i have two blood clots, one in each leg. i was wondering anyone out there has them and what do they do.

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Hello Robram, Sorry about your blood clots, they can
be a pain. I have had Thrombosis (blood clots)in both
legs, also blood clots on the lungs.In my case, for
the legs I was made to have complete bed rest and then
I was prescribed Warfarin, the doses can be from
10-3 milli gram per day, this is ajusted depending on
a INR blood test, these were taken every alternate day
initially, but soon settled down to weekly, and then
alternate weeks. Regarding the blood clots on the lung,
I was admitted to Hospital for tests etc. and was
prescribed Heparin injections into the abdomen, these
lasted for 10 days. After a short time things settled
back to normal. Trusting this may be of interest, but
if you wish to discuss it further, then please contact
me. Regards, Cedric.

cedric; thanks for the reply, just wondering if you still have the clots. i will always have mine i believe, i take warfarin 10mgs daily with blood test each month. i had a near death experience and that was one of the problems left behind. rob

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I have also had blood clots in the leg and also blocked arteries caused by lupus anticoagulant syndrome.I was given fragmin injections for a while then switched to coumadine.Ending up having bypass surgery in my leg.Hope you were diagnosed early.I was misdiagnosed for a long time.I have rheumatoid arthritis and dr's were blaming that for my pain!!Pretty scary when they tell you it is a blood clot.Hope they have found a cause for you so you can do some preventive medicine.

HI
I have had PVD for going on 7 years now and have had over 200 blood clots in my leg (r), had heart attack, arterial bypass surgery, hysterectomy, 2 strokes, angioplasty in my right leg and all this due to an unknown disease called peripheral vascular disease. How I contacted it is anyones guess. All I know is that it has damaged my body and organs so much because of the clotting that when they opened my jup to do the artial bypass they doctors were amazed to see I have the organs of a 80 year old woman and have given me 4 years to live. I am only 38. I have since went on disibility because I can't stand nor sit for prolonged periods of time due to formations of blood clots. I am on Coumadin and have PT/INRs done every week. I have to have my INRs at a 3.0 - 3.5 or I am in danger of getting a clot. We should start a support system for people that suffer from this disease. Not many people do and I was sure surprised to see this suobject on the message board. To anyone out there that has further info on what their docs have found out about the disease, contact me, I would love to hear from you. Love, life and prosperity.

Robram, are you seeing a hemotologist for your clots? I too have had thrombo-phlebitis (clots) in my legs, due to a clotting disorder called Anti-thrombin 3 deficiency. It doesn't sound right to me that you will always have these clots. If they cannot be dissolved with blood thinners, then has the doctor mentioned surgical removal? Leaving them there is not only very painful, it's dangerous. If a clot dislodges and travels to your lungs or heart, you are in serious trouble. If you're not seeing a hemotologist yet, think about doing so soon.

natchr, my primary doctor is taking care of it and i get blood drawn each month and take coumadin 10mags a day. in ask him if i could see a hemotologist and it said it wasn"t necesaary even though i thought i should. rob

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I have terminal cancer and blood clots have developed since my last round of chemo and radiation. I also have lymphodema and a severely swollen arm. Anyone familiar with a connection? My INR was 4.5 this week and my GP is not concerned, yet everything I read says over 4.0 is dangerous. Any advice? My oncologist was upset when it was 3.5.

Just to relate my experiences. I have had blood clots in my legs 3 times, all 3 times they moved to my lungs. After the 3rd time I worked with a hemotologist who found that I am protein c deficent. Since then (about 9yrs now) I have been on daily coumadin, I have also had a Greenfield filter put in to lessen the chance of any clots making it to my lungs again. I have had numerous surgeries from minor out patient stuff to having a quad by-pass a year ago. No problems. I take my meds daily, watch my diet (don't overdo the leafy greens) take only tylenol based over the counter drugs and have my blood tested regularly. My cardiologist has me taking not only my coumadin but also Plavax, a 81mg asprin a day, and drinking 1-2 glasses of wine a day. I have had a couple of nasties, like slicing my finger in the food processor that required stitches because of my bleeding but nothing grave. All in all I live a very normal life.
I do think that you need to get further councel on your condition. I agree with one of the other posts, that you should not have these clots forever. If they do not disolve with medications, they can usually do surgery to remove them. Also there are so many different clotting disorders, most of which are not found in routine blood tests, that a work up by a hemotologist is probably a good idea - if for nothing more then your own peace of mind.
Good luck, don't let this change your life too awful much if you can help it - and let me know if I can give you any more info!

hi i was wondering how they put in the greenfield filter? i have fvl, on coumidine 6 mgs daily, had numerous clots in left leg, never any where else that i know of, embolism times 3, now feel like i have a clot in my right leg, monitorig it but my gp said the filter might be next, any complications due to it? any info would be welcome. betty

Originally posted by robram4:
natchr, my primary doctor is taking care of it and i get blood drawn each month and take coumadin 10mags a day. in ask him if i could see a hemotologist and it said it wasn"t necesaary even though i thought i should. rob


Whoa...you should DEFINITELY be seeing a hematologist!!! PVD isn't an unknown disease--it's actually pretty common! Do you smoke at all? Is there any history of PVD in your family?

Anyway, aside from that, insist that you get referred to a hemo.

i got my bloodclots from being in the hospital for 3 months recovering from ARDS and nearly died. i am up to 12 mgs now and along with my other medical problems enjoying life the best i can. rob

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