JJCHEEK
03-18-2005, 01:52 PM
Does anyone have trouble with there eyes. My eyes are very sensitive to outside light, I have floaters really bad, and my vision at night is not that great. things look staticky at night. If I go outside without dark sunglasses on, in about 10 minutes my eyes can hardly stand it they want to close, my head starts hurting and my eyes hurt. I do have body aches and head aches pretty regularly. Does anyone have a problem drinking alcohol? Is anyone real sensitive to medications? Im just trying to understand why my body is so screwed up, is it from fibromyalgia or from my anxiety/panic disorder, a chemical imbalance. Please give me some opinions.
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GodsGirl4ever06
03-18-2005, 02:20 PM
The only thing I can help you with is eye problems. My eyes are also sensitive to outside light (sometimes even inside light), and they also just start hurting really bad all the time. However, accupressure helps that, so I do that... sorry I dont drink alcohol, so I can't help you there (I'm only 17 =)
JJCHEEK
03-18-2005, 03:00 PM
Thank you so much. I was really worried about my eyes, since you have the same problem its got to be from fibromyalgia. You are so young to have fibromyalgia. Im 23. I think mine stemedfrom being sick with mononucleosis. It took about 9 months or so before I felt like I was getting my strength back. When I started getting my strength back it seemed like my body aches really started kicking in. If its not one thing its another.
SuzU
03-18-2005, 03:54 PM
Hi,
I get the eye floaters really bad lately also. Do yours look like shooting stars?
I can relate-I don't know what I had, but something made me really weak after a sinus infection and I could barely walk for like a month. I still have limited strength, my muscles shake a lot when I use them, and now they are starting to hurt a lot also.
I'm reading a book about FM and CMP and it seems the eye symptoms are not uncommon, though it only mentions pain, double vision, light sensitivity and others, but not floaters.
I have them though. I'm not dx'ed with FM yet, but I've been told it is the strongest possibility of all the things the doctors are ruling out.
Oh-and I also have the night vision problems you are describing.
I get the eye floaters really bad lately also. Do yours look like shooting stars?
I can relate-I don't know what I had, but something made me really weak after a sinus infection and I could barely walk for like a month. I still have limited strength, my muscles shake a lot when I use them, and now they are starting to hurt a lot also.
I'm reading a book about FM and CMP and it seems the eye symptoms are not uncommon, though it only mentions pain, double vision, light sensitivity and others, but not floaters.
I have them though. I'm not dx'ed with FM yet, but I've been told it is the strongest possibility of all the things the doctors are ruling out.
Oh-and I also have the night vision problems you are describing.
spotty
03-18-2005, 04:13 PM
I have all those problems except the staticky thing. I have fibro and anxiety/panic disorder. I have had the floaters for a long time. My eyes get dry and blurry. I think I have more tolerance to alcohol its doesnt really do much for me except make me feel sick. I try to avoid medications and am very sensitive to cafiene.
JJCHEEK
03-18-2005, 06:11 PM
You guys dont know how much better I feel knowing that others are having the same eye problems that im having. Im not happy that you are having problems but at least I know its from fm now. My doctor has not been much help. I dont think he knows alot about fm, he's just herd of it and knows part of the symptoms. He did not tell me my eye problems were coming from fm, he just said that my body aches and head aches and tiredness was from fm. Is this suppose to go away one day. I can't imagine my eyes being like this for the rest of my life.
cookie51
03-18-2005, 06:26 PM
Hi,
Ialso have fibro and all of the things you asked about are part of fibro. I like you am very sensitive to meds. and I can taste any shot or meds. given by injection , it is like it is right in my throat. Floaters all the time and I also get silver flashing in the corner of my eyes. It is so weird but I think with fibromyalgia, their are many things related to it,pain, being sensitive,sleep problems, there are too many things that go with this. I am always told it is very important to get a good nights sleep, easier said then done.
Hope all is well with you
cookie
Ialso have fibro and all of the things you asked about are part of fibro. I like you am very sensitive to meds. and I can taste any shot or meds. given by injection , it is like it is right in my throat. Floaters all the time and I also get silver flashing in the corner of my eyes. It is so weird but I think with fibromyalgia, their are many things related to it,pain, being sensitive,sleep problems, there are too many things that go with this. I am always told it is very important to get a good nights sleep, easier said then done.
Hope all is well with you
cookie
spotty
03-18-2005, 06:37 PM
Sometimes my floaters are not that bad but then they get really bad again. I dont know why or what they are from but it is really annoying. They are bothering me right now and I am so tired of it. Has anyone been to an eye doctor about them? I havent but was thinking about it.
JJCHEEK
03-18-2005, 07:33 PM
If im in a room that is bright like a doctors office, I will have bright specks in my vision along with your typical floaters. I have been to an opthalmalogist twice about my floaters and double vision and he said they were fine. My double vision went away when I started feeling like I was getting my strength back. Every once in a while I might have an episode of double vision, ussually when I do to much during the day, it will happen. When im really tired is when I have double vision. Has anyone asked there doctor how long this lasts. It cant be forever, please tell me it goes away one day, it just takes time. what kind of doctor specializes in fm? My doc. did not offer me to much info. He told me to take motrin or tylenol for my body aches, and iI have tried that and it does nothing for me. What trigered all of you to have fm. mine came from mono and I had just had a baby, I guess my body was so weak from being pregnant and having a baby that it did not have time to strengthen itself. :yawn:
spotty
03-18-2005, 07:54 PM
My floaters began after I had my last child eight years ago. Im not sure what triggered my FM a couple of years ago. Im thing stress or a virus. My doctor was exactly the same gave me motrin and told me to exercise. Im not sure what kind of Doctor specializes in FM.
JJCHEEK
03-18-2005, 08:15 PM
I wish some doctors would do more research on fm. Did you know that some doctors dont recognize this as a condition. I thought that was pretty crapy. I was told that ssri's help with fm. The problem I have is my body is very sensitive to certain meds and ssri's happen to be one type. I will admit when I tried to take effexor about 5 months ago it took away all of my body pains and aches, but I had bad side effects. I was so nervouse, my stomach was very upset, I kept feeling like I had to pee, and I had major muscle tension. Whats so messed up about all of this is that I use to take effexor 2 years ago, and I did not experience anything like that. I was on effexor xr 37.5mg for about 6 months and not one time did it cause anything like that. Since I have had fm its a whole nother story when it comes to meds.
spotty
03-18-2005, 08:41 PM
I took 1 Zoloft 1 time and I had a very bad experience. I am too afraid to try ssri's again. My doctor basically told me that doctors do not really know much about FM or what causes it. He said there is also nothing you can do for it. So I just kinda take it day by day but there is always different symptoms. I think thats whats so hard about it for me.
JJCHEEK
03-18-2005, 08:54 PM
I agree. We have no choice but too take it day by day. Im thinking about getting a good multivitamine and stop eating meat. Im going to try and see if I cant heal myself with eating healthy food. Im going to slowly try and build up my strength, if thats even possible.
spotty
03-18-2005, 09:35 PM
I have heard that lots of protien helps. I do eat more of that. I have also tried juicing which is suppose to give you more vitamins than eating the fruit or veg. I stopped for a while but plan to start back up again soon. Exercise has helped but I get busy and cant always do it.
JJCHEEK
03-18-2005, 10:07 PM
I'll have to try it, It cant get any worse. Thanks for your support, its nice to chat with someone who is going through the same thing.
ukiahvalleymom
03-19-2005, 01:40 AM
JJCheek,
It's me, I didn't know what Cytomegolovirus=CMV was until I was dx'd with it as active. So I looked on the web this morning. It is very interesting, not to scare you, but look it up, because it mentions floaters in the eye, how long have you had th symptoms?
When you say floaters, what color are they? Black or white?
I have white floaters occasionally, but that has been my whole life, my mom said it was a lack of something, mercury comes to mind, not sure.
My eye symptoms are exactly like FMS or CMP and massage therapy as worked for me.
I have thought back to in the 1980's I became very ill, and ended up in the hospital, with what the dx of Hep Non-A Non-B, I was ill for almost a year.
Then in the sometime in the mid to late 1990's, a test was created to see if antibodies where showing up in the blood. There was none in mine, my pcp doctor declared that he didn't know what I had back then, but it wasn't Hep. I think due to my liver issue, it may be the time I caught CMV.
I have read that FMS can cause changes to the point having to change the prescription of your lenses fairly often, I haven't had that happen yet...I sure hope that taking an antibiotic will be the solution for you, let us know.
Peace be with you, uvmom
It's me, I didn't know what Cytomegolovirus=CMV was until I was dx'd with it as active. So I looked on the web this morning. It is very interesting, not to scare you, but look it up, because it mentions floaters in the eye, how long have you had th symptoms?
When you say floaters, what color are they? Black or white?
I have white floaters occasionally, but that has been my whole life, my mom said it was a lack of something, mercury comes to mind, not sure.
My eye symptoms are exactly like FMS or CMP and massage therapy as worked for me.
I have thought back to in the 1980's I became very ill, and ended up in the hospital, with what the dx of Hep Non-A Non-B, I was ill for almost a year.
Then in the sometime in the mid to late 1990's, a test was created to see if antibodies where showing up in the blood. There was none in mine, my pcp doctor declared that he didn't know what I had back then, but it wasn't Hep. I think due to my liver issue, it may be the time I caught CMV.
I have read that FMS can cause changes to the point having to change the prescription of your lenses fairly often, I haven't had that happen yet...I sure hope that taking an antibiotic will be the solution for you, let us know.
Peace be with you, uvmom
JJCHEEK
03-19-2005, 09:42 AM
They did a cmv test on me when I first had all of these symptoms and it came back negative. Is there a such thing as having a false negative with cmv? The only thing that came back positive was mononucleosis.
luv2read
03-19-2005, 01:00 PM
I developed fibro 2 months after I gave birth to our second son in 1995.
My eyes also hurt and get stiffer outside in the sun. Even if it's a sunny day and I'm inside, I turn the blinds so that the sun isn't coming in all the way.
I also have trouble driving at night. My eyes hate it when other cars are coming the other way and their lights are shining right at you.
When I started effexor xr last year, I started getting eye floaters in right eye. They are still there and sometimes drive me buggy!! I'm assuming they're caused by the effexor, I don't know. They're like little black squigly things.
I forgot: I'm allergic to: Penicillin
Eye drops to dilate eyes
Amoxicillan
And that dye stuff they IV into you for a cat scan
* All this makes my throat-face-head-eyes tighter and makes
my throat close up on me.
Alcohol has no effect on me. I already feel drunk 24/7!
My eyes also hurt and get stiffer outside in the sun. Even if it's a sunny day and I'm inside, I turn the blinds so that the sun isn't coming in all the way.
I also have trouble driving at night. My eyes hate it when other cars are coming the other way and their lights are shining right at you.
When I started effexor xr last year, I started getting eye floaters in right eye. They are still there and sometimes drive me buggy!! I'm assuming they're caused by the effexor, I don't know. They're like little black squigly things.
I forgot: I'm allergic to: Penicillin
Eye drops to dilate eyes
Amoxicillan
And that dye stuff they IV into you for a cat scan
* All this makes my throat-face-head-eyes tighter and makes
my throat close up on me.
Alcohol has no effect on me. I already feel drunk 24/7!
JJCHEEK
03-19-2005, 02:27 PM
Are you still taking effexor. I did not get floaters while I took effexor, my floaters started during my last month of pregnancy
spotty
03-19-2005, 05:16 PM
Ive noticed alot of people are saying their floaters started during their last few months of pregnancy or after they had a baby. thats when mine started too. I wonder if theres a connection.
JJCHEEK
03-19-2005, 08:55 PM
Im starting to wounder the same thing. The eye doctor told me that vitrious gel has broken up in my eye causing the floaters. I think he is full of sh......
spotty
03-19-2005, 09:14 PM
Thats what my doctor told me too. 8 years ago.
JJCHEEK
03-19-2005, 10:36 PM
I know that if gel breaks up in the eye it causes floaters, but I believe other things cause them also. Maybe its something to do with hormones or being sick for a long time. I dont feel mine is from gel broke up in the eye. If you have certain infections it will cause floaters.
dorkdad
03-20-2005, 09:14 PM
My wife and I are in our 50s and she was diagnosed with FMS over 15 years ago. She tested positive for Lyme's disease (bacteria from tick bite, possibly fleas or mosquitos) and we suspect that by treating Lymes, her FMS will diminish accordingly. You might do a little research, then check out some of the entries on the Lyme category of this message board. Lymes bacteria can be passed on at birth and has been found in semen. Possibly it can be passed on from blood transfusion or sharing a toothbrush with someone whose gums are bleeding. It can locate in any area of the body and release toxins that can lead to false diagnosis. I'm not a medical professional but read a lot. My wife has sensitive eyes, poor night vision, double vision, body aches, poor sleep, headaches, sensitivity to medications, panic/anxiety, muscle spasms, and many more symptoms (many doctors over the years). These are all sysmtoms associated with Lymes. Although my wife has floaters, I'm not sure if that is Lymes related. She doesn't consume alcohol any more. She has chosen to use a naturopathic treatment for Lymes instead of traditional antibiotics. She has completed 4 weeks and is still experiencing what's called a herx effect----reaction to toxins released by the bacteria when it's killed. Sooo it's too early to tell if she is getting better. Too much information? When I started I just wanted to suggest an alternate approach to your FMS recovery---maybe I got carried away. I will check back to see if you have any questions. I pretty much stay on the Lyme's Board with the nickname of dorkdad.
I wish you all well. There is an anwer...
DD
I wish you all well. There is an anwer...
DD
JJCHEEK
03-20-2005, 10:06 PM
How long did her symptoms go on. Did they come and go. I had a lyme test done and it came back negative. I have heard that you can get a false negative. My doctor did not seem to worry about it, so I did not ask him to do the test again. Is that the first time your wife had been tested?
dorkdad
03-21-2005, 12:48 AM
JJCheek
If you look at the Lyme message board you will see many people struggling to find Lyme Literate medical Doctors (LLMD). One of the members helps many people find LLMDs in there locale. We have been married 35 years and Jeanne has had symptoms for about 25 years. We had active healthy life style and I think that maybe her symptoms fluctuated with stress levels. This year she finally had to quit the job she loved helping kids learn to read. My wife Jeanne tested negative as well for Lymes last year----she was seeing a hormone specialist. We think that menopause has caused the severe flare up of symptoms. Subsequently a naturopath has suggested a more current test where she tested positive. The odd thing is I tested positive too but have had no strong symptoms ---as with FMS, it seems that women feel the affects of the Lyme disease more than men. We are having our adult children tested tomorrow. The truth is that there is no FDA approved test for Lyme disease. The people at the Lyme message board share their experiences. Igenex is the test most people seem to rely on there. We did the QRIBb test. I can elaborate if you want. I encourage you to research and learn as much as you can---very time consuming! What test did you have? How are you doing and do you have people supporting you?
DD
If you look at the Lyme message board you will see many people struggling to find Lyme Literate medical Doctors (LLMD). One of the members helps many people find LLMDs in there locale. We have been married 35 years and Jeanne has had symptoms for about 25 years. We had active healthy life style and I think that maybe her symptoms fluctuated with stress levels. This year she finally had to quit the job she loved helping kids learn to read. My wife Jeanne tested negative as well for Lymes last year----she was seeing a hormone specialist. We think that menopause has caused the severe flare up of symptoms. Subsequently a naturopath has suggested a more current test where she tested positive. The odd thing is I tested positive too but have had no strong symptoms ---as with FMS, it seems that women feel the affects of the Lyme disease more than men. We are having our adult children tested tomorrow. The truth is that there is no FDA approved test for Lyme disease. The people at the Lyme message board share their experiences. Igenex is the test most people seem to rely on there. We did the QRIBb test. I can elaborate if you want. I encourage you to research and learn as much as you can---very time consuming! What test did you have? How are you doing and do you have people supporting you?
DD
JJCHEEK
03-21-2005, 11:55 AM
Im not sure what the name of the test was. Right now I have flare ups of body aches, headaches, anxiety/panicy feelings, eyes hurt sometimes, and tons of eye floaters, and sesitivity to light. I posted a thread along time ago about all my symptoms that I was having at the time. I would like for you to read it and tell me if your wife had anything like that happen. It was an old post so you might have to go to the bottom of the page where it shows whos in the healthboards, and click on my name and look at all threads started by JJCHEEK. It is titled; Anyone have this problem with ebv/mono. Help.
dorkdad
03-22-2005, 08:57 AM
JJCHEEK,
Found it as posted on Oct 10 2004. I printed it and will discuss with my wife and get back to you.
DD
Found it as posted on Oct 10 2004. I printed it and will discuss with my wife and get back to you.
DD
JJCHEEK
03-22-2005, 09:55 AM
My anxiety started back in April of 2002. I travled out west back in july 2001 and I did alot of camping and I was 7 months pregnant on top of that.I never checked for any ticks. Back when I first had aniety attacks, they were not that bad and did not last long, and I could still drink caffiene with out it bothering and had a better tolerance of medication. I did take effexor for 6 months and it took my aches away but I still had some anxiety while taking it, but it was not as bad. Like I said in another post I got pregnant and stopped taking it and after the baby it seems like its been hell for me when it comes to all meds. As time went on My attacks started getting worse and more symptoms started. Pretty soon im having full blown panic attacks with the worse symptoms. It seems like as time has went on my body has gotten worse. Its been 3 years since my first little anxiety attack, and now have panic attacks. My anxiety attacks use to just consist of lightheadedness, heart palpitation that did not last long, and weakness. Now my panic attack will consist of numbness/tingling, terrified feeling, nausea, and cold/hot flashes, faintfulness, and weakness.I have had one so bad that i have vomitted. Ussually the only time that Ihave real bad panic attacks is if I take some kind of medication that stimulates me. Needless to say I dont drink cafffeine at all. Now I have fms along with panic disorder. this really sucks. Thanks for taking your time to help.