im so tierd of this thing that has seemed to be taking over my life for the past year.
It all started with pain in my back and weak/tingly/burning hands and feet. then came the part where the left side of my face felt numb, ringing i my ears, and a strange vibrating weird hard to explain feeling inside my head with dizzinness and a sence of fullness in my ears.i get really tierd and have lots of nightmares and little panic attacks in my sleep. it was surgested by my boyfriend that i get my eyes tested, so i did. in a result that i did need glases. at this point i was suposed to be receiving a letter with a brain scan date on it after much time being messed around and not listend to by my doctor, which really got me down. after a week of wearing my glasses i thought that my eyesight was to blame for it all so i ignored it. that was in september and now its back! im really weak again especially in my left side and i never did receive my brain scan letter. no one believes me! everyone moans and says oh dont start that again. im terrified and feel like screaming. even my own boyfriend doesnt understand and i need him so much. i cant carry onbeing left in the dark. i feel so alone and i just want someone to find out whats wrong and beleive me. the reason im here is after much desperation i decided to do some reasearch myself. and as this thing seems to go away completely and come back out of the blue it led me to ms or cfs. any ideas? does cfs relaps and remit?
im also scared that if it is ms as to what kind of life im going to be left with. but mainly im scared of the fact it might scare my boyfriend off or that he mare be doomed to a life looking after me.

thankyou

mel xxxx

ps. im 19 from nottingham/ uk

Hi Mel

First of all, good for you for doing your own research - it's usually the only way to work out what's wrong.

Have you had routine blood tests to rule out possible causes for your symptoms? Or an ENT specialist about your dizziness? ME/CFS is an illness diagnosed after everything else is excluded.

Also, if your doctor won't listen to you, refer you or send you for tests when you are obviously feeling very ill and frightened - please try getting a new doctor. When the doctor-patient relationship breaks down for whatever reason, finding a new doctor is the best way.

Sorry I can't be of more help.

kiya

Melissa,

Please read the Lyme forum also and look at the symptoms on there, a friend of mine was diagnosed with ME but it's come to light she has Lyme.

i thought u had to have a tic bite to have lyme?

M3lissa. dear ticks can be mircosopcic (SP?), & it can take years to DX that as well, what part of the country to you live in? ~ also, I understand the faimly thing, thinking it was all in your head. So had mine, until I had it in black & white. This was just a few days ago.(for MS) Although, I have had other medical troubles since birth, I was the one that "could always take care of myself". Well, things have changed, & I am amazed on how hard it is for the people around me to just accept it. I know its hard, but I think my Mother most of all feels guilty. You see, we lived on diffrents sides of the Country for about 20 years, I moved to her state to be near her after she was widowed for the second time. I know its hard for two women to live together, but she thought I was lazy, & could not understand my lack of just doing normal things. When just a few short years ago, I was running my own company, going to school (EMT), & volunteer work for the Red Cross. so ya, I lazy, but now we know. Like the others here & your other post, the best thing you can do, is find a MD that is willing to work with you. That may take some time, but it will be worth it in the long run. It took me 4 years at one time, I was driving from RI, back to NY evry month to see my MD. At the time, I did not have insurance, so the doc.s did not have anything to do with me. Once insurance kicked in, I was welcomed with open arms. Now that I am in AZ, I have been lucky to have found a great MD, willing to listen to me, & know when she is over her head to send me to someone who could. Always make a copy of all tests, this is very important in the event you do decide to move, or change MD's. I have found for myself, is I have a great communication with the MD's that are willing to be called by there first names. May sound strange, but it becomes more personal, its a relationship as well. I wish the best of luck to you, & when you do have an answer, it will lift a ton of pressure, & elimanate some of the stress.
~~ Warm wishs for pain free days sent in your direction
Kisa

read about candida. It has saved me. I was so tired and achey also had wicked bad headaches every day sometimes migraine, sinus problems and more. I found out about candida and had so many of the symptoms. I've been on the anti-candida diet for a month now and feel great. Better every day. I want to share this with people that are sick. I went to many doctors and they just wanted to give me pills.