I can't believe this board hasn't had more postings. Doesn't anyone out there have any questions/suggestions/complaints?
I have been taking care of my husband before and after his transplant, plus he had been taking care of me because of FMS. Sometimes I just feel so worn out and not sure which way to go. Anyone else ever feel that way?

I am a caregiver to my husband who has PD and Dementia. I had posted for some time to the other message board, and noticed today, that it was still being used. I had a problem getting on this board(my fault)and almost gave up. Maybe others will be along shortly. I know what you mean by being tired. My husband is still ambulatory, but very unsteady. He has lots of confusion, and lots of falls. I do not have any help, either, and know how to relate about being tired. I have learned to let a lot of things around the house to go unattended. I found I can't do it all. Our children are in different states, so no help there, either.
Betty D.

I am new to this message board as well as new to caregiving. I am looking for support and encouragement as I begin this new phase in my life.
I am currently caring for my mother in law. We took her out of a convalescent hospital and brought her into our home 3 weeks ago. There is no doubt that was the right choice for her as well as us. Her mental status has improved remarkably since being back within a home environment. For us the stress of not having to travel 110 miles to the convalescent hospital and the constant worry about how she was being or not being cared for has been relieved.
I would appreciate hearing some advice on how I can help mom cope with having to give up her independence. It was just 2 short months ago that she was living alone in her own home and taking care of things herself. Now that is all lost to her and it appears that there will be no hope of gaining it back again. I want to make this transistion as easy as possible for her. It is difficult for me to know what to say to her at times. She feels like she is such a burden to us even though we have assured her that is not the case.
I am looking forward to your replies and any support you may have to give. Thank you...

Hi, I'm a caregiver of my husband.He has PD almost 27 years.I'm on the new Parkinsons BB.This is my first time on here.Would you like to try that BB.There are CG's there s
uch as Betty who has posted here.

Googy

I also am my husband caregiver.He is 71 and I am 48. It is hard but I hope and pray alot and get on here I just found the site.

Hi, glad you found this site. I was my m-i-l's caregiver for several years and can tell you from first hand experience that no matter how much you think you must be home with husband 24/7, remember that you need a break off and on. Be sure and find someone to stay with him if needed and take a break. Go window shopping, visit a friend, most anything. Over time your own health will take a turn for the worse, mine did. I learned a lot the hard way and still paying the price many years later.

Hi there- I am Susie, signed in under my hubby's ID, too tired to log out then back in-

I am 38, I have PD and I am caring for my grandma who is 92, and I am very confused as to if she has alz./dementia/ whatever. took her to the doc today, doc didn't give a diagnosis, but wanted to give her Aricept.

Grandma moved in with me last May, when it became too much for me to be running back and forth taking care of her and my family.

I will post again another time, very tired after a long day, but wanted to touch base here. I have been thinking of going to a support group for caregivers, but there really is no time.

Take care all, Susie :D

I also am my husband caregiver.He is 71 and I am 48.Would like help in finding things I can do to help.

Hi - I am new to this board. My husband was injured by his doctor during a surgery. After the surgery he was left a quad - I am his primary caregiver. Since he is a veteran and we have limited funds we do get outside help 28 hours a week. This is a tremendous help because caring for my husband is a tremendous responsibility. I thank the Lord for the help we get. I have learned a lot but I still have trouble dealing with the mindset of the caregivers we have met. Since we have no money we cannot hire someone on our own. And, since my health is poor (I am a cardiac patient) they can not justify paying me for caring for my husband. Yep...I can say that our biggest trial is working with cargivers that turn out to be thieves and liars.