i had an eye ecclusion and optic nerve swelling since last august, the swelling is still there in my optic nerve and my eye vision has been totally restored (except i see a few floaters now) a blood panel test was done , only thing that came back positive was ANA test, and rhematolgist say i dont have enough symptons for lupus or rhematoid arthitis.....i've been getting lots of twiching all over my body lately and have had excess mucus in my throat,i also had extreme fatigue when the occlusion happen and still have fatigue though not as bad,also my arms go numb while i sleeping and wakes me up. my hands seem to twitch a little and arms and legs as well.the doctors can't diagnose anything........anyone out there ever had anything similar? im only 22 years old

trust1 - Hi. I'm not sure what an eye occlusion is,could you tell me in regular words as I'm not familiar with medical terms...ANA,occlusion,swollen optic nerve...Were these problems visible to you or anyone else - like maybe sores or eye color or bumps- I'm fishing. Was your problem something that was not visible to a regular person who would look at your eyes ? Sorry that you're having problems like that. I can't associate body twitching with eye problems because I've never heard of that. I really would like to know. Do I misunderstand the problem ? I know there are many people on here smarter than me about a lot of stuff so don't get discouraged because they will visit your site I'm sure of that. EgyptKaren

i had an eye ecclusion and optic nerve swelling since last august, the swelling is still there in my optic nerve and my eye vision has been totally restored (except i see a few floaters now) a blood panel test was done , only thing that came back positive was ANA test, and rhematolgist say i dont have enough symptons for lupus or rhematoid arthitis.....i've been getting lots of twiching all over my body lately and have had excess mucus in my throat,i also had extreme fatigue when the occlusion happen and still have fatigue though not as bad,also my arms go numb while i sleeping and wakes me up. my hands seem to twitch a little and arms and legs as well.the doctors can't diagnose anything........anyone out there ever had anything similar? im only 22 years old

Hi trust1, you've described my symptoms exactly. What kind of treatment did you get for your occlusion? On any drugs? And what kinds of tests have you had (lab/imaging)?

Causes of an eye occlusion are hard to detect especially for one your age. It is an exclusionary process to find out the exact cause because.
With optic nerve involvement, MS needs to be ruled out as well. Even with the twitching that I have, all MRIs have come back negative. I'm told it may take years to find the exact cause.

In the meantime, I am struggling with all the symptoms and chronic pain.

At the moment I am using melatonin at night to help get sleep. I can use 1 mg up to a max of 10 mg. Also, Doc says to use some slow-magnesium. I too have the excess mucus and also dryness--if you can believe that the two exist together, but they do.

Look at these conditions: Sjogrens Syndrome (Was your Ana positive speckled or homogenous?); Wegener's Granu....(Have you had an ANCA TEST?) ; Sarcoidosis (Did you have a chest xray?) ; Diabetes; Fibromyalgia; MS; Hypertension (watch your blood pressure); Antiphospholipid Syndrome; and of course, Lupus. At this moment I cannot think of any others that my doctor took tests to rule out. But you might also want to have your thyroid checked. That can go haywire when you have an autoimmune condition.

Hope this helps!

The twiching just started within the last two weeks or so, never had twiching before that, and like I said the occlusion and swollen was noticed in august. I'm not sure if I was tested for MS or not, The mucus thing is after i eat or in the morning while showering(they are saying maybe slight acid reflux) I had this since about october...

My ANA tested was both speckled and homogenous (had both forms) No chest x-ray and I haven't seen a neuro yet. Rhematalogist can't rule anything so far on my symptoms and he told me it could take years to find out what it is.I've looked at all of these things on the web, its hard to rule out all of them or say that you do have them....the random blurry vision/foggy in each eye started occuring in about 2 months after me occlusion/eye hemmorage. It seems as time goes on I get symptoms but not pointing towards anything, these nerve twitchings are weird I get'em all over my body even in my stomach twiching goes on. I saw a neuro about 2.5-3 years ago before i had any symptoms related to my eyes about pain in my shoulder/arm and he said im a possible thorasic outlet syndrome(which still bothers me today) im not sure if all this is related or not but its nice to find someone else w/similiar symptoms to go on..

Yes, I agree it is nice to be able to chat with someone else who is experiencing these unusual symptoms.

A rare disorder is called Susac's Syndrome. The key to this is a Branch Retinal ARTERY Occlusion. If the artery is occluded you can have lots of problems and there is treatment for it but if not taken care of, it can have residual effects (dementia and hearing loss). Next time you see your Eye MD, ask him/her to verify if the occlusion is an artery or a vein. IF artery show him Susac's Syndrome. There is a post on the MS board, probably in the archives, that describes the symptoms. Just an FYI.

On the fibromyalgia board, see the post "Fibro and Tremors." Two board members, Spotty and SuzU each have tremors too.

My occlusion was discovered in the Spring and by Winter, the tremors/jerks generated.

Keep posting so we can keep up on each other. Cal Sun :cool:

I've asked that question to them before and they said its a little of both, but not a complete......hard to say he say it looked like sheathing . I'll see if they can clarify more next appt....same here for tremors...had occlusion just before fall, and got the tremors just before spring....my eyes seem dry in the morning and I use systane , if I dont they seem to burn....this wasn't like that when I first had the occlusion but has started recently....driving me nuts! :eek:


do you have the random blurry/spotty/foggy vision in each eye? The doc say my right eye looks fine, but I get the blurry/spotty/foggy vision every day or two that I can blink away in 15 seconds or so....

do you have the random blurry/spotty/foggy vision in each eye? The doc say my right eye looks fine, but I get the blurry/spotty/foggy vision every day or two that I can blink away in 15 seconds or so....[/QUOTE]

What you described above is due to the hemorrhaging. A tip I was given by an expert specialist was to sleep with my head elevated. He wanted me to sleep upright, if possible. That seemed to help reduce the fogginess some in the morning. What is happening is that when you move or lay down, the blood moves around and blurs your central vision. When you are still, and upright, it won't be as foggy. That's what the expert specialist told me.

And, there are times when I have to blink to get them to clear. I usually have to wash my eyes and administer some drops too. I think this happens due to the dryness. Sometimes when they are real dry, they sting and it feels like something scratchy on my upper lid. Lovely, isn't it!

yes, some mornings i wake up they are fine, some mornings they feel dry and stingy/burning...saw a neuro-optha too and he says no need to see him just continue to check in w/my retina specialist. Yes I get blurry vision in both eyes, randomly throughout the day, somedays i may not get it and it happens in both eyes but not at the same time. Sometimes when I first wake up it seems like my vision is foggy but its not foggy/blurred like when I get the random ones, just more like hazy....they did a tear drop test and said I had more then enough to keep my eyes moist......seems strange, but once i get my day started my eyes are usaully fine for dryness, its just in the morning they "feel dry" maybe its something else, but it feels better once i use systane.