I was thinking about all life had to offer, my plans and dreams are shattered now. My body burns with pain, my lower back, my shoulders. I can't get my house clean. God, why did he do this to me? I pray for relief and pray for recovery along with strength. Why? why? I had so many plans for the next years. Graduating from school, playing with my son, travelling with my husband, Now, I'm this hopeless invalid with pain everywhere, everyday, no let up, nothing

I know how you feel, I had a day like that yesterday and today I still hurt but not as bad as yesterday. I feel bad because I cant do anything with my 3 year old like I had once planned. I use to be into sports alot and I wanted my little girl to have fun like I did, but now I do good to just get up and make sure they have food and take baths, brush teeth, make sure clothes are clean and so on. Some days I cant even do clothes. I know how you feel.

i know how you feel too!!! i have a 17 month old little boy and some days i feel knackered and no energy to play. he still wakes up in night so get disturbed sleep too. i feel guilty not being able to play much some days but then i do take him to soft play mother and toddler group on a thu, he goes to his nans on a fri and we go to town and park few days a week. it is frustrating though as you feel bad, love april xx

Hi hatefibro, I know what you mean. You just have to change your plans and dreams a bit. Getting the house clean and spiffy and keeping it that way is not going to happen w/fibro screaming at you. My husband just tells me to clean one room in the house each day. So far, that's what's been working for me. Sometimes I'll clean more than that, you'll know how much you can do each day.

When I got hit with fibro symptoms in 95, we had a 2 1/2 yr old boy and a new born baby. Those were some very, very hard years to deal with. I can honestly say that things are better for me now that they are older (12 and 9).
The reason I'm dealing better with fibro is because now our sons are older and I have more time to pamper myself. If I need a nap in the summer time when they're off of school, I take one knowing that they can entertain themselves in the house for awhile. Then once I rest up, we go out and play again.

I wanted one more child, but that wont happen now. I can't imagine getting up in the middle of the night to feed the child. I would
not have the energy to take care of a child, and that wouldn't be fare to the child. And I always wanted a little girl. Plus the child would not be held as much because my arm muscles would burn w/pain and get very stiff. Just wouldn't be fare at all.

As far as vacations.....I get very sick riding in cars too long. I get so stiff, get a migraine, get this weird feeling in my legs like I have to move them and have to take my shoes off (stange feeling).

Hang in there and remember stress, being upset about how your body feels will only give you a flare up!!!

Boy do I feel your pain! I find myself feeling this way a lot lately. My husband and I have been discussing when to start a family and I feel like if I don't start soon, this fibro is going to bring me to shreds. I hate the way I feel and long for just one day free of symptoms! My thoughts are with you.

Hi...you are not alone on this one. I don't have young children. Mine are grown now but the youngest of my five children was 10 when fms hit and the oldest was 16. Sure no pleasure dealing with teens and fms at the same time. At least they were old enough to help out. I get so mad at myself sometimes because when my kids were little my house was so clean. Now it's hard to do anything.

I have found that when I start feeling so down I try to think of things that I now can enjoy that before fms I didn't have the time to enjoy them. For me it's just sitting and watching the birds and squirrels at the feeder. Playing with my dogs. I've also gained a lot of friends that have fms and we share so much together. If it's only on the computer. I know I've lost a lot but the stress of thinking about it just throws me into a flare. Best to try to keep a good attitude but not always possible.

I hope you start feeling better soon.

Hugs, Cathy

I'm not sure if you got enough info to find lyme doctor in NC. He's in Huntersville. ****** infectious disease doctor, Huntersville, and his name will pop up. Good luck...

Raleigh86

after more than 10 years with this i can say it does get easier and more do-able. have patience with your body. you are your own best friend or your own worst enemy, depends on how you choose to view your body.
i still say fms has gifted me with more than it has taken. you may feel that way one day too!
peace,
bluelakelady

I totally agree with Bluelakelady....but truly...I would not have 3 mos ago. I have been dealing with Fibro for a little over three years and the last year has been a nightmare. I was in the most stressful situation with my job and now away from there. I felt hopeless and in constant burning pain, fibro fog, anxiety, pain, pain, pain etc... I still have my really bad moments, but not like I did. Truly over the past three years I have gone through one bad moment after another...meaning bad luck and the fibro only got worse. If you have stress in your life do everything you can to ease up on that....it has made such a tremendous difference for me and I never thought I would be at this point. My house? I only wish I could feel good enough to get it back in order. It truly frustrates me where it has gotten. But I do want you to know there will not always be bad times...you have to first believe as hard as it feels to do so. The more I stressed with the pain, the worse the pain got. Even when the pain is really, really bad now...I am not as stressed and the pain isn't as bad or doesn't last as long. I do know that Cymbalta has been a wonderful drug for me. It has helped a lot.

Good luck to you and lots of hugs...I know how you are feeling Annie

I know how you feel. I feel so tired all the time, no energy and my house says help! So you do what you can. You have to learn your limitations and not over do, or it takes awhile to recover. Have you checked to see if there is a fibromyalgia support group in your area? There you can talk to others that understand how you feel and also share with you things that work for them and may help you. One thing I've found is that sugar makes things worse, so stay away from sugar.