jenn22
02-23-2005, 10:45 AM
Hello Everyone,
Recently I was diagnosed with a molar pregnancy. I've been trying to look up as much information as possible on this subject, and this is really the only messageboard that I have been able to find where I could possibly talk to someone about the condition.
At first, the pregnancy started off normal, morning sickness etc, and then I started bleeding heavily and passing placental tissue and had to be rushed to the hospital. My uterus was much larger than normal, and my HCG levels were at 1.8 MILLION. They performed a D&C and told me I had to come back once a week for bloodtests so they could follow my HCG levels. At first the levels started coming down great, finally ending up in the nineteen thousand range. However, as of last week they have increased again to twenty three thousand, and then as of yesterday to thirty six thousand.
I am currently undergoing chemotherapy treatments because I am at a risk for gestational trophoblastic neoplasia. (where the cells in the uterus begin to multiply and spread like cancer if not taken care of.)
Eventhough I've read that the cure rate of this is about 94-99% I am still petrified on top of greiving the loss of what could have been my first child.
If anyone here is or has gone through this please reply. Any information would be greatly appreciated.
Thank you and God Bless,
Jenn
Recently I was diagnosed with a molar pregnancy. I've been trying to look up as much information as possible on this subject, and this is really the only messageboard that I have been able to find where I could possibly talk to someone about the condition.
At first, the pregnancy started off normal, morning sickness etc, and then I started bleeding heavily and passing placental tissue and had to be rushed to the hospital. My uterus was much larger than normal, and my HCG levels were at 1.8 MILLION. They performed a D&C and told me I had to come back once a week for bloodtests so they could follow my HCG levels. At first the levels started coming down great, finally ending up in the nineteen thousand range. However, as of last week they have increased again to twenty three thousand, and then as of yesterday to thirty six thousand.
I am currently undergoing chemotherapy treatments because I am at a risk for gestational trophoblastic neoplasia. (where the cells in the uterus begin to multiply and spread like cancer if not taken care of.)
Eventhough I've read that the cure rate of this is about 94-99% I am still petrified on top of greiving the loss of what could have been my first child.
If anyone here is or has gone through this please reply. Any information would be greatly appreciated.
Thank you and God Bless,
Jenn
Sponsor
Spanish
02-23-2005, 03:02 PM
Hi Jenn
I haven't been though what you are going through, but I just wanted to let you know that I really feel for you. You are so brave to cope with both a miscarriage and the chemotherapy at the same time. I hope you are able to find some other people who have been through the same experience.
You'll be in my thoughts - take care of yourself, and I truly hope that everything works out ok for you.
Spanish
I haven't been though what you are going through, but I just wanted to let you know that I really feel for you. You are so brave to cope with both a miscarriage and the chemotherapy at the same time. I hope you are able to find some other people who have been through the same experience.
You'll be in my thoughts - take care of yourself, and I truly hope that everything works out ok for you.
Spanish
Zayazmama
02-23-2005, 10:22 PM
Aw hun, I am so sorry that you are going through such an ordeal. I have not been through exactly what you are going through, BUT..... 2 years ago tomorrow, I underwent a D&C for a molar pregnancy. I never had bleeding, but had major MAJOR pain. The doctor determined that the pregnancy had ceased and it was time to remove what was left. I ended up with Bell's Palsy afterwords, which I am sure was nothing more than a coincidence.
The way it was explained to me: A molar pregnancy is when the pregnancy starts, but for some unknown reason, it just stops developing long before anything can be done to help it. I know that is not much explanation, but that is what my doctor told me. It has nothing to do with anything you have or have not done. It, like most miscarriages, just happens.
Again, I am sorry for your ordeal hun. I hope things get better for you soon.
Jen
The way it was explained to me: A molar pregnancy is when the pregnancy starts, but for some unknown reason, it just stops developing long before anything can be done to help it. I know that is not much explanation, but that is what my doctor told me. It has nothing to do with anything you have or have not done. It, like most miscarriages, just happens.
Again, I am sorry for your ordeal hun. I hope things get better for you soon.
Jen
momuv3roses
03-08-2005, 12:59 PM
I am also very sorry , I know this is a very hard time for you and your family. I went through the same thing 4 years ago, I did not undergo chemo. I had 2 d&c' s I was bleeding very bad after the first one. I hated having to wait to try another pregnancy. But a friend of mine did and the treatment was very successful and she has a beautiful 2 year old girl now. I have since had 2 healthy pregnancies. There used to be a support group site and that is where I met my good friend. I think they moved it to the angelnetwork. Good luck to you getting through this trying time and it is very difficult to find reliable info. If I find anything I will pass it along.
Molly20
03-21-2005, 02:39 AM
Oh my gosh! I have been SEARCHING for someone to "talk" to about the loss of my baby due to a molar pregnancy - it has taken a year and finally someone who truly knows the pain! Thanks for sharing. I was 18 weeks along in my 3rd pregnancy - and though I had pretty severe morning sickness with my first 2 babies it was nothing like this. I finally ended up on Zofran - a very expensive drug apparently prescribed to chemotherapy patients because it blocks the nerve center in the brain that stimulates vomiting - and even it didn't help much. My husband and I were told that we could possibly be having twins. We did hear the heartbeat on more than one doctor visit and we were told that everything was "fine", despite how sick I was and the ketones in my urine. Anway - when I finally was able to convince the doc to do an ultrasound early - at 18 weeks - we found out the baby had died. Squished out by the mole/growth. Then I had a D&C and the weekly blood draws until my HCG levels finally did return to zero several months later. I have not been the same mentally since. I feel a piece of me has died...no one I talk to seems to understand...they treat me like - and have even said "just get over it". I am still devastated and have searched for some place to vent my heartbreak. I thank God everyday for the 2 beautiful children I have...but I will never forget the loss of my 3rd child. Thanks for listening!
Ambo
03-21-2005, 07:07 AM
Well Jen and any others who have suffered through this ordeal....I have too. In 1999, what I thought was going to be an exciting time in my life - ended up to be a molar pregnancy. For those of you who don't know, there are two types of molar pregnancies (Hydatidform mole). 1: A full molar pregnancy is when there is no actual baby - the 'grapelike' tumor grows and 'pretends' to be like a normal pregnancy..... HCG levels rise just like a normal pregnancy, you get a belly etc etc. But- if it isn't treated can be fatal as the cells multiply etc etc.
2: The second is pretty much the same but there is actually a baby growing. This is what I had, it's called a 'Partial Molar Pregnancy'. In this case, due to the 'grapelike' tumor that grows and grows.....it kills off the maternal blood supply to the baby and it therefore dies.
My HCG levels didn't drop like they should of after 2x D&C's, so I spent every fortnight in hospital for the night for three months having a low dose of chemotherapy called 'Methotrexate'. (It took this long because I had to have consecutively three HCG levels come back as '0', and it was up and down).You can imagine my concerns about chemo etc, because I knew that one day I would desperatley want to try for another child - and I thought that the chemo would harm the eggs etc. They assured me that it was a very low dose, so it wouldn't have any effect. I wasn't allowed to fall pregnant for at least 12mths afterwards. Although a very emotional time for me (and I'm sure any others out there), I am a strong believer in 'everything happens for a reason'..... and it did. I would be happy to answer any questions from women who have gone through the same.
All I can say for encouragement though is... keep smiling - because it does get easier. You DO feel empty losing a child, and it dosen't make it any easier going through something like this....but it is treatable, and it dosen't effect your chances of concieving again. And even better - if you are scared that you might get another one... my gynae said that "the chance is like having a car accident and smashing into the same tree again!...the chance is minute!"
xox Di. :)
2: The second is pretty much the same but there is actually a baby growing. This is what I had, it's called a 'Partial Molar Pregnancy'. In this case, due to the 'grapelike' tumor that grows and grows.....it kills off the maternal blood supply to the baby and it therefore dies.
My HCG levels didn't drop like they should of after 2x D&C's, so I spent every fortnight in hospital for the night for three months having a low dose of chemotherapy called 'Methotrexate'. (It took this long because I had to have consecutively three HCG levels come back as '0', and it was up and down).You can imagine my concerns about chemo etc, because I knew that one day I would desperatley want to try for another child - and I thought that the chemo would harm the eggs etc. They assured me that it was a very low dose, so it wouldn't have any effect. I wasn't allowed to fall pregnant for at least 12mths afterwards. Although a very emotional time for me (and I'm sure any others out there), I am a strong believer in 'everything happens for a reason'..... and it did. I would be happy to answer any questions from women who have gone through the same.
All I can say for encouragement though is... keep smiling - because it does get easier. You DO feel empty losing a child, and it dosen't make it any easier going through something like this....but it is treatable, and it dosen't effect your chances of concieving again. And even better - if you are scared that you might get another one... my gynae said that "the chance is like having a car accident and smashing into the same tree again!...the chance is minute!"
xox Di. :)
Ambo
03-21-2005, 07:14 AM
I forgot to add, I started getting awfully bad morning sickness at about 4.5wks (a sign is early morning sickness), followed by abdominal cramps (felt very similar to bad 'wind' pain) at about week 7. At week 8, I went to my doctor who thought it was nothing - but sent me for a ultrasound anyway - and they discovered that there was no heartbeat and that the baby had died at 7wks (when I first got the pain). I had no bleeding at all.
Molly20
03-22-2005, 12:51 PM
Yes - I had awful morning sickness, as I stated before. I could barely function - but of course had to because of the little ones (2 & 4 at the time) that I already had at home to take care of. On one occasion I ended up in the ER for IV fluids - was only there about an hour and when we were just about to pull out of the hospital parking lot, my husband had to pull over so I could throw up in the flower beds! I was very SICK!
BUT - everything "seemed" fine to the doctor. I had no bleeding or unusual cramping and the baby's heartrate was normal on several occasions. I was told that it is rare to have made it to 18 weeks without having some other symptom (other than the severe nausea/vomiting) that would have indicated there was a "problem" with my pregnancy. I was nearly half way through my pregnancy...which I think added to my distress. Hearing that heartbeat "connected" me more to that baby, just as it had in my first two pregnancies. I am very fortunate that I did not have to endure the chemo that you others have - the cancer "scare" and weekly blood draws was enough to deal with. I wish only the best to all of you and SO appreciate the sounding board you have all offered me! THANK YOU!
BUT - everything "seemed" fine to the doctor. I had no bleeding or unusual cramping and the baby's heartrate was normal on several occasions. I was told that it is rare to have made it to 18 weeks without having some other symptom (other than the severe nausea/vomiting) that would have indicated there was a "problem" with my pregnancy. I was nearly half way through my pregnancy...which I think added to my distress. Hearing that heartbeat "connected" me more to that baby, just as it had in my first two pregnancies. I am very fortunate that I did not have to endure the chemo that you others have - the cancer "scare" and weekly blood draws was enough to deal with. I wish only the best to all of you and SO appreciate the sounding board you have all offered me! THANK YOU!
Cora28
04-03-2005, 07:30 PM
Jenn,
I know exactly how you feel. I went to the doctor on Febraury 3rd for our first ultrasound. We were so excited, especially since this was to be our first child. The ultrasound specialist blurted out, "I can't find a gestational sack." The she left. Finally a doctor returned to tell us we had a miscarriage. I had D&C three days later. Two days after that, the doctor called to let us know it was a molar pregnancy. I had none of the signs of a molar pregnancy. I had no morning sickness, no discharge or bleeding, my HCG levels were normal for a person 7 weeks pregnant (21,000), and my uterus was small. I was angry, mad, confused, and really scared. I had to go to have my levels tested for 4 weeks until my HCG levels dropped to 0. I now have to go to the doctor every month for 6 months to make sure my levels stay at 0. This a confusing, tormenting time. I know you must feel so heartbroken. I think only time can heal this, but that is the worst part. The waiting, the endless waiting. My doctor said there is no real reason for why this happens, it just does. She too said that the chances of this reoccuring are very, very small. I am hopeful, but right now I am still scared. Living through something like this must be the worst part. Hopefully you and I and all the others out there like us will have that baby we so desire. I hope your future holds nothing but happiness.
Cora
I know exactly how you feel. I went to the doctor on Febraury 3rd for our first ultrasound. We were so excited, especially since this was to be our first child. The ultrasound specialist blurted out, "I can't find a gestational sack." The she left. Finally a doctor returned to tell us we had a miscarriage. I had D&C three days later. Two days after that, the doctor called to let us know it was a molar pregnancy. I had none of the signs of a molar pregnancy. I had no morning sickness, no discharge or bleeding, my HCG levels were normal for a person 7 weeks pregnant (21,000), and my uterus was small. I was angry, mad, confused, and really scared. I had to go to have my levels tested for 4 weeks until my HCG levels dropped to 0. I now have to go to the doctor every month for 6 months to make sure my levels stay at 0. This a confusing, tormenting time. I know you must feel so heartbroken. I think only time can heal this, but that is the worst part. The waiting, the endless waiting. My doctor said there is no real reason for why this happens, it just does. She too said that the chances of this reoccuring are very, very small. I am hopeful, but right now I am still scared. Living through something like this must be the worst part. Hopefully you and I and all the others out there like us will have that baby we so desire. I hope your future holds nothing but happiness.
Cora
cola
04-09-2005, 02:30 PM
After three trys at donated frozen embryo transfers, it finally worked! We couldn't believe our eyes at those 2 beautiful pink lines on the home preg test (while waiting for the blood test to come back.) I had a little scary spotting that went away, and had an ultra sound a week later which was week 7. The doctor was so kind as he informed us that he wasn't seeing what he should be seeing and to get dressed and meet him in his office to talk
It took everything in my power not to cry there, maybe I thought if I let it come out, I wouldn't be able to stop it. The confusion only sped up when he scheduled the DNC for the next morning to "get it out of me, and take care of this serious mater." Anyway, that was our horrlble way of learning that A) We'd lost our little miracle baby and B) We had a freaky Molar pregnacy.
It's still sureal and my first Dr. appointment is Mon. to find out my HCG levels.
I know God has a plan for us all, but I truely thought mine was motherhood.
Good meaning people say "Oh, you can always try again" That just feels like slapping a band-aid on a missing hand.
This does feel better just writing about it. Thanks for listening
Cola
It took everything in my power not to cry there, maybe I thought if I let it come out, I wouldn't be able to stop it. The confusion only sped up when he scheduled the DNC for the next morning to "get it out of me, and take care of this serious mater." Anyway, that was our horrlble way of learning that A) We'd lost our little miracle baby and B) We had a freaky Molar pregnacy.
It's still sureal and my first Dr. appointment is Mon. to find out my HCG levels.
I know God has a plan for us all, but I truely thought mine was motherhood.
Good meaning people say "Oh, you can always try again" That just feels like slapping a band-aid on a missing hand.
This does feel better just writing about it. Thanks for listening
Cola
Cora28
04-24-2005, 10:29 AM
cola
My heart goes out to you. Maybe God does want us to be mothers, but he just has his own timing. It is so hard to hear everyones advice. They offer their opinions, but they have no idea what the pain feels like. I just want you to know I understand. I have no false advice to offer, just my own understanding of your extreme pain. Only God can get us through this. I hope your future hold much happiness.
Cora28
My heart goes out to you. Maybe God does want us to be mothers, but he just has his own timing. It is so hard to hear everyones advice. They offer their opinions, but they have no idea what the pain feels like. I just want you to know I understand. I have no false advice to offer, just my own understanding of your extreme pain. Only God can get us through this. I hope your future hold much happiness.
Cora28
smurphy_78
06-25-2005, 01:58 AM
I too have recently had a molar pregnancy. I have to do weekly 24 hour urine samples to test my hcg levels. I am lucky enough to say that my levels are drecreasing each week and have been quite rapidly, they have gone from in the millions to 155 in 2 months. I am wondering if anyone can answer a question. As i just mentioned my levels have dropped rapidly each week, however the last week they only dropped 15. Is this normal to slow down so much?
Jenn i wish you all the luck in the world with your treatment, i really do.
I also wish everybody else luck who is going through the same thing!!
Jenn i wish you all the luck in the world with your treatment, i really do.
I also wish everybody else luck who is going through the same thing!!
kerry1
06-25-2005, 06:37 PM
My friend's daughter just lost a pregnancy that way. She grieved as much as if it were a real baby. It was real to HER. She had already picked names and started shopping for it. She had surgery to remove some abnormal cervical cells & I think she's going to be OK. She already has one healthy child.
I think what happens is that when mother and father's DNA combine, the mother's DNA dies and only the father's genes start replicating. Since this can't create a baby, it creates a bundle of abnormal cells, but with all the regular signs of pregnancy.
All I can say of comfort is that its NOBODY'S FAULT that this happens. It's just one of those weird things.
I think what happens is that when mother and father's DNA combine, the mother's DNA dies and only the father's genes start replicating. Since this can't create a baby, it creates a bundle of abnormal cells, but with all the regular signs of pregnancy.
All I can say of comfort is that its NOBODY'S FAULT that this happens. It's just one of those weird things.
Cora28
07-05-2005, 05:00 PM
smurphy78
I am sorry to hear about your recent molar pregnancy. It is awesome to hear your levels have dropped so quickly!! It is normal for them to slow down they closer you get to 0. They have less to drop so it goes a little slower. It doesn't help for that to happen, because I remember all I wanted was for my levels to drop to 0 so quickly. I remember I started at 21,000 and dropped to 178 in a few weeks. I thought I would be at 0 in no time. But then it slowed for me too. One week I was at 33, then it was 17, then it was 9, and finally it was 0. I finally made it! You will get to 0 soon and that will be a great day! I wish you all the best as you heal, and I hope one day soon you will have a little baby!
Cora 28
I am sorry to hear about your recent molar pregnancy. It is awesome to hear your levels have dropped so quickly!! It is normal for them to slow down they closer you get to 0. They have less to drop so it goes a little slower. It doesn't help for that to happen, because I remember all I wanted was for my levels to drop to 0 so quickly. I remember I started at 21,000 and dropped to 178 in a few weeks. I thought I would be at 0 in no time. But then it slowed for me too. One week I was at 33, then it was 17, then it was 9, and finally it was 0. I finally made it! You will get to 0 soon and that will be a great day! I wish you all the best as you heal, and I hope one day soon you will have a little baby!
Cora 28
kyrah19
07-08-2005, 12:13 AM
hey jenn22 my name is kyrah i know what u r goin through i went through the sme thing twice i lost two kids to it.it is so hard to find anyone to understand what im goin through if they havnt been through it would be nice to talk to someone who knows how it feels i hope o hear from u soon bye :angel: