Hello everyone-
Please help...I am so frustrated and tired of feeling this way. I don't know where to turn anymore. There are days where it isn't so bad, but a lot more of the others. Today I just don't feel "right." When I walk I don't feel like my body is following...everything feels heavy, even my head. I saw many many spots yesterday in my vision. It's also that "time of the month" which I'm sure is just adding fuel to the fire. I just don't know how to get through. On my drive to work this morning, I felt panic come over me because I was afraid that something would happen to me as I was driving. And now, at work I feel the same fear. What if these feelings and these spots I have been seeing are a precursor to something? Ugh! :rolleyes: Why does my brain have to think that way?

I have a neuro-opthomalogy appnt in a couple of weeks- it doesn't seem soon enough. I just wish I had some relief...just a week or even a day free of ALL symptoms! :confused:

Hi, This could all just be from the anxiety. I have anxiety often that I sometimes have a very difficult time controlling. I am on a ant-anxiety med, serax, which does help. Is it any wonder that we have anxiety with fm everyday it is something.

Hugs, Linda

Your hormones can make fibro flare up a little. It always did for me. You have to take some extra steps during this time.

It is important to get more sleep and not push yourself so hard. Everyone with fibro can't live their life as they did in the past. That seems unfair but that is the way it is. To look at the bright side, fibro is not going to kill us, it just takes a change of lifestyle and we can still do pretty much. Some other diseases would take our life away.

Besides more sleep, we need to do some gentle stretching and walking exercise everyday. The operative word is GENTLE.

We also need to watch our intake of sugar and yeast/bread products. They seem to weigh the body down. I know that was one of my downfalls when I had my period. I just craved all the bad things and ate them. I felt horrible.

There are many good and positive books on the market and you should educate yourself about the disease and work out a "game plan" for yourself. In addition, you can come here as often as you like to vent or have you questions answered. This board can be very reassuring because they understand what you are going through when others can't.

latte sorry you feel so awful today. hope you get better soon.

i was wondering what the spot are that i too see in my vision?

they drive me nuts sometimes. oh yeah they are black and seem to kind of float.

someone anyone let me know please. lol :confused:

thanks
robin :D

The spots are called floaters. I got my first batch 3 years ago and went to have my eyes examined. The doctor told me that they are nothing to worry about. It is just a break down of the vitorous (sp?) gel. These can come or go at times. Mine have remained pretty much the same. I just got used to them.

Robin,
The spots you are describing sound like floaters. Twanger is right, it has to do with the vitreous gel in your eye. Look it up in a search and you'll get plenty of info. My spots on the other hand, are not floaters. I see quick flashes of colored spots...typically blue. My doctor's believe it is some form of migraine. So I'm currently going off bc to see if hormones have anything to do with it. I have an appnt with a neuro-opthamologist in a couple of weeks...so we'll see. :confused:

Latte,
Hi I just joined this group. I've had fibro for 4 yrs. now. I live in a rural area so my healthcare choices are limited. I have been steadily going downhill every yr. since I've had this. I got a referral to a clinic 6 hrs. from me. The thought of driving that far for help was kind of daunting, but I've had to do something! I am so glad I went. This clinic was started by a doc who himself has fibro. They are going to be doing a lot to help me over the next several months, but one of the first things they have done is to get me on a couple of meds that have already made all the difference in how I feel. One is Gabitril, which helps you get into the deep refreshing sleep that you need for your hormones to replenish and to wake refreshed. The other is Neurontin, which is for nreve pain. These drugs actually are for people with seizure disorders, but their also used for people with chronic pain. Holy cow, do I already feel better, and I've only been on them a couple of days. I haven't been sleeping with my hubby for the past several months because with him moving around it was enough to keep me awake. I was able for the first time in months sleep with him last night and not wake up. This is a minor miracle!! The drug for the nerve pain has really taken my pain level way down. They only have a few of these clinics throughout the country. I think getting someone or someplace that specilizes in Fibro makes all the difference in the world. I feel like I suffered for yrs. for nothing. The Family Practice docs around her are no help and the Rheumatologist end up giving you meds ment for those with arthritis. I hope you find the help you need because life can be better.

ah, im so sorry your suffering this bad! its getting me down but i dont have vision problems thanks god! love to you, xxx april

thank you so much latte and twanger. the info you all gave me helps so much. those darn floaters are so annoying. i guess i will eventually get use to them just like everything else we all have to go through.
welcome to the board kbak. i haven't been here long myself but everyone makes me feel right at home. they are pretty much the only people that understand what i am going through.
hello apriltones hope you are doing well. we always seem to run into each other. how funny huh?
i hope everyone is having a descent day. :)

thanks so much
robin



:D

im aching loads last few days. i am real tired though. how about you? how is your pain? love april x

Hi! I have all kinds of eye symptoms - floaters, which I've learned to ignore, and brown blurry patches in my vision which were diagnosed by an opthamologist as ocular migraines. (I get the regular ones with pain as well, but I have the blurry brown patches VERY frequently - often daily - with no pain). I also have, especially in my right eye, flashes of light at times when I close my eye or push on it.

Kbak, the new place you're going for treatment - is it the Fibromyalgia and Fatigue Center? One just opened here (Pittsburgh). I talked to them but was reluctant to try them out because of the high cash cost, since I've spent tons of money already without getting any help. Please keep us informed about whether it continues to be helpful for you.

Blessings to all! :angel:

MW,
Yes it is. I got a recommend from someone else. I first called them to see if I was going to waste my time persuing my problem with them. They sat and talked to me and answered my questions for over 1/2 hr. That is what first impressed me. They were in no hurry to get me off the phone. It's a 6 hr. drive for me to get to one so I sure wouldn't be going if I weren't happy. Yes there is a big out lay of money. They told me that that they haven't had to much problem getting ins. companies to pay for the blood work. As far as the rest of the treatment, that dependeds on the persons insurance. Some people's ins. payed quite a bit other's none. Since they mix tradtional and non traditional treatments my guess is that my ins. is only going to cover some. I haven't gotten that far yet. I just submitted my first big claim. They spend a lot of time with you the first visit. In fact I think I got more info than I could absorb. The doc took 16 viles of blood testing for everything under the sun. She said that fibro/CFS people typically had more than one virus they were dealing with. I won't be getting my blood work back for a couple of weeks. She did start me on Gabitril for restorative sleep. It doesn't make you sleepy, but after you get to sleep, it helps you get into a deeper sleep. It worked great right away. This is from a person who has not been sleeping. Then she gave me neurontin for nerve pain. That worked great too! I was always taking stuff for muscle pain without a lot of relief. I love the relief I've gotten from this. But these are drugs you can get from your reg. doc too. I guess it comes down to weather your comfortable with non traditional treatments and can you afford to pay outa pocket. I would look at their website, they have much info there. I would talk to them and decide for yourself it that's a place for you. I have had zero results from doctoring where I live. So this has been a godsend to me.