Kirstine
02-16-2005, 05:21 PM
:bouncing: Hello every one, I am a new person on here, I do not have MS but my Husband does I am here for me and hi, really just want to know what can happen in the future, Not that I would ever leave him I love him to much I would just like to know what happens from here.... He was told in Dec he had it we also gave birth the same month -Little boy Taylor Owen Wade Hughes- He has brought a smile back to my hubbys face again so nice to see I can tell you. He is ok not as bad as some on here, but he is a up sort of person :jester: and I hate seeing him so low and upset it is not all the time just every now and again, I get it from him all the time as we are away from family but we do have really good friends -well he does- I just seem to be a mother all the time to him and the two children am I being selfish saing that? :confused: U tell me I don't no what to think any more I just wish there was something I could say do to help him, we are living off benifit which dosn't help as he was the earner I will have to go out and get a job soon but he needs to be able to cope with the two children first has any one got any advice??? :confused:
Sorry to go on hope I can have some help from you :wave: :rolleyes:
Kirstine :angel:
Sorry to go on hope I can have some help from you :wave: :rolleyes:
Kirstine :angel:
Sponsor
Kirstine
02-17-2005, 01:16 PM
Hello again it is me Kirstine I have noticed that a few of you have looked at what I have writen but none of you have writen is that because I do not have MS? Is there some where I can go where I can get help support advice??? I would like to help my Husband in any way possible, I need to have help in doing that and I thought that other's like him could give me some insight may be I was wrong? Was I?
baddoey
02-17-2005, 01:25 PM
Sometimes it takes a little time for people to respond, and not everyone who views is going to. In regards to your situation as far as the future it is impossible to say - MS is a very weird disease and hard to predict. Some people live quite normal lives and others have a rough time of things. There are some new medications out there that seem to be having some positive results in slowing down the progression. I hope your husband is on some. You might want to look on that national ms society web page and see if there is a support group in your area - maybe for you or for your husband. Depression is often a side effect of MS (they are unsure if it is b/c hardship of the disease or chemical in the brain) and if you husband is depressed this is something else that he might want to consider treatment for.
good luck and take care.
good luck and take care.
Kahlia25
02-17-2005, 02:44 PM
I have had MS for 8 years.....it took them 2 to diagnose it. Every test result I had came back negative at first. I could not walk, I slurred my speech, I felt like ants were crawling all over me. As an RN, I KNEW I had MS. I finally went to a neurologist who told me to walk....just walk for him. He said "You have Multiple Sclerosis". It was a relief to finally hear it even though I was upset. He went over all my tests and told me that after you have had everything done imaginable to man, they make a diagnosis on symptoms. I had another MRI a year later that showed lesions in the temperal lobe of the brain....that affects your emotions, I was crying all the time; your speech etc. I am on a drug, a shot, Beta Seron that has chnaged my life. I take it under the skin every other day. I can honestly say.....DO NOT GIVE UP...in your quest to find answers........you will find them sooner or later. I went through a really bad time and now I am so much better. I am hoping that you can find the answers you need soon........Kahlia
Kirstine
02-17-2005, 03:21 PM
Thank you guys, it is nice to hear from you. So thank you for taking the time to chat to me. I know we are in the early stages of this as it was only three months ago we got told and yes Kahlia I totaly know what you are saying about finaly knowing what we are coping with it was nlike a weight had been lifted, and no need to explain why Steve -my hubby- wasn't working ect. I do feel that people just see him as lazy and I can honstley say I have felt that in the past you can just forget that is what he has do you know what Imean as he hasn't got two heads or any visable things wrong, but as I have said we are new to all this. In answer to your question baddoey no he isn't on anything really a drug called Volterol and that is it, we have a appointment on Wednesday of next week, perhaps he will be given somthing then as his pain is gedtting worce as well as the mood swings, it is hard to know what I am gettting up to in the morning sometimes. Any way I kno we are strong and we can get on with our lives, I just hope I am as strong as we are if you know what I mean you just don't know what the future holds. Thanks again for replying I didn't mean to sound off I just thought of there was another board for us partners of MS Sufferers it may be better for you. Regards Kirstine xx
Arraicha
02-17-2005, 04:41 PM
Hi, welcome to the board! There are all kinds of people here, those with MS, relatives and friends of people with MS and people who are simply curious about MS.
Anyway, I'm sorry to hear about your husband. It's especially difficult for a person who has to quit their job because of their symptoms. I've had MS since my teens, so I don't know anything else, but to someone who is used to using their body and doing physical work, it must be devasting.
There are a few drugs on the market for MS. I'm on Betaseron, but I don't like it much. I'm waiting for Tysabri to become legal in my country so I can switch. The drugs won't fix symptoms, but they slow down the rate of attacks and the development of new lesions.
http://www.nmss.org/ Is a great site if you want to read more about the disease.
Good luck!
Anyway, I'm sorry to hear about your husband. It's especially difficult for a person who has to quit their job because of their symptoms. I've had MS since my teens, so I don't know anything else, but to someone who is used to using their body and doing physical work, it must be devasting.
There are a few drugs on the market for MS. I'm on Betaseron, but I don't like it much. I'm waiting for Tysabri to become legal in my country so I can switch. The drugs won't fix symptoms, but they slow down the rate of attacks and the development of new lesions.
http://www.nmss.org/ Is a great site if you want to read more about the disease.
Good luck!
tooobuzi
02-20-2005, 12:04 AM
I know this is hard on you and your family. This is new to me and my family as well. I am a very active person with two teenagers. I am a woman that runs a contracting business -that is nothing but stress. In the past 9 months my life has been turned upside down by my symptoms. I have had to stop having meeting because I forget things so easily, or I am shaking or so dizzy I can't see straight. I can't make it through the grocery store I get so tired. I have had to cut my work week from about 80 to 35 hours. When I get home I have no energy to do anything and either fall asleep or lay on the sofa all night. My family is not used to this but thankfully are very supportive. I am not married but my boyfriend lives with us. He is wonderful. He makes me rest and makes me limit my activities. Being a workaholic it is difficult to do on my own. My children are aware of what is going on with me and are also helpful. However, this doesn't help how I feel about myself. That is probably the hardest thing for your husband, is what I am going through. He is used to being the bread winner. Used to doing lots of things and just being NORMAL. He can't do this any longer and has no control over what is happening. It makes you nuts!!! Sometimes after having a tough day I just look at my life now compared to just a few short months ago and can't believe I am the same person.
Try to be as understanding as possible with him. Know that he is going through much more than you right now, although you and your family are going through it too. He has to be concerned that you will get tired of things and want out. Just be reassuring and as supportive as you can be. It will take you all a while to get used to all the changes.
Good luck and just keep in mind that it could be worse. There are many things much worse than this.
Try to be as understanding as possible with him. Know that he is going through much more than you right now, although you and your family are going through it too. He has to be concerned that you will get tired of things and want out. Just be reassuring and as supportive as you can be. It will take you all a while to get used to all the changes.
Good luck and just keep in mind that it could be worse. There are many things much worse than this.
Kirstine
02-21-2005, 06:57 AM
I would never leave him, I married him and that is that, in sickness and health and all that in fact I am wanted to renew our vows this year more for him really so he knows I mean what I say -and of course I get a new dress!- I wanted him to know I am here for the duration. He gets so frustrated with life and not being able to do things and when he does being creamed crakered for days after, he has to learn from his own mistakes I am finding, as other wise all I am doing is telling him what to do and what not to do, I have to choose my words so carefully sometimes incase I upset him. We have a six year old who is an Angel she doesn't understand why daddy is off from work she knows he is unwell and that he gets tired, she wants to help with everything, and then there is Taylor our eight week old, I have said this before that he came from Heaven to put a smile back on my hubbys face, I fell pregnant in April and he stated to get numbness in May so Taylor was meant to be because if my Hubby couldn't work and I was not pregnant I would have stopped trying and gone to work my self, but I was meant to be pregnant and we were meant to have him, he is a true gift I can tell you.
I do look at my life and think how lucky we are we have two healthy children and each other, a house a car and on top of that we have our families too. We are two pretty lucky people, and I love him so much.
Kirstine xxx
I do look at my life and think how lucky we are we have two healthy children and each other, a house a car and on top of that we have our families too. We are two pretty lucky people, and I love him so much.
Kirstine xxx
shaddow
02-23-2005, 06:04 PM
hi i am new to all this :confused: i have seen a neurologist and am having mri on march 16.- 8 years ago then 5 years later i had vertigo very bad. i could not walk without either falling or crashing into things. was sick just from the movement on tv. Now i have pins/needles in hands /feet numb toes and side of leg is odd. Footfall, choking, terrible memory loss, pain in neck. severe back pain, voice pitch change, terrible headachs, arms ach and tiredness. my husband does not think i have ms and thinks i am obsessed with the ida. well i am convinced i do. anyone got any other ideas what this might be other than ALL IN MY HEAD SYNDROME!! :rolleyes:
Arraicha
02-23-2005, 10:53 PM
Hi! Well, MS has to do with brain lesions, so technically speaking it is "all in your head" ;). But I know what you mean. Neurological conditions are so difficult to diagnose and cause problems from such a distance that it can take forever before you know what's wrong. And in the meanwhile, you're frustrated and scared.
As for what it could be, it's a long list! Neurological conditions are all so very much alike and so unknown.
I hope you get answers soon and let us know how you're doing!
As for what it could be, it's a long list! Neurological conditions are all so very much alike and so unknown.
I hope you get answers soon and let us know how you're doing!