DetroitGyrl2005
02-17-2005, 12:13 PM
I am new please help! This may be a bit long but please bare with me!
About 8 years ago I fell and hurt my right side. I didn't go to the doctor and see if I hurt anything.. Just 2weeks ago I was experiencing Numbness, Tingling, and Clumsiness. It has gotten worse. My family members would ask me something and I look at them with a blank stare. I would be very confused about what they asked me. I am usually sharp at asking questions. Then the numbness and tingling went from my legs and feet to the trunk of my body and face. Oh and they headaches a just unbearble at times!!!Sometimes I would have sharp pains in my chest to my back from breathing. I went to the doctor and my right side isn't functioning correctly. I am dragging my right leg as I walk. One morning I woke up to get my daughter ready for school and I tried to get up and I fell right back down. My waist down was Numb! The numbness has gotten so bad I found myself beating my legs just to try to wake them up. At that point enough was enough. I went to the Er and they ended up keeping me. Its hard to walk at times. My legs sometimes feel so weak that I can't walk. At the hospital they did a MRI AND a CT scan but they came back normal. They don't know why my Arms and legs are numb. My hands shake uncontrolliblity ( Please Excuse the spelling) Its very hard to fall asleep and when I do get some sleep I am very tired still. I can get 10 hours of sleep and wake up very tired! PLEASE HELP!
About 8 years ago I fell and hurt my right side. I didn't go to the doctor and see if I hurt anything.. Just 2weeks ago I was experiencing Numbness, Tingling, and Clumsiness. It has gotten worse. My family members would ask me something and I look at them with a blank stare. I would be very confused about what they asked me. I am usually sharp at asking questions. Then the numbness and tingling went from my legs and feet to the trunk of my body and face. Oh and they headaches a just unbearble at times!!!Sometimes I would have sharp pains in my chest to my back from breathing. I went to the doctor and my right side isn't functioning correctly. I am dragging my right leg as I walk. One morning I woke up to get my daughter ready for school and I tried to get up and I fell right back down. My waist down was Numb! The numbness has gotten so bad I found myself beating my legs just to try to wake them up. At that point enough was enough. I went to the Er and they ended up keeping me. Its hard to walk at times. My legs sometimes feel so weak that I can't walk. At the hospital they did a MRI AND a CT scan but they came back normal. They don't know why my Arms and legs are numb. My hands shake uncontrolliblity ( Please Excuse the spelling) Its very hard to fall asleep and when I do get some sleep I am very tired still. I can get 10 hours of sleep and wake up very tired! PLEASE HELP!
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Kahlia25
02-17-2005, 02:48 PM
You have all the symptoms of M.S. I had the same ones and got the same answers as you......the tests all came back negative. It is a very hard disease to diagnose......I pray that they diagnose yours soon. There are many different meds you can take. I am an RN and I take Beta Seron....a shot every other night...it does not hurt but has stopped those episodes in their tracks. Just hang in there and do NOT give up. Fatigue is a VERY common symptom of MS. I sleep a lot still........Kahlia
DetroitGyrl2005
02-17-2005, 03:08 PM
The sad part is they are getting worse. So how long does it take for something to come up on the MRI and CT scan?
Arraicha
02-17-2005, 04:47 PM
It depends on the person. Most people already have lesions when they get their first MRIs but a small number of people with MS have clear scans. It might take 6 months just like it might take a year.
About the MRIs and the CT scans, did they scan your spine or only your brain? A good number of your symptoms sound like they originate from your spine. Also, have you seen a neurologist specialised in MS? Getting diagnosises are long and difficult, so the more knowlegeable the doctor, the better care you will get.
I hope you can get answers soon! Good luck!
About the MRIs and the CT scans, did they scan your spine or only your brain? A good number of your symptoms sound like they originate from your spine. Also, have you seen a neurologist specialised in MS? Getting diagnosises are long and difficult, so the more knowlegeable the doctor, the better care you will get.
I hope you can get answers soon! Good luck!
VECTRA
02-17-2005, 07:12 PM
HELLO DETROITGYRL !! THE HARDEST PART IS THE WAITING AND WONDERING. I HAVE TO AGREE WITH ARRAICHA,GET YOURSELF A GOOD NEUROLOGIST. TRY NOT TO WORRY YOURSELF TO MUCH.I KNOW ITS EASIER SAID THAN DONE,BUT YOU HAVE TO.YOU'VE GOT A LOT OF GOOFY THINGS HAPPENING BUT YOU CAN MAKE IT.WHEN I READ THE THINGS YOU'VE GONE THROUGH AND GOING THROUGH IT REMINDED ME OF MYSELF,I'VE HAD MS FOR ELEVEN YEARS AND STRANGE THINGS STILL HAPPEN.I GUESS I'LL NEVER GET USE TO ANY OF THIS,BUT I'VE LEARN TO HANDLE THEM DIFFERENTLY.I USE COPAXONE AND ITS HELPED A LOT.HANG IN THERE OK :wave:
DetroitGyrl2005
02-17-2005, 08:44 PM
Well they supposeably did brain and MRI. But my doctor for some reason is still not convinced. I have to see a neorologist on the 17th of March. This is becoming very long and drawn out. I hope to find something out B4 it is too late
Pam33
02-18-2005, 04:00 PM
The sad part is they are getting worse. So how long does it take for something to come up on the MRI and CT scan?
YOUR MRI MIGHT CONTINUE TO BE CLEAR FOR YEARS, JUST KEEP AT IT, KEEP NAGGING YOUR DOCTORS, AND IF ONE WONT DIAGNOSE, FIND ANOTHER NEUROLOGIST, KEEP HAVING THEM TEST YOU AND GIVE YOU MRI, I BEEN DIAGNOSED FOR 5 YEARS NOW, i HAVE OVER 12 LESIONS ON MY BRAIN BUT ONLY 3 OR 4 MAJOR EPISODES IN THE PAST 5 YEARS, SO YOU SEE MS IS SO HARD TO PREDICT BECAUSE YOU CAN HAVE A MILLION LESIONS AND NO SYMPTOMS BUT YOU CAN ALSO HAVE A MILLION SYMPTOMS AND NO LESIONS, GOOD LUCK AND KEEP GETTING DIFFERENT OPINIONS
YOUR MRI MIGHT CONTINUE TO BE CLEAR FOR YEARS, JUST KEEP AT IT, KEEP NAGGING YOUR DOCTORS, AND IF ONE WONT DIAGNOSE, FIND ANOTHER NEUROLOGIST, KEEP HAVING THEM TEST YOU AND GIVE YOU MRI, I BEEN DIAGNOSED FOR 5 YEARS NOW, i HAVE OVER 12 LESIONS ON MY BRAIN BUT ONLY 3 OR 4 MAJOR EPISODES IN THE PAST 5 YEARS, SO YOU SEE MS IS SO HARD TO PREDICT BECAUSE YOU CAN HAVE A MILLION LESIONS AND NO SYMPTOMS BUT YOU CAN ALSO HAVE A MILLION SYMPTOMS AND NO LESIONS, GOOD LUCK AND KEEP GETTING DIFFERENT OPINIONS
Pruedence
02-19-2005, 11:23 AM
I don't know if this will help, but I had the same symtoms before I was dxed with MS. I have been dxed for 30yrs now. So back then, there was no MRI...just testing that lead to nothing. I went on for 3yrs with all the symtoms you have mentioned with no dxes. THen I lost sight in my right eye from optic neuritis...still no sight in the eye..ms damaged my optic nerve. Well, after that I was dxed with MS...back then optic neuritis was a for sure dxes for MS. I know it is a long and scarey road when you don't know what is going on. Even with my dxes with the MS it is hard. I can only hope that what I have shared with you will help in some way. I wish you well, god bless...
Kimberlee Jones
Kimberlee Jones
tc12346
02-19-2005, 02:31 PM
I thought I had ms cause my muscles were so sore. When I woke up I felt like I just did aerobics. Couldn't turn my head it was so stiff. Headaches, ibs, dry skin, sinus problems, fogginess, achey muscles, and asthma. I'm here to share what I have found that cleared me up. I read about candida. Some doctors misdiagnose people and say they have ms when they just have candida buildup.
{REMOVED}
This really helped me and hope it helps you.
I am not kidding...
{REMOVED}
This really helped me and hope it helps you.
I am not kidding...
DetroitGyrl2005
02-28-2005, 09:27 PM
I got my blood test back the other day. Why is it every time I bend my neck I get this strange pain that shoots from the back of my neck and down my back!!!! :confused:
darith
03-01-2005, 10:15 PM
Hey, just found this board today.
My tests came back negative for 3 years (1995-1998), not to mention being missed dx for 11 years (1984-1995).
Many years (8) before I was dx with MS, I went to my family dr because every time I bent my head forward.......I felt tingling (more like an electrical shock) down my neck and into my calves. He said there was nothing in the medical books & I should go for counseling (hypocondryate (sp?)) So I did & they told me to keep going back to the dr because I was normal. During my 1st visit to the MS Clinic they reviewed my medical records......turns out I wasn't nuts.....they traced symtoms back 15 years.........I talked to them out the above and if I remember correctly, they said it was a symtom of MS and should have been looked into not blown off. Have only had this a few times in the past 20 years.
1984 - 30 yrs old.....symtoms started & continue....fatigue, restless sleep,
nothing major except:
1989 - tingling (more like an electrical shock) down my neck and into my
calves
1995 - Optic Neurvitis (sp?) Sharp pain over left eye...no sight(only grey)
after 4 days...saw eye dr, he sent me to Neurologist same day
Next day I was taking 5 days of IV prednizone treatment at the
hospital...within 6 weeks, I had all my vision back.
Neurologist continued sending me for MRI's & MS Clinic, MRI's & Spinal
Tap kept coming back negative.
1997 - Numb from waste down & thru the centre of my body lasted 6 weeks
tests still negative.
1998 - Tested possitive for MS
2000 - Relapse.....Numbness returned for 6 weeks. Left knee continues to
be numb, everything seems to last 6 weeks with me.
2002 - Listed as in remission......
2005 - So far so good....I live a normal life, raised my 2 children, work full
time. Am on no med's. I count myself lucky everyday.
Tips: Get rid of all the stress in life
Get lots of rest.......housework will always be there (a hard one for
me the clean freak), I've learned to close my eyes
Exercise in moderation, if it takes more than 15 minutes to recoup,
you've done to much
Eat healthy....reduce starch intake.
Attitude is everything............Life is great, enjoy!!!!
My tests came back negative for 3 years (1995-1998), not to mention being missed dx for 11 years (1984-1995).
Many years (8) before I was dx with MS, I went to my family dr because every time I bent my head forward.......I felt tingling (more like an electrical shock) down my neck and into my calves. He said there was nothing in the medical books & I should go for counseling (hypocondryate (sp?)) So I did & they told me to keep going back to the dr because I was normal. During my 1st visit to the MS Clinic they reviewed my medical records......turns out I wasn't nuts.....they traced symtoms back 15 years.........I talked to them out the above and if I remember correctly, they said it was a symtom of MS and should have been looked into not blown off. Have only had this a few times in the past 20 years.
1984 - 30 yrs old.....symtoms started & continue....fatigue, restless sleep,
nothing major except:
1989 - tingling (more like an electrical shock) down my neck and into my
calves
1995 - Optic Neurvitis (sp?) Sharp pain over left eye...no sight(only grey)
after 4 days...saw eye dr, he sent me to Neurologist same day
Next day I was taking 5 days of IV prednizone treatment at the
hospital...within 6 weeks, I had all my vision back.
Neurologist continued sending me for MRI's & MS Clinic, MRI's & Spinal
Tap kept coming back negative.
1997 - Numb from waste down & thru the centre of my body lasted 6 weeks
tests still negative.
1998 - Tested possitive for MS
2000 - Relapse.....Numbness returned for 6 weeks. Left knee continues to
be numb, everything seems to last 6 weeks with me.
2002 - Listed as in remission......
2005 - So far so good....I live a normal life, raised my 2 children, work full
time. Am on no med's. I count myself lucky everyday.
Tips: Get rid of all the stress in life
Get lots of rest.......housework will always be there (a hard one for
me the clean freak), I've learned to close my eyes
Exercise in moderation, if it takes more than 15 minutes to recoup,
you've done to much
Eat healthy....reduce starch intake.
Attitude is everything............Life is great, enjoy!!!!