My sister has been diagnosed with Medullary Carcinoma. She has had 9 surgeries removing her lymphnodes that 85% of those removed were malignant. They think she has had this terminal cancer for aproximately 5 years. She was misdiagnosed with irritable bowel syndrome until they did a blood test that showed high calcitonin levels and then decided to do a biopsy on the lump in her neck. It has not spread to her lungs, bones, liver or brain. (She is at stage 4?) She is in her late 40's. Can anyone give me some information on alternative therapies, treatments that might prolong her life? Please??*begging*?? I want to help her anyway that I can! Thank you so much for any responses or new information or alternative treatments that may prolong her life.


[This message has been edited by Texomasue (edited 04-18-2002).]

Hi,
I don't know much about this drug other than what I have been told by a friend. Hydrozine Sulfate is a drug that has been used in treating late stage cancer patients with a terminal prognosis. It has it's success stories ranging from total remission to prolonging one's life longer. It's also had absolutely no affect on people. I believe it is controversial to the point some doctors will not administer it, and some will deny its existence (why I don't know). From the info I've gathered it has some side effects ranging from headaches to liver problems; but if your options are limited it may be an alternative.

Again, I mean not to get your hopes up as I know little about it myself. I have zero first hand expirience with it. It may only be affective with certain types of cancers and completely inaffective with your sister's type. However, it is worth researching and at the very least asking your doctor about it. If he/she won't even speak of it then go to somebody else. Doesn't hurt to ask the question.

Suggest you try looking up treatments from India, Japan and China - the three major Asian countries conducting clinical studies on 'alternative' or herbal medicines for cancer.

You will probably need to use an advanced science search engine for this - try scirus and copernik2001.

Here are a couple of U.S. links for information on alternative therapies and clinical trials [lymphoma].
http://nccam.nih.gov/databases.html
http://clinicaltrials.gov/ct/gui/c/w2r/action/SearchAction?JServSessionIdzone_ct=uykp8 6u4o1&Term=lymphoma&submit=Search

Good luck,
Jay

Thank You both for responding... We will attempt to utilize all the information you've given and appreciate your time very much!

Sincerely,
Texomasue

I too have a very close family member who was diagnosed with medullary thyroid cancer about a year ago (though the doctors say she's probably had it for years now). She has had 2 operations (resulting in a complete neck dissection and thyroidectomy). The results of the 2nd operation have come back-- bad news. Her calcitonin and CEA levels have not come down at all. We don't know what to do-- I need any advice from anyone who can help. What does this mean? As far as we know, surgery is the only option (radiation & chemotherapy do not work for this type of rare cancer). Any alternive medications or therapies? Does anyone know a good herbalist I can talk to who specializes in cancer, or perhaps thyroid cancer? Anyone have any other ideas? I would appreciate any kind of help and advice. Thanks.

My sister is still alive. She just got out of the hospital for orbital encephalitis. She hadn't been eating well and her immune system was compromised. Her left eye looked bulged out and she lost total sight in it, temporarily. She is home now and feeling much better. She is now taking 2 oz. of 100% pure fermented none juice, twice a day. It seems to have boosted her immune system and given her energy. She was cleaning her hutch when I just called her asking for more info for you.
Her calcitonin levels are still elevated,154 but have been as high as 274 and now her Doctor now says she may just have naturally high calcitonin levels and SHE feels she is in remission. She was diagnosed 2 years ago on the 23rd of January, or tomorrow. The doctors are saying she had to have had it for up to 5 years prior. They are doing an MRI monthly and a bone scan every 2 months. Her Medullary Carcinoma is the sporadic type, NOT familiar. She lives in Oklahoma City, Oklahoma and she said she'd be willing to share any information with you or your family member if you want to call her. I live 170 miles south of her down in the North Texas, Southern Oklahoma Area of the state. She is not online but is talking about being online soon if you'd rather chat in a chat room for free. If you send me an e mail at texoma_sue@hotmail.com I will send you her telephone number, I don't want to post it here for obvious reasons. I hope this information helps you in some way. Here is a link I found about the research about the Noni plant and its uses. http://www.thehawaiichannel.com/health/875337/detail.html
Take care... I'll be sure to keep your family member in my prayers.
Sincerely,
Texomasue