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mcruk
03-15-2005, 11:42 AM
Hi again

Im aiming this question to people from the UK as I would be interested to hear how you were diagnosed and treated for your TMJ. I am kind of at a brick wall currently because my GP doesnt really want to know as its a dental issue. My GP didnt even do any tests when I told her I may have TMJ. She just smiled and said "go to the dentist". However, because I have to pay for my dental tretment I cant keep going back for treatment. So what did you do or are you doing to get your treatment?

Thanks again

Mike

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EvonneMCFC
03-15-2005, 04:21 PM
Hi again

Im aiming this question to people from the UK as I would be interested to hear how you were diagnosed and treated for your TMJ. I am kind of at a brick wall currently because my GP doesnt really want to know as its a dental issue. My GP didnt even do any tests when I told her I may have TMJ. She just smiled and said "go to the dentist". However, because I have to pay for my dental tretment I cant keep going back for treatment. So what did you do or are you doing to get your treatment?

Thanks again

Mike

Hi Mike

I am from Manchester and I was referred to the maxillofacial department at my local hospital from my GP. All the treatment I have received by them has been on the NHS (costs nothing), ie xrays, mouthguard even physio.

If it works the same where you are, ask the doctor to refer you to a maxillofacial outpatients department at your local hospital, even though it did take approx 2 months to get an appointment but it was worth the wait. I hope this has helped and please let us know how you get on.

Evonne

BTW - I had to ask the doctor to refer me or I would of been banging my head of a brick wall also.

tealadyjudy111
03-15-2005, 04:39 PM
Hi Mike im from Cardiff and have had tmj for many years im waiting to have new joints put in. I was sent to the dental hospital by my gp,(which costs you nothing) and have had xrays and ct scans etc. Good luck . How bad is your tmj welsh judy.

Miss L
03-16-2005, 08:11 PM
Hi there,

im new to this forum but have been reading for a while, i got refered to Glasgow dental hospital and school because i had full feeling in the ear and had seen about 5 gps, one was rather concerned because i had rather a large white oral lesion on the inside of my cheek, and i told him of my concerns of oral cancer, thats how i got my appointment with the oral surgeon, i was that worried i had actually got oral cancer i missed my first appointment. The whte thing im my mouth and on my gum is because of nibbling clenching and direct trauma from chewing only on the right side,as i have a few teeth missing on the other.

whats your pain like i am intrested to know, how it started and if it gets better my pain is constant

best wishes to you all ;)

mcruk
03-17-2005, 05:40 AM
Thanks for the replies.

I guess I should go to my GP and see if I can get NHS treatment for it.

Miss L, pain pain is pretty much constant but not totally unbearable like so many others. Thats said I think my pain threshold is pretty good. Its pretty much a constant dull ache with sharp pains accompanied by ear pressure pretty much all day. Oh, I also have 24/7 hissing/ringing in my ears which I can only hear when its quiet (bed time).

Miss L
03-17-2005, 07:02 AM
Hi again have you seen an ENT?

how did your pain start ? im still not 100% convinced i have TMJ but my surgon did say that you can feel like something is eating away at your face the pain is that bad saying that no splint for me yet just first step is to get my teeth fixed

do you get throat pain? i feel like my tonsil and nose burns on one side? must be the nerves i dont really know?

Best wishes

mcruk
03-17-2005, 10:34 AM
MissL

No I havent seen an ENT, just 1 VERY brief visit to my GP and 3 visits to the dentist. One to take a mold of my teeth for a mouthguard, the second to fit it and the third to see how things were and to adjust it slightly. Thats it.

My pain probabem started about last June when I started to get headaches. My jaw had been cracking for as long as I can remember but never thought much of it. After the long headaches kind of vanished I would get these very brief pains around various parts of my head, mainly around the eyes, temple and forehead. Still do get headaches though. This isnt helped by a neck problem my physio is helping me with.

My dentist is pretty sure I have TMJ as I have pretty much all the main symptoms and lesser known ones also but until I get a scan of some sort I wont know.

Yeah, I do get throat pain now and again but this could be related to post nasal drip that plagues me also.

Miss L
03-17-2005, 11:11 AM
Im like you my jaw clicked for 5 years before any pain, my problems started about May 04 with feeling of being light headed after any sort of execise bending lifting , i went to my gp she said it was due to the fact i had lost 3 stone and my blood presure was settling down, i took her word for it but i always felt alittle spaced out.

we have a touring caravan and spent weekends away in it last year i woke up most morning with sore throat but i thought it due to the dry air and it probably was. I dont know how this started buti remember trying to pop my ears alotspecialy if i was in the car and one afternoon i stretched my jaw so much i got this awfull pain. Got home and felt under my jaw and the glands were so wollen . went to the doc she saidi either had mumps or blocked salivery glad anyways the swelling went but i was left with this full feeling in my ear and this spaced out feeling it was driving me mad, went back had nasal steroids sudafed no different i starten getting bad jaw pain ear pain pain behind my ears you name it, them i noticed the thing in my mouth put 2 and 2 together and made 5 lol

3 more doctors trips antidepressants and all and finally 1 doctor took me seriously, I also get this other problem when i swallow i get a clik not in my jaw joint but somewhere in my tthroat area, the oral sugeon checked for lymph node enlargement and i had panoramic xrays to rule out tumors and to look ant the joint joints are fine no tumors so they said it was all muscle related? i did ask about why it felt like i has swallen glands she said probably because the muscle was tight and sore and inflamed its sort of made it feel like that?. Ithink im having a splint made on my next visit

anyway hope you feel better soon oh yeah is your splint working? :)

mcruk
03-18-2005, 09:18 AM
I went to the docs about a different problem this morning but mentioned my stuffy head feeling, feeling spaced out and the tinnitus and he is referring me to an ENT which is good.

I dont actually have a splint, mine is a guard I weare over my top teeth to prevent the grinding but as of yet I dont think its working. Infact on two occasions I have woken with pieces of it in my mouth. Grinding through it I guess :)

Miss L
03-18-2005, 01:52 PM
Thats good did he say what he thought it might be?

glad you gpt some kind of referal as if the ent doesnt find anything they may refer you to a oral surgon

good luck and let me know how you get on my face is killing me at the moment arrrr

dale2004
03-23-2005, 09:36 AM
I was diagnosed just last week by an orofacial pain specialist in London. We're going to be trying splint and medication therapy.

mcruk
03-25-2005, 11:05 AM
Miss L

My doc didnt say anything about possible causes. Well he did say im too young to be getting tinnitus which I thought was odd and didnt seem to acknowledge me when I mentioned TMJ. But not to worry, its a step in the right direction. Just have to await the appointment to come through.

Rawspice
03-26-2005, 08:01 PM
Hi, I am from the u.k and the docs here are bloody awful. I seem to know more about tmj then they do. :rolleyes: I told one about the non-stop tinnitus I have but he said that he had never heard of tmj causing tinnitus. Yet another doc at the same hospital said you do get tinnitus with tmj. One said that tmj cause migraines and the other said it didn't. They don't agree on anything. :rolleyes:

Miss L
03-28-2005, 09:14 AM
mcruk

i get tinnitus not a lot but i do get it, i got it really bad a couple of years ago when i had a middle ear infection. Dale and Rawspice whats your symptoms like i have tmjd but it has gone to thge other side now and its feels worse than ever has anyone else experianced this?

FUJI
03-30-2005, 01:57 PM
Hi My Name Is Sadie And I Am From Scotland, I Have Suffer Facial And Throat Pain For 30 Years, Being Shunted From On Ent Doctor To Another, Have Went Private On Numerous Occasions But All Say Not An Ent Problem And Write Me Off. I Have Also Been To A Nuerologist They Couldn't Help Then I Read About A Vega Check In Jan Devries Site And Went For It, It Showed Up Problems In The Jaw Area, I Was Over The Moon Somthing Finally Showed Up, As I Have Had Cat Scan And Mri On Sinuses Which Showed Nothing. I Went Back To Jan And He Started Treating Me For Tmj With Accupuncture And Jaw Alinment Which Has Been A Success And I Have Had Lots Of Good Periods Over The Last Year. Until Wait For It Last Week When It All Wnet Wrong Again. But I Am Determined To Go Back To Jan And Will Not Give Up, As The Only Other Alternative Is Going To The Quack Sorry Doctor And Getting More Antibiotics Flung At Me.
Keep Going All And Tomorrow Is Always Another Day Thats What I Have To Keep On Telling Myself For If I Didn't I Wouldn't Be Here Many A Time I Have Been So Close, But I Always Look At Photos Of My Kids And That Keeps Me Going, Only Wish I Had More Energy To Play With The Wee Ones.

Miss L
03-30-2005, 04:10 PM
hi there im in scotland as well

glad to have you around!

miss l

Rawspice
03-30-2005, 04:34 PM
My symptoms are head pain in the temples, forehead and back of the head. Pain inside my mouth near the wisdom teeth and cheek pain. The worst pain I get at the moment is at the bottom of my neck and shoulder area. The pain is really bad and it hurts so much when I put my head back and I find it hard to concentrate on anything. I also get these sore throats that really hurt when I swallow and it gets worse when I smoke. Does the sore throat I am describing sound like tmj? because I am not sure that it is. As you can see I have alot of the symptoms. :D :rolleyes: I think the only symptom I don't have is ear pain but I do have really loud ringing in one ear.

Jane uk
04-04-2005, 05:31 PM
Hello

I am feeling so relieved to have found this page. I am 34 and live in London. I've had tinnitus for nearly 5 years. I wondered if you think it might be TMJ related. I have a buzzing in my left ear only. The volume varies from very quiet to like a lawn mower in the next room. I also have a feeling of fullness in the ear and wanting to pop my ears. When its bad I feel a bit detached from my environment. I clench my teeth alot and because I have a stammer, I have loads of tension in my jaw. I have noticed that when I open my jaw wide it clunks. I always tend to get aches in my neck and shoulders, but put that down to general tension.

Do you think it sounds like TMJ? I hope so, as i would really like to find the cause and a cure.

Thanks in advance

Jane

Rawspice
04-05-2005, 12:36 AM
Hi Jane

I am 25 and live in Hertfordshire and I also get the ringing in just my left ear. It also like you varies in volume. What you described does sound like tmj but it is hard to say for sure. You should start by going to the dentist to find out if it is tmj. Good luck and extra good luck on finding a cure because I have not found one yet. :)

Lindey
04-05-2005, 11:40 AM
hi, im in england,buckinghamshire. my dentist refered me to a oral surgeon, and so far he tried me on Nortriptyline a muscle relaxant, and i have to say it worked, but i was only on it for a couple of months, and it really makes you drowsy, you take it before you go to bed at night, but until at least lunch time the next day i felt i sould just go back to sleep, but then i got pregnant and of course stopped taking it, and have yet to get to see the oral surgeon again, he keeps canceling on me, i also wear a mouth guard at night, have tried the soft and rigid, i prefer the soft, but i hate the bulkyness of it, so i wear the rigid, but sometimes i think that it makes the night grinding worse as there is something foreign in the mouth.

so while waiting to get back to see the oral surgeon, i am now half way through pregnancy, i have decided to see a cranial oesteopath, and my god!!!! the relief is amazing i saw her twice (over 2 weeks), and for 2 weeks folowing that i had no pain whatsoever, i felt almost human again, then she went away and i didnt see her for about 3 weeks and it came back, so i have seen her again last friday, and will again this friday and hopefully she can do her magic again, weirdly the first time you feel no different, and after the second time i didint really, and thena day or so later, wham woke up feeling human again.

i find my symtoms are, worse on one side, i had a clunking jaw for a few years, and had a MUA, manipultion under aneasthetic, (this was with a different oral surgeon) and he took out all my wisdom teeth at the same time, and since then i have had the pain, and all he wanted to do was more surgery all the time. which i just didnt want to do.

i have a stiff, sore neck, throbbing temples, tight sore muscle downleft hand side of head, tender scalp, difficulty concentrating, especially having a converstion with someone, feel like my eyes are slow, often have a sore throat, but feels more glandular than sore inside. and nothing touches it as far as pain relief goes, the only thing that seemed to work, was after last baby i was on strong pain killers for the c-cection, but i cant remember off the top of my head what they were called, but did mention them to the oral surgeon when i saw him the first time, as i wanted him to perscribe them to me again, but they wont perscribe these over a long period of time as they dont do you stomach lining much good, shame.

good luck with your diagnosis, and it might be worth trying a cranial oesteopath, i know i would try anything at this stage, it cant hurt. i wouldnt go to a chiropractor, i tried this last year and he was way to harsh, in and out in a few minetes, and paid no attention to stretching out muscles first.

Jane uk
04-05-2005, 04:26 PM
Thanks Lindey and Rawspice
I saw my GP today and she has referred me to the maxillofacial department at Mayday Hospital. She told me to ask my dentist to refer me to Kings College Hospital as they have a teaching dental department there.
It worries me that you havent found a cure. I don't know if I can bear a buzzing in my head for the rest of my life. I have a 5 month old baby who I am breastfeeding and we are planning to try for another in the Summer, so drugs are not something I can consider at the moment. Seeing a Chiropractor and a cranial osteopath sounds good though.
Do you have tinnitus Lindey? And if so has the treatment you had helped it. It sounds like you have lots of other unpleasant symptoms.
Have either of you tried retraining of your hearing by a hearing therapist? It didn't work for me, but I think that was mainly because my tinnitus varies in volume.
Also, do you find any correllation between the volume and your menstrual cycle. I found it was louder mid-cycle. Sorry to ask so many questions, but you are the first people I have spoken to with a similar problem to mine.
Jane

Lindey
04-05-2005, 04:52 PM
hi, i do get tinnitus, but not often and it dosent last long, thank goodnes as i think that would drive me insane along with everything else to contend with.

tealadyjudy111
05-07-2005, 09:37 PM
Hi all its Judy here from Cardiff. I was wondering if anyone in the UK has had a joint replacement or is waiting for one.Im very worried about the op (left and right custom made Christensen joint replacement) and would love to have somebody to chat to who is going through the same as me.I never heard of TMJ until I was told I had it about 10 yrs ago when I started biting the side of my cheek when I was eating and was sent to the dental hospital.They broke and reset my chin to correct my bite but the pain is getting worse and my face is lopsided I get very depressed about it. I havent spoken to anyone who has a good thing to say about total joint replacements and am trying to kid myself that all the successes dont join forums. Hope someone can help Judy.

malibu82
05-12-2005, 11:33 AM
Hi I'm from Scotland and I'm only now starting to look into treatment. I have always grinded my teeth at night leading to an aching jaw but in the past week I have went through alot of anxiety, leading to grinding my teeth more and now the pain in my jaw is terrible. When I try and open it to its fullest the pain is excruitiating and I am finding it really hard to eat. It is really getting me down. I have made a doctors appointment for monday, but the first dentist appointment I can get is June 16! I am thinking of making an appointment at the dental hospital in Glasgow.

I am just really glad that this forum is here, I was beginning to think I'm the only person who has this problem. X

Miss L
05-12-2005, 12:10 PM
Hi there im from Glasgow, you have to have a refferal to get an appointment at Glasgow dental hospital my doctor got me one your dentist can refer you also, they are great there and my appointment came through in a week and my appointment was 3 weeks later so all in it took 4 weeks, they have xrays ct scaner everything there AND THEY ARE VERY FRIENDLY!

good luck and let us know how you get on!

Miss L

maughan
05-17-2005, 11:34 AM
hi every one
im from newcastle waiting for a refferal to dental hospital by the dentist
the problem im having is a feeling of a clogged ear when im eating every thing is echoing i did have an ear infection over 8 weeks ago thinking it was through that i asked to be ref to ent doctor said fine no fluid that was that
years ago i used to waer a splint for jaw problem on the same side as my problem now
but never then did i have this ear thing so thats why im confused even to think it could be that has anyone out there suffered with similar please get in touch

maughan
05-21-2005, 05:29 AM
reply to miss L
i have similar problem my right ear feels full and i did have a ear infection seen an ent
who said ear and sinuses are fine but my ear dosent feel fine i have seen my dentist and asked to be reffered to see someone re-my jaw i have had problem years ago with the same side jaw lost upper teeth through it seen ent done the whole nine yards
now the ear thing is confusing because i never had this the last time with the ear the dentist said he wasnt sure if the ear and jaw thing do you get pain in haed above the ear muffled feeling in ear as though its congested how r u getting on please reply

Miss L
05-23-2005, 01:34 PM
Hi there all my problems started with my ears i went through months of antibiotics nasal sprays which i do not recomend as my nose feels worse for wear since i took them, finally the last doc i seen i around 3 months looked in my ears said they were fine i told him i thought i had cancer he said there was a thing called TMD and off to the dental hospital he sent me, need to get my teeth fixed and a couple oF dentures to help me spread my chewing out, i get pain all over my face funny nerve feelings my GP says its because one of my teeth at the backhave fallen over and its compressing a nerve im totally fed up with the whole lot my jaw clicks i have a click in my throat when i swallow my gland swell i hate it! whats your pain like and does it change?

Miss L

lorratt
05-23-2005, 07:55 PM
Hi again

Im aiming this question to people from the UK as I would be interested to hear how you were diagnosed and treated for your TMJ. I am kind of at a brick wall currently because my GP doesnt really want to know as its a dental issue. My GP didnt even do any tests when I told her I may have TMJ. She just smiled and said "go to the dentist". However, because I have to pay for my dental tretment I cant keep going back for treatment. So what did you do or are you doing to get your treatment?

Thanks again

Mike
HI Mike,

Speak to your dentist and ask them to refer you to the maxilofacial department at your nearest hospital that should get the ball rolling.

I was refered 11 years ago to my local department and was diagnoised with right tmj. I have had physio the cartlidge replaced twice a spur removed that had grown onto the joint. Have tried all sorts of medication. botox injections three times. Anisthetic into the joint and finally i was refered to another consultant and a partial replacement was done three years ago. Last March i had to have a complete replacement done as the rest of the bone had died. Surgery went well and i was discharged from hospital after only five days. Two days later i was admitted to hospital with a massive infection and stayed there for five weeks. i had six further infections and the joint was removed in october. The right side of my face is paralyesed and i need surgery on my eye. I am awaiting more tests and waiting to find out if they can replace it again this time using a custom made joint. My message sounds awful so after you are refered try everything offered before opting for surgery as it is not always the best thing to do.
Lorratt





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