nanab
03-15-2005, 11:07 PM
This is my first time to post. I was diagnosed about 3 years ago. Went to a Nerve and muscle specialist in Houston and he took me off of Neurontin and put me on Topomax. I take 4 25 mg. tabs in a.m. and 4 25 mg. in p.m. He says I have a mild case. I'm not a diabetic. This man is suppose to be a specialist but I see him for maybe 2 minutes and he's out the door. Does anyone know of a Neurologists that specializes in Neuropathy in Houston area? :bouncing:
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whatamess@35
03-19-2005, 05:09 PM
Hi there
I dont know of a doc in your area ,but i am on topamax for neuropathy..You are taking 200 mgs a day?
I am on 125 MGS ,but about to go up...
I have been on it for a while already and find i am burnng in the afternoon..
I wish you luck in finding a new doc!
I dont know of a doc in your area ,but i am on topamax for neuropathy..You are taking 200 mgs a day?
I am on 125 MGS ,but about to go up...
I have been on it for a while already and find i am burnng in the afternoon..
I wish you luck in finding a new doc!
britjoshmattmom
03-22-2005, 12:40 AM
I too am on topamax,mine is for TN, I take 300 mg in the am and 300 mg in the pm (600 mg per day)
momofsix
04-17-2005, 09:06 AM
How have the side effects of topomax been. I'm thinking of trying this drug and am wondering what to expect and what's worth persisting through.
Linda
Linda
nanab
05-18-2005, 12:36 PM
Sorry it took so long to reply, haven't been on computer, it had problems too. I really haven't had any side effects from Topomax that I can tell. He told me it should help me lose weight but that hasn't happened. I am having more leg cramping sometimes in the evenings but it isn't consistent. The thing that really bothers me about our disease is you never hear anyone talk about it on Oprah or anywhere else and it sure seems like there are alot of people that have it. I just hope and pray they come up with a cure before long. I have too much I want to do in my life to have to worry about this stupid pain in my feet.
lvnvcoyote
07-18-2005, 03:57 AM
COLOR=Purple]I have had PN for a couple of years. Although at first it was diagnosed as Tarsal Tunnel (carpal tunnel for the feet). So I had surgery on my feet for Tarsal Tunnel - but guess what - that wasn't the problem. Seems it was actually the PN. It wasn't their fault really, the signs and tests pointed to the TT, unfortunately they were also the signs for PN. I started on the Neurontin/Gabapentin only, didn't really seem to make much of a difference. My new Neurologist has put me on Topamax for my PN, I am on it in addition to Neurontin/Gabapentin. I take 300mg of the N/G in the am and pm and I take 25mg of the Topamax in the am and 50 in the pm. I know it must help a little because I had the stomach flu a few months ago and couldn't take anything cuz it wouldn't stay down. Those few days proved that the drugs were working because the pain became even more excruciating than it normally is. So at least I got proof (in a round about way ) that it works, but it's just not enough. I don't ever really want to do any of the things I used to because it just hurts too much. I have percocet for the pain, but if I take what I need to kill the pain all the way I would be unconcious! All I can hope for is enough to dull the pain and still function in society without falling asleep or passing out. I try not to take more than 3 or 4 tabs a day. My neurologist has also just recommended Alpha Lipoic Acid 600mg a day. I am going to give it a shot, figure what have I got to lose! I will let you all know if it makes any difference after about 30 days, figure I have to give it at least that long.
Everyone have a great and as pain free as possible week!
lvnvcoyote :wave:
[/COLOR]
Everyone have a great and as pain free as possible week!
lvnvcoyote :wave:
[/COLOR]
Lena-marie
07-18-2005, 12:50 PM
Hi there! Do you have burning in your feet? or pain?? I have burning in feet that comes and goes but I also have flat feet and I wore High heels all my life..till recently how its not to late, I try to wear flats but even they hurt..cause my feet are flat...Theres really no happy medium w/ shoes..I wear tennis shoes they burn bad they feel like there over heating...
also How do you know you have PN>? emg>>???
Godbless, and to better pain free days!!!
Lena :wave:
also How do you know you have PN>? emg>>???
Godbless, and to better pain free days!!!
Lena :wave:
lvnvcoyote
07-20-2005, 02:29 AM
Hi Lena,
I pretty much have it all. Pain, burning, stabbing or jabbing pain, the feeling that my feet have swelled up to 10 times their normal size (when they haven't), massive numbness which of course makes no sense to most people when you tell them that you have pain, etc. :confused:
I have to have something on my feet with some sort of support even if it's just flip flops, otherwise it's even worse. I wear tennis shoes - good walking tennis shoes, not just cheap ones. I also put supports in the shoes, it helps a little, not much, but every little bit helps! I wear other shoes some times, but don't wear heels unless they are like platform/wedge types that have alot of support.
I was tested by EMG, but it doesn't rule out other things, like the Tarsal Tunnel as I mentioned in my earlier post. There are other test that the neurologist can perform in the office that will give him/her a further definitive diagnosis.
Well I am off on vacation for 5 days, hope you have a wonderful and pain free (as much as possible) week/end.
Colleen (lvnvcoyote) :wave:
I pretty much have it all. Pain, burning, stabbing or jabbing pain, the feeling that my feet have swelled up to 10 times their normal size (when they haven't), massive numbness which of course makes no sense to most people when you tell them that you have pain, etc. :confused:
I have to have something on my feet with some sort of support even if it's just flip flops, otherwise it's even worse. I wear tennis shoes - good walking tennis shoes, not just cheap ones. I also put supports in the shoes, it helps a little, not much, but every little bit helps! I wear other shoes some times, but don't wear heels unless they are like platform/wedge types that have alot of support.
I was tested by EMG, but it doesn't rule out other things, like the Tarsal Tunnel as I mentioned in my earlier post. There are other test that the neurologist can perform in the office that will give him/her a further definitive diagnosis.
Well I am off on vacation for 5 days, hope you have a wonderful and pain free (as much as possible) week/end.
Colleen (lvnvcoyote) :wave: