I have recently been diagnosis with this rare disease. Is anyone else dealing with this? How long have you had this and what are you doing if anything?

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My 21 year old daughter has just been diagnosed with myelofibrosis! Needless to say we are worried, but there seems to be some hope held out with both bone marrow transplants and cor cell therapy. Although the doctor who made the diagnosis is a little less than optomistic. He has offered her 5-10 years with therapy! Would love to hear how you are coping and if you have heard of any other therapy that shows promise.