I have a rare bone disorder called Made Lung's deformity. I have had 3 operations to try to correct it.Does anyone know exactly how rare this disorder is? From what i hear its becoming more common. My forearms are shortened and my growth was stunted. I stopped growing at 10 and i will be 23. I know its genetic affecting mostly females.But thats all i really know. I have had 2 ulna redictions and a metal plate put in to stop the growth.Then 3 years later i had to have the metal plate taken out because of rejection. If you have any info please respond.
thanks ang