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bluey25
03-30-2005, 01:27 PM
Does anyone know anybody with this condition?
Is so please let me know as I wish to communicate with people who have the same disability as myself.
Thankyou
Janet :wave:

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charli1971
02-24-2007, 10:57 PM
Yes, my son has this condition. I would really like to chat with you about it. He has a Trach and a feeding tube. He only been eating orally for a little over a year and he will be four in october.





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