I would like to have contact with those of you who are spouses/caregivers/or significant others of those with Epilepsy.

sue

My father has epilespy. He has had it most of his life. I am not his caregiver. My mother takes care of him. In my limitted knowledge let me know if I can help or answer any of your questions.

Texas

I am in a simular situation. My fiance' was injured at work in 1997, he suffered many major injuries which in turn caused the onset of epilepsy, diabetes, & glaucoma, to name a few.

I am pretty much his sole caregiver, along with the kids (ages 15, 14, & 12) helping out when I need to run to the store.

We went through about 3 1/2 years of real bad seizures before we could get someone to do anything, let alone admit that he was having them. He is on 2 diffrent meds and they are finally under control, for the most part. He had his first one in 10 months the other day, but is doing fine now. Hopefully it will be even longer before the next one.

Hang in there, the whole ordeal can be scary at times, my best advice is to learn as much as you can about epilepsy, keep acurate records of the seizure activity, and anything going on at the time of each episode to see if there is anything that could be contributing to them.

Good Luck...

Rainfeather

Hi Sue

I am the mother of an almost 8 year old daughter who has Lennox Gastaut Syndrome (uncontrollable epilepsy). Courtney suffered severe brain damage at birth due to lack of oxygen. She is spastic quadriplegic cerebral palsy, LGS, CVI, mentally retarded, fed through a gastrostomy tube and non verbal. I would be pleased to have contact with you.

Marilyn
New Zealand

Hi sue my name is heather i have a son that has epilespy he is two yrs old I also am his caregiver and sleepless night person i hate not sleeping I have a 6yr old also and trying to tell him what is going on with his brother is difficult but i think that i am getting there i have not sugar coated anything to him about anything in his entire life
my email address is heatherzangels@aol.com if you need some advice i have been educating myself and family members also if you need more info let me know.

sorry, my wife is BP. She does take anti S meds.
It's a long road but I have news shoes to walk it!