lizzy leigh
05-18-2003, 01:20 PM
my grandmother has recently found out that she has a very rare form of leukemia....cll t-cell prolymphocytic. from the information i have gathered it looks as if she may only have six months left here with us. the only treatment that may help prolong things a little is capath. i am wandering if anyone knows anything about this rare cancer they could share with me..?? any info would be much appreciated.
thank you.... :)
thank you.... :)
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mgross
08-28-2003, 02:45 PM
Hi Lizzy,
Not many folks with this one. My wife has T-PLL and is currently undergoing treatment with Campath for the second time. In 2001 she experienced a complete remission that lasted 21 months, and is now responding to a second treatment. Campath seems the best bet.
Has your grandmother started Campath treatment yet? The treatment can be rough, but I understand there is a protocol for Sub-Q (injections rather than infusions) that is not so hard on most folks.
T-PLL is nasty, but Campath is a remarkable way to buy time, and I'm told that's important, as new things are constantly in the pipe...
Mark
Not many folks with this one. My wife has T-PLL and is currently undergoing treatment with Campath for the second time. In 2001 she experienced a complete remission that lasted 21 months, and is now responding to a second treatment. Campath seems the best bet.
Has your grandmother started Campath treatment yet? The treatment can be rough, but I understand there is a protocol for Sub-Q (injections rather than infusions) that is not so hard on most folks.
T-PLL is nasty, but Campath is a remarkable way to buy time, and I'm told that's important, as new things are constantly in the pipe...
Mark