this disease is so horrorfying. NO rest, no peace, no pain meds to help. Why ???? I'm so sad. Sad for myself and sad for all who suffer. I never did anything to hurt anyone, neither have any of you hurt anyone. I'm sure you are all wonderful people. I look at people like Scott Peterson, who kills his beautiful wife, who was ready to have their child, why doesn't HE get fibromyalgia. He deserves it, not any of us. I always tried to help my fellow human being, whether I liked them or not. I'm just having a tough time dealing with all this. Here it is Easter and I can't even boil water to make the eggs with my son. Last year I had everything prepared and my husband and son had the best time. I'm praying for an Easter miracle even if just for one day to be relieved of these symptoms.

Have you looked into the guaifenesin protocol?

Hatefibro,
I hear you!! I call this thing "The Beast!" If your seeing a doc, see if you can get a drug, (I take nuerontin) that treats nerve pain. Reg. pain killers don't work well for people that have fibro. I was amazed how much better I felt using this.

kbak, does it help the brain fog?

after i said why me i answered why not me? there is nothing that says i will be spared the learning lessons that only illness bring. none of us are. you cannot wish this away. you cannot angry it away. you can learn to make room for it in your life and find a life as you are.
i have been at this for more than 10 years. the most important lesson i have learned to date is acceptance and peace as i am. may you find the path to your peace my dear friend in pain.
peace,
bluelakelady

hatefibro,
No, unfortunetly nuerontin does not help brain fog. It's just for nerve pain. My fibro doc said that as I was treated for the underlining root of the fibro problem, that my brain fog should get better too. I have serious brain fog! I have to constantly tell people my brain is impaired. I can't remember 2 min. after doing something if I did it. It can really be embarressing. I've threatened to have a t-shirt made up saying " please be kind I've lost my mind!".

kbak you are so funny! my mom and i want one too!!!
thanks so much for the laugh. we foggers need our humor so we can laugh anew at the stuff we just heard, giggle!
peace,
bluelakelady

Hatefibro,
No it doesn't help the brain fog. My doc feels that will get better as I'm treated for the root cause of my problem. But I've got to tell you there are things out there that help with the brain fog. Their expensive, so alas I'm not using them because I have just so much money, and i have to spend it on getting better. My mom-in-laws significant other is using something that is helping his memory problems, but I have just so many dollars. We'd all be well with unlimited income!!

I've felt the same way Hatefibro! And I've asked myself the same questions too. Why me, when there are so many mean/hateful people out there running around with all kinds of energy and pain free days causing trouble in the world. Why didn't the man above give fibro to them!!

But you know what..... My hubbies grandma lives a few houses down from us, she's 90 yrs old. Hubbies side of family basically all live on our street. Grandma needs help getting in and out of shower now. She has a chair inside the shower that she sits on now. Who do you think has more sympathy for her out of the women in the family? Me or other family members who feel "normal"? You guessed it, me. She calls me when she wants a bath, and I go down knowing that she loves the warm water she pores over her shoulders. That her muscles are aching and the atrophy is setting in. I tell her "take your time, I know how that warm water feels on the muscles."

She cries a lot about how some of the grandkids don't call her or come see her anymore. They're all so busy with work/kids. I say give them fibro and they will learn sympathy for others.

My point is.....After 9 years of these symptoms.....I have lots more sympathy for others in pain and fatigue. We all would be such good nurses/dr's.....if only we had the energy and pain free days to do it......