When I try to tell people about fibromyalgia I feel like I'm just trying to get attention. I'm not...in fact, I'm not one to like TONS of attention. But I feel that way. Does anybody else? And how can I NOT feel that way?

I feel the same way. When I try to tell people how I feel im not wanting sympothy, I just want them to know and understand how I feel. If something does not get done around the house for a couple of days, I just want my husband to know why. He tends to get mad if the house gets a little messed up. Thats why I try and let my family and friends know what im going through, if people stop by my house unexpectedly I want them to over look my house if I have a little bit of a mess.

Yes, I feel this way, too, and consequently don't mention it to anyone, except very briefly to close friends. I try to keep it out of my relationships, which is hard, because I have to hold back a great deal of my reality.
I think part of feeling that way is that our authenticity is doubted so often. It's not a cut-and-dried disorder, it's vague, it floats from one symptom to another, and that's hard to explain to others. I wonder if we feel we want attention because we're afraid we won't be taken seriously.
I also get so sick of dealing with it that I would rather talk about anything else.

good post!!! im 23 female. i get this so much. i feel people dont really care, apart from family. they just say oh you be ok. when im really tired people probably think im just average tired. you feel like shouting out!!!IM NOT WELL!!! YOU REALLY DONT GET IT. love april xx

Yup I am the same way now. I almost HATE to talk about it in any form.

I am kinda worried too because I have been talking to alot of women local to me and I realy like a few of them, but how do I tell them I have FMS?

Jeremy


If one of them is the right one for you, it won't matter you have FMS, always remember that...

Hi everyone,

I used to take the time to try and explain what it is that I have. But, in the last year, if it came up, instead of trying to give all the gory details, I just tell the person to go on the internet and look it up. I don't elaborate, or anything, just the facts.

A :)