bellarose
03-15-2005, 11:32 AM
Hi, I'm new here. Last month my pap came back abnormal and 2 weeks ago I had a colposcopy done. My doctor put a stat on the results and it came back as Stage 1 cervical cancer. I had Cryosurgery last Weds. and 90% of my cervix was frozen. I was told that this will "need" to be repeated in 8 weeks because he anticipates the cancerous cells growing back. I've gone thru a variety of emotions and I'm pretty calm at this point. I'm really just wanting to educate myself more. I'm wondering what exactly to ask my doc so that I really understand what is happening. I feel like a lot of what I read is going over my head or that I'm not absorbing it all. Also, my period started today and it's significantly worse than usual, is that normal? I do realize that this is fairly easy to treat so I'm lucky. I'm 34 and have 3 kids so fertility isn't a concern any more either. Another small blessing! Any advice is really appreciated.
Ivana
03-15-2005, 11:43 AM
I'm a little confused. If you have stage 1 cervical cancer cryosurgery is not the appropriate treatment. Cryosurgery is used on low-grade PREcancerous lesions - CIN 1. Stage 1 cervical cancer is treated with a cold knife cone biopsy or hysterectomy. Do you know why your doctor opted for cryosurgery??
bellarose
03-15-2005, 11:46 AM
No! He mentioned a cone biopsy or hysterectomy being the next step if the cryo failed. I thought this was a typical first step and if the cells immediately returned then it would be on to another type of treatment.
Ivana
03-15-2005, 11:50 AM
I really don't see why he would even attempt cryosurgery as it is well documented that it is not the appropriate treatment. I strongly suggest you get another opinion ASAP. Stage 1 cervical cancer can be easily treated with a cone biopsy or hysterectomy, especially if fertility is no longer a concern. I truly believe he is taking a very conservative approach. Please get it checked out by another gynecologist or even better a gynecological oncologist.
The reason cryosurgery doesn't work is because it can only freeze the surface of the cervix...it does not freeze in great depth...that is why it is used mainly on low-grade lesions. Cervical cancer often reaches deeper into the cervical connective tissue and cancerous cells cannot always be reached by this method. That is why excision is recommended.
bellarose
03-15-2005, 12:03 PM
Thank you so much! I was really confused by him simply stating, "You will need more cryo in May.". i thought, how does he know and if he is that certain then shouldn't we be doing something else now! It seemed like if he counted on it all growing right back just as bad then it was just stalling for time. It also seemed like if most of my cervix needed to be frozen (he showed me it in a hand mirror afterwards) then that is an awful lot of bad tissue and cells to anticipate coming back. He told me that for Stage 0 or Stage 1 cryo often worked but it was likely to need repeating. On the one hand, I have 2 toddlers at home and major surgery would be rough right now, on the other hand if it's inevitable anyway...Why take chances? These are exactly the thoughts that have raced thru my head for the last few days. Thanks for validating that I'm not concerned over nothing here.
Ivana
03-15-2005, 12:09 PM
No problem. I would understand if he was trying to preserve your fertility and tried a more conservative approach. However, this is not the case. But just so you know, cold knife cone biopsy is not major surgery like a hysterectomy. It is done under general anasthesia but you go home the same day and take it easy for a few days. Please keep me posted on what is going on. Good luck :)
lobo1977
03-15-2005, 01:50 PM
I feel its much better to have one correct procedure even if its a bit more intrusive, than 2 or 3 wrong 'lighter' ones (clearly)
I had cryo in 99 I beleive for CIN1, and it came back , to a CIN3 a few years later. I think this is common. In any case, theo ther poster is correct - stage1 is a cone or leep/laser depending on size/location, I believe these days they often can hold off on a hyst. for stage one as the cones etc are very effective....
GET A NEW DR! I cannot believe any medical employee would do this for stage 1. Its not even close to the correct procedure (but don't worry b/c it wont be an issue for you next procedure, that you had the cryo)
I would get a new (female) dr between 30-40 who is up on new procedures etc. Discuss the size/location/depth of the abnormal cells and decide between a leep/laser, cone, etc. Generally the cold knife cone is for stage1, but I have heard of some people being treated w/ a leep/laser cone well...
Good luck!!!!
bellarose
03-15-2005, 02:10 PM
Even if the cryo did somehow work temporarily, is it more likely to return in more advanced stage?. I was left with the seemingly wrong impression that if it returned even in 8 weeks it couldn't be any more advanced. I agree that I'd rather go thru something a bit more invasive now if the end result is likely far better. Thank you so much. I'm glad that I posted this morning.
Ivana
03-15-2005, 02:32 PM
It is definitely more likely to return in more advanced stages. In fact, the way you should be looking at it is that you were not completely treated. It's very likely that the cryo did not reach the cancerous cells but only treated the ones on the surface. 2 months is not a terrible long time so it's probably not likely it would make a huge difference but when we're talking cancer, PROMPT AND APPROPRIATE treatment are NECESSARY....you shouldn't be made to wait 2 months to be told it didn't do the job. It should be done once and for all. This doctor doesn't sound very competent.
lobo1977
03-15-2005, 08:41 PM
I agree...its like stitching up half a wound! You could end up worse in the long run. I'd find a new, kind, female doctor and get a leep or laser (or both) :)