Hi,

Has anyone ever heard of this disease?

thanks

Kitty

Yes, my husband has it. He was just diagnosed today by the hematologist. His platelets are low, but for now he is not being given anything. They are testing his blood every 2 weeks for the next couple months. Then I dont know what the Dr. plans to do. Very confusing and he really didnt tell us much except to say he was at the Good? end of it. Need to find out more as its all new to me and kinda scary. Good luck to you! I will check back here again. God Bless!