So, I got my biopsy results from the doc yesterday. The ECC came back negative, so that's good. The biopsy though came back as CINII (it was I about 6 months ago)-moderate dysplasia and the low-grade lesion is now a high-grade lesion. :eek:

A LEEP has been scheduled for March 24th and my doc does not allow people to be awake during the procedure because some people can not mentally handle it though the pain is minimal. That makes perfect sense to me, I don't need to see, feel, or hear what's going on. I'd rather take a nap and wake up and be done.

I feel like I'm being really calm about this but I can feel myself starting to get upset and nervous (it's only just now starting to sink in I guess).

If anyone has words of wisdom or support I'd love to talk to you. :)

Hi there :wave: In 2003 I was diagnosed with CIN III and scheduled for LEEP in Dec 2003. I was awake during the procedure and it was fine. I experienced no problems after the LEEP - just some pinkish discharge but nothing too bad. I understand how nervous you are about this but please don't be. I am such a worrier and felt a bit silly for worrying so much about the procedure as it wasn't as bad as I thought it would be. You are going to be asleep which is even better. You will drift off and when you wake up you'll be all done and it's over with. I had my first follow-pap 6 months after the LEEP and it was all clear. I then had another follow-up 6 months after that and it recently came back all clear as well. I am sure you will experience the same. When I was going throught the whole "waiting for LEEP" period, I was really upset and worried so I completely understand how you are feeling. Trust me, everything will be fine - you will get through this. I will be thinking of you March 24th. In the meantime, take it easy and pamper yourself! God bless :angel:

Hi!

I also went under general anaesthetic for my LEEP and it was soooo much better than being awake for it! I've heard horror stories on these boards of people who haven't had enough local anaesthetic and can feel the doctor burning off part of their cervix... I've heard people who've had to have MULTIPLE local anaesthetic injections to their cervix 'cos it wore off (whereas I only had one the ONE needle in my hand! Easy as pie!) and people who have SMELT their own flesh BURNING!

Seriously, when I had my LEEP done, I didn't notice ANYTHING... the doc was talking to me, put a needle in my hand, told me the anaesthetic was going in... then the next thing I knew I was waking up and they were wheeling me to the recovery room! I didn't even remember starting to feel sleepy or anything!!

And afterwards, I didn't feel a thing either!! No pain or cramping anywhere or anytime!!!!!! And I even had some external warts burnt off, so that really should have hurt afterwards, but I seriously never felt anything! Easy as pie! I had CIN II also and I'm scheduled for my follow-up pap in May :)

Good luck, and please don't be scared! I was so scared and cried in the gyno's office when she told me I would need a LEEP (which is also in the branch of procedures called RADICAL SURGERY! EEP!!!) But yes, now I realize it was TOTALLY nothing... in fact, a dermatological fungal infection near my thumbnail is irritating me and annoying me MUCH more than the LEEP ever did!!!!!!!

Just remember any surgery no matter how minor and simple will cause stress. Even if you aren't worried subconsciuosly the mind does amazing things like stress over simple things. Heck a week before mine my heart condition went haywire and I had to go to the ER. Stress can do amazing things when you aren't looking. You will be fine. I went under for mine, I was only at the surgery center for 2 1/2 hrs. That includes waiting to check in everything. Went home had no pain. Try not to stress but remeber itmis normal if you do.

HI ya honey,
I had my LEEP on 14 feb, I was terrified for ages, but when i had it done ( i was awake) I realised the stress was the worrying, not the procedure you are allowed to worry, just dont let it be the only focus you have.

Should I needed a leep I would definetly be awake. I avoid general anesthesia as much possible. Local is okay and one recover more easily when you dont have local anesthesia. Sedatives work very well too. I was at a point semi-awake for my nose plastic surgery and I just thought that was morbid fun to hear the doctor during surgery. Anyways when one has done 5 laser hair removal sessions down there anything else is child's play.

Hi there,

I had a rather large leep 2 weeks ago today. If they are going to put you out, go for the code biopsy right off the bat. This of course is my opinion. I have HPV16, Cryo 20 years ago. 2 years ago, iffy pap, redone came back fine, last year fine, this year carcinoma insutu. Had the leep, results came back - "status difficult to acess due to fragmented nature of detached stroma". Doc says this is common because "the leep cauterizes". Well, that is not acceptable. I am one step from cancer and still won't know for 2 months if she got it all? Go for the cone, it is clean, doesn't burn the tissue and atleast you will know and won't have to wait months. Besides, they use to do cones years ago, the leep is one step between in my opinon. If you do the leep, simply take a Xanex or like prior to, you can handle it. It hurts but I have felt worse! Good luck to you!

Remember though, a cone is a more invasive surgery..with higher risk of complications or issues later on....it takes more out (which is sometimes necessary) but leeps 'took over' because they are able to do a good job while taking the least amount possible....If the ecc is positive they do the cone as well. Also, im not sure what your dr meant by the leep not allowing you to take biopsies to the lab , they loop it off and take that to the lab (so you should have gotten those results / margins etc) , then they cauterize (so yes it can make future readings difficult, but IMO I'd rather do a few repeat paps/colpos etc and avoid cutting part of my cervix out w/ a cone , if possible....

The results of my leep were "margin difficult to acess due to fragmented nature of detached stroma". The doc said because a leep burns, cauterizes, etc. sometimes it is not possible to determine if the margins are clear or not. That is my beef - I have read a number of these posts. In many cases it seems that some of us are having more than 1 treatment, in fact many times, several. I am not sure it going straight to something that may be more invasive, but take care of the problem does not make more sense?

As I said, leep now 3 weeks ago - now 6 weeks until my next pap and nobody can tell me a thing until then.

Susan789-- I am with you...seems like my doc missed my dsyplasia all together with the leep and now have to re-pap in 3-months and start all over.

I opted to have a cold knife cone because of those concerns. I was diagnosed with CIN III and a CKC is usually the best alternative if you have a high grade lesion and you want to know for sure if they got rid of everything (margins are always visible to the pathologist). It takes about 4-6 weeks to completely heal. To me it made more sense to have a procedure that would not only assure an effective treatment but also allow for a certain diagnosis of my lesion.

If my results come back with unclear margins and more dysplasia, I'd go with it as well if my dr recommends it. Hoping I don't have to though. My results should be back next week.....
This does make sense though to get it with the cone...... sigh.

I agree with you KRA...however, it seems that my doctor has missed my lesion/dsyplasia all together. So I would be so horrified if she did a more invasive treatment and missed. Unless that's not possible. I just can't see how it was possible that she did my leep and the part that she removed was healthy. I sit here thinking to myself how can this happen?

tpagm,
Your dysplasia was COMPLETELY missed by your doctor?! I don't know how confident you are about your doctor but I would try to find somebody else. They should stain your cervix right before the procedure to know where to excise. What sometimes happens is that some of the margins are not clear and some of the lesion stays in your cervix but I've never heard of a complete miss!
A cold knife cone treats your dysplasia more aggresively but at least it gives you higher chances of having your condition treated. My friend also had a cold knife cone done and she had clear margins even though she had microinvasive cancer.
As far as running the risk of having a miscarriage if you get pregnat, the chances are only slightly higher than with a LEEP. In fact, there is only a small percentage of women that are at risk of having a miscarriage after a CKC. What can actually greatly increase the risk of one is having to have several procedures to treat your dysplasia.
Hope everything goes well for you. Keep us posted. Good luck!

Well, she told me that the pathologist report came back with no dsyplasia on the part of the cervix that was removed. She said the portion removed was healthy cervix. So my doctor said the dsyplasia could have been burnt from the leep. She said so now we need to go back and find out if there is any dsyplasia left and locate it........this just really aggravates me. It definitely seems like a clear miss cause what are the odds that all my dsyplasia was burnt by the machine? I am sure there is still dsyplasia in me. There is no guarantee that it was even burnt since they can't test the burnt portion. I was diagnoised with CIN 1/2 mild/moderate prior to the leep. I can just scream. I go in on Monday for my office visit and I am just racking my brain for all the possible questions I can ask her. How can this happen? will be my first question. I didn't think this was a possibilty that the whole portion removed was healthy.