mtm9138
03-03-2005, 06:57 PM
hi! My name is Barbie and i'm 23years old. I hope this is the right board. Please forgive me if it isn't. I'm hoping someone on here will be able to help me. I have been having some very strange symptoms that at first were believed to be cardiac related and now they are believed to possibly be related to a neuro problem. Also they thought at one time that i might have lupus, but that has now been ruled out. Anyway my symptoms are as follows: little sores on my scalp that itch, my right side of my jaw and neck down my right shoulder/arm and hand go numb and tingle. Not constantly but it comes and goes and occasionaly the numbness shoots across my entire jaw :(. I was admitted to the hospital on Monday night because my arm was tingling and my arm was modeled (purple in color with white blotches) from my wrist to my upper arm, my hand was red and swollen, but my finger nails were very cyanotic(blue), yet my o2 level was reading 100%. They kept me in the hospital and ruled that this was being caused from a cardiac standpoint ( i had to have a cardiac ablation in june due to episodes of SVT) and i was diagnosised with Neurocardiogenic syncope in Jan. Now the neurologist that i saw in the hospital on tuesday said this could just be my autonomic nervous system in overdrive, it could be a pinched nerve/blood vessel at the c2 or higher lever, a begnin tumor or it could even be "demylination disease" which is what MS is. also i should mention to you that i have had 2 "slightly" positive ANA's and 2 "slightly positive" rheumatoid factors. I also have a b12 defiency and my thyroid is "borderline low" If anyone has any info or anything i would greatly appereciate it. thank you all so much for reading this i know it was kinda long and for that i appologize.
thank you so much!
barbie :confused:
thank you so much!
barbie :confused:
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Jewel2
03-03-2005, 07:39 PM
Hi Barbie,
You are right. B12 deficiency can cause some of your symptoms as can hypothyroidism. These are easily treated, so ask your family doctor about these problems.
You should post your question on the Reflex Sympathetic Dystrophy board, as a lot of your symptoms fit with it. It is a malfunction of the sympathetic nervous system, which is part of the autonomic nervous system. I have RSD, and my hand and wrist were discolored.
You need to be pro-active and get the necessary tests to rule out or confirm some of the possibilities your neurologist suggested. And MRI and a lumbar punture are good (but not foolproof) tests for MS.
Make sure you are keeping an accurate journal of symptoms. Someday all of the pieces of the puzzle will come together.
Best wishes,
Julie
You are right. B12 deficiency can cause some of your symptoms as can hypothyroidism. These are easily treated, so ask your family doctor about these problems.
You should post your question on the Reflex Sympathetic Dystrophy board, as a lot of your symptoms fit with it. It is a malfunction of the sympathetic nervous system, which is part of the autonomic nervous system. I have RSD, and my hand and wrist were discolored.
You need to be pro-active and get the necessary tests to rule out or confirm some of the possibilities your neurologist suggested. And MRI and a lumbar punture are good (but not foolproof) tests for MS.
Make sure you are keeping an accurate journal of symptoms. Someday all of the pieces of the puzzle will come together.
Best wishes,
Julie
mtm9138
03-03-2005, 07:49 PM
thank you i will post on the other board also. hopefully we find something out soon. Even though i'm a Rn i never really thought to write down my symptoms in a journal type manner. thanks.
Bob A
03-08-2005, 11:44 PM
Hi!
Have you ever had any traumatic accidents? SOME OF YOUR SYMPTOMS DO OF COURSE SOUND LIKE RSD.
Have you ever had any traumatic accidents? SOME OF YOUR SYMPTOMS DO OF COURSE SOUND LIKE RSD.
feelbad
03-09-2005, 10:58 AM
I agree with the RSD theory.This is what first popped into my head while reading through your symptoms.Do some research n the signs and symptoms of RSD and see how your symptoms compare.Marcia