Okay, here is my list of symptoms:
-Hypotension
-Skin discoloration (brown blotches of pigmentation on arms, feet, hands, and a little bit on my neck)
-Daily migraines
-Unexplainable, sporadic muscle soarness
-I also have Hashimoto's thyroiditis

I seriously need help/advice. My symptoms are getting worse, and I've had two cortrosyn stimulation tests, and my doctor checked my coritsol and thyorid levels and said everything is normal. I really don't know what to think! I can't continue like this. How can I have symptoms, but not the disease? Any advice is greatly appreciated.
Thanks,
Natalie

If you have the ranges for your thyroid test, and the results.. I'd recommend posting them over on the thyroid board. They might be normal, but not ideal. Especially if you already have hashi's.

Hi Natalie,

If you've done some reading on these boards, you'll know you're not alone!! Many people are told they are "normal" after test results, but experience symptoms that directly impact their day-to-day functioning (myself included).

A book that I've found helpful (that was recommended by someone on this site) is 'Adrenal Fatigue - The 21st Century Stress Syndrome' by James Wilson. I've also found naturopathic medicine to be more helpful than 'traditional medicine' at this point. The naturopaths seem to acknowledge the varying degress of normal in testing and treat the symptoms despite test results. Regular MDs seem trained only to acknowledge abnormal tests, which often only show up if you've already developed the extremes (i.e. Cushing's or Addison's with the adrenals) when it comes to the endocrine systems.

All I can say is that I've been where you are. The levels of frustration and helplessness you're experiencing can be overwhelming, especially when you feel your concerns are not being properly acknowledged by the health care professionals you've always believed in and trusted. Just remember you are the ONLY person who knows your body and if you feel things aren't right, keep seeking answers. It's your life. MDs are people too...they don't know everything and are capable of making mistakes!!

Take care,
HB

You have no idea how much you've helped me. It's nice knowing someone believes me, and understands what I'm going through. In fact, I just called my mom--the only person that truely believes there is something wrong with my health. (I'm only 18, by the way) and she said that she is going to find me another endocrinologist. I'll definitely go get that book that you recommended, HB. And I'll try and get a hold of my endocrinologists office and see if I can have a copy of my test results. Thanks again, for your advice. It's greatly appreciated.

Hi,

Glad I could help! You're definitely not alone in your struggles. I also came to this board looking for help when I was experiencing crazy, life-altering symptoms, but not obtaining concrete answers from health care providers. In fact, one MD told me I was experiencing an anxiety disorder and had me trial meds (unsuccessfully) before she finally ordered a CT scan of my abdomen and they found an adrenal adenoma. But, believe it or not, I had that diagnosis nearly 4 months ago and am only JUST getting in to see an endocrinologist this week!! I was referred to a surgeon (because my GP thought it was a straight forward case where the adenoma should be removed), but the surgeon ran 2 tests, which came back "normal" and decided not to offer surgery "at this time." And that was it...he sent me back to the GP.

I am also young, 25 years old, and had to take a 3 month medical leave of absence from work because I was so tired, experienced severe headaches and insomnia, developed tremors, etc. It's incredibly frustrating to be experiencing medical difficulties and not be heard by the medical system. That's what lead me down the road of naturopathic medicine and helped me reduce some of my symptoms (a lot of the advice the naturopath gave me is in that book I recommended). I'm not sure where you're from, but I know some people on this board have mentioned osteopaths as being helpful with endocrine disorders. I live in Canada and osteopaths here don't deal with that kind of stuff, so you may have to do some research where you live.

Good luck with your search for a solution. Try to keep your spirits up and be confident in your ability to understand/listen to your own body. I'm glad your Mom is supportive and helping you through this stressful time!!

Keep us posted!
HB