I have been a religous yearly pap tester for eight years. I had my first abnormal pap in January (low grade lesions). I am 21. Went in for the Colposcopy in Feb.
Results:
ECC says few unremarkable endocervical glands.
6 o'clock CIN3/CIS focally extending into underlying glands
11 o'clock CIN 2
I have had two opinions and I am scheduled for a LEEP March 24th under general anesthesia. I tested positived for high risk HPV. Anyone else go from a normal pap to CIN3/CIS in one year? How is the anesthesia for this type of procedure? How long does it take to wake up?
Does anyone know what the "focally extending into underlying glands means"? Does this mean cancer? I had my slides sent in to a second lab. Waiting to hear back from the second lab. Has anyone ever gotten worse results from a second pathology reading?
I AM VERY VERY NERVOUS. Reading all of your previous posts really helps to ease some of the anxiety. Any advice, words of wisdom, or relaxation techniques would be fabulous. I desperately want kids one day and want to do everything I can to preserve my fertility.
Thank you in advance.
Sponsor
lobo1977
03-15-2005, 12:33 AM
CIN 3 isnt cancer. Im not sure about the other terminology, but cin2-3 can VERY easily be fixed w/ a leep. I actually had a CIN3, and just went it for a leep/laser and it turns out it was only a cin2. Its a fine line... dont get so freaked out at the #, the leep can do wonders, I would just make sure to follow up very closely every3 months - sometimes in people its a lot faster in progressing ( i had cin1/2 then cin 3 in a few months!)
I was petrified of going under, it was NOTHINGGGGGGGG I woke up 3 seconds later, peed, and went home :) and im the HUGEST baby about anything medical, i cry from a papercut. Just ask for some codine or something to relax you after, I had bad cramps for about 4 hrs that was it.........
Also, leep having any affect on fertility is very very low....
aussie22
03-15-2005, 05:12 AM
Hi!
It was great having my LEEP under general :) Basically you don't even feel like you're starting to fall asleep, they stick the needle in your hand and the next thing you know you're waking up and getting wheeled into the recovery room! I didn't feel any pain anywhere... never had any cramping... could hardly believe I'd just had surgery!
For LEEPs they do only use a light anaesthetic... so basically they put you to sleep and then give you a gas mask, which they replace with an oxygen mask when it's time to wake up (you won't remember the mask :))
The procedure itself only takes about 10-15 minutes and you're put under for about 30 minutes in total. EASY PEASY and NOTHING to be worried about :)
I actually felt totally pampered, my whole FAMILY came with me... my mum and my dad and my little brother.. and even though I didn't feel weird or tired at all afterwards, they took care of me and brought me food and played games with me all day after the operation :)
If you have any questions, please don't hesitate to ask :) We're here to support each other!
Ivana
03-15-2005, 08:57 AM
It's great that you're getting a second opinion from another lab. I wouldn't put too much emphasis on the # (2 or 3). The majority of doctors look at it as either a low grade lesion or a high grade lesion. The CIN II is slighlty redundant. In any case, if the pap you had the year prior to your diagnosis was just a regular, simple pap, please be aware that those can be wrong 50% of the time. The fact that you tested positive for high-risk HPV makes me think your doctor decided to do a ThinPrep Pap and HPV DNA which is great. Soon this will become a standard and people won't have these surprises from one year to the next. I know your first reaction is how aggressive this is that you went from clear to CIN 3....but don't worry...i believe the truth lies in the accuracy of your previous paps.
As for "focally extending into underlying glands means" don't worry about that either. I had this too and my doctor explained what this means. It simply means that the HPV touched the glands which happens to be a very sensitive area for HPV. HPV likes to go into the glands and in fact it appears that the oldest lesions can be in the glands...once again proving that this has been around for much longer than 1 year. Also, tha fact that the pathologist even mentioned glands in the report means that he is maybe even overly thourough because it's the kind of detail that is usually not mentioned in a report. The "focally" part means that only a portion of the lesion is touching the glands, not the whole lesion.
I think LEEP is the appropriate treatment for you and you'll be just fine after that! Good luck :)
13utterfly
03-15-2005, 10:54 AM
Hi All :wave:
Thanks for your posts. They make me feel so much better.
I got my results back from the second lab they said:
ECC - benign (first lab said few unremarkable glands)
6 o'clock - CIN III (same as first lab)
11 o'clock - CIN I (the first lab said CIN II)
Do you think that the 11 o'clock area should be LEEP'd even if it is CINI? I know I definately need the CINIII area LEEP'd. I need to send the results from this lab to the doctor who is doing the actual LEEP and see if he thinks we should do anything different. Just wodering if anyone had a LEEP on one area and something else on another at the same time.
I also have a nabothian cyst on my cervix. Does anyone know anything about this?
Corrie - I'll def keep you in my prayers and healing together sounds like a plan ;)
Thanks!
lobo1977
03-15-2005, 01:55 PM
I had a similar experience. I saw 2 drs, had 2 colpos, and got slightly different 'numbers' a CIN 2 first then CIN 1, in one area then a CIN 2 to a CIN 3 in another.
My dr said its such a fine line that a close 2/3 or 1/2 can go either way sometimes.
I would look into a laser and leep. I just had this 2 weeks ago and I had EXACTLY what you do - on part cin3 and one part cin1. She did the leep in the center, and the laser on the outsidefor the lighter but larger areas of cin1/2. The biposy of the leep part actually came out cin 2, not cin3 - so it was better than we though.
The laser is good bc they can adjust the depth and area well, its good for larger parts that arent at cin3 yet but still need treatment beyond cryo. And its no cutting or bleeding....only downside is they cannot biopsy those areas (but its the lower abnormal areas , so can be folowed up in 3 months on those parts - and the leep'd areas will be biopsied)
hope this makes sense! my leep/ laser got everything out as far as we can see now and i had a solid cin 3 !
ksc1968
03-15-2005, 08:16 PM
I had 4 different specimens removed during my leep cone. I had CIN 3, and like you it happened very fast. I had a slightly abnormal pap the year prior (Ascus), but the biopsies came back normal...next pap following year...WHAM.., Cin 3. It is very scary! I did the Leep Cone awake, mostly due to costs that my insurance expected me to pay.
I know its hard, I came to this board and got a lot of great support! You will be fine, and after it is over you will be so relieved and wonder why you were so anxious the entire time (Its an easy procedure and recovery!)
Good luck,
Kelly
lobo1977
03-15-2005, 08:42 PM
ksc, were the 4 areas small areas? My dr did a leep and laser b/c i had a large area of lower grade abnormality around the outer part of the cervix, and she couldnt leep ALL of it - would take too much.
ksc1968
03-15-2005, 11:15 PM
LOBO, One of the four samples was in the canal (just as a precaution), My lesions were near 4 and 6 oclock and the pieces removed look like the size of a nickel stretched out (gross I know!), The final fouth piece was smaller (like a eraser on the tip of a pencil) from a suspicious looking area she saw doing the Leep prep/colpo. I thought I was getting 2 pieces, so I was surprised when there were 4 removed. My doctor wouldnt do the laser because she wanted the tissue for pathology.... She did tell me that if I became pregnant I would probably need my cervix stitched since she removed a "fair amount"
Hope that answers your question!
Kelly
lobo1977
03-16-2005, 12:44 AM
that makes sense...i was concerned too w/ the laser not allowing for all parts to be analyzed, but she said she would leep the worst parts to at least biopsy those....and do a colpo 3 months down the line looking closely at the lasered parts. The benefit is you dont have to cut out as much, which was impt to me, but then you cant be as sure afterwards if its all out.
ladivapr00
03-17-2005, 06:26 PM
I had 4 different specimens removed during my leep cone. I had CIN 3, and like you it happened very fast. I had a slightly abnormal pap the year prior (Ascus), but the biopsies came back normal...next pap following year...WHAM.., Cin 3. It is very scary! I did the Leep Cone awake, mostly due to costs that my insurance expected me to pay.
I know its hard, I came to this board and got a lot of great support! You will be fine, and after it is over you will be so relieved and wonder why you were so anxious the entire time (Its an easy procedure and recovery!)
Good luck,
Kelly
I have a question, if you had abnormal pap ascus why you waited a year for a next pap? I mean I had the abnormal pap this month but the doctor commanded me to have a next pap in 6 months not a year.
ksc1968
03-17-2005, 10:35 PM
:Like I mentioned in my post I had the ascus pap result and one week later had a colpo with several biospies and all biopsies came back normal. I was told all was normal and to return in one year, which I did!
lobo1977
03-18-2005, 12:50 AM
its a good idea to have 3 paps a year imo... 4 if you've had any history