Does anyone have this? When I am walking around my oxygen is at 98%, but when I sit down and relax my pulsox goes to about 92%. I've had pulmonary tests and still am OK, but sometimes, I will just be sitting and my heart will start racing for no reason. I am on Klonopin to help the fasiculations, but wondering if I wasn't on the Klonopin if my symptoms would be different. Also have terrible insomnia. I cannot sleep at all. ALso taking Remeron (which revs up the adrenaline and noradrenaline) and Klonopin at bedtime to sleep. I wonder if this is why I don't have breathing issues at night because one counteracts the other. I also took a 1/4 of a Mestinon tablet yesterday because previously my breathing was better, I could not breathe!!! I almost had to go to emergency. Any similar situations?

Does anyone have this? When I am walking around my oxygen is at 98%, but when I sit down and relax my pulsox goes to about 92%. I've had pulmonary tests and still am OK, but sometimes, I will just be sitting and my heart will start racing for no reason. I am on Klonopin to help the fasiculations, but wondering if I wasn't on the Klonopin if my symptoms would be different. Also have terrible insomnia. I cannot sleep at all. ALso taking Remeron (which revs up the adrenaline and noradrenaline) and Klonopin at bedtime to sleep. I wonder if this is why I don't have breathing issues at night because one counteracts the other. I also took a 1/4 of a Mestinon tablet yesterday because previously my breathing was better, I could not breathe!!! I almost had to go to emergency. Any similar situations?

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I bet you are right about the meds counteracting each other! I don't know that much about all the meds and oxygen yet. My Mom is 79 and was just diagnosed with ALS last year! I jsut wanted to say I care. An hello to you!!

Pam

Hows your breathing going?

pferg