I am sitting here at work, im bored, but the fatigue is overpowering me so much that just getting up out of the chair is too hard.
For those who work with Fatigue problems, please, tell me how you get throught the day? I can't take this :(
kiya
03-11-2005, 12:44 PM
Having just prised myself from my chair to do a bit of filing before going home, I can totally empathise. I'm exhausted and my eyes are all watery and achy.
I work part time, so it's not too bad as I have more rest on the days I spend at home. When I'm at work I try to pace myself as much as I can - working in a doctor's surgery, this can be quite hard. If the phone's ringing a lot, i.e. in the mornings, I usually just sit, answer the phone and do a bit of computer work. Then when I know I won't have to keep rushing to the phone every 5 mins, I do a bit of filing.
I'm totally exhausted now though and it's only 5.50pm!! On work days I usually go to bed at 9pm and sleep for a good 10 hours!!
Not sure how else to cope really but just carry on with stuff. That's how I'm dealing with it because I don't want to give up work.
kiya
Twinklez81
03-11-2005, 12:52 PM
its just so hard. I was hired here under what the Fed Gov. calls Schedule Appointment, so my boss knows I have a disability, but it doesn't help me get through the day any less. I work from 7:45am to 5:15pm, and I get every other Monday off. I'm so tired that I feel like crying, which I do a lot of in the bathroom. Two women in my office are always passing judgement on me if they see me sitting to long, they snicker and talk about me. If they don't know I have a disability i can understand, but if they do, im going to report them.
My job is not hard at all. Im a clerk, so I just basically file papers, xerox, and light data entry, but just that little bit is torture because I just want a bed to lay down in.
I sleep 10 hours a night because any less, makes me ache all over. I never feel refreshed, I just feel like someone who is recovering from anesthesia.
Sometimes its too hard to just lift my freakin arms. I can't drink caffiene because that makes me feel aweful.
I pray and ask God every day, why didn't I try one more time to get disability. I was denied twice, but I gave up, now I regret it. I should have gotten an attorny like someone suggested.
This is killing me :(
Neverenoughslee
03-11-2005, 01:43 PM
Twinklez,
Man, I know EXACTLY how you feel. Its horrible. I feel like someone ran me over most of the time. No matter how much I sleep, I wake up looking around to see where the truck I ws hit by went. 4 hours or 12 hours sleep, doesnt make a difference.
I wish I had some answers for you. I dont, and could use some myself. I would feel alot better if it werent for this debilitating fatugue. And for me, napping doent help. I slept 8 hours last night, and took an hour and half nap already, and still feel exhausted.
Just wanted to let you know you arent alone
Twinklez81
03-11-2005, 01:52 PM
gosh you are dead on it neverenough. I was diagnosed with depression and anxiety, but I knew it was more to it than that. Of course a person is going to be depressed if they don't feel well! If im having a good day physically, and im not tired and achy, im not depressed.
Gosh some doctors make you want to smack them upside the head
peregrine
03-11-2005, 01:55 PM
I strongly suggest, if you are still interested in disability benefits for cfs, that you hire an attorney, but one who specializes in cfs benefits. They do exist! I used one for my case and won 12 years ago. I would imagine the courts are much more sympathetic these days. My attorney also had a sliding scale so the cost to me was minimal.