten me through all of this. I will pray for your son. God bless you and your son.
sugaredwillow
02-15-2005, 11:37 AM
Have faith in Jesus he can heal your son. Have faith in Jesus and he will be healed.
Blue102
02-15-2005, 11:38 AM
I'm so sorry. You have my prayers.
Tiffyholman
02-15-2005, 11:45 AM
My parents are Pastors of a church and they have been for 35 years now. My mom has late stages ALS or lou gehrigs disease. We have prayed so hard for her and it is really easy to lose hope, but remember God is the only one that can help you through this. When I realized that I felt better even though it didn't take all the pain away it helped. God is still in the healing business and pray every day that he will heal your son all it takes is faith of a mustard seed to move a mountain, than anything can be done with that. I will pray for you and your son, I'll add him to our pray list at church. God bless you.
LoriGymnast
02-15-2005, 12:02 PM
My heart breaks for you and your family. I have a 17 year old son and I cannot even imagine your pain. I prayed for your son and your family as you all need a touch from heaven right now. When I prayed I asked Jesus to give me a verse that would give you encouragement at this time. John 10:28, "I give them eternal life, and they shall never die; no one can snatch them out of my hand." Are you a christian, a follower of Jesus Christ? Nothing is impossible with God, and where we think there is no hope can sometimes be wrong. Only God can give you real peace at a time such as this, I will keep you all in my thoughts and prayers. This life is short, but Prasie the Lord we can know we have eternal life!
Lanew
02-15-2005, 04:24 PM
I agree with everyone keep praying,also where two or more are gatherd in his name he will be there. I believe if everyone here that has read your sorrow If we all come together in prayer I believe Jesus will hear us all in agreement. At 6.00 pm wed Feb 16th we all stop what we are doing and pray for this young man. If thats ok with you.
I loss my 16 yr old son in a car wreck, we never got a chance to do something. We know God can and we should lift your son up to him to heal.
I loss my 16 yr old son in a car wreck, we never got a chance to do something. We know God can and we should lift your son up to him to heal.
Prayingmom
02-16-2005, 04:01 AM
Hi Everyone (Lanew, Lori, Tiffy, and others who have stopped by),
Thank you all so much for caring and for praying. My son had a good day--or at least as good as he can with what he faces. He got out of the house and went to visit his old high school--a friend was in visiting from Pennsylvania and he wanted to see her. I will join you in praying for my son Wed, 2/6/05 at 6PM and thank you for suggesting this. I am usually in the church library at that time, but I will try to find a spot to be alone--perhaps back to my car. Thank you for the Scriptures you shared also. Well, it is late and I guess I just need to try to go rest. My little girl has an orthodontist appointment (for her braces) tomorrow at 10:20 and it is already 2:00 AM here. God's blessings to all of you.
Thank you all so much for caring and for praying. My son had a good day--or at least as good as he can with what he faces. He got out of the house and went to visit his old high school--a friend was in visiting from Pennsylvania and he wanted to see her. I will join you in praying for my son Wed, 2/6/05 at 6PM and thank you for suggesting this. I am usually in the church library at that time, but I will try to find a spot to be alone--perhaps back to my car. Thank you for the Scriptures you shared also. Well, it is late and I guess I just need to try to go rest. My little girl has an orthodontist appointment (for her braces) tomorrow at 10:20 and it is already 2:00 AM here. God's blessings to all of you.
Lanew
02-16-2005, 08:39 PM
Please keep us posted on your son, He will be in my prayers each day. you to will be in my prayers you need His Loving Arms Around you also.God Bless you and your Family.I know God heard our prayers. :angel:
xtina0706
02-16-2005, 09:10 PM
I am sorry to hear what you,your family and son are going through right now.I cant imagine what it must feel like knowing something so bad is waiting.I too lost my 14 month old daughter a month ago.She had a heart defect when she was born and had had 2 heart surgeries.She was doing fine until last month she got a cold and the infection spreaded to her organs.I'm still waiting on the hospital on the autopsy.But what I wanted to tell you is that at first you feel like your world is going to end but it does get better.You think about them everyday but about the good memories you had together not about what happened.Your family and friends also give you a lot of support which really helps also.I hope you feel better.God is with us all.
dreamer79
02-16-2005, 10:57 PM
I am so sorry to hear about your son (((hugs))) let him know now how much you love him. Give him all the hugs and kisses now him wish you luck!
pillzpillzpillz
02-17-2005, 09:34 AM
Prayingmom,
As I write this, I have tears in my eyes. I have an 18 year old boy whom I love dearly and I am a survivor of a very rare, fatal form of small cell ovarian cancer. I had my 18 year old when I was 18 and then I had my second son when I was 21 - I had a planned c-section with my second son b/c of a tumor on my left ovary - at the time they thought I had a fiberoid cyst (normal in pregnancy) but it wasn't, it was the worst thing ever- only 5 women in the USA have survived this cancer past 5 years, I am now the 6th - Please don't lose hope, I was 21 when this happened to me, I went through intensive chemotherpay AND radiation therpay without knowing if what I was going through would even work or be worth it - -was I using what time I had left being sick from chemo? We didn't know, but I HAD to try, I wanted to live and see my kids grow - I remember falling to the floor and begging the Dr. to stop talking (when we were told) I couldn't hear anymore - I didn't want to die.
Your son has age on his side and he is still here, there is STILL HOPE. I am so sorry for what you are going through, I have no clue what it must be like to see your child go through this, I just know what it's like to go through it. I would imagine my mom and dad would be able to identify with you and your husband. It was hard on me to see the pain I was causing my parents, to know that my dad was crying at my bedside. Please keep the faith...I am going to pary so hard for you and your family, I believe in the power of prayer. Your son is going to live through this and this time in your lives will become a distant memory~
Pillz...
As I write this, I have tears in my eyes. I have an 18 year old boy whom I love dearly and I am a survivor of a very rare, fatal form of small cell ovarian cancer. I had my 18 year old when I was 18 and then I had my second son when I was 21 - I had a planned c-section with my second son b/c of a tumor on my left ovary - at the time they thought I had a fiberoid cyst (normal in pregnancy) but it wasn't, it was the worst thing ever- only 5 women in the USA have survived this cancer past 5 years, I am now the 6th - Please don't lose hope, I was 21 when this happened to me, I went through intensive chemotherpay AND radiation therpay without knowing if what I was going through would even work or be worth it - -was I using what time I had left being sick from chemo? We didn't know, but I HAD to try, I wanted to live and see my kids grow - I remember falling to the floor and begging the Dr. to stop talking (when we were told) I couldn't hear anymore - I didn't want to die.
Your son has age on his side and he is still here, there is STILL HOPE. I am so sorry for what you are going through, I have no clue what it must be like to see your child go through this, I just know what it's like to go through it. I would imagine my mom and dad would be able to identify with you and your husband. It was hard on me to see the pain I was causing my parents, to know that my dad was crying at my bedside. Please keep the faith...I am going to pary so hard for you and your family, I believe in the power of prayer. Your son is going to live through this and this time in your lives will become a distant memory~
Pillz...
Ruth6:11
02-17-2005, 02:02 PM
I am so sorry to hear about your son. I know that no one, even God, has guaranteed ANY of us life on earth forever. God understands more than just how to heal... He also had to watch his son die...
Sometimes what you pray for changes.
I remember that when my Dad was diagnosed with colon cancer I prayed for a miracle - that his Stage IV cancer would disappear. Then, over the next 4-5 months my prayer changed. I prayed for him to not be in pain, I prayed for him to be at peace.
God did answer my prayer.
:angel:
Sometimes what you pray for changes.
I remember that when my Dad was diagnosed with colon cancer I prayed for a miracle - that his Stage IV cancer would disappear. Then, over the next 4-5 months my prayer changed. I prayed for him to not be in pain, I prayed for him to be at peace.
God did answer my prayer.
:angel:
eddiesbaby
02-17-2005, 02:08 PM
Hi. I am so sorry for you and your son. I have a seven year old, and I too cannot imagine this. I am so so so sorry and I will pray for you.
If it helps any, just remember that there IS a Heaven and God has a reason for everything, even tho sometimes it seems like a cruel thing to take someone so young.
He isn't dying, he is going to a better place. One day, far from now, you will also go there. God has a reason for everythng he does!
If it helps any, just remember that there IS a Heaven and God has a reason for everything, even tho sometimes it seems like a cruel thing to take someone so young.
He isn't dying, he is going to a better place. One day, far from now, you will also go there. God has a reason for everythng he does!
Prayingmom
02-17-2005, 07:09 PM
Thank you for all your prayers. I guess as far as what I pray for--well as long as my son is not suffering or in pain physically (though there is always the mental anguish of a terminal prognosis)I pray for healing here. We have been very fortunate in that respect, so far. Sure he suffered through 6 weeks of radiation that put him in a wheelchair for a month in summer 2004 and he suffered the torture of chemotherapy for almost a year and one surgery to remove cancer and several bone marrow biopsies--and it has been a very, very hard year, but the tumors have not been painful for him so far and I hope they don't start pressing on things and causing him pain. I will keep praying for complete healing here on earth and believe with all my heart that if it is God's will my son will be healed. God is able to heal--I know that he is--but he doesn't always heal every person. If he is not to be healed I will pray that God would be merciful and that he would not have to suffer --that he could just slip away from us in his sleep. And then, oh how I will miss him.
pillzpillzpillz
02-18-2005, 08:02 AM
Prayingmom~
Please, keep faith...I know that you are listening to the Dr.'s and I am NOT discounting what your son has been through - I know full well what he has been through, I too went through radiation and chemo along with very painful biopsies when I was 21.
I wanted you to know what your son may be feeling about you and his dad - Being in your sons shoes, it was hard for me when I knew that my mom and dad were sad about me all I wanted was for them to not have any pain from what I was going through - - I didn't want to be a source of sadness for them- they did a very good job at not crying in front of me of being scared. I know when I was first diagnosed, I went through many emotional stages to finally, acceptance. I didn't think I was going to live.
Anyway, I am hoping and praying your son is going to have a remission - I am praying so hard....I hate to think that he won't make it...I don't even know you guys, but I can feel the pain in your posts and I can't help but get caught up in this and PRAY he will have a sudden remission. Something is drawing me to you and your posts...
Pillz
Please, keep faith...I know that you are listening to the Dr.'s and I am NOT discounting what your son has been through - I know full well what he has been through, I too went through radiation and chemo along with very painful biopsies when I was 21.
I wanted you to know what your son may be feeling about you and his dad - Being in your sons shoes, it was hard for me when I knew that my mom and dad were sad about me all I wanted was for them to not have any pain from what I was going through - - I didn't want to be a source of sadness for them- they did a very good job at not crying in front of me of being scared. I know when I was first diagnosed, I went through many emotional stages to finally, acceptance. I didn't think I was going to live.
Anyway, I am hoping and praying your son is going to have a remission - I am praying so hard....I hate to think that he won't make it...I don't even know you guys, but I can feel the pain in your posts and I can't help but get caught up in this and PRAY he will have a sudden remission. Something is drawing me to you and your posts...
Pillz
Samantha317
02-19-2005, 07:13 PM
I think God must have led me to this thread. My heart aches for you and your son. I just want you to know that you, your husband and your son are in my thoughts and prayers.
Sam :angel:
Sam :angel:
Euclid
02-20-2005, 12:36 PM
Don't give up hope! Spend every last minute you have! Were all here praying for youre son!
Lanew
02-20-2005, 06:25 PM
I pray today that your son is doing better, I pray that he gives you the peace in knowing he is there every step of the way. God Bless your Family. :angel:
Prayingmom
02-21-2005, 04:05 AM
Pillz, Diggadog2, Samantha, Euclid and Lanew,
Thank you all for stopping by here and for praying for my dear son. I know that God can heal -- no matter what -- but things just don't look good for my son. There is a longer message over on the cancer board that I just posted. There may be an opportunity for my son to participate in a clinical trial--we'll see tomorrow.
Thanks so much for caring.
prayingmom
Thank you all for stopping by here and for praying for my dear son. I know that God can heal -- no matter what -- but things just don't look good for my son. There is a longer message over on the cancer board that I just posted. There may be an opportunity for my son to participate in a clinical trial--we'll see tomorrow.
Thanks so much for caring.
prayingmom
pillzpillzpillz
02-22-2005, 08:06 AM
I am not a church going person but I belive in prayer:
Dear Lord, please bring comfort and your healing powers to this family in need. Please take away any pain their son is going through and bring comfort and even joy as they wake each day - please lord, give this child the time he needs to see his family through any transitions you have planned for them - be it life or another journey.
-Amen
Dear Lord, please bring comfort and your healing powers to this family in need. Please take away any pain their son is going through and bring comfort and even joy as they wake each day - please lord, give this child the time he needs to see his family through any transitions you have planned for them - be it life or another journey.
-Amen
Prayingmom
02-25-2005, 03:34 AM
Hi Everyone,
Pillz--Thank you so much for praying. It means the world to us to know that people are praying for us and for my dear son.
Things are about the same. My little girl has a cold and my second son has hurt his back skateboarding, took him to the doctor today and my third son had an orthodonist visit today--just normal things. I wish that were all we had to deal with--just normal things. It's hard to imagine that this is my life--that doctors have told us that my precious boy is dying. He still seems so strong, so tall, so full of life. He can still jump over fences with those long legs of his. But he has these lumps that we can see and we know that they are cancerous and we don't know what else this cancer is doing that we can't see. His little brother who is 16, when we were first told that big brother's cancer was terminal, said, "Mom, it won't kill him--he's so strong." and I told him that cancer can bring even strongest man down. I just watch my son sleeping sometimes--just wishing time could just stop here while I still have him or that Jesus would just return now to take us all home--so there won't be that pain of separation.
Just been thinking about deaths of those I've loved.
When I was about 10, in 1966, the first tragedy I can remember occured in my life. My uncle--my dad's youngest brother--was cutting down a tree on the hillside above the old homeplace. My grandmother had been to the barn up on top of the hill. My uncle saw her walking home, but he didn't see that she had turned and started back to the barn, possibly to check on a new calf--we don't know. The saw was still on when he saw his mother in the path of the falling tree. Later, he remembered that time seemed to stand still as the tree stood and then began falling. The saw was still on and was loud--he yelled, "Mom, get out of the way!" She probably never heard. She died immediately when the tree hit her. My favorite grandma--the closest thing to a saint that I've ever met--died immediately. She was 66--born in 1900. She married at 16--we grandkids could never understand why she married our grandfather--who was not a saint at all in many ways--we called him "Groucho" because he was so grouchy and hard to get along with. She was so good, kind and caring--sang hymns as she did her work all day, a woman of prayer who had sent 3 sons into World War II and all 3 returned home. My dad was one of them - only slightly injured by shrapnel on the beach on D-Day. One son had been a prisoner of war and had escaped and another was injured in such a way that he could never have children(we kids knew that, but not details), but he married a wonderful widow lady with 2 little boys, whose husband had died of infection(when there were few antibiotics) from a gunshot wound received in a hunting accident. My grandmother was at church every Sunday and was overjoyed and proud to be able to fill a pew with her grandchildren of which she had 22--she taught the primary Sunday School class for 50 years. She truly lived by the saying, "If you can't say something good about someone, don't say anything at all." We never heard her complain or say anything bad about anyone. She was part-American Indian and we've always been proud that we are, too and even at 66 her hair was still black (no gray at all and no dye). I've always thought that it was partly because she turned every worry over to the Good Lord and didn't carry unnecessary burdens to worry herself gray as we so often do.
My mother's father who had a stroke when I was 3 in 1959, died the year after my grandmother, in 1967. His left side had been paralyzed and he had been crippled all those years since the stroke, but he sat on the couch all day long reading his Bible. That's how I remember him most. He would put the date when he read it through again--many times after the stroke. His left lip turned down because of the paralysis of his face made me think for years that he was angry. It really wasn't until my own father had a stroke 3 years ago that I truly understood that he couldn't help it, that the stroke did it.
Then, an even worse tragedy occured. My little brother, 18 months younger than I, died in a car wreck on July 2, 1972. He was almost 15. We had fought as children, but at some point, between the ages of 10 and 12, I decided that TV shows and such were not worth fighting over and also had learned what a really neat person my little brother had grown up to be. We were friends. I liked being with him. We stayed up watching scary movies late at night. Billy had been told never to ride with this particular cousin (the son of my mother's sister) because he had been clocked going 130 mph and had received a reckless driving ticket. There was no sign that my cousin had been speeding on the little dirt road. The truck just went off the side and started rolling. By the time it rolled to the bottom of the hill, my brother's neck was broken and he was just gone, his face began to turn a darker color immediately. One cousin, the driver -- his nose was severed, but repaired by plastic surgery and the other cousin had a broken collarbone. My parents were heartbroken. My mom fainted when she arrived at the scene and someone suggested putting her in the ambulance with my brother, but someone else had better sense. She couldn't eat for days. The only thing she could keep down was coffee. She lost 20 pounds in those first few days and she looked skeletal. Me, at 16 -- I was now an only child in a very sad family -- so confused. I had always thought, if my parents wouldn't let me do what I wanted to do that they just didn't love me and didn't want me to have fun. Now I saw how foolish I had been--they just wanted to protect me. I felt I didn't deserve their love--I had lied to them and gone places without them knowing--I was the one who deserved to die, not my good hard working brother. In a round about way, God used that to show me that even though I am undeserving (aren't we all undeserving) that He loved me and sent His son to die for me. I prayed to receive Christ when I was a senior in high school when I visited the Christian college I would attend for 2 years. One of my cousins, the sister to the one who wrecked the truck, had always been one of my best friends; that is until she wrote a letter that said, "People say that your parents are crazy. That all they talk about is your dead brother." I never answered her letter and have never had much contact with her since then. Before this I had wanted to be just like her and she was not a good influence on me. My parents did the best they could after my brother died. People just expect you to get on with your life after such a tragedy. People who thought they were crazy, just couldn't possibly understand what they went through in losing a son. Two years later they had another baby. This brother was 18 years younger than me. Though my parents tried to move on, the sense of loss remains even today. My youngest brother was a joy to them. He still lives with them, but has OCD(obsessive compulsive disorder).
Ten years ago, my dad's youngest brother--the one who cut the tree(above) died in a tractor accident just around on the other side of the barn from where my grandmother died. We will never know why the tractor went off the side of the hill (some thought he perhaps was looking over at his salt lick for deer across the creek) where it rolled crushing him--he was alone and alive under the tractor for several hours.
Now my son has terminal cancer. I've thought about advice even I have given my mother. I've told her that you can choose to be happy--that it is up to you, yourself. I just didn't understand. You really can't understand until you've lived it and even living through my brother's death isn't the same. Right now, I don't feel that I can choose happiness. This is a very sad time. We can laugh and perhaps for a little while get our minds off the worst thoughts. But the thoughts are still there, just under the surface. We do have faith in God--faith that no matter what happens in the end it will be okay--this world is not the end. We have faith--though we don't understand how with such a tragedy, that God causes all things to work together for good to those who love Him, who are called according to His purpose. God is in control of our lives--if He were not we would completely despair.
We had such hopes and dreams for our son, not that we were planning his future, but we just knew that he would accomplish things with his life. His life has not been trivial. We will never forget our dear sweet son, just as I have never forgotten my brother.
Thanks once again for your prayers. The doctors are still considering what treatment options are still available to us. I don't know if anything can offer hope for a cure other than the healing hand of God, the Great Physician.
Pillz--Thank you so much for praying. It means the world to us to know that people are praying for us and for my dear son.
Things are about the same. My little girl has a cold and my second son has hurt his back skateboarding, took him to the doctor today and my third son had an orthodonist visit today--just normal things. I wish that were all we had to deal with--just normal things. It's hard to imagine that this is my life--that doctors have told us that my precious boy is dying. He still seems so strong, so tall, so full of life. He can still jump over fences with those long legs of his. But he has these lumps that we can see and we know that they are cancerous and we don't know what else this cancer is doing that we can't see. His little brother who is 16, when we were first told that big brother's cancer was terminal, said, "Mom, it won't kill him--he's so strong." and I told him that cancer can bring even strongest man down. I just watch my son sleeping sometimes--just wishing time could just stop here while I still have him or that Jesus would just return now to take us all home--so there won't be that pain of separation.
Just been thinking about deaths of those I've loved.
When I was about 10, in 1966, the first tragedy I can remember occured in my life. My uncle--my dad's youngest brother--was cutting down a tree on the hillside above the old homeplace. My grandmother had been to the barn up on top of the hill. My uncle saw her walking home, but he didn't see that she had turned and started back to the barn, possibly to check on a new calf--we don't know. The saw was still on when he saw his mother in the path of the falling tree. Later, he remembered that time seemed to stand still as the tree stood and then began falling. The saw was still on and was loud--he yelled, "Mom, get out of the way!" She probably never heard. She died immediately when the tree hit her. My favorite grandma--the closest thing to a saint that I've ever met--died immediately. She was 66--born in 1900. She married at 16--we grandkids could never understand why she married our grandfather--who was not a saint at all in many ways--we called him "Groucho" because he was so grouchy and hard to get along with. She was so good, kind and caring--sang hymns as she did her work all day, a woman of prayer who had sent 3 sons into World War II and all 3 returned home. My dad was one of them - only slightly injured by shrapnel on the beach on D-Day. One son had been a prisoner of war and had escaped and another was injured in such a way that he could never have children(we kids knew that, but not details), but he married a wonderful widow lady with 2 little boys, whose husband had died of infection(when there were few antibiotics) from a gunshot wound received in a hunting accident. My grandmother was at church every Sunday and was overjoyed and proud to be able to fill a pew with her grandchildren of which she had 22--she taught the primary Sunday School class for 50 years. She truly lived by the saying, "If you can't say something good about someone, don't say anything at all." We never heard her complain or say anything bad about anyone. She was part-American Indian and we've always been proud that we are, too and even at 66 her hair was still black (no gray at all and no dye). I've always thought that it was partly because she turned every worry over to the Good Lord and didn't carry unnecessary burdens to worry herself gray as we so often do.
My mother's father who had a stroke when I was 3 in 1959, died the year after my grandmother, in 1967. His left side had been paralyzed and he had been crippled all those years since the stroke, but he sat on the couch all day long reading his Bible. That's how I remember him most. He would put the date when he read it through again--many times after the stroke. His left lip turned down because of the paralysis of his face made me think for years that he was angry. It really wasn't until my own father had a stroke 3 years ago that I truly understood that he couldn't help it, that the stroke did it.
Then, an even worse tragedy occured. My little brother, 18 months younger than I, died in a car wreck on July 2, 1972. He was almost 15. We had fought as children, but at some point, between the ages of 10 and 12, I decided that TV shows and such were not worth fighting over and also had learned what a really neat person my little brother had grown up to be. We were friends. I liked being with him. We stayed up watching scary movies late at night. Billy had been told never to ride with this particular cousin (the son of my mother's sister) because he had been clocked going 130 mph and had received a reckless driving ticket. There was no sign that my cousin had been speeding on the little dirt road. The truck just went off the side and started rolling. By the time it rolled to the bottom of the hill, my brother's neck was broken and he was just gone, his face began to turn a darker color immediately. One cousin, the driver -- his nose was severed, but repaired by plastic surgery and the other cousin had a broken collarbone. My parents were heartbroken. My mom fainted when she arrived at the scene and someone suggested putting her in the ambulance with my brother, but someone else had better sense. She couldn't eat for days. The only thing she could keep down was coffee. She lost 20 pounds in those first few days and she looked skeletal. Me, at 16 -- I was now an only child in a very sad family -- so confused. I had always thought, if my parents wouldn't let me do what I wanted to do that they just didn't love me and didn't want me to have fun. Now I saw how foolish I had been--they just wanted to protect me. I felt I didn't deserve their love--I had lied to them and gone places without them knowing--I was the one who deserved to die, not my good hard working brother. In a round about way, God used that to show me that even though I am undeserving (aren't we all undeserving) that He loved me and sent His son to die for me. I prayed to receive Christ when I was a senior in high school when I visited the Christian college I would attend for 2 years. One of my cousins, the sister to the one who wrecked the truck, had always been one of my best friends; that is until she wrote a letter that said, "People say that your parents are crazy. That all they talk about is your dead brother." I never answered her letter and have never had much contact with her since then. Before this I had wanted to be just like her and she was not a good influence on me. My parents did the best they could after my brother died. People just expect you to get on with your life after such a tragedy. People who thought they were crazy, just couldn't possibly understand what they went through in losing a son. Two years later they had another baby. This brother was 18 years younger than me. Though my parents tried to move on, the sense of loss remains even today. My youngest brother was a joy to them. He still lives with them, but has OCD(obsessive compulsive disorder).
Ten years ago, my dad's youngest brother--the one who cut the tree(above) died in a tractor accident just around on the other side of the barn from where my grandmother died. We will never know why the tractor went off the side of the hill (some thought he perhaps was looking over at his salt lick for deer across the creek) where it rolled crushing him--he was alone and alive under the tractor for several hours.
Now my son has terminal cancer. I've thought about advice even I have given my mother. I've told her that you can choose to be happy--that it is up to you, yourself. I just didn't understand. You really can't understand until you've lived it and even living through my brother's death isn't the same. Right now, I don't feel that I can choose happiness. This is a very sad time. We can laugh and perhaps for a little while get our minds off the worst thoughts. But the thoughts are still there, just under the surface. We do have faith in God--faith that no matter what happens in the end it will be okay--this world is not the end. We have faith--though we don't understand how with such a tragedy, that God causes all things to work together for good to those who love Him, who are called according to His purpose. God is in control of our lives--if He were not we would completely despair.
We had such hopes and dreams for our son, not that we were planning his future, but we just knew that he would accomplish things with his life. His life has not been trivial. We will never forget our dear sweet son, just as I have never forgotten my brother.
Thanks once again for your prayers. The doctors are still considering what treatment options are still available to us. I don't know if anything can offer hope for a cure other than the healing hand of God, the Great Physician.
kerry1
02-25-2005, 03:05 PM
"Mom", I'm so sorry.
I don't know why God heals some kids and takes others back home with Him. I don't know the reason (if there is one) that an 18-year-old has to suffer like this. All I know is that life goes on, and when our mortal bodies wear out, there is new life waiting for us. I'm a Christian, but I don't think you have to be Christian to be saved. I honestly don't know the rules. I just know I've seen "peeks" of the other side and it is peaceful and beautiful there. There's no hate, fear, pain or prejudice. I hope your son gets better, but if he doesn't, it isn't the end. You'll meet up with him again. God bless all of you.
I don't know why God heals some kids and takes others back home with Him. I don't know the reason (if there is one) that an 18-year-old has to suffer like this. All I know is that life goes on, and when our mortal bodies wear out, there is new life waiting for us. I'm a Christian, but I don't think you have to be Christian to be saved. I honestly don't know the rules. I just know I've seen "peeks" of the other side and it is peaceful and beautiful there. There's no hate, fear, pain or prejudice. I hope your son gets better, but if he doesn't, it isn't the end. You'll meet up with him again. God bless all of you.
susieq0726
02-25-2005, 03:35 PM
"We had such hopes and dreams for our son, not that we were planning his future, but we just knew that he would accomplish things with his life. His life has not been trivial. We will never forget our dear sweet son, just as I have never forgotten my brother."
Your son HAS accomplished many wonderful things in his life. He has brought great joy to you and your family.
Only God truly knows what's best for your son now. Though we sometimes don't understand and hurt from God's work, we must believe in him and his love for us. He will take good care of your son. My prayers are with you and your family.
Your son HAS accomplished many wonderful things in his life. He has brought great joy to you and your family.
Only God truly knows what's best for your son now. Though we sometimes don't understand and hurt from God's work, we must believe in him and his love for us. He will take good care of your son. My prayers are with you and your family.
Prayingmom
02-28-2005, 05:24 AM
If my son is taken, although he has brought great joy into our lives, being our firstborn, his will always seem to be a life that was cut short. That was the hard thing in dealing with my little brother's death in the car wreck when he was almost 15.
It's one thing when our grandparents pass away--even if it is a tragic accident as with my grandmother--still you can look at their lives and think--they lived a good life--they accomplished a lot. They married, they had children, etc. They left a legacy. It is quite another when it is a young person who dies either through disease or accident. It would seem that their potential was never fully realized and then there are years and years of missing them and thinking how old they would be now. My brother would be 47 now. I'm sure he would have married young and had a houseful of children and probably be a grandfather by now.
Suzie Q, Kerry 1 and others, thank you for your prayers for my son. Praying is the most important thing we can do.
It's one thing when our grandparents pass away--even if it is a tragic accident as with my grandmother--still you can look at their lives and think--they lived a good life--they accomplished a lot. They married, they had children, etc. They left a legacy. It is quite another when it is a young person who dies either through disease or accident. It would seem that their potential was never fully realized and then there are years and years of missing them and thinking how old they would be now. My brother would be 47 now. I'm sure he would have married young and had a houseful of children and probably be a grandfather by now.
Suzie Q, Kerry 1 and others, thank you for your prayers for my son. Praying is the most important thing we can do.
tintx
03-01-2005, 12:04 AM
Prayingmom,
I'm so sorry for what you, your son, and family have been through and may be facing. I wouldn't tell you to give up hope for a cure/remission, but you may also need to start preparing for the best death possible for your son. That may sound awul, but there are things that can be done to ease the transition for him. I encourage you to get information about the needs of the dying so you'll be prepared to do what's necessary to support him through this, as well as getting the support you need. You've been entrusted with this, and it is an opportunity to give him a precious gift. I hope this makes sense to you, and maybe he will have a miracle. But if the miracle isn't what you expected, I'm sure you'll rise to the occasion.
God Bless You,
Tintx
I'm so sorry for what you, your son, and family have been through and may be facing. I wouldn't tell you to give up hope for a cure/remission, but you may also need to start preparing for the best death possible for your son. That may sound awul, but there are things that can be done to ease the transition for him. I encourage you to get information about the needs of the dying so you'll be prepared to do what's necessary to support him through this, as well as getting the support you need. You've been entrusted with this, and it is an opportunity to give him a precious gift. I hope this makes sense to you, and maybe he will have a miracle. But if the miracle isn't what you expected, I'm sure you'll rise to the occasion.
God Bless You,
Tintx
desertflower
03-01-2005, 02:12 AM
Prayingmom,
I am so sorry you and your family are going through this. I have said a prayer for you all. God bless you.
I am so sorry you and your family are going through this. I have said a prayer for you all. God bless you.
pillzpillzpillz
03-01-2005, 08:02 AM
Prayingmom~
How is your son today? Please check in and let us know (if you feel like it of course) I have been praying and would like to hear from you, if you are up to it :)
-Pillz
How is your son today? Please check in and let us know (if you feel like it of course) I have been praying and would like to hear from you, if you are up to it :)
-Pillz
Prayingmom
03-01-2005, 09:17 AM
Hi everyone,
Thank you so much for your concern for my son and us. Things are still the same--no changes that I know of. I still fear even asking him if there are any new lumps or if the ones he has are growing or if he has new symptoms. He doesn't complain of any pain, but he would try to endure without complaining. Since we have talked to hospice, now I know that things can move pretty quickly with them if we need them--as things could change very quickly with this aggressive cancer. It was first in his foot and grew there with absolutely no symptoms so that when he was diagnosed it had already spread and had completely taken over his bone marrow. So the cancer seems to like growing in his bone marrow and will probably come back there again, barring a miracle. We just pray and pray, and feel so helpless as we watch our son, who to all appearances is healthy, and have been told that it is inevitable that it will come back. His friends are in denial--no, he won't die, they say--we won't let him--like they could stop it themselves. Some of his friends visited and spent the night Friday and Saturday and I had some worries with them, because one brought a girl on Saturday--I ended up losing sleep all Saturday night--I left a message about it on the Teen Health Board. After responses on that board I feel that I made a very bad choice.
Thank you all, Pillz, Desertflower and Tintx and the many others who have stopped by and are praying for my son. Please pray for the mercy of God that He would heal my son--and I hate to even put this down--put that if he is not to be healed that God would grant a merciful death for him and comfort and peace and healing for us all.
Thank you so much for your concern for my son and us. Things are still the same--no changes that I know of. I still fear even asking him if there are any new lumps or if the ones he has are growing or if he has new symptoms. He doesn't complain of any pain, but he would try to endure without complaining. Since we have talked to hospice, now I know that things can move pretty quickly with them if we need them--as things could change very quickly with this aggressive cancer. It was first in his foot and grew there with absolutely no symptoms so that when he was diagnosed it had already spread and had completely taken over his bone marrow. So the cancer seems to like growing in his bone marrow and will probably come back there again, barring a miracle. We just pray and pray, and feel so helpless as we watch our son, who to all appearances is healthy, and have been told that it is inevitable that it will come back. His friends are in denial--no, he won't die, they say--we won't let him--like they could stop it themselves. Some of his friends visited and spent the night Friday and Saturday and I had some worries with them, because one brought a girl on Saturday--I ended up losing sleep all Saturday night--I left a message about it on the Teen Health Board. After responses on that board I feel that I made a very bad choice.
Thank you all, Pillz, Desertflower and Tintx and the many others who have stopped by and are praying for my son. Please pray for the mercy of God that He would heal my son--and I hate to even put this down--put that if he is not to be healed that God would grant a merciful death for him and comfort and peace and healing for us all.
4given1
03-04-2005, 01:56 AM
PrayingMom,
I am so sorry to read about your son, but please don't lose hope. Please read James 5:14-16. I implore you to discuss these verses with your son, and with complete and child-like faith, do what is commanded. It is NOT God's will that ANY of us be sick. Yes, we all may have an appointed time and not a second longer, but God does not will that the time we DO have be spent in ill-health.
My precious, beloved Grandfather who just last week was called Home to Heaven, was divinely healed of Stage IV lung cancer. I was fortunate enough to witness this miracle. His father before him was healed of a serious heart ailment. Both men did what was commanded in James.
I will be praying for you! :)
I am so sorry to read about your son, but please don't lose hope. Please read James 5:14-16. I implore you to discuss these verses with your son, and with complete and child-like faith, do what is commanded. It is NOT God's will that ANY of us be sick. Yes, we all may have an appointed time and not a second longer, but God does not will that the time we DO have be spent in ill-health.
My precious, beloved Grandfather who just last week was called Home to Heaven, was divinely healed of Stage IV lung cancer. I was fortunate enough to witness this miracle. His father before him was healed of a serious heart ailment. Both men did what was commanded in James.
I will be praying for you! :)
pillzpillzpillz
03-04-2005, 08:14 AM
Dear Lord,
As you know I am not a devout church going person but I DO blieve with all my heart. Please bring to prayingmom's son the feeling of overwhelming love and take away any fears and pain he may have while he makes his final journey home to you. Also please, if it is your will, bring a sense of calm and understanding that a parent needs to see a child leave this wonderful place before them - please help ease the pain only a parent losing a child completely understands. I love you dear Lord as does this family that is quetly leaning against you in this tough time. IF healing their son is something you wish for this family, please do so as soon as you can so that this child can see some of the world still waiting for him. Either way, engulf this family in your love and calm, embrace them and bring to them contentment that I know you can.
-Amen
As you know I am not a devout church going person but I DO blieve with all my heart. Please bring to prayingmom's son the feeling of overwhelming love and take away any fears and pain he may have while he makes his final journey home to you. Also please, if it is your will, bring a sense of calm and understanding that a parent needs to see a child leave this wonderful place before them - please help ease the pain only a parent losing a child completely understands. I love you dear Lord as does this family that is quetly leaning against you in this tough time. IF healing their son is something you wish for this family, please do so as soon as you can so that this child can see some of the world still waiting for him. Either way, engulf this family in your love and calm, embrace them and bring to them contentment that I know you can.
-Amen
momsbrandi
03-04-2005, 02:55 PM
Praying for you, your family and your son. God is in control.
katkat
03-05-2005, 08:50 PM
Why would God heal one persons child yet let others die? I do not think God heals. I think that he lets life simply happen.
My heart feels so sad for you. I nearly lost my son three times due to Crohn's disease. I know that you feel so helpless. I wished I knew something to say that would help you cope but you and I know that nothing can make this acceptable to you. My heart goes out to you.
My heart feels so sad for you. I nearly lost my son three times due to Crohn's disease. I know that you feel so helpless. I wished I knew something to say that would help you cope but you and I know that nothing can make this acceptable to you. My heart goes out to you.
pillzpillzpillz
03-07-2005, 08:44 AM
Why would God heal one persons child yet let others die? I do not think God heals. I think that he lets life simply happen.
My heart feels so sad for you. I nearly lost my son three times due to Crohn's disease. I know that you feel so helpless. I wished I knew something to say that would help you cope but you and I know that nothing can make this acceptable to you. My heart goes out to you.
I respectfully disagree with you - I do believe God CAN heal - he does heal some and others he calls home. I believe he heals ones who still have work to do here and for others, he calls them home. I believe God healed me, I had a fatal form of cancer and I lived - it has been 14 years for me now and I know why I was left fere....I have a spcial needs child (he was born c-Section and I had a 5lb tumor on my left ovary that was cancer) and he is thriving as I am able to care for him and the rest of my family - I have been tested by his needs but I am dealing well -- I am very blessed - I thank God for helping your son with Crohn's.
-Pillz
My heart feels so sad for you. I nearly lost my son three times due to Crohn's disease. I know that you feel so helpless. I wished I knew something to say that would help you cope but you and I know that nothing can make this acceptable to you. My heart goes out to you.
I respectfully disagree with you - I do believe God CAN heal - he does heal some and others he calls home. I believe he heals ones who still have work to do here and for others, he calls them home. I believe God healed me, I had a fatal form of cancer and I lived - it has been 14 years for me now and I know why I was left fere....I have a spcial needs child (he was born c-Section and I had a 5lb tumor on my left ovary that was cancer) and he is thriving as I am able to care for him and the rest of my family - I have been tested by his needs but I am dealing well -- I am very blessed - I thank God for helping your son with Crohn's.
-Pillz
katkat
03-07-2005, 09:00 AM
I see no reason for God to take anyone before they are old. What would be his purpose? I didn't say he couldn't heal. I just said I don't think he does. Did you get cancer treatment? As you well know some cancers do respond, some don't. You are one lucky lady. But stop and think about it.....I know of many, many people who died that had someone that needed them to take care of them for one reason or another. Why did God spare you for that very reason but not others? Why does God allow innocent babies and children die at the hands of abusers, disease and suffer at the hands of monsters? I guess this is getting off subject,,,,, I just look at things realistically I guess. My heart breaks for anyone suffering by losing a loved one, especially a child. As for my child he is grown up and suffers daily with his Crohns. His depression and pain has lead to drug and alcohol abuse. You might think God spared my son from death, three times? But why help him a little and not all the way? If it was God that helped my son why didn't he cure him? What about modern medicine, don't you think it had something to do with his survival? I do credit God giving scientist the brains to create the medical treatment that my son has received. But he is in no way cured and well off. He lives in a vicious circle of pain and despair, yes now much at his own hands. I will not judge him because I know what his life is like. Even talking to him on the telephone I can hear that he is in pain.
katkat
03-07-2005, 09:32 AM
I sound cynical and mean spirited........I truly don't mean to sound like that. I guess there are many times when I prayed that I received nothing.
hugs to all.
hugs to all.
pillzpillzpillz
03-07-2005, 11:13 AM
KatKat - I am sorry for your pain and I hear what you are saying - life isn't fair and it isn't fair that God takes babies and innocent children (or anyone for that matter!) and I have questioned daily why I lived. I don't know why I was spared but the 14 year old in the hospital room next to mine was at the end of her life. I was 21 at the time and surely had lived more then she.
When one goes through pain like you, myself and prayingmom it makes me question WHY?, just like you. I guess I hold on to hope that there is a reason for everything and that someday we all will be able to see why and understand because many times I don't understand. Sometimes I get so ANGRY to think that all of this hurt seems senseless and if there is a God WHY IS HE DOING THIS TO US!?? But then I try and remember what he did for us and also remind myself that we don't know right now why these things happen and maybe the secret to life is that one day we will know and will be free of pain and live in a beautiful tranquil place once we are called home, maybe then we will know? I have to believe in something or I might not have a reason to stay on this earth - yes, my kids are a good reason, but I could do without the pain that my son goes through with his needs etc.
KatKat - I can feel your pain through your words and do not at all feel like you are cynical - I could just hear the pain in your words, that’s all. I hope the pain will subside for you and I truly hope your son will be OK. My brother also is ravaged by alcohol and drugs to numb the pain he is going through as well, so I understand to a point (I'm not his mother, just his sibling) what you are going through.
KatKat, I hope you have a good day and that you will find it in your heart to forgive me for triggering unhappy feelings, I didn’t meant to sound like I know it all or am a preacher b/c I am nothing like that. This thread has brought religion out in me that I never knew I even had! The fact that Prayingmom's son is dying and she is sharing this private moment with us, is so sad and it touched my heart and soul.
When one goes through pain like you, myself and prayingmom it makes me question WHY?, just like you. I guess I hold on to hope that there is a reason for everything and that someday we all will be able to see why and understand because many times I don't understand. Sometimes I get so ANGRY to think that all of this hurt seems senseless and if there is a God WHY IS HE DOING THIS TO US!?? But then I try and remember what he did for us and also remind myself that we don't know right now why these things happen and maybe the secret to life is that one day we will know and will be free of pain and live in a beautiful tranquil place once we are called home, maybe then we will know? I have to believe in something or I might not have a reason to stay on this earth - yes, my kids are a good reason, but I could do without the pain that my son goes through with his needs etc.
KatKat - I can feel your pain through your words and do not at all feel like you are cynical - I could just hear the pain in your words, that’s all. I hope the pain will subside for you and I truly hope your son will be OK. My brother also is ravaged by alcohol and drugs to numb the pain he is going through as well, so I understand to a point (I'm not his mother, just his sibling) what you are going through.
KatKat, I hope you have a good day and that you will find it in your heart to forgive me for triggering unhappy feelings, I didn’t meant to sound like I know it all or am a preacher b/c I am nothing like that. This thread has brought religion out in me that I never knew I even had! The fact that Prayingmom's son is dying and she is sharing this private moment with us, is so sad and it touched my heart and soul.
katkat
03-07-2005, 02:03 PM
Oh Gosh you don't owe me an apology, honest you don't. I wished I did still have the faith that you do. I lost it somewhere along the way and now I have to fight to not sound cynical and bitter. I cannot understand the pain that we have to go through, and I wonder why others seem to have easy lives , they are born into money, brains and beauty and have life handed to them on a sliver platter while the rest of us get stuck with sick children, pain of our own and struggle our entire life just to get by. It seems my life is one bad thing after another. Right now they are testing tofind out why I have these white spots on my brain......is it Lupus or Lyme disease but most likey I will be diagnosed with MS later down the road? Who knows, I hope I didn't upset you or anyone else, especially praying mom. ITs not fair for me to tell her that there is no hope that God will save her son. It breaks my heart to think of what she may be going through.
I hope you all have at least a tolerable day, if not fantastic.
hugs to all
Katkat
I hope you all have at least a tolerable day, if not fantastic.
hugs to all
Katkat
pillzpillzpillz
03-08-2005, 08:24 AM
Hi KatKat - I hope the spots are nothing - I know the feelings of being scared of the unknown. I know what you mean about some people having it all - I wonder about this too - sometimes I even think "why didn't I get born into money!? I struggle paycheck to paycheck and it's a big deal if I am able to go out an buy new sheets for oue beds for crying out loud! I also wantto tell those that say money can't buy happiness to just give me a shot at it b/c it may not buy happiness but it sure helps!! LOL
I was also handed some scary news yesterday - possibility of colon cancer...why not, I went through Ovarian why not colon as well?! My first wish was to be able to see my children grow up (or live long enough so they would remember me) - my oldest is 18 and my youngest is 14 - I want to see BOTH of my boys graduate highs school and get a start on their lives. I am not ready to go through chemo and radiation again, I don't think I can do it. I am jumping ahead again and need to stop. Maybe they will find nothing with the colonoscopy - That is how I need to think.
Hugs to you KatKat - I hope you feel the love the I am sending you. You are loved my friend. Also, to prayingmom who started this thread, love to you too - and your beautiful son.
I was also handed some scary news yesterday - possibility of colon cancer...why not, I went through Ovarian why not colon as well?! My first wish was to be able to see my children grow up (or live long enough so they would remember me) - my oldest is 18 and my youngest is 14 - I want to see BOTH of my boys graduate highs school and get a start on their lives. I am not ready to go through chemo and radiation again, I don't think I can do it. I am jumping ahead again and need to stop. Maybe they will find nothing with the colonoscopy - That is how I need to think.
Hugs to you KatKat - I hope you feel the love the I am sending you. You are loved my friend. Also, to prayingmom who started this thread, love to you too - and your beautiful son.
katkat
03-08-2005, 09:19 AM
Thanks, Giving, I will check that out later.
Pillz, (funny name to be calling you) I totally agree with trying to find out if money can buy happiness. Hey but I want the rest too, beauty and brains. I'd like to be political brain smart too. I get a headache trying to read some of the newspaper. lol
Do you take any supplements? My brother swears by Calcium as a cancer preventative and cure. From reading I think it does have some points leaning that way. I need to start taking it right away.
JUst remember that early detection and treatment is the best thing so don't put anything test or treatments off. I know how scary it is thinking about not being there for your kids. I had a lump removed from my neck in 91, my kids were in middle school at the time and I about how a nervous breakdown until after the results came in.
Once again the treatments are not fun but you have to start as soon as possible to increase your chances.
take care.
Kat
Pillz, (funny name to be calling you) I totally agree with trying to find out if money can buy happiness. Hey but I want the rest too, beauty and brains. I'd like to be political brain smart too. I get a headache trying to read some of the newspaper. lol
Do you take any supplements? My brother swears by Calcium as a cancer preventative and cure. From reading I think it does have some points leaning that way. I need to start taking it right away.
JUst remember that early detection and treatment is the best thing so don't put anything test or treatments off. I know how scary it is thinking about not being there for your kids. I had a lump removed from my neck in 91, my kids were in middle school at the time and I about how a nervous breakdown until after the results came in.
Once again the treatments are not fun but you have to start as soon as possible to increase your chances.
take care.
Kat
Prayingmom
03-09-2005, 11:52 AM
Dear KatKat, Pillz and others who have stopped by here,
Thank you so much for caring and praying for my son. That means the world to us. Sorry I haven't posted in awhile. I've been busy and unusually tired. I don't know why I've been so tired, but this week I've just gone on to bed instead of staying up and posting, although I have read the posts. My son had a wonderful weekend with his girlfriend, Katie, visiting. One of his best friends is out for spring break and will be here a lot this week, so that will be good. My son saw a new oncologist this week--PET and CT scans are scheuduled--will post more about that on my thread on Cancer--relapsed cancer.
KatKat, I'm so sorry for what you've been through with your son with the Crohn's disease and his problems now. About God healing---I do believe that He still heals some people. I don't know why God heals some and not all. I know that God's ways are higher than my ways and that I can't fully understand everything about God. I believe that God is good, that He loves us so much that He sent His only Son to die for our sins, that there is a reason for the things that happen. I don't believe that God causes the evil or bad things that happen, but He allows them and that God can use even the bad things in a Christian's life for good. Sometimes things are so good that we think we feel self-sufficient like we don't need God. That is the danger of worldly wealth--often the wealthy think they don't need God. We live in a fallen world. Suffering happens to both the good and bad, the rich and the poor. I think about Job in the Bible sometimes. He had it all: wealth, respect, health, a large family, good kids, huge herds of animals, and then he lost everything in just one day. All 12 children were killed suddenly, the sheep were burned up, oxen and donkeys and camels were stolen, servants killed, Job was covered in painful boils sitting in the ashes, and no longer respected as it would appear the wrath of God was upon him. Job is left with his wife who eventually encouraged him "to curse God and die." But even in all this Job didn't sin against God. When he heard all the bad news, "Job arose, and rent (tore) his mantle, and shaved his head, and fell down upon the ground, and worshipped. And said, Naked came I out of my mother's womb, and naked shall I return thither: the LORD gave, and the LORD hath taken away; blessed be the name of the LORD. In all this Job sinned not, nor charged God foolishly." Job 1:21-22.
Job said this to his wife, "What? shall we receive good at the hand of God and shall we not receive evil?" One other thing I remind myself of is that this world is not the end. The time we are here on earth be it brief or long is very short compared to eternity. All of my 4 children have accepted Jesus Christ as their Saviour and I am very thankful for that. No matter what happens, whether they live long or short lives, I will see them again in heaven--I have that hope.
When I cry about my son, it is because I hate to see him suffering now and the thought of the suffering he may go through and that I, myself, can't make it all better the way mommies are supposed to. I cry when I think of how much we will miss him and the years and years that we will miss him. I'm crying for us -- missing him, but he will be in a better place. (It has been 33 years since my little brother died and I still miss him so.) I would give my son hope and a future if I could. I wanted him to have a good life to go to college, have a fulfilling career, purpose, dreams, a loving wife, happy children, good friends. Helpless, but not hopeless. All we can do is draw near to God and pray for healing. It is far better to draw near to God than to turn away from Him in times of trial. At least, in God, we always have hope.
KatKat and Pillz -- I hope these most recent scares--the white spots and the possibility of colon cancer turn out to be nothing as more tests are done and that everything will be fine. Kat -- just don't take too much Calcium. I did and ended up with kidney stones and think that there might be a relationship there. I will lift you all up in prayer also. God bless you both.
Thank you so much for caring and praying for my son. That means the world to us. Sorry I haven't posted in awhile. I've been busy and unusually tired. I don't know why I've been so tired, but this week I've just gone on to bed instead of staying up and posting, although I have read the posts. My son had a wonderful weekend with his girlfriend, Katie, visiting. One of his best friends is out for spring break and will be here a lot this week, so that will be good. My son saw a new oncologist this week--PET and CT scans are scheuduled--will post more about that on my thread on Cancer--relapsed cancer.
KatKat, I'm so sorry for what you've been through with your son with the Crohn's disease and his problems now. About God healing---I do believe that He still heals some people. I don't know why God heals some and not all. I know that God's ways are higher than my ways and that I can't fully understand everything about God. I believe that God is good, that He loves us so much that He sent His only Son to die for our sins, that there is a reason for the things that happen. I don't believe that God causes the evil or bad things that happen, but He allows them and that God can use even the bad things in a Christian's life for good. Sometimes things are so good that we think we feel self-sufficient like we don't need God. That is the danger of worldly wealth--often the wealthy think they don't need God. We live in a fallen world. Suffering happens to both the good and bad, the rich and the poor. I think about Job in the Bible sometimes. He had it all: wealth, respect, health, a large family, good kids, huge herds of animals, and then he lost everything in just one day. All 12 children were killed suddenly, the sheep were burned up, oxen and donkeys and camels were stolen, servants killed, Job was covered in painful boils sitting in the ashes, and no longer respected as it would appear the wrath of God was upon him. Job is left with his wife who eventually encouraged him "to curse God and die." But even in all this Job didn't sin against God. When he heard all the bad news, "Job arose, and rent (tore) his mantle, and shaved his head, and fell down upon the ground, and worshipped. And said, Naked came I out of my mother's womb, and naked shall I return thither: the LORD gave, and the LORD hath taken away; blessed be the name of the LORD. In all this Job sinned not, nor charged God foolishly." Job 1:21-22.
Job said this to his wife, "What? shall we receive good at the hand of God and shall we not receive evil?" One other thing I remind myself of is that this world is not the end. The time we are here on earth be it brief or long is very short compared to eternity. All of my 4 children have accepted Jesus Christ as their Saviour and I am very thankful for that. No matter what happens, whether they live long or short lives, I will see them again in heaven--I have that hope.
When I cry about my son, it is because I hate to see him suffering now and the thought of the suffering he may go through and that I, myself, can't make it all better the way mommies are supposed to. I cry when I think of how much we will miss him and the years and years that we will miss him. I'm crying for us -- missing him, but he will be in a better place. (It has been 33 years since my little brother died and I still miss him so.) I would give my son hope and a future if I could. I wanted him to have a good life to go to college, have a fulfilling career, purpose, dreams, a loving wife, happy children, good friends. Helpless, but not hopeless. All we can do is draw near to God and pray for healing. It is far better to draw near to God than to turn away from Him in times of trial. At least, in God, we always have hope.
KatKat and Pillz -- I hope these most recent scares--the white spots and the possibility of colon cancer turn out to be nothing as more tests are done and that everything will be fine. Kat -- just don't take too much Calcium. I did and ended up with kidney stones and think that there might be a relationship there. I will lift you all up in prayer also. God bless you both.
katkat
03-09-2005, 03:00 PM
OMG you are so brave, your post made me cry, cry for you, your son, for pillz, and I guess for my loss faith. I remember the story of Job but you told it so beautifully. I will pray that God keeps his hands on you and your son and the rest of your family. I don't know if God does much listening to me these days but I'll give it a try.
I just wanted you to know your post touched my very soul.
hugs
Kat
I just wanted you to know your post touched my very soul.
hugs
Kat
noaone
03-09-2005, 04:52 PM
im sorry to hear this. i will pray for him
sungirlcali
03-10-2005, 07:07 AM
You are in my prayers.
pillzpillzpillz
03-10-2005, 08:24 AM
Dear KatKat and Prayingmom,
You both have effected my life so much and I have never met either of you in person - it is interesting how I can connect with two people that have had such an impact in my life. Prayingmom, I feel you have restored my faith, I had faith initially, but not like I do now. I few you are an angel on earth and I know that I may sound corny, but I truly believe that God has chosen you to teach and that you have, to teach and to help your son in his journey, whichever journey that may be. KatKat, you are a special person that has been tried by life circumstances and almost lost sight of faith and God, but now I feel like some faith has been restored. You are special and loved. I have a wonderful feeling that both you and I will be OK - we were both drawn to this board and this particular posting for a reason I believe.
-Pillz
You both have effected my life so much and I have never met either of you in person - it is interesting how I can connect with two people that have had such an impact in my life. Prayingmom, I feel you have restored my faith, I had faith initially, but not like I do now. I few you are an angel on earth and I know that I may sound corny, but I truly believe that God has chosen you to teach and that you have, to teach and to help your son in his journey, whichever journey that may be. KatKat, you are a special person that has been tried by life circumstances and almost lost sight of faith and God, but now I feel like some faith has been restored. You are special and loved. I have a wonderful feeling that both you and I will be OK - we were both drawn to this board and this particular posting for a reason I believe.
-Pillz
katkat
03-10-2005, 09:19 AM
I was thinking yesterday the same thing Pillz, maybe God sent us together for a reason. I got my test results yesterday from all the blood work they did. All came back normal for Lupus, Lyme,and all those other diseases that I never heard of. That only makes it more likely that mine is MS but its so hard to diagnose. No more test will be ran until October. I plan to go on with my life as if nothing is wrong unless more symptoms appear. I also plan to start taking the time to pray more and try to have faith that God will listen to what I have to say and will include both of you and your families in my prayers. I don't understand God, why people have to suffer, (Tsunami, etc) I guess its not my job to understand. I hope you both will come to this thread and post your updates so we will know, it automatically comes to my in box so I will know when ever anyone responds to this thread.
When the warmer weather gets here I will be online less because we own a campground and I am outside all the time. But I will check my email each day and will see when someone post in this thread.
hugs to you both
Kat
When the warmer weather gets here I will be online less because we own a campground and I am outside all the time. But I will check my email each day and will see when someone post in this thread.
hugs to you both
Kat
pillzpillzpillz
03-10-2005, 09:47 AM
I for one definitely want to keep in contact and thankfully when you or prayingmom responds, I get an e-mail letting me know. I want to know how you make out KatKat and I think your approach of not focusing on sickness, and rather going about your normal life is a very healthy way of handling the situation. Worrying doesn't change anything and can consume most of your life if allowed. I will do the same once I get my appointment for my test. Right now I am still waiting to hear when I have to have the test done, but once I am done, I plan to live my life as usual no matter what the results.
Prayingmom, if you can find the time to keep KatKat and I up to date on how you and your son/family are doing - - that is IF you want to share those intimate thoughts and feelings with us, please do. You are truly a blessing :)
Hugs and God Bless both of you~
-Pillz
Prayingmom, if you can find the time to keep KatKat and I up to date on how you and your son/family are doing - - that is IF you want to share those intimate thoughts and feelings with us, please do. You are truly a blessing :)
Hugs and God Bless both of you~
-Pillz
Janet S
03-10-2005, 04:42 PM
God Bless You All,
I am so moved by your story of Job from the Bible. Job had such faith! I, too, believe that God does NOT make these bad things happen -- but somehow, because of the Fall, our lives are plagued with illness, accidents and other maladies. The Good News is that Jesus Christ, our Lord and Savior, redeemed us and gives us all the opportunity for everlasting life! Our hope of eternity with our loved ones in heaven gives us joy!
I was so impressed when the Pope stated that he joyfully accepts the suffering that he is experiencing - he says that it makes him "closer" to God, because Jesus suffered so much for us. I know you must be suffering with your son and perhaps, thinking that this makes you closer to God, may help in some way.
My prayers are with you and your family and I know that you are praying constantly - it is the truly the greatest comfort to pray.
Love,
Janet S
I am so moved by your story of Job from the Bible. Job had such faith! I, too, believe that God does NOT make these bad things happen -- but somehow, because of the Fall, our lives are plagued with illness, accidents and other maladies. The Good News is that Jesus Christ, our Lord and Savior, redeemed us and gives us all the opportunity for everlasting life! Our hope of eternity with our loved ones in heaven gives us joy!
I was so impressed when the Pope stated that he joyfully accepts the suffering that he is experiencing - he says that it makes him "closer" to God, because Jesus suffered so much for us. I know you must be suffering with your son and perhaps, thinking that this makes you closer to God, may help in some way.
My prayers are with you and your family and I know that you are praying constantly - it is the truly the greatest comfort to pray.
Love,
Janet S
Prayingmom
03-17-2005, 01:37 AM
Hi Everyone,
Sorry that I haven't been on lately. We still haven't received the results of last week's PET scan. Tomorrow my son will have an MRI of his head and a CT of his chest and abdomen. Waiting for test results wears me out. My imagination runs wild. He has the tumors that we can see on his arm, shoulder and chest and it is so scary to think about spread of the cancer. I have spent a lot of time researching antiangiogenesis drugs this week, since that is what the clinical trial is going to be.
Please pray for good results and good response to the drugs and no bad side effects.
I posted on the cancer list, too.
Kat and pillz -- I'll try to keep in touch--sometimes I just get so tired and when we don't have any news I don't post a lot. Janet -- thanks for stopping by and for praying for my son and for our family.
Sorry that I haven't been on lately. We still haven't received the results of last week's PET scan. Tomorrow my son will have an MRI of his head and a CT of his chest and abdomen. Waiting for test results wears me out. My imagination runs wild. He has the tumors that we can see on his arm, shoulder and chest and it is so scary to think about spread of the cancer. I have spent a lot of time researching antiangiogenesis drugs this week, since that is what the clinical trial is going to be.
Please pray for good results and good response to the drugs and no bad side effects.
I posted on the cancer list, too.
Kat and pillz -- I'll try to keep in touch--sometimes I just get so tired and when we don't have any news I don't post a lot. Janet -- thanks for stopping by and for praying for my son and for our family.
rainswirls
03-17-2005, 06:50 AM
you and your family are in my prayers!!im the same age as your son and im so sorry that he has to go through this , not to mention the emotional hurt you and your family feels.But remember you can never pray to much.God is wonderful and can do wonderful things.I know things are probably so hard for you right now and you just want to break down but remember your son needs your strength too. Ya'll are in my prayers!
katkat
03-17-2005, 07:40 AM
Prayers on the way lady. I can't imagine what you are dealing with emotionally right now. Life is so unfair.
Prayingmom
03-17-2005, 07:55 AM
I haven't gone to sleep all night just thinking about the doctor's visit and getting scan results. It is just one hour until I need to get dressed to take my son for the scans. I may try to rest a little now. We have to leave at 8:00 to be there for the 9:00AM scans.
froggy123
03-17-2005, 12:03 PM
Hello prayingmom,
As I read through all the posts, I found myself with tears in my eyes. I'm 17, and can't even imagine what you or your son are going through. I do know what it feels like to be your son's friends though. A close friend of mine has cancer, she's 18 next week. In December, she was given 3-6 months to live. It's so scary thinking that we'll loose her. It was so surreal when I went with her family to do funeral arrangements. Her parents tell me and others not to be sad, that we are the ones that are keeping her healthy longer. That it helps to have loved ones near. That when she's alone, she just looks at pictures of when she was healthy and cries, but when friends are around, she has her life back - she smiles and has her *spirit* back. I think what scares me is that she is planning a wedding for April with her boyfriend of 3 years. I wonder what will happen if she passes away before then... It's scary! While this probably doesn't help you much with your son, it may be nice (for lack of a better word) to know that your son isn't alone.
My sister-in-law also has cancer. She was given a year to live when she went off chemo about a year and 2 months ago. She has a 3 year old and is currently pregnant (due in July). It seems like she's been spiraling downhill since she had to go of all cancer treating drugs because of the pregnancy. By just talking to her, you can tell she's very weak - she has to take a couple big breaths in order to finish a sentence. Also, doctors can't figure out why, but they can't get her blood sugar below 400 (she is diabetic) but has never had a problem keeping her sugar levels in check. She keeps saying that she just wants to live long enough to see her 3 year old go to school. I'm thinking...I want you to live long enough to see your baby first. We've been told that it's a little more than a 50-50 chance that she will die during her c-section. Now, docs are considering doing an emergency c-section at 7-7.5 months pregnant because of her health. Which would make the baby being born in May? How scary! I think it's a little peace of mind for everyone knowing that the children will go to a good home, my mom is filling out papers tomorrow for adoption once my sister-in-law passes away. She was talking to my mom the other night about me going to college and my mom said that her kids will go to college too, and my sister-in-law was like "oh, you just made all my dreams come true!" It's sad...sometimes I don't know waht to think...
Especially when my brother (father of both kids) is on drugs and really doesn't care. Instead of being a dad, he treats his 3 year old like a little sister - he doesn't want the responsibility. It just kills me that he isn't even trying to stop using drugs (marijuana, cocaine, and who knows what else) when his wife is going to die and he has kids. Not that I'm wishing death upon my brother because I'd be heartbroken, but why can't God take the ones that are already screwing up their lives instead of people who really truely want to live, you know?
The only thing that I can think of is that He is taking all of these great people (including your son prayingmom) to teach everyone in those peoples lives some sort of lesson. I read a bedtime blessing bood every night, and one of the days it just hit me...we aren't supposed to know why God does things like this - even though we all try our best to figure it out and justify it - but we cant. If these people do pass away, it must be in His plan. Instead of thinking why my friend, why my sister-in-law, I guess I'm coming to terms that God must be making these people go through such a hard thing - along with everyone involved - for some reason, and I'll have faith that everything works out knowing that there must be a reason beyond what I can comprehend.
I think I'm done blabbing now, I guess I needed to vent a little. But I will definately pray for your son - prayingmom.
As I read through all the posts, I found myself with tears in my eyes. I'm 17, and can't even imagine what you or your son are going through. I do know what it feels like to be your son's friends though. A close friend of mine has cancer, she's 18 next week. In December, she was given 3-6 months to live. It's so scary thinking that we'll loose her. It was so surreal when I went with her family to do funeral arrangements. Her parents tell me and others not to be sad, that we are the ones that are keeping her healthy longer. That it helps to have loved ones near. That when she's alone, she just looks at pictures of when she was healthy and cries, but when friends are around, she has her life back - she smiles and has her *spirit* back. I think what scares me is that she is planning a wedding for April with her boyfriend of 3 years. I wonder what will happen if she passes away before then... It's scary! While this probably doesn't help you much with your son, it may be nice (for lack of a better word) to know that your son isn't alone.
My sister-in-law also has cancer. She was given a year to live when she went off chemo about a year and 2 months ago. She has a 3 year old and is currently pregnant (due in July). It seems like she's been spiraling downhill since she had to go of all cancer treating drugs because of the pregnancy. By just talking to her, you can tell she's very weak - she has to take a couple big breaths in order to finish a sentence. Also, doctors can't figure out why, but they can't get her blood sugar below 400 (she is diabetic) but has never had a problem keeping her sugar levels in check. She keeps saying that she just wants to live long enough to see her 3 year old go to school. I'm thinking...I want you to live long enough to see your baby first. We've been told that it's a little more than a 50-50 chance that she will die during her c-section. Now, docs are considering doing an emergency c-section at 7-7.5 months pregnant because of her health. Which would make the baby being born in May? How scary! I think it's a little peace of mind for everyone knowing that the children will go to a good home, my mom is filling out papers tomorrow for adoption once my sister-in-law passes away. She was talking to my mom the other night about me going to college and my mom said that her kids will go to college too, and my sister-in-law was like "oh, you just made all my dreams come true!" It's sad...sometimes I don't know waht to think...
Especially when my brother (father of both kids) is on drugs and really doesn't care. Instead of being a dad, he treats his 3 year old like a little sister - he doesn't want the responsibility. It just kills me that he isn't even trying to stop using drugs (marijuana, cocaine, and who knows what else) when his wife is going to die and he has kids. Not that I'm wishing death upon my brother because I'd be heartbroken, but why can't God take the ones that are already screwing up their lives instead of people who really truely want to live, you know?
The only thing that I can think of is that He is taking all of these great people (including your son prayingmom) to teach everyone in those peoples lives some sort of lesson. I read a bedtime blessing bood every night, and one of the days it just hit me...we aren't supposed to know why God does things like this - even though we all try our best to figure it out and justify it - but we cant. If these people do pass away, it must be in His plan. Instead of thinking why my friend, why my sister-in-law, I guess I'm coming to terms that God must be making these people go through such a hard thing - along with everyone involved - for some reason, and I'll have faith that everything works out knowing that there must be a reason beyond what I can comprehend.
I think I'm done blabbing now, I guess I needed to vent a little. But I will definately pray for your son - prayingmom.
Prayingmom
03-19-2005, 01:37 AM
I just posted a message about my son on the cancer board, but thought I should let you all know the results of the scans here, too, since you all are praying for him too. As bad as we hated to hear it, the news was as we should have expected. Though we had hoped the cancer is not spreading, it is. There are numerous involved lymph nodes now in the retroperitoneal area of his abdomen and there is spread to a bone called the illiac crest. I'm not sure exactly where these areas are, but that's what they told us. The MRI of his head and neck was clear--no sign of cancer--so not sure what has caused the headaches. His blood counts were still good: Hematocrit 46, Platelets 205,000, and White Blood Cells 4.8, so it may not be back in the bone marrow--but blood counts are not the same as a bone marrow biopsy.
He started the oral investigational anti-angiogenesis drug called PTK. It made him nauseous and he threw up by the time we got home. He took it again today and was nauseous again, but not for as long as with chemotherapy. This type of drug has never been tested in someone with his type of cancer. It is only a Phase I trial which means that they are mostly checking for the safest most effective dose. Please pray with us that God might use this to heal him and give him years of life.
My son was talking about working at the hospital this summer where he used to work in the Information Systems area. I do think that would be good if he really felt like it. This cancer is so aggressive that if it can't be stopped the time he has may be really short. I hurt for him--I would gladly give my life in exchange for his. Sometimes I start thinking about what I could have done to make things different if only we had known what was going to happen. This cancer has no known causes--but I think--what if he'd eaten different foods, lived somewhere else--would anything have made a difference? I feel as though I have failed him in some way to not be able to protect him from this.
Thank you for caring and praying for us, though we will never on earth see your faces.
He started the oral investigational anti-angiogenesis drug called PTK. It made him nauseous and he threw up by the time we got home. He took it again today and was nauseous again, but not for as long as with chemotherapy. This type of drug has never been tested in someone with his type of cancer. It is only a Phase I trial which means that they are mostly checking for the safest most effective dose. Please pray with us that God might use this to heal him and give him years of life.
My son was talking about working at the hospital this summer where he used to work in the Information Systems area. I do think that would be good if he really felt like it. This cancer is so aggressive that if it can't be stopped the time he has may be really short. I hurt for him--I would gladly give my life in exchange for his. Sometimes I start thinking about what I could have done to make things different if only we had known what was going to happen. This cancer has no known causes--but I think--what if he'd eaten different foods, lived somewhere else--would anything have made a difference? I feel as though I have failed him in some way to not be able to protect him from this.
Thank you for caring and praying for us, though we will never on earth see your faces.
pillzpillzpillz
03-21-2005, 08:27 AM
Dear prayingmom~
I just said a prayer for your son and so hope that the PTK medication will add several years to his life. I have heard of miracles happening with NEW medication. At one point there was a woman I was working with who's aunt was stage IV ovarian cancer - nothing they had tried worked. This was when Taxol was still in trial use and hadn't been approved by the FDA. She was given the trial medication and the cacner completly went into remission. She lived an extra 2 years and then sadly, did end up dying from her cancer, but what I am saying here is that if this new medication can work and IF it can add several more years of life for your son, I pray to God it will - I belive!!! I love your son and I don't know him, I keep thinking of my own 18 year old son who's x-ray just came back with a "shadow" in his left lung. I am praying it is nothing more then an old scar from an infrection as the Dr. said. He has been sick with a terrible cold for the past 6 months that get's better then worse but never goes away - much like myself when I was battling ovarian cancer 14 years ago. I am scared but still have hope he is fine.
Anyway, this isn't about me. I just wanted to give you som rays of sunshine and HOPE and my prayer.
Love,
-Pillz
I just said a prayer for your son and so hope that the PTK medication will add several years to his life. I have heard of miracles happening with NEW medication. At one point there was a woman I was working with who's aunt was stage IV ovarian cancer - nothing they had tried worked. This was when Taxol was still in trial use and hadn't been approved by the FDA. She was given the trial medication and the cacner completly went into remission. She lived an extra 2 years and then sadly, did end up dying from her cancer, but what I am saying here is that if this new medication can work and IF it can add several more years of life for your son, I pray to God it will - I belive!!! I love your son and I don't know him, I keep thinking of my own 18 year old son who's x-ray just came back with a "shadow" in his left lung. I am praying it is nothing more then an old scar from an infrection as the Dr. said. He has been sick with a terrible cold for the past 6 months that get's better then worse but never goes away - much like myself when I was battling ovarian cancer 14 years ago. I am scared but still have hope he is fine.
Anyway, this isn't about me. I just wanted to give you som rays of sunshine and HOPE and my prayer.
Love,
-Pillz
Janet S
03-22-2005, 04:53 PM
Praying Mom, your wonderful son and friends,
It is so good that your son has plans to work at the hospital..info systems. He must be very talented and bright. I am sure you are so proud of him.
Given this week is Easter week, we have special prayers for you all. The Easter message is so joyous and triumpant! Victory over death!
I remember the Gospel story about Lazarus - he was already days in the grave and Jesus restored his life.
We pray that God restores you all and answers your needs.
God Bless you all!
It is so good that your son has plans to work at the hospital..info systems. He must be very talented and bright. I am sure you are so proud of him.
Given this week is Easter week, we have special prayers for you all. The Easter message is so joyous and triumpant! Victory over death!
I remember the Gospel story about Lazarus - he was already days in the grave and Jesus restored his life.
We pray that God restores you all and answers your needs.
God Bless you all!
stiletto23
03-25-2005, 01:31 AM
Prayingmom, I know you are going through a very very hard time. I'm sure everyone who has read any part of this thread has prayed for him and your family. With that being said, please try to be happy with the time you do have left with him. I believe in my heart that is what God would want. Do not make him sad with your sadness. Help him enjoy the time left and enjoy the time you have left in his presence. Might there be any place your son would like to visit? Maybe a trip to Australia? New Zealand? Take him somewhere beautiful! I know if I were going to leave this earth soon I'd want to do something like that with my family/friends. Even a nice beach or somewhere peaceful he could rest for a bit away from hospitals if he is not up to a long trip. Ease his pain in whatever way you can besides medicine. Get your minds of it the best you can. If you know this is terminal help him enjoy the rest of his life instead of dwelling on the suffering if at all possible. Should the lord decide to call your son home soon, rest assured you will see him again in God's grace with no more suffering.
SylAlien
03-25-2005, 05:07 PM
im 18 and my 19 yeard old friend just died 2 months ago of bone marrow cancer what a ****e dup thign to happen to a kid so young. he fought on and off for a year
last1
03-27-2005, 09:53 PM
Dear Prayingmom: It's almost April and so I don't know where you are with your issues right now. I am prayerful that you will have the support to move through this awful tragedy and that you have friends and spiritual support. You haven't mentioned Hospice? Are they involved? I have referred so many people to this wonderful organization and hope that there counseling support, nurses, social workers and volunteers can be of assistance. God bless. CS
pillzpillzpillz
03-28-2005, 12:01 PM
im 18 and my 19 yeard old friend just died 2 months ago of bone marrow cancer what a ****e dup thign to happen to a kid so young. he fought on and off for a year
SylAlien~ sorry to hear about your young friend.
Prayingmom-
Just wanted to check in and see how you and your son are doing as well as the rest of your family? I was happy to read about your son's interest in working this summer, he has a positive outlook which is so very importnant when battling cancer (remember, I was there at the age of 21 with a very poor prognosis).
Anyway, thinking of you and your family, especially your son - may God guide and love you and your family through this very difficult time and may his healing powers be shown through your son by remission or extended, pain free life.
SylAlien~ sorry to hear about your young friend.
Prayingmom-
Just wanted to check in and see how you and your son are doing as well as the rest of your family? I was happy to read about your son's interest in working this summer, he has a positive outlook which is so very importnant when battling cancer (remember, I was there at the age of 21 with a very poor prognosis).
Anyway, thinking of you and your family, especially your son - may God guide and love you and your family through this very difficult time and may his healing powers be shown through your son by remission or extended, pain free life.
Prayingmom
03-28-2005, 11:25 PM
Dear pillz, Janet S, stiletto23, SylAlien, cflas and others who have stopped by to check on my dear son,
Thank you so much for caring and praying. It means so much to us. I just posted a new message on the Cancer list that is very long. I won't put the whole thing here, but you may want to look at it. After taking the new investigational drug called for short PTK from Thursday to Sunday (4 days) he noticed that the visible tumors seemed smaller and softer. By Monday, they seemed smaller and less protruding to me. We had gone to visit grandparents 300 miles away during that time. I haven't noticed any more changes and almost wonder if it was our imagination--but I really think that there was a change. He will have a new PET scan before receiving the IV investigational drug Avastin on Thursday. Please pray that there is a noticeable shrinkage of the more threatening tumors in his abdomenal lymph nodes that (according to the scans done 2 weeks ago) are encasing his aorta. I'm so concerned that if they are ENCASING THE AORTA which is a major blood vessel supplying the lower body that his legs will go numb, and lose function--I really don't know what the scans mean.
He seems to be feeling fine right now, laughing, playing video games--his girlfriend, Katie and some other friends were home from college on springbreak and spent a lot of time over here visiting. My son enjoyed having them here. They went out to a movie, out to eat, etc. I so wish I could just video tape him laughing and talking so I could just be able to hear him again if he is taken from us. He just clams up and hides from a camera.
Thank you so much for praying. It truly means the world to us. We still keep praying for healing. When there are no known cures--I guess investigational drugs are the best thing to do as long as they don't cause suffering themselves. If only something will work that will offer hope to all those in our position.
Thank you so much for caring and praying. It means so much to us. I just posted a new message on the Cancer list that is very long. I won't put the whole thing here, but you may want to look at it. After taking the new investigational drug called for short PTK from Thursday to Sunday (4 days) he noticed that the visible tumors seemed smaller and softer. By Monday, they seemed smaller and less protruding to me. We had gone to visit grandparents 300 miles away during that time. I haven't noticed any more changes and almost wonder if it was our imagination--but I really think that there was a change. He will have a new PET scan before receiving the IV investigational drug Avastin on Thursday. Please pray that there is a noticeable shrinkage of the more threatening tumors in his abdomenal lymph nodes that (according to the scans done 2 weeks ago) are encasing his aorta. I'm so concerned that if they are ENCASING THE AORTA which is a major blood vessel supplying the lower body that his legs will go numb, and lose function--I really don't know what the scans mean.
He seems to be feeling fine right now, laughing, playing video games--his girlfriend, Katie and some other friends were home from college on springbreak and spent a lot of time over here visiting. My son enjoyed having them here. They went out to a movie, out to eat, etc. I so wish I could just video tape him laughing and talking so I could just be able to hear him again if he is taken from us. He just clams up and hides from a camera.
Thank you so much for praying. It truly means the world to us. We still keep praying for healing. When there are no known cures--I guess investigational drugs are the best thing to do as long as they don't cause suffering themselves. If only something will work that will offer hope to all those in our position.
wishn
03-29-2005, 02:34 AM
I have been reading your post, but everytime I start to reply....my heart just breaks for you and having a son who is 25, daughters 23 and 18....I think about what you are going through and the tears never end up allowing me to post. I had went to bed two hours ago but woke up a few minutes ago and wanted to let you know I am thinking about you. My day had lymp cancer and it was one of the most difficult things I have gone through. We learned my favorite...most awesome and loving uncle was diag. 8 weeks ago with the same type of cancer. Very sad news.
Please, please , please...never say you have failed with your son in stopping this thing. You are such a wonderful and loving mother....anyone who reads your post know that about you first and foremost. I wish I could find the right words, but in this situation...I think the only right words are...You are in my thoughts and prayers. Your son is so blessed to have you and other family. This is what assists in his healing.
I will check back in tomorrow to see if you have posted and possibly how you and your family are doing....
Hugs, prayers, kind thoughts,
Annie :angel:
Please, please , please...never say you have failed with your son in stopping this thing. You are such a wonderful and loving mother....anyone who reads your post know that about you first and foremost. I wish I could find the right words, but in this situation...I think the only right words are...You are in my thoughts and prayers. Your son is so blessed to have you and other family. This is what assists in his healing.
I will check back in tomorrow to see if you have posted and possibly how you and your family are doing....
Hugs, prayers, kind thoughts,
Annie :angel:
pillzpillzpillz
03-29-2005, 08:52 AM
After taking the new investigational drug called for short PTK from Thursday to Sunday (4 days) he noticed that the visible tumors seemed smaller and softer. By Monday, they seemed smaller and less protruding to me.
Oh, I believe our prayers are working!! I am so certain when he goes back to the Dr. the Dr. will say that they are smaller - I am praying and praying for your son...Oh dear lord, please, please have mercy.
Please post and let us know what the Dr. says etc. from his next appt (if you feel you can).
Hugs~
pillz
Oh, I believe our prayers are working!! I am so certain when he goes back to the Dr. the Dr. will say that they are smaller - I am praying and praying for your son...Oh dear lord, please, please have mercy.
Please post and let us know what the Dr. says etc. from his next appt (if you feel you can).
Hugs~
pillz
DCV
03-30-2005, 11:46 AM
Its hard to let go, I know, we can only bear the cross we were given with strength, compassion and dignity. Make everyday as special as you can. In the end, we will all see our loved ones again in the next life. I truly bleive that they come back to guide our souls to heaven when we go too. Its sad for us, but a happy time of reunion for those who pass, because they get to see all those who went before.....
Prayingmom
04-01-2005, 02:14 AM
Hi everyone,
Scans done today show what seemed like to me --rapidly progressing disease-- and that the PTK must be doing nothing to stop it. The nurse practioner said "you've only been on the PTK for 20 days--give it more time." I'm afraid that time is something my son doesn't have much of anymore. I posted the exact reading of the PET scan on my other thread on the cancer board. My son had been planning a beach trip with his friends at the end of May when they all get out of school. I'm afraid that he will either be gone or in intense suffering by then. I have been crying(not in his presence) since we heard the bad news.
Thank you for your concern and for your prayers.
Scans done today show what seemed like to me --rapidly progressing disease-- and that the PTK must be doing nothing to stop it. The nurse practioner said "you've only been on the PTK for 20 days--give it more time." I'm afraid that time is something my son doesn't have much of anymore. I posted the exact reading of the PET scan on my other thread on the cancer board. My son had been planning a beach trip with his friends at the end of May when they all get out of school. I'm afraid that he will either be gone or in intense suffering by then. I have been crying(not in his presence) since we heard the bad news.
Thank you for your concern and for your prayers.
Tiffyholman
04-01-2005, 09:20 AM
I am so sorry to hear the news, you have to keep hope alive. I know it's hard believe me I just lost my mom a month ago. I pray for strength right now for you and courage, for the fight that your in right now. My heartbreaks for you, and know that you are in my thoughts and prayers daily since you started posting on here........
pillzpillzpillz
04-01-2005, 12:16 PM
Oh, I'm so very sorry - my tears flow along with yours but I am noT giving up hope..it has only been 20 days, lets just see how it goes from here....we can't change the path that the Lord has him on, I just wish we could see the path so we would know, but we must put our faith into his hands and follow the path. Thank you for keeping us updated. It must be hard to write this let alone live it...all I can say is that I wish I could take some of your pain away and promise you everything will be OK. I haven't given up hope and I believe many others here praying for you, your son and family, haven't given up either. Stay strong (you are so very strong!!) and keep faith and follow the Lord's path.
Hugs
-pillz
Hugs
-pillz
katkat
04-01-2005, 01:03 PM
I am so sorry to hear he does not seem to be responding to the medications. Is there other treatment they can try? My heart is breaking for you, I know how hard this has to be on you. No one thinks they will have to go through something like this until it hits home.
Pillz what about you? Have you found out anything about your condition yet?
hugs to you both
Kat
Pillz what about you? Have you found out anything about your condition yet?
hugs to you both
Kat
pillzpillzpillz
04-01-2005, 01:14 PM
I am so sorry to hear he does not seem to be responding to the medications. Is there other treatment they can try? My heart is breaking for you, I know how hard this has to be on you. No one thinks they will have to go through something like this until it hits home.
Pillz what about you? Have you found out anything about your condition yet?
hugs to you both
Kat
Hi KatKat - thanks for asking, it just seems so trivial compared to what prayingmom is going through. My colonoscopy found 4 polyps with pre-cancerous cells - having a past with cancer, this scared me. Luckily I went. Due to th radiation therpay (necessary evil) I had when I had Ovarian Cancer, my colon is lined with red blisters (along with the polyps) that lay flat against the colon wall. Due to medication I am on now, I wasn't able to be sedated and it was so painful. Anyway, I'm glad I went and I will need to go back every year for follow-ups - normally women in their 30's don't need to have this procedure done yet - the Dr. said had I waited until the usual age of 50, we would have been discussing how much of my colon to take as well as treatment plans - so I feel very lucky.
Thanks again for asking :)
-pillz
Pillz what about you? Have you found out anything about your condition yet?
hugs to you both
Kat
Hi KatKat - thanks for asking, it just seems so trivial compared to what prayingmom is going through. My colonoscopy found 4 polyps with pre-cancerous cells - having a past with cancer, this scared me. Luckily I went. Due to th radiation therpay (necessary evil) I had when I had Ovarian Cancer, my colon is lined with red blisters (along with the polyps) that lay flat against the colon wall. Due to medication I am on now, I wasn't able to be sedated and it was so painful. Anyway, I'm glad I went and I will need to go back every year for follow-ups - normally women in their 30's don't need to have this procedure done yet - the Dr. said had I waited until the usual age of 50, we would have been discussing how much of my colon to take as well as treatment plans - so I feel very lucky.
Thanks again for asking :)
-pillz
Samantha317
04-01-2005, 01:31 PM
Hi Prayingmom,
I just wanted you to know that you, your son and your family are in my thoughts and prayers.
Sam :angel:
I just wanted you to know that you, your son and your family are in my thoughts and prayers.
Sam :angel:
katkat
04-01-2005, 01:33 PM
Early detection is key. What kind of medication would prevent you from being sedated for this procedure? I can't imagine going through that without sedation.
I've got very bad feet. They started going bad when I was only 19. I stayed home with my kids until they were in grade school; then I went to work in a factory full time. My feet got worse and worse through the years, long story short, two foot surgeries my feet are really bad and I was sent to a pain clinic. One day I was sitting in the waiting room looking around, they all seemed to be so bad off compared to me. I said to my pain doc that I felt foolish after seeing so many in such bad shape, he told me that even though they might have worse pain than me, it still didn't mean I didn't have pain. I guess what I am trying to say it is the same for you. Yes it is true Prayingmom and her family are going through hell right now, but you still have your issues and they are still just as real no matter what anyone is going through. It is good that you know you must watch your body carefully from now on. I Know that you know how very lucky you are to be cured of ovarian cancer, that is very rare.
I am going to be 50 this year. I don't even want to think about having that test done, but I know I should.
take care
I've got very bad feet. They started going bad when I was only 19. I stayed home with my kids until they were in grade school; then I went to work in a factory full time. My feet got worse and worse through the years, long story short, two foot surgeries my feet are really bad and I was sent to a pain clinic. One day I was sitting in the waiting room looking around, they all seemed to be so bad off compared to me. I said to my pain doc that I felt foolish after seeing so many in such bad shape, he told me that even though they might have worse pain than me, it still didn't mean I didn't have pain. I guess what I am trying to say it is the same for you. Yes it is true Prayingmom and her family are going through hell right now, but you still have your issues and they are still just as real no matter what anyone is going through. It is good that you know you must watch your body carefully from now on. I Know that you know how very lucky you are to be cured of ovarian cancer, that is very rare.
I am going to be 50 this year. I don't even want to think about having that test done, but I know I should.
take care
pillzpillzpillz
04-01-2005, 03:03 PM
Hi KatKat - yes, please schedule your procedure as soon as you are 50 - it normally doesn't hurt and I have heard over and over that the worst part of the whole thing is the prep kit - the day before you have to drink this terrible stuff and then you are up all night long going to the bathroom etc. It's awful. Most people don't feel the procedure at all and a friend of mine from work went right to sleep and didn't wake up until after it was over. So, don't worry, it won't be too bad and is WELL worth it (even if you have to deal with the pain) I will be going back again and again to make sure my polyps never turn to cancer.
-Pillz
-Pillz
last1
04-02-2005, 09:53 PM
Dearest Praying Mom: I have read each and every message here since your first entry and I am amazed at the work you and your family have done in this space. You are opened your heart and your soul, and shared your pain in ways that so many people would be unable. ANd, in so doing, you have triggered an outpouring of love and sentiments from so many people that it is truly a miraculous thing. Each of us is touched by your courage and will and this is evident in the varying ways that people are reaching out. ANd, you, in the middle of all of this, manage to respond to them out of love and kindness freely given. You are a wonderful, miraculous, and courageous woman. Your entire family remains in our thoughts and prayers. Please keep us posted and, if there was something more that we could do for you, I feel as though it would be done. Blessings...CS
Prayingmom
04-05-2005, 01:15 AM
Thank you all for caring and praying.
sculpture
04-05-2005, 02:10 AM
I feel for you and I wish that all turns out well for you.
Prayingmom
04-07-2005, 01:14 PM
Hi Everyone,
Tiffyholman, pillz, katkat, Samantha, Sculpture, and cflas,
Thank you for stopping by, for leaving messages for me here, and for your prayers. You all have been so very kind. One of my son's doctors who treated him for the year of chemotherapy in 2004 called today. I have been keeping her updated with e-mails. We talked for awhile about my son. I talked about how I wish we could have added a different chemo during the time of radiation when he was off of 2 chemo drugs-a vulnerable time, and of hopeful treatments in the works--but lack of funding for the research. She talked about how his cancer - rhabdomyosarcoma - in him has always spread and behaved more like a leukemia. I spoke to her without the usual tears. We've lived this nightmare for more than a year now. In that time, I have cried millions of tears and I'm crying now. For now, my son is not experiencing pain--or at least not telling us if he is. No observable changes. Everyday like this -- good days -- if you can call them that -- when he can just live -- is a tremendous blessing, but these days are going by too quickly. How I wish I could just stop time somehow--stop the cancer--if just for a while--how long would I ask for--a month or two--a year--time for him to live and love and maybe marry--time for him to be in college.
Back before my son was diagnosed with cancer, in 2003 - in the spring - when he was a junior in high school, we had some disagreements. I think that most teenagers go through a rebellious period, but then come out of it. At the time, he was sullen and obstinate. He seemed depressed. He refused to do his schoolwork and sometimes refused to eat. He only wanted to play videogames. He said once, at that time, "I think you care more about my schoolwork than you do about me." After that, I backed way off on trying to get him to do schoolwork and just let his dad talk to him about it. I love him more that life itself and it was a shock to think that he saw things that way. I wanted to take him to a psychologist about the depression, but my son would never agree to go to a psychologist.
By the fall of 2004, as a senior, a lot of those problems seemed to have been worked out, but I noticed him making a lot of negative comments to his brothers. Not wanting to fuss at him at all -- avoiding disagreements with him--wanting him to know that I loved him. Instead of fussing I put little posters with positive messages on the wall behind his computer downstairs in the rec room. He didn't like them and thought his friends would think they were stupid. They are still on the wall, even though it has been over a year now that we moved his computer up to his room so that while on chemotherapy he would be in a warm place and people could visit him in small groups and only if they were healthy.
The posters are still on the wall over my computer, which sat beside his on the table downstairs. This is what they say:
"Positive people don't put others down."
"Winners make the grade. Whiners make excuses."
"Watch your thoughts, they become words. Watch your words, they become actions. Watch your actions, they become habits. Watch your habits, they become your character. Watch your character, it becomes your destiny."
"Even Einstein asked questions"
"Whatever....
Whatever is true,
Whatever is noble,
whatever is right,
whatever is pure,
whatever is lovely,
whatever is admirable,
if anything is excellent or
praiseworthy--think
about such things."
These posters with all their good messages are a constant reminder to me of the time that my son was sick and we just didn't realize it. Declining and tired, he didn't know what was wrong. We didn't realize how sick he was. We all thought it was just a cold that he hadn't gotten over. Even the first doctor that I took him to said that it was "just growing pains"--and I guess it was--cancer growing --causing pain. One of his brothers could see it and was worried about him--he told his granny during the holidays of 2003 that she really needed to talk to him---that he was more and more tired. My son told his granny about the pain deep in his bone and she was immediately terrified of what that might mean and told us to get him to a doctor right away, which we did. A painless tumor difficult to locate in his foot had already spread to bone marrow--completely replacing all the blood making elements. Stage 4
Last night Jason asked me to help him apply to college. He wants to go to school where his best friend is in school. He said that this college has a scholarship for cancer survivors. It is the first time in a long time that he has said anything that sounded as if he has hope. I didn't discourage him--I just said "Okay, I'll work on it." The cancer seems to be spreading so fast that I'm afraid unless God stops it that he won't even be able to go on the beach trip at the end of May that he and his friends are planning. His back is hurting a lot more and he said that he may need to start taking something for pain at bedtime.
We still keep praying for a miracle. That is what it will take. Thank you for caring and praying with us. My God who made this whole universe and raised Jesus up from death-- He has the power to heal. Miracles still happen. Even if God doesn't answer our prayers as we want Him to, we still will believe and trust Him. Even with tears in my eyes, I will still praise Him. We do have hope beyond this short life, because of what Jesus did on the cross. God bless you all.
Tiffyholman, pillz, katkat, Samantha, Sculpture, and cflas,
Thank you for stopping by, for leaving messages for me here, and for your prayers. You all have been so very kind. One of my son's doctors who treated him for the year of chemotherapy in 2004 called today. I have been keeping her updated with e-mails. We talked for awhile about my son. I talked about how I wish we could have added a different chemo during the time of radiation when he was off of 2 chemo drugs-a vulnerable time, and of hopeful treatments in the works--but lack of funding for the research. She talked about how his cancer - rhabdomyosarcoma - in him has always spread and behaved more like a leukemia. I spoke to her without the usual tears. We've lived this nightmare for more than a year now. In that time, I have cried millions of tears and I'm crying now. For now, my son is not experiencing pain--or at least not telling us if he is. No observable changes. Everyday like this -- good days -- if you can call them that -- when he can just live -- is a tremendous blessing, but these days are going by too quickly. How I wish I could just stop time somehow--stop the cancer--if just for a while--how long would I ask for--a month or two--a year--time for him to live and love and maybe marry--time for him to be in college.
Back before my son was diagnosed with cancer, in 2003 - in the spring - when he was a junior in high school, we had some disagreements. I think that most teenagers go through a rebellious period, but then come out of it. At the time, he was sullen and obstinate. He seemed depressed. He refused to do his schoolwork and sometimes refused to eat. He only wanted to play videogames. He said once, at that time, "I think you care more about my schoolwork than you do about me." After that, I backed way off on trying to get him to do schoolwork and just let his dad talk to him about it. I love him more that life itself and it was a shock to think that he saw things that way. I wanted to take him to a psychologist about the depression, but my son would never agree to go to a psychologist.
By the fall of 2004, as a senior, a lot of those problems seemed to have been worked out, but I noticed him making a lot of negative comments to his brothers. Not wanting to fuss at him at all -- avoiding disagreements with him--wanting him to know that I loved him. Instead of fussing I put little posters with positive messages on the wall behind his computer downstairs in the rec room. He didn't like them and thought his friends would think they were stupid. They are still on the wall, even though it has been over a year now that we moved his computer up to his room so that while on chemotherapy he would be in a warm place and people could visit him in small groups and only if they were healthy.
The posters are still on the wall over my computer, which sat beside his on the table downstairs. This is what they say:
"Positive people don't put others down."
"Winners make the grade. Whiners make excuses."
"Watch your thoughts, they become words. Watch your words, they become actions. Watch your actions, they become habits. Watch your habits, they become your character. Watch your character, it becomes your destiny."
"Even Einstein asked questions"
"Whatever....
Whatever is true,
Whatever is noble,
whatever is right,
whatever is pure,
whatever is lovely,
whatever is admirable,
if anything is excellent or
praiseworthy--think
about such things."
These posters with all their good messages are a constant reminder to me of the time that my son was sick and we just didn't realize it. Declining and tired, he didn't know what was wrong. We didn't realize how sick he was. We all thought it was just a cold that he hadn't gotten over. Even the first doctor that I took him to said that it was "just growing pains"--and I guess it was--cancer growing --causing pain. One of his brothers could see it and was worried about him--he told his granny during the holidays of 2003 that she really needed to talk to him---that he was more and more tired. My son told his granny about the pain deep in his bone and she was immediately terrified of what that might mean and told us to get him to a doctor right away, which we did. A painless tumor difficult to locate in his foot had already spread to bone marrow--completely replacing all the blood making elements. Stage 4
Last night Jason asked me to help him apply to college. He wants to go to school where his best friend is in school. He said that this college has a scholarship for cancer survivors. It is the first time in a long time that he has said anything that sounded as if he has hope. I didn't discourage him--I just said "Okay, I'll work on it." The cancer seems to be spreading so fast that I'm afraid unless God stops it that he won't even be able to go on the beach trip at the end of May that he and his friends are planning. His back is hurting a lot more and he said that he may need to start taking something for pain at bedtime.
We still keep praying for a miracle. That is what it will take. Thank you for caring and praying with us. My God who made this whole universe and raised Jesus up from death-- He has the power to heal. Miracles still happen. Even if God doesn't answer our prayers as we want Him to, we still will believe and trust Him. Even with tears in my eyes, I will still praise Him. We do have hope beyond this short life, because of what Jesus did on the cross. God bless you all.
Sister3
04-08-2005, 12:19 PM
Dear Prayingmom,
I'm so very sorry to hear about your son. Please know that I too, will keep him and your family in my prayers.
It makes my heart jump for joy to see you have not lost your faith in God and that you turn all your hopes and prayers toward The Great One. It's a very difficult thing to make people understand that just because God does not answer our prayers the way we would like them to be answered, does not mean that God is not with us or that He is not merciful. It's nice to see that you know that.
By far, the pages of this thread have been the saddest and most encouraging I've ever read. Saddest because my heart is aching for what your son and your family are having to go through. And encouraging because in reading these posts, it's evident that your son and your faith and Christianity have changed the hearts and minds of some who may have been lost or had questions of faith.
Prayingmom, if by you posting about your sons illness, has brought even just ONE person to Christ, then his life has not been for nothing. You can rejoice in the fact that your son is the reason that another name has been added to God's Book of Life.
I lost a son to SIDS on 3-16-1984. John 3:16-The most famous quote in the bible, "For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have eternal life." This quote never really connected with me until my daughter, who would never have been born if we had not lost our son, became a saved Christian and led me and my husband to Christ, 19 years later. If it were'nt for my son's death and the birth of my daughter afterward, my husband and I would not be Christians. God has a purpose and a plan for everything. For years I could't understand why He took our son. Now I rejoice in the fact that He did.
EVERYTHING has a purpose. The good, the bad and the unexplainable. Sometimes it just takes a little time for the reasons to be revealed to us... and sometimes they're not revealed at all. But knowing you have Christ as your savior makes all the difference. :)
You have been blessed and your posts are a testement to His love.
You are in my thoughts and prayers.
I'm so very sorry to hear about your son. Please know that I too, will keep him and your family in my prayers.
It makes my heart jump for joy to see you have not lost your faith in God and that you turn all your hopes and prayers toward The Great One. It's a very difficult thing to make people understand that just because God does not answer our prayers the way we would like them to be answered, does not mean that God is not with us or that He is not merciful. It's nice to see that you know that.
By far, the pages of this thread have been the saddest and most encouraging I've ever read. Saddest because my heart is aching for what your son and your family are having to go through. And encouraging because in reading these posts, it's evident that your son and your faith and Christianity have changed the hearts and minds of some who may have been lost or had questions of faith.
Prayingmom, if by you posting about your sons illness, has brought even just ONE person to Christ, then his life has not been for nothing. You can rejoice in the fact that your son is the reason that another name has been added to God's Book of Life.
I lost a son to SIDS on 3-16-1984. John 3:16-The most famous quote in the bible, "For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have eternal life." This quote never really connected with me until my daughter, who would never have been born if we had not lost our son, became a saved Christian and led me and my husband to Christ, 19 years later. If it were'nt for my son's death and the birth of my daughter afterward, my husband and I would not be Christians. God has a purpose and a plan for everything. For years I could't understand why He took our son. Now I rejoice in the fact that He did.
EVERYTHING has a purpose. The good, the bad and the unexplainable. Sometimes it just takes a little time for the reasons to be revealed to us... and sometimes they're not revealed at all. But knowing you have Christ as your savior makes all the difference. :)
You have been blessed and your posts are a testement to His love.
You are in my thoughts and prayers.
jessy28
04-10-2005, 07:22 PM
my sister died after beating cancer and relapsing a few years later. I really think at some point, if the person sick is at a point to be able to deal with the enabadble, it is best to look at the time left as just that. it might be best to just enjoy the time you have left and say all the things you want to say before the end. it is sad and really hard for everyone involved to accept but make sure to spend as much time as you can with him and let him know you really love him.
last1
04-13-2005, 09:59 PM
DEar prayingmom: Just wanted you to know that you continue to be in my prayers and that I can't imagine your despair. As a father of four children (all now in their late twenties/early thirties) I shudder to think about your grief and can't imagine how you are managing day by day. Know that you are lifted up on angel's wings; that you are loved, and that we all think of you daily and pray for daily as well. cflas (chris)
wimzie1
04-13-2005, 10:16 PM
Dear PrayingMom
I've kept apprised of your situation and that of your son's for a while.
I read all of your posts, and pray that he starts to feel better, and that you also feel like he may get better.
As of late, I'm feeling like his pain is getting worse, and he may be getting sicker.
Just wanted to say that you are such a strong woman, and a wonderful mother.
I'm a mother also, and hope he can get well.
You are an inspiration.
God bless,
BM
I've kept apprised of your situation and that of your son's for a while.
I read all of your posts, and pray that he starts to feel better, and that you also feel like he may get better.
As of late, I'm feeling like his pain is getting worse, and he may be getting sicker.
Just wanted to say that you are such a strong woman, and a wonderful mother.
I'm a mother also, and hope he can get well.
You are an inspiration.
God bless,
BM
mikesbaby
04-18-2005, 02:36 AM
im praying for you! im so sorry
chriznat20
04-18-2005, 05:41 PM
Reading this whole post has brought tears to my eyes... Im a 25 year old guy and cant ever imagine what you are going through! I wish I could do something, or somebody could do something.......
Please just enjoy the time with your son NOW. Make videos, take lots of pictures. Write little notes back and forth to each other. That way, one day you can pull them out and just smile.
My 59 year old Mother has dementia. I moved out of home when I was 22, right when she started declining. (I now bought a house around the block from my parents) In January my Father had a massive heart attack - we almost lost him. Now I am so much more aware of the inevitibility of death. I miss my Mom sooo much (shes still here, but not with it) and my Dad is so weak now (hes 10 years older than my Mom).... its so scary to me. Sometimes I will be driving somewhere and just thinking about conversations I'd 'like" to have with my Mother.. the usual son and mom stuff. It makes me cry.
My prayers, thoughts, and deepest caring is with you and your family. Please take care. :)
Please just enjoy the time with your son NOW. Make videos, take lots of pictures. Write little notes back and forth to each other. That way, one day you can pull them out and just smile.
My 59 year old Mother has dementia. I moved out of home when I was 22, right when she started declining. (I now bought a house around the block from my parents) In January my Father had a massive heart attack - we almost lost him. Now I am so much more aware of the inevitibility of death. I miss my Mom sooo much (shes still here, but not with it) and my Dad is so weak now (hes 10 years older than my Mom).... its so scary to me. Sometimes I will be driving somewhere and just thinking about conversations I'd 'like" to have with my Mother.. the usual son and mom stuff. It makes me cry.
My prayers, thoughts, and deepest caring is with you and your family. Please take care. :)
katkat
04-18-2005, 06:41 PM
You are a fine son and its sad that your parents are in such bad shape at such a young age. 59 may now seem young to you now but its only 10 years from me and people are shocked when I tell them I have grandchildren. Anyway, at least you are close to your parents, thats great, and its great too that you have such a kind and caring heart. Many young men your age do not have the same heart as you do.
Prayingmom I've not been back here for a while, I've been wrapped up in my own problems. My stepson and his wife were expecting twins and she went into labor 3 & 1/2 months early. The first little boy weighed only 1 pound and 10 ounces and died within the first half hour. The second little boy is still struggling to live. I've been posting on the pregnancy board about this, Brian was born at 1 pound and 13 ounces, at two weeks old he still is the same weight. We are hoping and praying that he pulls through without bad side effects of being only in his mama's tummy for a short 26 weeks. He's has some serious close calls and the funeral of his brother was so sad, I have never seen a casket the size of a shoe box before. My husband took it pretty hard seeing his only child, carrying his firstborn son to the grave.
Prayingmom I hope God gives you the strength to get through this awful time in your life, I always tell first time moms that they will find out what real love really is when they have their babies. Its hard to lose a child, and just not right at all.
hugs
Kat
Prayingmom I've not been back here for a while, I've been wrapped up in my own problems. My stepson and his wife were expecting twins and she went into labor 3 & 1/2 months early. The first little boy weighed only 1 pound and 10 ounces and died within the first half hour. The second little boy is still struggling to live. I've been posting on the pregnancy board about this, Brian was born at 1 pound and 13 ounces, at two weeks old he still is the same weight. We are hoping and praying that he pulls through without bad side effects of being only in his mama's tummy for a short 26 weeks. He's has some serious close calls and the funeral of his brother was so sad, I have never seen a casket the size of a shoe box before. My husband took it pretty hard seeing his only child, carrying his firstborn son to the grave.
Prayingmom I hope God gives you the strength to get through this awful time in your life, I always tell first time moms that they will find out what real love really is when they have their babies. Its hard to lose a child, and just not right at all.
hugs
Kat
Prayingmom
04-18-2005, 09:20 PM
Dear chriznat,
It makes me sad to hear about what you are going through. It is so hard to see the ones we love suffering and declining in health. It is wonderful that you do live so close to them. My father who is 82 now, had a heart attack 4 years ago. During the surgery to have a stent placed in his heart, his heart stopped beating and he suffered a stroke. They went ahead and did a quadruple by-pass surgery and he is still living, but can no longer move his left arm. He seems like a shadow of his former, jovial, talkative self. I do miss my dad the way he was. They live 300 miles away and I so wish I could be there to help them, even if all I did was run errands for them. Thank you for stopping by and praying for my precious son.
Dear katkat,
Thanks for stopping by. I have missed you and I'm so sorry that the babies came too soon. If only they could have stayed safe inside their mother's womb just a few more weeks. Perfect little babies--just too soon. I had a miscarriage the year before (it was May 1994) my Jenny was born. I was only 3 months pregnant and there was no baby to be seen when I had the miscarriage, but I was so sad because of the loss. It seems like the moment you hear that you are expecting, your hopes and dreams and joy rise for your baby. I just can't imagine the sadness of losing one so small. I am praying for little Brian that he will to begin to thrive and gain weight and strength, no bad effects from the early birth, that he will grow to be a blessing and a joy to you all. I can't understand why those who don't even want a child seem to have them and then those who have so much love for children sometimes can't have them or have trouble like this.
-------------------------------------------------------------------
Just want to thank all who continue to stop by here. Thank you for caring and for praying. You guys are the greatest.
I posted on the cancer board yesterday. He made his trip to Birmingham to visit Katie. He stayed at her grandmother's house. He seems so tired. He is taking long-acting morphine for the pain and sometimes has to take extra pain medicine for breakthrough pain. I don't know what is going to happen. Thoughts of losing him make me so sad. I know he is going to heaven, but it will be like telling him good-bye and he leaves on a long trip and I won't see him until I take the same journey. I just don't want to think about not seeing him for the next 20-30 years until I go to heaven too. He called me from Birmingham and left a message on my cell phone. He said, "Hi, Mom! Just calling to let you know I arrived safely. Bye." Without thinking I deleted it. I wish I had saved it to listen to over and over. It would be nice if those arriving in heaven could make one phone call to say those very words.
Of course, we keep praying and praying for complete earthly healing. I mean, my son is not dead yet and God could still heal him. That is what we need. A miracle--- . I don't believe we have much time, if God doesn't heal him.
Thank you all for praying.
It makes me sad to hear about what you are going through. It is so hard to see the ones we love suffering and declining in health. It is wonderful that you do live so close to them. My father who is 82 now, had a heart attack 4 years ago. During the surgery to have a stent placed in his heart, his heart stopped beating and he suffered a stroke. They went ahead and did a quadruple by-pass surgery and he is still living, but can no longer move his left arm. He seems like a shadow of his former, jovial, talkative self. I do miss my dad the way he was. They live 300 miles away and I so wish I could be there to help them, even if all I did was run errands for them. Thank you for stopping by and praying for my precious son.
Dear katkat,
Thanks for stopping by. I have missed you and I'm so sorry that the babies came too soon. If only they could have stayed safe inside their mother's womb just a few more weeks. Perfect little babies--just too soon. I had a miscarriage the year before (it was May 1994) my Jenny was born. I was only 3 months pregnant and there was no baby to be seen when I had the miscarriage, but I was so sad because of the loss. It seems like the moment you hear that you are expecting, your hopes and dreams and joy rise for your baby. I just can't imagine the sadness of losing one so small. I am praying for little Brian that he will to begin to thrive and gain weight and strength, no bad effects from the early birth, that he will grow to be a blessing and a joy to you all. I can't understand why those who don't even want a child seem to have them and then those who have so much love for children sometimes can't have them or have trouble like this.
-------------------------------------------------------------------
Just want to thank all who continue to stop by here. Thank you for caring and for praying. You guys are the greatest.
I posted on the cancer board yesterday. He made his trip to Birmingham to visit Katie. He stayed at her grandmother's house. He seems so tired. He is taking long-acting morphine for the pain and sometimes has to take extra pain medicine for breakthrough pain. I don't know what is going to happen. Thoughts of losing him make me so sad. I know he is going to heaven, but it will be like telling him good-bye and he leaves on a long trip and I won't see him until I take the same journey. I just don't want to think about not seeing him for the next 20-30 years until I go to heaven too. He called me from Birmingham and left a message on my cell phone. He said, "Hi, Mom! Just calling to let you know I arrived safely. Bye." Without thinking I deleted it. I wish I had saved it to listen to over and over. It would be nice if those arriving in heaven could make one phone call to say those very words.
Of course, we keep praying and praying for complete earthly healing. I mean, my son is not dead yet and God could still heal him. That is what we need. A miracle--- . I don't believe we have much time, if God doesn't heal him.
Thank you all for praying.
BlueSunday
04-20-2005, 08:59 PM
I am so sorry about your son. I lost my 12 year old nephew on October 23 last year to cancer, and today is actually his birthday. It was the hardest thing I've ever dealt with, because it is particularly difficult to deal with the death of young people. I am still not over losing my nephew, but as cliche as it sounds, the thing that I always do cling to is the thought of him not suffering anymore.
rhody
04-20-2005, 10:50 PM
Hi,
I'm also sorry to hear about your son. I lost my mother to cancer more than 30 years ago. It has made me very health-conscious.
I also had severe health problems. It's a very long story, but after decades of trying to find out why I had all of these problems, I linked these to my mercury-silver dental amalgams.
During this period of trying to find anything to help me, I read so much about natural cures, with diet and herbs (since doctors could not help me). Later in life I realized the effect toxins have also on our body. I took copious amounts of herbs many many years ago. I would drink these almost every day.
With all the reading that I had done, I read also about cancer patients who healed themselves naturally. It's very rare, but I have so much faith that for some people they could be cured this way.
I know someone who had stage IV cancer for years, and survived until her 80's with her natural herbs. She would take some chemotherapy, and then she would tell them to stop, as it was too painful or uncomfortable. She'd go back to the herbs.
There's so much that doctors do not know, and if it were me, and someone in the orthodox medical world told me that I was going to die, then I'd search outside their knowledge base. I'd try to find that natural combination of substances (foods and herbs) that would enhance the immune system to cure the cancer.
I know it's rare, and the medical community often scoffs at such things, but they only live within their known and proven science. Sometimes we have to go outside of that...I know I would...and I know I did...and am healthy today.
I'll say a prayer too...and remember that God speaks through all of us...we wish so much that your son recovers.
I'm also sorry to hear about your son. I lost my mother to cancer more than 30 years ago. It has made me very health-conscious.
I also had severe health problems. It's a very long story, but after decades of trying to find out why I had all of these problems, I linked these to my mercury-silver dental amalgams.
During this period of trying to find anything to help me, I read so much about natural cures, with diet and herbs (since doctors could not help me). Later in life I realized the effect toxins have also on our body. I took copious amounts of herbs many many years ago. I would drink these almost every day.
With all the reading that I had done, I read also about cancer patients who healed themselves naturally. It's very rare, but I have so much faith that for some people they could be cured this way.
I know someone who had stage IV cancer for years, and survived until her 80's with her natural herbs. She would take some chemotherapy, and then she would tell them to stop, as it was too painful or uncomfortable. She'd go back to the herbs.
There's so much that doctors do not know, and if it were me, and someone in the orthodox medical world told me that I was going to die, then I'd search outside their knowledge base. I'd try to find that natural combination of substances (foods and herbs) that would enhance the immune system to cure the cancer.
I know it's rare, and the medical community often scoffs at such things, but they only live within their known and proven science. Sometimes we have to go outside of that...I know I would...and I know I did...and am healthy today.
I'll say a prayer too...and remember that God speaks through all of us...we wish so much that your son recovers.
lost spirit
04-22-2005, 02:22 AM
My heart goes out to you and my prayers are with you .
May God look down on you're son with warm loving eyes and touch him with a warm loving hand .
Never lose faith and always believe ........
When there's no one left to turn to turn to god because he's always next to us whether we realise it or not we just have to listen .
May God look down on you're son with warm loving eyes and touch him with a warm loving hand .
Never lose faith and always believe ........
When there's no one left to turn to turn to god because he's always next to us whether we realise it or not we just have to listen .
trivas
04-23-2005, 05:08 AM
prayingmom: your screen name says alot. as a mother we worry and we tend to always try to find a solution to a problem; but as a "praying mother" , we put our troubles in our Lord up above. He listens and feels your pain. He's in pain as well; but might have other plans. We can't ask Him to do His will if we want Him to do ours. Be strong and don't loose faith. I'm praying along with you. take care
sculpture
04-28-2005, 01:44 PM
I pray for you, your son, and your family.
Prayingmom
05-15-2005, 12:43 AM
Hi Everyone,
Sorry it has been so long since I posted here. Sculpture, trivas, lost spirit, rhody and BlueSunday, thank you so much for your messages and eveyone thanks so much for your prayers.
I just posted a new longer message on the cancer healthboard about my son. He has started a new oral chemotherapy called etoposide. The doctors say a single agent like this is palliative not curative and just hope to give him more time. He seems to be feeling better and has less pain in his shoulder blade, although he does seem to sleep more and seems more tired. He bows his head often--I wonder if he is praying, thinking or just tired. The radiation oncologist said that the CT scan didn't show skeletal involvement. The tumor board met and discussed my son and said that they think the PET scan was actually showing cancer invading the bone marrow in his spine, shoulder blade. We are hoping and praying that his trip to the beach (they leave next Sunday) will be wonderful and that he can have fun with his friends and not be sad. We continue to pray for a miracle and know without a doubt that if God chooses He can heal my son no matter what the doctors say.
Thank you all for praying and once again I apologize for not letting you know what is happening.
Sorry it has been so long since I posted here. Sculpture, trivas, lost spirit, rhody and BlueSunday, thank you so much for your messages and eveyone thanks so much for your prayers.
I just posted a new longer message on the cancer healthboard about my son. He has started a new oral chemotherapy called etoposide. The doctors say a single agent like this is palliative not curative and just hope to give him more time. He seems to be feeling better and has less pain in his shoulder blade, although he does seem to sleep more and seems more tired. He bows his head often--I wonder if he is praying, thinking or just tired. The radiation oncologist said that the CT scan didn't show skeletal involvement. The tumor board met and discussed my son and said that they think the PET scan was actually showing cancer invading the bone marrow in his spine, shoulder blade. We are hoping and praying that his trip to the beach (they leave next Sunday) will be wonderful and that he can have fun with his friends and not be sad. We continue to pray for a miracle and know without a doubt that if God chooses He can heal my son no matter what the doctors say.
Thank you all for praying and once again I apologize for not letting you know what is happening.
katkat
05-15-2005, 10:23 AM
I was wondering how you and your son was doing. I'm sorry to hear that he has not shown any improvement. We lost the other twin that was born early. He lived for 37 days, long enough for me to get my hopes up that he'd actually make it. He got septicemia and went very fast. We were thrilled with each ounce he gained, he was up to 3.4 pounds, but it was not meant to be. Maybe God felt he needed him in heaven.
cookingmom
05-17-2005, 08:50 PM
Dear PrayingMom,
I have just read your posts and wanted to tell you that I too will be praying for your son, you and your family. I praying for healing for your son and for strength, courage and hope for all of you. God bless you, Bern
I have just read your posts and wanted to tell you that I too will be praying for your son, you and your family. I praying for healing for your son and for strength, courage and hope for all of you. God bless you, Bern
michaelii
05-18-2005, 02:54 AM
If there's no other hope, why don;t you consider radical alternative treatments..?
Bio-medical in tijuana, mexico claims to have saved several end stage cancer patients, and I personally know 2 friends whose lives were saved...
Worth a shot...
Bio-medical in tijuana, mexico claims to have saved several end stage cancer patients, and I personally know 2 friends whose lives were saved...
Worth a shot...
Jasmina
05-18-2005, 06:58 PM
I just read your post, and I wanted to give you my blessings. I can only imagine how hard this must be for him, for you, and the rest of your family. God makes miracles every day, and I'll send a prayer in his direction for you. God bless.
~Jas :angel:
~Jas :angel:
katkat
05-18-2005, 11:00 PM
I've also heard of people dying from treatments they got from Mexico. A third world country is not where I'd want to get treatments from. I think this young man is in Gods hands now. Only he can save him. From the way his mother talks he is a wonderful young man. When we know that the person we are losing or lost are in Gods care until he takes them home makes it a little easier. I know that my grandson suffered the last day he lived more that I want to think about. Now he will never know what suffering is again. I KNOW that God is taking good care of him and I know that Prayingmom's son will not suffer the everyday aches and pains, nor the hurts that this world can and does deliver us throughout our lives. I know it will be hard for her and her family to have to give him up but they know that someday they will see him again. They have to hold on to that thought to get through the roughest hours.
God bless them all.
God bless them all.
Prayingmom
05-23-2005, 06:26 PM
Hi everyone,
Sorry it has been so long since I posted here. I stay busy. I just recently posted on the cancer board - string - "relapsed cancer" about Jason. (If you go there look at the last couple of pages). Thanks to everyone's prayers and the Lord's answer to those prayers, Jason is on the beach trip that he has so longed to go on. His girlfriend, Katie, went also. The post there on the cancer board is much longer, but I can't just copy and paste it here as we are not allowed to post the same message on different boards. Jason's younger brother Justin had an unusual X-ray that shows what they say is a chondromyxoid fibroma, also had an MRI, but we must take him now to a pediatric orthopedic radiation oncologist, a specialist and it may have to be biopsied to make sure it is not cancerous. That post is there also.
Thank you so much for praying for our dear son--and even though I started this string as "My son is dying" you know that we are still praying for complete healing for him here on earth--and that in reality we all "are dying". We just hope that he doesn't have to leave us now. Day by day, week by week, we just don't know what is going to happen. We'd love to plan a beach trip with Jason and our family, but things are so uncertain.
Sorry it has been so long since I posted here. I stay busy. I just recently posted on the cancer board - string - "relapsed cancer" about Jason. (If you go there look at the last couple of pages). Thanks to everyone's prayers and the Lord's answer to those prayers, Jason is on the beach trip that he has so longed to go on. His girlfriend, Katie, went also. The post there on the cancer board is much longer, but I can't just copy and paste it here as we are not allowed to post the same message on different boards. Jason's younger brother Justin had an unusual X-ray that shows what they say is a chondromyxoid fibroma, also had an MRI, but we must take him now to a pediatric orthopedic radiation oncologist, a specialist and it may have to be biopsied to make sure it is not cancerous. That post is there also.
Thank you so much for praying for our dear son--and even though I started this string as "My son is dying" you know that we are still praying for complete healing for him here on earth--and that in reality we all "are dying". We just hope that he doesn't have to leave us now. Day by day, week by week, we just don't know what is going to happen. We'd love to plan a beach trip with Jason and our family, but things are so uncertain.
holeinheart
05-27-2005, 01:30 PM
I read your post and my heart went out to you all, a few years ago I was told I had only two years to live and had to tell my small son and my new husband this , they where devistated .............we cried, we took stock of our lives together and I prayed to god with all my heart that this was a terrible mistake. God answered my prayers , my cancer ( a huge lump on right shoulder down to the bone which was removed + therapy + other ) has gone and I am now clear .
I now have lots of other 'nasty' conditions to cope with ,but I am one of the few who made it.
Please dont give up hope, please be positive about the time you have left together , every day is a specail day to treasure for the rest of your life. My thoughts, my love and my hope's go with you all, Hole in the heart.
I now have lots of other 'nasty' conditions to cope with ,but I am one of the few who made it.
Please dont give up hope, please be positive about the time you have left together , every day is a specail day to treasure for the rest of your life. My thoughts, my love and my hope's go with you all, Hole in the heart.
LOtRsfan
06-02-2005, 12:24 PM
yea, i'm soooo sooo sorry! may Jesus be with you at times like this!
Cutiepie4u318
06-06-2005, 07:42 PM
I will pray for your son.... Love Ya and the best of luck...Courtney
brit18
06-16-2005, 08:49 PM
I am sorry for what is happening. I am 13 and last year my best friends cousin passed away from Leukemia. He was 17 and he was awesome. When we found out that he wasn't going to make it we did a bunch of kool stuff that we would always remember. We took lots of pictures and would type up a summary about all the cool stuff we did. We would put it all in a book and keep it. We all stayed strong and it worked well on all of us. We just though of it as him moving... moving to heaven sorta. I hope for the best for you. Stay strong, for you, your husband and your son.
brit18
06-16-2005, 08:50 PM
sorry i think i already sent this.
sparkylarky
06-17-2005, 01:11 AM
I, too am so sorry to hear about your son. Life isn't fair. I wish there was anything that anyone could do to save your child. All I have to offer you is my prayers. As others have said, "Pray to Jesus". Ask for a miracle. Have faith. Know that all of those that read your post, are praying and thinking of you at this very difficult time. When you feel helpless and don't know what to do, hold on to the crucifix of a rosary and know that you are holding Jesus (he is with you). May God bless you and give you the strength to carry this very heavy burden. JOANN
brend3111
06-19-2005, 02:58 PM
I am so sorry to hear about your son. I too had cancer. It is never easy...The best thing is to draw on Jesus. He resides in each of us. Pray and expect a miracle. Everything the body needs to heal is inside of us. Buy Bernie Segal tapes on Guided Imagery, I will be praying for your son and family-God Bless You
Tammy Spencer
06-21-2005, 02:36 AM
hi i have read all your threads and my heart goes out to you i have came to this board because my father has menanomia cancer and they have only gave him a year and it has been pretty close to it and he is still able to do some he has went through alot of treatment and i always pray for him not to suffer as i do my husband with his lupus that is in i.c.u in columbia just hoping the best for him also but i couldnt even amagine loosing my son it would feel like my world would fall apart and myheart goes out to you so very badly makes myproblems seem so easy compared to your just keep faith and believe god can do miracles thats what i do and i sure hope your son gets through this i know he goes through alot of pain but if good can come of it it will be worth it and also you and your son get a little more time to let eachother know how much you love eachother which i am sure you all know but extra time never hurt anyone my mother had cancer but she died in a car accident didnt get time to tell her everything i wanted so i sure make sure i do with my father and my husband even though he cant talk back to me "husband" but still i tell them everyday i love them they are the most important part of my life besides my kids but my kids help me alot through this if i didnt have them i just dont know what i would do but my heart goes out to you praying mom and everyone esle i will be praying for you!!! God Bless
aelisemc
06-22-2005, 09:52 PM
My 17 year old son passed away on May 14th from a rare neurological disease, so i know how you are feeling watching your son go through everything that he is. I can tell you one thing that has made our son's passing a little easier for us and that is that he told us throughout the last month of his life that he was going to heaven with jesus and that jesus was in our house. i pray that a miracle happens and your son is healed, but if that is not to be, i pray for strength for you and your family as you help your son deal with his illness.
Ann
Ann
peekabooman
07-05-2005, 01:34 AM
When you've done all you know to do, all there is left to do is pray. Sometimes I think God doesn't listen to me at all and everyone says "he has a plan". But I keep on praying and try hard to keep my faith but it is so very hard. I have been losing my baby for 3 1/2 years. He wasn't suppose to live this long but he has. He is a little miracle but I'm still told he won't live a long life. I've been greiving since the day after he was born. I'm doing everything I can with him to make sure he has a fulfilled life before he goes. I can't imagine having a otherwise healthy child get cancer later in life. IT just doesn't make any since to me but we have to keep holding on and believing there's a reason for it. This is my favorite scripture but when things get bad I can't help but to question God.
Jeremiah 29:11-- For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future. For me this verse helps me remember that God's plan for my baby is so much better than the one I think it should be. I am able to see only a little of my baby's life at a time while God sees the final chapter.
Charlotte
Jeremiah 29:11-- For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future. For me this verse helps me remember that God's plan for my baby is so much better than the one I think it should be. I am able to see only a little of my baby's life at a time while God sees the final chapter.
Charlotte
mindomaximus
07-24-2005, 08:54 PM
I can't say i know what your going through. But I'll pray for you and your family.
God bless you all. :angel:
God bless you all. :angel:
xledzepplinx
07-29-2005, 03:13 AM
im so so so so sorry about ur son
the same thing happend to my friend
he was relly close to dying and we talked for hours at a time and my friend had to understand that he deserves to live
make sure that ur son nos he deserves to live because ther mite b a little voice in the bak of his head tellin him he needs to die
jus kill off the voice and cancer will die with it
P.S. NEVER EVER GIVE UP HOPE BECAUSE UR SON CAN FEEL IT NOMATTER WAT U SAY SO KEEP THAT HOPE ALIVE
HE CAN COME THROUGH IT
the same thing happend to my friend
he was relly close to dying and we talked for hours at a time and my friend had to understand that he deserves to live
make sure that ur son nos he deserves to live because ther mite b a little voice in the bak of his head tellin him he needs to die
jus kill off the voice and cancer will die with it
P.S. NEVER EVER GIVE UP HOPE BECAUSE UR SON CAN FEEL IT NOMATTER WAT U SAY SO KEEP THAT HOPE ALIVE
HE CAN COME THROUGH IT
mousey
07-29-2005, 03:53 AM
This is so sad =( i am so sorry for your family and your son.. please keep hoping and praying and never ever lose hope, you never know what can happen. The brain is a powerful thing, your son needs to believe that there is hope for him and he needs to keep fighting this thing...you'll be in my prayers =(
xox
xox
Summermoon
07-30-2005, 11:12 AM
Hi,
Just wanted to say i have been thinking about you and sending healing thoughts to your family at this difficult time, may you all be strong :angel:
Love and Light T xx
Just wanted to say i have been thinking about you and sending healing thoughts to your family at this difficult time, may you all be strong :angel:
Love and Light T xx
spencer123
08-09-2005, 06:11 PM
Hi, I am so sorry to hear about your son. I would try reading the posts about visions near death and life after death. These posts are SOO comforting to the point where your happy and feel very emotional in a positive way. I pray to god that your son does make it. But in the case that he doesnt, it is because god needs him more than you do. God chose him to come early over many many other people. I hope this is comforting to you :)
God works in mysterious ways
God works in mysterious ways
Prayingmom
08-28-2005, 04:54 AM
My dear precious son Jason passed from this world into the arms of his Lord and Savior, Jesus Christ, at 1PM Thursday, August 25--which was also his father's 50th birthday. The pain had finally gotten so bad that he just couldn't hide it from us anymore. At one point early Monday morning, he said, "Mom, just go out and close the door and try not to listenm," as he moaned in pain. We did manage to get control of the pain, though at times he still hurt. Tuesday night he went to sleep with a headache, dizziness, rapid heart beat and swollen feet. He never really woke up again, except to say Yes or No and incoherent words--except once on Wednesday he managed to say "Am I dying?" I loved him so. He wrapped his little hands around my heart over 19 years ago on the day he was born and he has taken a good part of my heart with him.
God bless you all for caring and praying.
Thank you.
God bless you all for caring and praying.
Thank you.
kerry1
08-28-2005, 11:25 AM
I'm so sorry your son is sick. I will pray for him too, but God doesn't always answer our prayers the way we expect. I just know one thing - your son will always be alive in the true sense of the word. God does give us eternal life. I hope you're taking care of yourselves too at this stressful time. :angel:
ryka
08-28-2005, 10:26 PM
Prayingmom-
I am so sorry to hear about your loss. I know this must be an extremley hard time for you. I have been following this thread for months and wanted to thank you for opening up about your son and sharing your feelings. KNowing about your situation has really helped me get through some hard times and realize that there are other people out there dealing with the death of a loved one. Your story has truly touched me.Once again I am so sorry to hear about your son.
I am so sorry to hear about your loss. I know this must be an extremley hard time for you. I have been following this thread for months and wanted to thank you for opening up about your son and sharing your feelings. KNowing about your situation has really helped me get through some hard times and realize that there are other people out there dealing with the death of a loved one. Your story has truly touched me.Once again I am so sorry to hear about your son.
Samantha317
08-28-2005, 11:28 PM
Prayingmom,
You have my deepest sympathy for the loss of your precious son. Your son and your entire family will never be forgotten. I pray for strength and peace for you.
Sincerely,
Sam :angel:
You have my deepest sympathy for the loss of your precious son. Your son and your entire family will never be forgotten. I pray for strength and peace for you.
Sincerely,
Sam :angel:
katkat
08-29-2005, 12:00 AM
Prayingmom I am so sorry to hear that you lost you wonderful son. Only you or other parents can begin to know how it feels. Us who have been reading your post and praying can only imagine. I know that when we lost Bryan it hurt terribly but he was only with us for 37 days and was our grandson. Your Jason was with you for 19 years, 19 years of a growing love. At least you know without a doubt that Jason is with the Lord now. You know that you brought him up in the knowledge of Jesus and that he is the answer and the way to heaven. No longer is he in pain and someday you and your husband will see him again, I know that and so do you. Yes you'll miss him and the pain will seem unbareable at times but with Gods help you will go on with your life. Don't forget the rest of your family, they need you and miss him as much as you do. Some day you and Jason will be reunited. Don't ever doubt that. I wished I could so something or say something to make it not hurt so bad.
God be with you.
God be with you.
pillzpillzpillz
08-29-2005, 10:24 AM
Oh no...I am so sorry....I am just so very sorry...thank you for sharing your son with us, I read about your son a lot and it almost seemed like I knew him and your wonderful family...
May the lord wrap his arms around you & family and hold you all tight through this difficult time.....
God bless you and your family and of course, Jason.
May the lord wrap his arms around you & family and hold you all tight through this difficult time.....
God bless you and your family and of course, Jason.
Kaylee4C
08-29-2005, 11:19 AM
I'm sorry to hear that... you're in my prayers. :)
God bless,
Kaylee
God bless,
Kaylee
Johnsternow
08-29-2005, 01:13 PM
I don’t expect you to remember me or to ever respond to me either. I have nothing to offer as so many heartfelt people here have all said it all. I just wish to express my true sympathies and feelings once again and to let you know that you and your entire family has been and will continue to be in my thoughts and prayers daily for peace and comfort at this extremely difficult time.
MySonChris
08-29-2005, 02:27 PM
Prayingmom, I am so very sorry! I can not express the depth of my sorrow. Your son was so strong and brave- a true inspiration and hero, and you are the most wonderful mother. I pray for strenght and understanding for you and your family and know that your son will be watching over you until you can all be together again. I know there are no words that can ease your pain but I will never forget you or your sweet son.
Charlene
Charlene
HippyChic8123
08-30-2005, 05:56 AM
I'm very sorry for your loss, altho I don't know much about cancer, (of any form), I've been trying to learn about it because it can happen to anyone...I'll keep you and your family in my prayers, and hope the best...cuz I'm not sure theres much more I can do.
Prayingmom
08-30-2005, 07:39 PM
Hi Everyone,
I just thought that I would recount the last few days of Jason's life.
We took Jason up to visit grandparents in East TN on Friday, August 19. He took his last dose of the 3 week cycle of oral etoposide that night. He didn't sleep well that night and he had leg cramps that day and on Sunday when we returned home. He lay on the couch all weekend with his head turned away from us and didn't talk much. You know that he had expressed a desire to ride a 4 wheeler. My mother bought one from an uncle a few weeks ago and had hoped that Jason could ride it. He said, "Mom, I just don't trust myself anymore to handle one of those. I wish that I could have riden one back when I was healthy--2 years ago." Josh and Jenny enjoyed the 4-wheeler as Jason lay there on the couch.
At home on Monday, Jason woke up hurting. He said that he hurt all over at first, but as he woke up more it seemed that his knees were hurting more than anything. I gave him all the pain medicine that I was allowed to give him and he was still in pain. He has always been so tough that he could cover up the pain he felt. He was hurting so bad that he moaned and groaned and screamed in pain. He said, "Mom, just go out of my room and close the door and try not to listen." I went out and fell on the floor, praying for God to have mercy on him. Then I got on the phone and called hospice to try to get more pain relief. Back last July when the doctor gave him a death sentence Jason had asked two questions--how long do I have?(they said months, not years) and how will I die? They couldn't give him an answer to that, but the doctor promised that he wouldn't have to be in pain. I couldn't stand for him to be suffering. Hospice said that we had liquid morphine in a comfort kit in the refridgerator. It is fast-acting and I could give him some every 30 minutes until there was relief. It took an hour and a half before there was pain control. All that day, I stayed very near to give him a dose every time the pain began to return. I slept downstairs where I could hear him if he called me.
On Tuesday, when he woke up the pain was even worse and now not only his knees, but his ankles were hurting. He said they felt as if they were broken. So we started the same routine and I even called hospice who came out and allowed an increase in the long acting morphine that he had been taking for some months. By late that night he noticed that his feet were swollen. He hadn't had much sleep all weekend or Monday and Tuesday and he hated to go to bed because his legs hurt worse when he got out of bed. He was sitting at the computer, barely able to keep his eyes open, nodding in and out of sleep, with a bad headache and feeling dizzy and nauseous. When he got up to go to the bathroom, I checked his blood pressure and pulse and his heart rate was 155. I said, "Honey, I know that you are tired. Why don't you just try to go to sleep." So he took some medicine to help nausea and got in bed. It was 2:00AM. I slept in the floor of his room. I was supposed to wake him up at 5:15AM to give him more pain medicine, but I overslept until 6:30AM and he seemed to be sleeping well. My husband said not to wake him. But, as Wednesday went on, Jason never roused. We tried to wake him and couldn't get him to wake up. He couldn't open his eyes, but sometimes would open his eyes partially and give a Yes or No answer to our questions and then would say something we couldn't understand. I was out of the room when he asked (in his dad's presence) "Am I dying?" but he was out again almost immediately. He was still in pain at times as he grasped the covers and grimaced and I was frantic to get relief even then. I thought I had no way to give him pain medicines with him unconscious, but hospice told me that I could give him .25cc of liquid morphine and it would be absorbed through his gums. In this way we managed to give him pain relief and he seemed to no longer be in pain. He was in a coma and he slipped deeper and deeper into this deep sleep as Wednesday became Thursday and I lay sleeping in the floor again. On Thursday we couldn't rouse him at all. By around noon, when one of his friend's mothers was over, she said that my husband needed to call Jason's brother, Justin to come home from his Arby's job. We called all the children in the room so they could say "Good-bye to Jason." Hospice nurses told us that even though he couldn't respond he could still hear us at times. We are all around him telling him how much we loved him and that we would miss him. His breathing changed and around one he raised up, his eyes opened and then he was gone. It was 1:00 last Thursday.
His brother, Justin, ran out of the room. David found him sobbing and alone. He said, "I had so much more that I wanted to talk to him about." That afternoon, Justin went out on the lake and went cliff diving. One place they went diving was under a tall bridge where they had to climb out on metal beams over 40 feet above rocks and then the lake. It was dangerous. I didn't even know where he had gone. The funeral is over and Justin has closed up again and is trying to be tough and unemotional.
He is gone--he is gone and I know that he is in a better place. I truly am thankful that he is no longer having to suffer, but I miss him so much. I don't know if you had read this before, but last summer, after the doctor said that there would be no cure for him, Jason said, "Mom, it's okay if I die now. It will just mean that I am in heaven a few years before you." When I told him how my own mother had become so bitter after my brother died, Jason said, "Mom, I don't want you to be bitter. I want to see you in heaven." Jason was just a little boy when he prayed to receive Christ. He was only 4 years old. I thought he was too young to understand and tried to put him off. He pleaded with me to tell him how to be saved because, he told me that he was having bad dreams about going to hell---this was not something we talked about in our home and I don't remember the pastor at our church even emphasizing it. When Jason told me that, I decided to go ahead and share with him how to be saved and he prayed with me. He never had another bad dream like that after we prayed. He never wavered in his faith. Jason was not a follower. He was a leader. He would not give in to peer pressure even in areas such as his speech. His friends say that he was the most moral person that they ever knew.
Jason was the answer to many prayers of a barren woman (me). He was the best Christmas present David and I ever got (he was born just before Christmas). It is hard to imagine that God has taken him back so soon. We do have 3 other children and I know we must go on, but this hurts so bad. I would never want him to come back and suffer more, but I had so prayed and hoped for miraculous healing.
God bless you and all your loved ones. Thank you for praying.
I just thought that I would recount the last few days of Jason's life.
We took Jason up to visit grandparents in East TN on Friday, August 19. He took his last dose of the 3 week cycle of oral etoposide that night. He didn't sleep well that night and he had leg cramps that day and on Sunday when we returned home. He lay on the couch all weekend with his head turned away from us and didn't talk much. You know that he had expressed a desire to ride a 4 wheeler. My mother bought one from an uncle a few weeks ago and had hoped that Jason could ride it. He said, "Mom, I just don't trust myself anymore to handle one of those. I wish that I could have riden one back when I was healthy--2 years ago." Josh and Jenny enjoyed the 4-wheeler as Jason lay there on the couch.
At home on Monday, Jason woke up hurting. He said that he hurt all over at first, but as he woke up more it seemed that his knees were hurting more than anything. I gave him all the pain medicine that I was allowed to give him and he was still in pain. He has always been so tough that he could cover up the pain he felt. He was hurting so bad that he moaned and groaned and screamed in pain. He said, "Mom, just go out of my room and close the door and try not to listen." I went out and fell on the floor, praying for God to have mercy on him. Then I got on the phone and called hospice to try to get more pain relief. Back last July when the doctor gave him a death sentence Jason had asked two questions--how long do I have?(they said months, not years) and how will I die? They couldn't give him an answer to that, but the doctor promised that he wouldn't have to be in pain. I couldn't stand for him to be suffering. Hospice said that we had liquid morphine in a comfort kit in the refridgerator. It is fast-acting and I could give him some every 30 minutes until there was relief. It took an hour and a half before there was pain control. All that day, I stayed very near to give him a dose every time the pain began to return. I slept downstairs where I could hear him if he called me.
On Tuesday, when he woke up the pain was even worse and now not only his knees, but his ankles were hurting. He said they felt as if they were broken. So we started the same routine and I even called hospice who came out and allowed an increase in the long acting morphine that he had been taking for some months. By late that night he noticed that his feet were swollen. He hadn't had much sleep all weekend or Monday and Tuesday and he hated to go to bed because his legs hurt worse when he got out of bed. He was sitting at the computer, barely able to keep his eyes open, nodding in and out of sleep, with a bad headache and feeling dizzy and nauseous. When he got up to go to the bathroom, I checked his blood pressure and pulse and his heart rate was 155. I said, "Honey, I know that you are tired. Why don't you just try to go to sleep." So he took some medicine to help nausea and got in bed. It was 2:00AM. I slept in the floor of his room. I was supposed to wake him up at 5:15AM to give him more pain medicine, but I overslept until 6:30AM and he seemed to be sleeping well. My husband said not to wake him. But, as Wednesday went on, Jason never roused. We tried to wake him and couldn't get him to wake up. He couldn't open his eyes, but sometimes would open his eyes partially and give a Yes or No answer to our questions and then would say something we couldn't understand. I was out of the room when he asked (in his dad's presence) "Am I dying?" but he was out again almost immediately. He was still in pain at times as he grasped the covers and grimaced and I was frantic to get relief even then. I thought I had no way to give him pain medicines with him unconscious, but hospice told me that I could give him .25cc of liquid morphine and it would be absorbed through his gums. In this way we managed to give him pain relief and he seemed to no longer be in pain. He was in a coma and he slipped deeper and deeper into this deep sleep as Wednesday became Thursday and I lay sleeping in the floor again. On Thursday we couldn't rouse him at all. By around noon, when one of his friend's mothers was over, she said that my husband needed to call Jason's brother, Justin to come home from his Arby's job. We called all the children in the room so they could say "Good-bye to Jason." Hospice nurses told us that even though he couldn't respond he could still hear us at times. We are all around him telling him how much we loved him and that we would miss him. His breathing changed and around one he raised up, his eyes opened and then he was gone. It was 1:00 last Thursday.
His brother, Justin, ran out of the room. David found him sobbing and alone. He said, "I had so much more that I wanted to talk to him about." That afternoon, Justin went out on the lake and went cliff diving. One place they went diving was under a tall bridge where they had to climb out on metal beams over 40 feet above rocks and then the lake. It was dangerous. I didn't even know where he had gone. The funeral is over and Justin has closed up again and is trying to be tough and unemotional.
He is gone--he is gone and I know that he is in a better place. I truly am thankful that he is no longer having to suffer, but I miss him so much. I don't know if you had read this before, but last summer, after the doctor said that there would be no cure for him, Jason said, "Mom, it's okay if I die now. It will just mean that I am in heaven a few years before you." When I told him how my own mother had become so bitter after my brother died, Jason said, "Mom, I don't want you to be bitter. I want to see you in heaven." Jason was just a little boy when he prayed to receive Christ. He was only 4 years old. I thought he was too young to understand and tried to put him off. He pleaded with me to tell him how to be saved because, he told me that he was having bad dreams about going to hell---this was not something we talked about in our home and I don't remember the pastor at our church even emphasizing it. When Jason told me that, I decided to go ahead and share with him how to be saved and he prayed with me. He never had another bad dream like that after we prayed. He never wavered in his faith. Jason was not a follower. He was a leader. He would not give in to peer pressure even in areas such as his speech. His friends say that he was the most moral person that they ever knew.
Jason was the answer to many prayers of a barren woman (me). He was the best Christmas present David and I ever got (he was born just before Christmas). It is hard to imagine that God has taken him back so soon. We do have 3 other children and I know we must go on, but this hurts so bad. I would never want him to come back and suffer more, but I had so prayed and hoped for miraculous healing.
God bless you and all your loved ones. Thank you for praying.
Prayingmom
08-31-2005, 12:58 PM
I thought that I would tell my dear son's story here, even though now the struggle is over and he is no longer suffering and in pain. I feel that our suffering will not end until I see my son in heaven. Last Thursday on his dad's 50th birthday, my son passed away. He had been on hospice care for many months, but really didn't require much care until the last terrible week.
It all started in Dec 2003. He turned 18 just 9 days before Christmas. He was a senior in high school. He had always been so healthy. His brother was worried about him at Christmas, because he had been so tired and his chest had been hurting and he had been out of breath, but we didn't know any of that. He always downplayed any physical ailment and when he was hurt, he would say, "Don't worry, Mom, I'll be fine." His brother told asked his grandmother to talk to him about the symptoms and she was actually terrified when she heard that among other symptoms that he was having that he was having pain deep in his sternum. She told us to get him to a doctor as soon as we got home from her house 300 miles from ours. I took him to his pediatrician's office on 12/31/03 and the pediatrician did no tests and said, "It is just growing pain. He still has a lot of growing to do in his chest and I can almost guarantee that it is just growing pain." This pediatrician retired that day and I have never gotten to talk to him about what was really wrong with Jason. So in the first week of January I went ahead and took him to have his wisdom teeth taken out. He just never seemed to recover after that and became paler and paler and more and more tired. Around the third week of January 2004, I took Jason to his new doctor--a general practioner and he actually only saw a nurse practioner and when she heard the symptoms many tests were run. All of the tests were normal except for the blood tests which showed pancytopenia. This means that all the cells in his blood were low: low red blood cells, low white blood cells and low platelets. We returned the next week for a recheck of his blood and this time the counts were even lower. They set up an appointment for a couple of weeks later with a hematologist. I begged for a sooner appointment and that doctors office said that if I could get him there by 1:00 they could see him that very day. They did several tests, but the worst one and the most critical one was the bone marrow biopsy that they did in the office without putting him to sleep. It was so painful and only the first of many bone marrow biopsies that he would have done. He always said that it felt like a broken bone for days. We went out to eat at Outback Steakhouse that night, not knowing that our world had already started to change to something that we could never have imagined in our worst nightmares.
The next day while he was in classes, I got a call saying that he had leukemia and that we were to bring him to the hospital as a room was waiting for him. That was his last day of class ever. He was admitted to the hospital. The next day they had to do another bone marrow biopsy as the first one had been sent to labs all over the country as required by our insurance. By the end of that day (2/6/04) he had had many scans done and they still hadn't found the primary tumor. The new biospy showed that it was something much worse than leukemia. It was alveolar rhabdomyosarcoma (ARMS) with t(2,13) gene translocation. He was diagnosed on 2/6/04. He had a central line placed for chemotherapy to be given and received his first chemo that Friday. He threw up for days and lost 13 pounds. He was already so skinny--always had been thin. A PET scan on the following Monday showed that He had a tumor in his left foot that had spread to bone marrow (so it is stage 4) and the symptoms we noticed were due to the anemia he had. He spent 21 days in the hospital with the first hospitalization.
The doctors wouldn't even give us statistics. They just said that our child wasn't a statistic and advised us not to even look. I probably shouldn't have looked, but when I did I found that his chances were to live were less than 3%. Probably less. Some people say that if it is in bone marrow at diagnosis that there is no chance for recovery. Being 18, he was given choices to make about treatment. No treatment was a choice and he would have been gone very quickly. There was VAC (Vincristine-ActionmycinD-Cytoxan) or an even more intense treatment VACIME that was VAC with iphosfomide and etoposide with mesna. Jason chose VAC.
At the beginning there was a 100% replacement of all blood making elements with cancer cells in his bone marrow. On 4/9 there were no cancer cells in his bone marrow, but by 7/30 there were some cancer cells in fibrotic tissue in his bone marrow which the oncologists said were resistant cells and they considered it to be a relapse while on treatment (Vincristine-Actinomycin-Cytoxan). Chemo had to be changed. The oncologist said to all of us including Jason that there were 3 choices: 1) stop treatment- a viable option, he said; 2) cytoxan-topotecan 3) more intensive treatment with VAdrCIME which would involve more surgery to put in a different central IV line. Then the oncologist said, "No matter what you choose it will only prolong your life. There will be no cure for you." I hate it that he tried to take away all our hope. Jason really didn't want another surgery, and I was so thankful that he didn't want to just quit treatment. He chose the cytoxan-topotecan, but after the first day he just wanted to stop treatment as we were at the clinic for over 8 hours and he was nauseous. It was given in the clinic every day for 5 days with hydration and then a 2 week break and then repeated. He had a bone marrow biopsy and a PET scan done on 10/1/04 just to see the new chemo was working. After 2 treatments, the same doctor said that there is always hope and asked Jason he if he would continue treatment if the tests showed good results. The oncologist also said that our other children: Justin, 16; Josh, 13; and Jenny, 9 could come down with us to the clinic to have some blood drawn to see if any of them were a match for Jason for a bone marrow transplant just in case we ever wanted to consider this. It is considered experimental (and I found that it is not effective either) and our insurance would not pay for it, but many friends have offered to help raise the money if it is needed. The bone marrow transplant process just sounds so hard.
We just kept praying and praying and praying that God would heal Jason here on earth. I know that God can heal. He is able to do that with just a word. Nothing is impossible for God. Jason, himself though thought that he wouldn't make it. On the way home from the clinic one Friday he gently said, "Mom, it will be alright if I die now. It will just mean that I will get to heaven a few years before you all." My tears flowed as I tried to say, "But honey, we'll miss you so much." Jason did well through the chemo. Nausea was his worst problem. He had 23 days of radiation to his foot that ended on 6/18/04 and burned his foot badly and put him in a wheelchair for about a month. Yet just a few weeks after these terrible burns to his foot he went on the youth mission trip where they have Vacation Bible School for inner city kids. In August of 2004 he seemed to feel fine and if not for the bad bone marrow report at the end of July we would never have known that he had relapsed. We met 6 other families with children with rhabdomyosarcoma at the hospital where Jason was treated--4 from our own small town.
I will write more later. Once again, thank you for the many prayers that you offered up for our precious son. If only they could have been answered the way we wanted them to be......
God bless you all. Hug your children. Let them know every day that you love them. We don't know what they future holds and how that in just a moment our lives can change forever.
It all started in Dec 2003. He turned 18 just 9 days before Christmas. He was a senior in high school. He had always been so healthy. His brother was worried about him at Christmas, because he had been so tired and his chest had been hurting and he had been out of breath, but we didn't know any of that. He always downplayed any physical ailment and when he was hurt, he would say, "Don't worry, Mom, I'll be fine." His brother told asked his grandmother to talk to him about the symptoms and she was actually terrified when she heard that among other symptoms that he was having that he was having pain deep in his sternum. She told us to get him to a doctor as soon as we got home from her house 300 miles from ours. I took him to his pediatrician's office on 12/31/03 and the pediatrician did no tests and said, "It is just growing pain. He still has a lot of growing to do in his chest and I can almost guarantee that it is just growing pain." This pediatrician retired that day and I have never gotten to talk to him about what was really wrong with Jason. So in the first week of January I went ahead and took him to have his wisdom teeth taken out. He just never seemed to recover after that and became paler and paler and more and more tired. Around the third week of January 2004, I took Jason to his new doctor--a general practioner and he actually only saw a nurse practioner and when she heard the symptoms many tests were run. All of the tests were normal except for the blood tests which showed pancytopenia. This means that all the cells in his blood were low: low red blood cells, low white blood cells and low platelets. We returned the next week for a recheck of his blood and this time the counts were even lower. They set up an appointment for a couple of weeks later with a hematologist. I begged for a sooner appointment and that doctors office said that if I could get him there by 1:00 they could see him that very day. They did several tests, but the worst one and the most critical one was the bone marrow biopsy that they did in the office without putting him to sleep. It was so painful and only the first of many bone marrow biopsies that he would have done. He always said that it felt like a broken bone for days. We went out to eat at Outback Steakhouse that night, not knowing that our world had already started to change to something that we could never have imagined in our worst nightmares.
The next day while he was in classes, I got a call saying that he had leukemia and that we were to bring him to the hospital as a room was waiting for him. That was his last day of class ever. He was admitted to the hospital. The next day they had to do another bone marrow biopsy as the first one had been sent to labs all over the country as required by our insurance. By the end of that day (2/6/04) he had had many scans done and they still hadn't found the primary tumor. The new biospy showed that it was something much worse than leukemia. It was alveolar rhabdomyosarcoma (ARMS) with t(2,13) gene translocation. He was diagnosed on 2/6/04. He had a central line placed for chemotherapy to be given and received his first chemo that Friday. He threw up for days and lost 13 pounds. He was already so skinny--always had been thin. A PET scan on the following Monday showed that He had a tumor in his left foot that had spread to bone marrow (so it is stage 4) and the symptoms we noticed were due to the anemia he had. He spent 21 days in the hospital with the first hospitalization.
The doctors wouldn't even give us statistics. They just said that our child wasn't a statistic and advised us not to even look. I probably shouldn't have looked, but when I did I found that his chances were to live were less than 3%. Probably less. Some people say that if it is in bone marrow at diagnosis that there is no chance for recovery. Being 18, he was given choices to make about treatment. No treatment was a choice and he would have been gone very quickly. There was VAC (Vincristine-ActionmycinD-Cytoxan) or an even more intense treatment VACIME that was VAC with iphosfomide and etoposide with mesna. Jason chose VAC.
At the beginning there was a 100% replacement of all blood making elements with cancer cells in his bone marrow. On 4/9 there were no cancer cells in his bone marrow, but by 7/30 there were some cancer cells in fibrotic tissue in his bone marrow which the oncologists said were resistant cells and they considered it to be a relapse while on treatment (Vincristine-Actinomycin-Cytoxan). Chemo had to be changed. The oncologist said to all of us including Jason that there were 3 choices: 1) stop treatment- a viable option, he said; 2) cytoxan-topotecan 3) more intensive treatment with VAdrCIME which would involve more surgery to put in a different central IV line. Then the oncologist said, "No matter what you choose it will only prolong your life. There will be no cure for you." I hate it that he tried to take away all our hope. Jason really didn't want another surgery, and I was so thankful that he didn't want to just quit treatment. He chose the cytoxan-topotecan, but after the first day he just wanted to stop treatment as we were at the clinic for over 8 hours and he was nauseous. It was given in the clinic every day for 5 days with hydration and then a 2 week break and then repeated. He had a bone marrow biopsy and a PET scan done on 10/1/04 just to see the new chemo was working. After 2 treatments, the same doctor said that there is always hope and asked Jason he if he would continue treatment if the tests showed good results. The oncologist also said that our other children: Justin, 16; Josh, 13; and Jenny, 9 could come down with us to the clinic to have some blood drawn to see if any of them were a match for Jason for a bone marrow transplant just in case we ever wanted to consider this. It is considered experimental (and I found that it is not effective either) and our insurance would not pay for it, but many friends have offered to help raise the money if it is needed. The bone marrow transplant process just sounds so hard.
We just kept praying and praying and praying that God would heal Jason here on earth. I know that God can heal. He is able to do that with just a word. Nothing is impossible for God. Jason, himself though thought that he wouldn't make it. On the way home from the clinic one Friday he gently said, "Mom, it will be alright if I die now. It will just mean that I will get to heaven a few years before you all." My tears flowed as I tried to say, "But honey, we'll miss you so much." Jason did well through the chemo. Nausea was his worst problem. He had 23 days of radiation to his foot that ended on 6/18/04 and burned his foot badly and put him in a wheelchair for about a month. Yet just a few weeks after these terrible burns to his foot he went on the youth mission trip where they have Vacation Bible School for inner city kids. In August of 2004 he seemed to feel fine and if not for the bad bone marrow report at the end of July we would never have known that he had relapsed. We met 6 other families with children with rhabdomyosarcoma at the hospital where Jason was treated--4 from our own small town.
I will write more later. Once again, thank you for the many prayers that you offered up for our precious son. If only they could have been answered the way we wanted them to be......
God bless you all. Hug your children. Let them know every day that you love them. We don't know what they future holds and how that in just a moment our lives can change forever.

