I am desperate. I hate the way my body feels. I was normal last November until I had that second root canal. I can't believe this is happening??? Any chance of it just disappearing as mysteriously as it appeared? I hope so.

Hi,
That is a good question! I don't know the answer.

For me, I have had to come to terms...

I am a believer in God, there are many scriptures in the Bible that talk about healing and yet there are also scriptures that teach us to accept what we have been given, learn from it and to exalt and glorify God as we journey through it.

I like look at everything in my life that happens as, "What are we to learn from this?" This journey has already turned into a blessing for me. Through this, I have had to slow down my schedule, set priorities, and determined what are the things in my life that are important and not worry about anything else. Through this I also have learned to set healthy boundaries, something that has been a problem area my whole life.

Everytime, I say that I am coming to terms with this and accepting that my life has changed, (and for the better.) Friends who mean well and try to help, say to me that God can heal me, pray for that. Yes, I know that He can, if He chooses to. But, God can also choose that this is not to be.

I had been very involved with church and the schools my kids went to, I also was involved with a Jail Ministry and worked fulltime. When I started coming to terms that I was sick and had to slow down, it was so hard to give in. I would always say, "I am going to beat this!" (he-he) I enjoyed all that I was doing, I didn't want to slow down, my mind set was, if I do then I'm giving in.

It took me more than a year of being so sick, and not listening to my body that I finally let go of some things, other things had to be taken from me, all in all hindsight is great!

I now see, this has been the best 4 months I have had with this. So far I have kept my job, now its parttime, as of last December, that in itself is another blessing, I thought for sure that was going to be taken from me, too.

Recently, I prayed to God that please don't take my voice away, for at least I can still sing to You, and if there is any way You can prepare me to serve in ministry with this illness You will light the path before me, He has!

A praise in the midst of this is awesome, I more than anything want my eyes off me and on to another, and if need be constantly looking upward.

God's Peace be with you,
and my prayers to all uvmom

I LOVE the Lord with all my heart, but why he is giving me this disease is beyond me. I had a lot of plans and dreams to accomplish. I wanted to become a CPA so my husband wouldn't have to work so hard to support us. I wanted to play baseball with my son and teach him to ride a bike. Now I won't be able to do all those things. I pray for healing from Jesus, to make me the person I was. I'm hoping he will answer my prayer. He may not, but maybe he will. If he wanted to teach me a lesson on being humble, believe me, he has. I no longer want material possessions. I just want my health back.

This disease is a horrific one. The burning in my neck, back and shoulders is terrorifying. The no sleep is horrendous. I miss my sleep. I miss that so much. That is why I pray for a cure for this disease. I pray for a cure not only for myself, but for everyone who suffers.

And Fibro fog along with loss of short term memory is awesome!! For me, it
causes me to not remember much, so there is nothing to truly dwell on. And to only think about what I am doing this very moment.

It sure is nice to know the reason, I could never remember peoples names, part of the symptoms that have been around longer than others. (HA-ha)

Can anyone else relate?

my heart goes out to all,
uvmom

I hate that as well. I am seriously considering going to Nevada to see that doctor that claims he has a cure. Don't care about money, if he can fix me so be it.

Hatefibro,
I know how horrific it is, and how day to day, sometimes minute to minute the symptoms change and flunctuate unfathomably. You sound like you are fairly young, with so much you were looking forward to. It's okay to hope, and pray, and find ways to live a better life with this. Are you seeking medical treatment so that you can have the best quality of life even with FMS?

I too have felt exactly how you do, and stated very simular things as you have done, a little different dreams and desires, but my heart and emotions are the same. I imagine every single one out there facing an unimaginable and uncomprehenible illness like this may have? Please share?

There is a time and season for everything, a time to be born and a time to die...a time to laugh and a time to cry...a time to kill and a time to heal...a time to mourn...a time to dance... (ECC 3:1)

I know that God will not leave us or foresake us, and in His timing our prayers are answered. Especially if more than one prayer is lifted up. And God is Faithful!! He will not tempt or give us more than we can bear.

Praying,
uvmom

Hi, I am just dropping in on this board and I am wondering what doc in Nevada you are talking about? That is where I live and I have had horrible luck with docs.
Thanks!
Anne

Dr. Paul Whitcomb

Hi -- I just wanted to share that I am currently in South Lake Tahoe seeing Dr. Whitcomb. I have only been here for just over a week, but it's an amazing place. I was very apprehensive to spend more money to try yet another doctor and a new treatment, as I've tried so many for so many years with no results, but I just can't give up my quest.
First, his theory of the cause of fibro is the first one that really made some sense to me. Upon my first meeting with Dr. Whitcomb, I was so impressed with his kindness, his demeanor, candidness, knowledge and compassion. He, himself, suffered severly from fibro and is now pain free and helping others.

Although it's not expected to feel much relief in the first 2 - 3 weeks, I have actually felt a little bit already with the mobility of my neck movement right to left. A small piece of the whole picture, but it's something! I'm sleeping better and more than anything, HOPE is back and thriving.

The best part is the group atmosphere -- the support from the other patients. (This surprised me, because I'm not really the 'group' type.) Because we're from all around the country, most spend a great deal of time hanging out at the office and getting to know each other. I've never felt such immense relief to walk in there each morning and say that I had a bad night and have everybody 'get it'. I even asked people if I could video tape them talking about there experiences and did that tonight. So many people have had such great results -- have improved so much since they got here, and there stories -- all of the stories were so moving that we were all tearing up and so touched because they were all from the heart and I suppose we all just understand.

I would love to go into more detail if anyone is interested, but for me, anyway, this journey so far is a God Send! I can't wait to see where this goes. Frankly, I can't wait to go in for my treatment tomorrow. (Those statements are profound for me because until finding this, I really had little interest in the concept of "tomorrow"!)
You guys take care and hang in there!
Kim
BTW -- I don't think Dr. Whitcomb claims to have "the cure" -- He has a theory and method that he has been practicing from some time now with incredible results from his patients. Like anything, the treatment and method is a process and the more patients he sees with different situations, the more he learns how to hone and develop his process for both specific people and on a broader scale. (He seems to be a very humble man. I wouldn't be here if I saw ego driving him. I get enough of that crap in L.A.!)

Hi -- I just wanted to share that I am currently in South Lake Tahoe seeing Dr. Whitcomb. I have only been here for just over a week, but it's an amazing place. I was very apprehensive to spend more money to try yet another doctor and a new treatment, as I've tried so many for so many years with no results, but I just can't give up my quest.
First, his theory of the cause of fibro is the first one that really made some sense to me. Upon my first meeting with Dr. Whitcomb, I was so impressed with his kindness, his demeanor, candidness, knowledge and compassion. He, himself, suffered severly from fibro and is now pain free and helping others.

Although it's not expected to feel much relief in the first 2 - 3 weeks, I have actually felt a little bit already with the mobility of my neck movement right to left. A small piece of the whole picture, but it's something! I'm sleeping better and more than anything, HOPE is back and thriving.

The best part is the group atmosphere -- the support from the other patients. (This surprised me, because I'm not really the 'group' type.) Because we're from all around the country, most spend a great deal of time hanging out at the office and getting to know each other. I've never felt such immense relief to walk in there each morning and say that I had a bad night and have everybody 'get it'. I even asked people if I could video tape them talking about there experiences and did that tonight. So many people have had such great results -- have improved so much since they got here, and there stories -- all of the stories were so moving that we were all tearing up and so touched because they were all from the heart and I suppose we all just understand.

I would love to go into more detail if anyone is interested, but for me, anyway, this journey so far is a God Send! I can't wait to see where this goes. Frankly, I can't wait to go in for my treatment tomorrow. (Those statements are profound for me because until finding this, I really had little interest in the concept of "tomorrow"!)
You guys take care and hang in there!
Kim
BTW -- I don't think Dr. Whitcomb claims to have "the cure" -- He has a theory and method that he has been practicing from some time now with incredible results from his patients. Like anything, the treatment and method is a process and the more patients he sees with different situations, the more he learns how to hone and develop his process for both specific people and on a broader scale. (He seems to be a very humble man. I wouldn't be here if I saw ego driving him. I get enough of that crap in L.A.!)

greetings fellow travelers,
ukiah, how well i remember your anger and frustration. to hear you speak now fills my heart with such joy. we have known each other a long time my friend. knowing you have found the key, you, delights me.
there are no guarantees in life as my dad always said. how wise he was. he also said make the best of it and it will be the best.
dear hater of fibro,
you will play with your child. you will teach your child more than most parents have the opportunity to teach. you will teach patience, acceptance, compassion, dignity and grace. you will do this thru your process with fibro. there is no why to having an illness. it simply is and so we must do it.
ukiah was an angry lady when i first met her. then she got down to her real feelings, fear. i listen to her and i see she has come so far. now i know she understands what i told her 3 years ago. i told her having fibro was the best thing that ever happened in my life. i still say it is. we grow and bloom with this fibro. by the way, she looked at me like i was crazy, giggle.
learning new coping skills is a good starting point. i spent several years with a therapist learning. i have my version of a full life and i am active. 11 years ago i was in a wheelchair, bedridden and believed my life had ended. i was so wrong. one day i woke up and said i can do this. it took all this time to get to today. sure i still have fibro and all the other stuff inside my body. it's my turn to be sick. i had my turn being healthy.
running around in fear searching for a cure will make you crazy. ask ukiah. what you can do is explore ways that help you maintain. massage, physical therapy, diet, exercise, medications. there are so many choices out there. if nevada calls to you then go there. what do you have to lose? just don't plan on god handing you and easy fix. he will gift you with lessons and personal power to do this life of yours.
you are a woman. you created a human within your body, your baby. you can do anything. you are a powerful being, you are a woman!
peace,
bluelakelady

I am desperate. I hate the way my body feels. I was normal last November until I had that second root canal. I can't believe this is happening??? Any chance of it just disappearing as mysteriously as it appeared? I hope so.
I think that everyday most of us have felt the same way that you do. We go to do something, and can't. We want to go shopping and have to leave early. And if we force ourselves..............we pay dearly.
But life goes on, and so do we. We manage, set priorities, and some of the time we just ignore it. I wish to that it would just go away.(like my husband did) It would be nice. But reality tells me that it's here to stay. Hang in there it could be a whole lot worse than just fibro......

Sid