Hey ! i'm new here and i'm not to sure where to post i looked around to see if there was anything for tube surgery or ear bleeding..

Here's the problem ..my daughter 16 monthes old. has been sick sinces she's been born mainly with ear infections.. at the end of january she was hospitalized with RSV! and her surgery was then cancelled for her ears they went a head on the 18th of febuary ..surgery went well a whole 10 min if that surgery .. I saw a bit of bloody watery discharge from her ear the day after witch on the hospital patient care paper they give you says thats normal in the next 24 hours.. every week here and there her ear whould bleed..i'd call the surgen they'd say it's ok.. On friday i went to my family doctor who said her ears in bad shape they can not see at all in her left ear.. she wasn't eating sleeping or drinking all of friday.. they put her on cefzil ! this child has been on over 20 meds since she was born ,he also stated she might be hospitilized if it dosn't get better .. sunday's afternoon nap.. woke up with stright red blood and lots of it . her ear has now bleed over 10 times (ONLY when she sleeps)so stright to the hopsital..

waited 6 hours to hear this.. she the surgen tommrow.. cause i don't know where the blood is comming from! and if it contiunes to bleed come back..

Called the Surgen .. and they said go to the hospital LOL ..
and then he took her in this morning ..he said nothig ! just gave me ear drops and said if it keeps bleeding come back in 4 days..

I have no clue noones giving me answers..
my child is hurting .. and it obvious that her hearing is going in the left ear !

i just want to know why ?
no cause of blood..
i've herd that her ear could have been damaged during surgery..
so is that why the surgens giving me no answer!
i know it will keep bleeding still it hasn't stop and its getting worst .. this is my lil gurls hearing !! she's acting up more and i read that that can be from hearing loss since she can't say hey mom i can't hear ..

has anyone had this problem.. I am re-turning tommrow.. back to the doctors.. if anyone has ideas or story or advice so i can say maybe its this ect.. and get some back ground.. cause i'm not giving up on my baby ..and just letting her ear bleed. over and over again !

the doctor in the ER said it could be a cut blood vesel ! and he dose not see a tube in that ear I"ve been to 4 doctors and surgens since friday and complaining about this for a month .. I am so upset !! so i've been franticly looking thou the internet and medical books..

the nurses on take in to the hospital where saying don't let her stand alone.. bounce her ect.. AND ITS NOT A PROBLEM :confused: i have to clean the blood up everyday .. she hasn't been able to go to day care i can't work CAUSE every week and day theres a new problem! daycare wouldn't take a bleeding ear infected child !!

so i was hopping people could give me ideas so when i speack with the doctor who works at sick kids.. I can offer ideas on what i think.. My childs going deaf thanks

you are doing the right thing by going from dr to dr. you need to find one to help your little one. even go to a different hospital if you have to. i would not accept no answers for this. my feeling is this is not normal. keep pushing. good luck sweetie and let us know how the little one is doing.

thanks to the one reply i got back !! thanks for sharing your thoughts and time// my daughter went to the doctors yesterday.. bleeding is caused by a very bad infection is what he said..thou theres a bone behind the ear drum witch if infected or gets infected causes brain damage due to how bad it was! the earlest they can test for brain damage is the begin of next week,she's on cefzil and ear drops and theres been no blood since// so far so good.. my doctor is not 100% sure whats really wrong but thankfully he got word before hand and called the hospital and surgen himself to see whats going on and explained things well but i still cryed ..basicly if it bleeds worst .. or still iam to go back.. only time will tell now ..playing out the waiting game..thank you .. so much

I think you should find someone who is qualified to give you a 2nd or 3 rd opinion. If we are talking about the possibility of brain damage and loss of hearing.

Its the smartest thing to do. I think it's important too. Docs don't know everything and sometimes its what they come up with collectively that will solve a problem.

April

I've got many opinions
1)surgen said nothing to worry about !
2)Doctor strolioft :said her ears are infected and put her on cefzil if it gets worst go to the hospital.
3)then ER doctor said u have to see the surgen tommmrow who did her ears!there is no known place causing the bleeding that he can see come back if bleeding continues,and the bleeding could have been caused from surgery !
4)surgen said theres a bad infection,ear dropps Cefzil will not work.. thou stay on it ! if bleeding continues come back friday other then that see you in 6 monthes.
5) ER nurse said ,don't let her stand alone ect..
6) Off duty Nurse said caused by surgery .
7) my family doctor who works is peadatric in sick kids hospital.. said its more likey caused by the ear infection,thou behind the ear drum there a bone if thats infected.. or gets infected// then it causes brain damage! the earlyest he can cheack is monday or tuesday ! and if bleeding gets worst come back right away . and he called around for the background on charity // like the hospital ,surgen ect// and he has Connections to all the hospitals around.. witch i learned with RSV .. ammited while still at home.. to the hospital straight to peadatric.. no waiting ..
8) a former patient of ear surgery said .. his whole child hood everytime he got an ear infection his ears would bleed..

so i have to wait and c if needed i will go back if not tuesday i will be heading back.. so i'm hoping allgoes good...

You should see if there is a pediatric hearing specialist that you can take your daughter to. Obviously the people you have been going to seem to have no clue what they are doing. I would definitely try and find some sort of specialist to see your girl. Otherwise, I would be the most obnoxious patient until they fixed the problem. If you let them give you the run around they will, so keep on them and make sure there is not a day that goes by that they don't hear from you until it is better. If you have to deal with this, so should they. Too often they seem to just shrug patients off to the side, or tell them theres nothing wrong when there obviously is. I would be their worst nightmare until my baby was better. What are they going to do for you and her if she is going deaf! You definitely are handling this better than I would. Good luck to you and your baby girl!

My heart goes out to you and your daughter. I have a 17 month old that has had RSV and tubes in both ears and is diagnois with TRP type 2. Her tuble went very well and no complication. The only advise I can give you as other have is to keep going to different doctors until you are satified with the answers or out come, even if this means going to a different state. :)